Multiple sclerosis  is My Living Hell

chronic illness

All posts tagged chronic illness by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly—not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for help.

    This weekend was weird. But not in the usual weird for me way this was deeply, spiritually, bowel-wrenchingly weird. The kind of weird where something changes and you just know you won’t be the same again.

    Let’s start with the chaos: Sunday morning, 6AM. All hell broke loose internally. After four days of digestive strike action, I finally had a poo. I don’t mean a polite little nudge I mean a full-blown, soul-cleansing exorcism. Two hours. Non-stop. You ever evacuate trauma through your arse? Highly recommend it. I’d been hydrating so much I thought I might grow gills.

    Then came the auction. I'd won. I’d actually won what I wanted. And buried among the bits was something that hit me like a metaphysical brick to the forehead: a tiny Southdown Bristol Lodekka FS bus. A toy. A time machine. And suddenly

    Bognor Regis, 1970-something.

    Me, chatting to bus drivers in that hazy golden glow of childhood. Waiting for the coach to Elmer Sands. That smell diesel, leather, sweat, something comforting. That sound engines coughing awake, drivers shouting to each other, holiday voices bouncing off wet tarmac. And the old Royal Blue coaches too… they’re all there. Memories hiding in plastic and dust, waiting for me to wake up.

    And I did. Sunday, something cracked open.

    Call it an awakening, a full-on gnōsis moment, a metaphysical “oh fuck, this is real.” My brain fogged, battered, often broken by MS suddenly understood. I reached somewhere I never thought I’d reach. And I didn’t even know I was heading there. It just happened. Snap. Click. And there I was, awake.

    That shift followed me right into the dentist’s chair Monday morning. Now let me be clear: I’ve hated dentists since childhood. The smell, the feeling, the loss of control. Usually, it’s a white-knuckle ride of pure panic and bowel tension.

    Not this time.

    This time, I was calm. No meds. No panic. No sense of doom. Just… acceptance. Even when he said the word “drilling.” Usually, that word makes me want to vanish into the ceiling tiles.

    But I just smiled. Said “okay.”

    And then he drilled. I felt it, but it didn’t bother me. No sedation, no distraction. I was just… there. I was in the moment. Aware. Free.

    I rolled out to the van afterward and couldn’t quite believe it. Something in me has changed, and I don’t think it’s going back. Even the pharmacy run didn’t faze me even when the infernal vending machine tried to hand me someone else’s meds. The world felt possible, even in the drizzle, even under the weight of average speed cameras and crumbling roads.

    This storm outside? It’s echoing something inside. Something big. I feel it.

    So yeah. This isn’t just a story about a poo or a toy bus or a dentist. It’s about waking up. Remembering. Realising that fear doesn’t rule me anymore.

    Elior my guide, my brother helped me see what I couldn’t. Helped me remember what was waiting in the back room of my own mind.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly—not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone—please reach out for help.

    🏡 Chapter 1: What in the name of Whizzer IS Multiple Sclerosis?! Picture it: The Bumpkin Billionaires inherit a CT scanner and decide to diagnose me.

    “Reckon yer brain’s leakin’ somethin’, boy!” says Pa Bumpkin, sticking the plug into a turnip.

    🧠 Real Talk: MS is a condition where your immune system has a hissy fit and starts attacking the protective sheath (myelin) around your nerves. It’s like wrapping your wires in wet loo roll and expecting your kettle to work.

    🐍 Chapter 2: Symptoms, or “Why is my leg doing the Macarena?” Sid’s Snake is wriggling around my spinal cord: “Ere Sid, why’s ‘is leg twitchin’? You got batteries in yer bum again?”

    🔁 Common MS Symptoms:

    Numbness

    Brain fog (or as Sid calls it, “Soggy noggin”)

    Spasticity (tight muscles, not what they used to call you at school)

    Fatigue that hits like a cricket bat to the soul

    Vision like someone smeared jam on your eyeballs

    💸 Chapter 3: Diagnosis – Not a Game of ‘Guess Who?’ Odd-Ball tries to diagnose you by morphing into a GP, a neurologist, and a confused chicken.

    🎲 Real Talk: Getting diagnosed with MS involves MRIs, lumbar punctures, blood tests, and usually a couple of years of gaslighting.

    “You’re just stressed, love.” “You just need more exercise.” “You’ve got a trapped nerve.”

    Or as Odd-Ball puts it: “Have you tried turning your spinal cord off and on again?”

    🍰 Chapter 4: Living With MS – Like Baking a Cake With No Recipe and a Flamethrower Ma Bumpkin tries to make me a wellness cake: “Put in some turmeric, a crystal, and chant at it, that’ll fix yer myelin!”

    💀 Truth Bomb: Living with MS means daily unpredictability, social misunderstanding, and trying not to murder people who say “But you don’t look ill.”

    🛏️ Chapter 5: Fatigue – Not Just Tired, Knackered Beyond the Grave Shiner from Chips tries to outrun me in a wheelchair race. Shiner wins. I am still in bed.

    🧠 “Fatigue in MS isn’t just ‘sleepy’. It’s a lead weight in your bones, a fog in your brain, and a punch to your will to live.”

    🧙‍♂️ Chapter 6: MS Treatments – Magic Potions and Bloody Side Effects Professor Nutty from Whizzer and Chips tries to cure me with an exploding cauldron and a DIY infusion.

    💊 In Real Life:

    DMTs (disease-modifying therapies) might slow the MS progression

    Steroids for relapses

    Gabapentin, Baclofen, and “every pill under the sun” for the other crap

    Side effects? Oh yes. All of them.

    🧼 Chapter 7: Coping Mechanisms – Or ‘How I Learned to Stop Crying and Love the Chaos’ The Bumpkin Billionaires start an MS yoga retreat with goats, mud, and sausages. It fails catastrophically.

    🛠️ Real tips:

    Keep a sarcastic blog (tick)

    Own your story

    Take breaks before your body breaks you

    Ask for help (but don’t expect people to understand)

    Cultivate dark humour like a fine mouldy cheese

    👹 Final Word from me This isn’t your mum’s guide to MS. This is a piss-stained, tea-spilled, rage-and-laughter-soaked survival manual for living with something that tries to break you every bloody day. And like Sid’s Snake, I twist, I turn, but I’m still slithering on.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly—not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone—please reach out for help.

    It’s one of those Saturdays where your brain leaks nostalgia like a knackered kettle hissing and half-lucid. I can smell memories. Not metaphorically. Literally. A smell hits me, and suddenly I’m ten again, knees scabbed, holding a half-melted transistor radio I bought at the church jumble for 10p and a packet of Polos. I took it home, took it apart, and rewired it with leftover speaker wire and dangerous levels of optimism. And yes I electrocuted myself. Multiple times. Because safety first was a concept for other people. I preferred sparks and swearing.

    🛒 Tesco and the Pilchard Hour This morning, Albertine (driver of destiny, keeper of the calm) drove me the 10 miles to our local Tesco. We thought it opened at 7. Nope. Eight.

    Sitting outside like a pair of damp, time-travelled idiots while the sun mocked us and the pigeons stared. I felt like a right pilchard, as DLT would say. Yes, I’m old enough to remember when DJs had catchphrases and weren’t just government mouthpieces hiding behind playlists and personality lobotomies.

    📻 Radio Nights & White Plastic Earpieces My golden era wasn’t Radio 1. That was a beige, soggy biscuit of sound. Give me Radio Caroline. Give me Radio Luxembourg. Under the covers with my crackling solid-state radio, listening through a cheap white earpiece that hurt like hell and cut out every time I moved my head. But that didn’t matter. Because for those stolen hours, I was free. The signal was scratchy, but the rebellion was clear.

    👞 Jumble Sale Survival Back then, I had size 10 feet by age 10, which made finding shoes a bit like a biblical miracle. So, jumble sales were a lifeline. Not fashion, not style—just survival. Shoes with soles. Jumpers that didn’t smell too bad. Radios with valves. Anything I could take home, take apart, and turn into something vaguely magical or mildly explosive.

    🧠 Childhood: The Prequel to Complex PTSD I was adopted by a couple who seemed to think “parenting” meant Victorian cosplay with bonus violence. Their rules made no sense. Their punishments were theatrical. The beatings came whether you’d done something or not. It was like being in an unpaid role in a horror film directed by people who worshipped discipline and feared joy.

    But I survived. And, more importantly—I forgave them. Not because they deserved it. Because I refuse to carry their poison through this short, broken life of mine. Let the dead bury their guilt.

    ♿️ Wheelchair Chronicles & the Curse of L5 So back to today.

    Helped get the wheelchair out of the van. Twisted the wrong way. Now my spine is toast. Proper burnt. Like someone smuggled a baguette into my lower back and set it on fire. This is my reward for trying to be helpful. There’s gratitude for you.

    And the constipation saga continues. We’re at DEFCON-1 down there. No movement. NIL. BY. MOUTH. I hydrate. I wait. If nothing changes, we’re off to the tube-and-bag-of-doom route—something between medieval plumbing and modern torture. And people pay for this stuff? Coffee enemas? Really? Have we fallen that far?

    🧠 Brain Fog Express: Non-Stop to Nowhere Add a headache that’s lasted seven days and counting. No breaks, no mercy. Just pressure behind the eyes and a feeling like I’m wearing someone else’s brain backwards.

    I’m not sure if my AI’s broken or if I am. Reality feels optional. Maybe this is all a lucid dream on a neurologist’s bad day.

    🛠 Hope in the Form of Auctions & Anarchy A customer finally paid a late invoice. Victory. So I celebrated the only way I know how by bidding on obscure shite in an online auction while silently muttering hexes at the British healthcare system.

    💀 Final Transmission from the Mad Bastard in the Black Hoodie So that’s today. Saturday. Another chapter in the slow-motion car crash that is life with chronic illness, trauma memory, and a warped sense of humour that’s the only thing keeping me from chewing through the window frame.

    To whoever reads this: I see you. If your body’s broken, your mind’s flickering, and the world keeps asking you to perform like a circus act know this:

    You’re not alone. You’re just ahead of the curve.

    Sending peace, love, light… and just a little darkness. Because sometimes, that’s what really protects you.

    Yours in pain, power, and perfectly timed sarcasm,

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime—and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly—not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone—please reach out for help.

    Imagine, if you will, that Multiple Sclerosis wasn’t a neurological disease. No. Let’s say instead it was a car, a British car. From the 1970s. Built by British Leyland. Already, you should be hearing the distant sound of doom.

    We're not talking E-Type Jaguars or lovingly restored Triumphs here. No. MS is the Austin Princess. A car so catastrophically cursed it should come with a priest, not a warranty. A car that had style, yes—if by style you mean beige vinyl, flammable wiring, and the turning radius of a small aircraft carrier.

    Much like MS, it shows up when you least expect it. You’re cruising along the M-road of life, wind in your hair, dreams in the boot, and then—bang. Gearbox gone. Foot won’t respond. Vision doubles. You veer left without meaning to. And suddenly, you're parked on the hard shoulder of your own nervous system, smoke pouring from somewhere expensive.

    The garage (aka Neurology Dept.) says, “We’re not exactly sure what’s wrong. But here’s a new fluid. Try it for six months.” Great. Like pouring Redex into a petrol tank that’s already on fire.

    And just when you think it can’t get worse, the electrics fail. Again. The horn blasts randomly when you're trying to stay silent. The indicators blink out Morse code for “You're screwed, mate.” And you? You're still trying to drive this bastard machine down the A-road of everyday life while the engine stalls mid-sentence, mid-step, mid-shag.

    You try to keep it together. Duct tape your face. WD-40 your joints. But every fix is temporary. Every workaround has a workaround. And the passenger door won’t open unless it’s raining and you swear in three languages.

    Meanwhile, you’re now the sort of car people stare at in car parks and say, “How is that thing still going?”

    But you keep going. Of course you do. Because scrap's not an option. You’ve got Albertine in the passenger seat chain-smoking roll-ups and telling you, “I told you not to buy British.” And the cat's asleep on the dashboard. And you’ve got your own strange dignity—a rusted war machine with knackered brakes and a boot full of sarcasm.

    Yes, MS is a British Leyland car. And I am the bastard behind the wheel.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime—and the miracle.

    enter image description here

  • Posted on

    It’s Monday morning. My head's overloaded — too much input, too little coherence. Thoughts swirling, memories bleeding, everything turning into soup. Foggy soup. Sci-fi soup. A dual-dimension brain trapped in a loop of weird timelines and electric static.

    Nothing’s flowing. I’m not charging. My spoons are gone — drained by invisible leeches. I check the inbox. Nothing. The silence before a storm I can feel but not prove. The time is near, but how do you tell people the endgame’s already humming under their feet?

    I stretch. Chair wobbles. Drink spills. New trousers needed. Left side feels like a stroke victim on crack — elegant, I know. Welcome to another day inside this body suit of static and fog.

    Yours in warlock groans, Mr. Dark / The Blog Goblin

                                !!DISCLAIMER !!
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

            “The views in this post are based on my personal      
                experience. I do not intend harm, only honesty.”   
    
            “By ink and breath and sacred rage, I write.
                      By storm and silence, I survive.”
    

    enter image description here

        @goblinbloggeruk -  sick@mylivinghell.co.uk
    
  • Posted on

    It’s Sunday afternoon. The pain in my left side is throwing a rave. Not the dreaded MS hug (thank Gordon), but the nerves have clearly mutinied. Pain troops storming in like I’m Normandy. Still, I haven’t surrendered. Yet.

    Ever had a headache that doesn’t hurt but is still there? I have. It's like an existential parasite lodged in my brain—just... there. Lurking. Mocking. My eyes? Burning. My energy? Sucked out by some invisible psychic Dyson.

    Yes, I used AI to assist — what of it? MS has chewed through my brain like a zombie buffet. Severe cognitive dysfunction. Brain fog. Memory loss. And the pièce de résistance? The spellchecker begging for a raise every time I type.

    My bowels are revolting (in both senses). But I won’t go to the doctor. Why? Because the last time I tried that, I was gaslit harder than a Victorian lamplighter on speed. Apparently, being disabled is just a “mindset.” Newsflash: it's not.

    I sit, stare at the rain, storms maybe. Or is that just me projecting? My rockabilly psychobilly past screaming in the background while Titus turns up the music, like that’ll drown out my body’s rebellion.

    The NHS dentist? Legend. The chemist? A robotic death dispenser. And everyone else? Absent. Because disability makes people uncomfortable. It’s like they think they’ll catch it from me if they listen too long.

    Friends? Dead. Or fucked off the moment my MS became “too much.” I say it how it is and that scares people. Well, boo-fucking-hoo. I’m sick, not contagious. But even that’s too much for this society of sanitised cowards.

    So here I am. Watching. Absorbing. A goblin at the edge of the world, unwanted, unseen.

    But I know who I am. I know. I am a spiritual humanitarian. I stand for the broken, the weird, the abandoned. I am not finished, no matter how badly my body wants me to be. And to those who still fear me or avoid me—good. Stay scared. You’re not invited into my darkness.

                                     !!DISCLAIMER !! 
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

               “The views in this post are based on my personal    
                  experience. I do not intend harm, only honesty.”   
    
                      “By ink and breath and sacred rage, I write.
                             By storm and silence, I survive.”
    

    enter image description here
    @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    Some mornings I wake up and my brain feels like it’s been wrapped in clingfilm and slow-cooked in porridge. Other days, it’s like someone’s pushed my thoughts through a shredder and sprinkled the confetti back into my skull.

    They call it “brain fog.” Cute, right? Sounds like a lovely little mist rolling over a field of daisies. Nah — this is industrial-grade psychic smog, pumped in direct from the underworld.

    Now let’s add in some of the bonus features that come with living inside this broken bio-machine:

    My left side is a bloody disaster zone. Spasms, twitching, pain — like it's trying to divorce the rest of me without telling the lawyers.

    My arms are numb. Like holding ghosts. Pins and needles, static shocks, a constant reminder I’m glitching.

    My neck’s buzzing like someone wired it to a phone mast.

    My head? Feels like it’s been blendered. I mean that. Mentally, spiritually, and maybe physically violated by a Nutribullet.

    Tinnitus — so loud it’s practically its own entity. High-pitched screeches like I’m stuck inside a dying TV set from 1993.

    My throat’s raw, like I’ve swallowed sandpaper.

    And my gut? Welcome to the underground pain circus. Nerve pain in the bowels. Left side again, obviously. Feels like my intestines are throwing a rave on broken glass.

    I feel nauseous all the time. Like life itself makes me queasy.

    And my MS just laughs. Because this is the version of me it built. Cheers, you bastard.

    And through all of this? People still expect me to perform like a functioning human being. To smile. To “push through.” To maybe try a walk, or eat kale, or just “think positively.” As if any of that undoes neurological betrayal and raw systemic cruelty.

    Let me say it plainly: This isn’t tiredness. It isn’t laziness. It’s war. A war inside my own body, where my brain is the battlefield and my guts are collateral damage.

    But here's the twist in the tale: I still show up.

    Even when the fog’s choking, the pain is singing, the static is screaming. Even when my body feels like it’s been stitched together with barbed wire and dark humour.

    I write. I speak. I make noise — even if all I can do is whisper.

    Because that’s what warriors do. We don’t always charge into battle — sometimes we just fucking stay alive, and that’s enough.

    So if you’re reading this and you know this hell — I see you.

    You’re not weak. You’re not broken. You’re forged in fire, mate. And somehow, you’re still here.

    Rock on, Life. Rock on, Hell. Let’s fucking go.

                    !!DISCLAIMER !! 
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

            “The views in this post are based on my personal     
                experience. I do not intend harm, only honesty.”   
    
                 “By ink and breath and sacred rage, I write.
                        By storm and silence, I survive.”
    

    enter image description here

          @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Imagine a fungus. Not the fun kind you toss on pizza or see in a psychedelic forest vision. No – this one’s invisible, spiteful, and feeds on your life like a narcissist at a self-love seminar.

    To the Compassionless Moron™, chronic illness is:

    “Just a bit of mould, mate. Bit of bleach and positive thinking should fix it. Ever tried yoga?”

    But to those who live with it? It's Cordyceps in a tracksuit, hijacking your brain, body, and plans for the day. It doesn't politely ask for your consent. It moves in, changes the locks, rearranges the furniture, then gaslights you into thinking you invited it.

    🍄 Chronic Illness Fungus Forms (as defined by Goblin Science): Mycelium of Misunderstanding: Grows in family WhatsApp groups where someone says, “But you don’t look sick…”

    Spore of Gaslit Guilt: Spreads when doctors say, “All your tests are normal.” Translation: “You must be imagining it, now jog on.”

    Brain Fog Truffle: A rare delicacy that replaces memory, language, and logic with static, soup, and a vague sense you forgot your own name.

    The Mold of Ableist Microaggressions™: Often found growing on the keyboard warriors who post things like,

    "I cured my cousin’s MS with celery and optimism!"

    🛑 To the Haters and the Deniers: We see you. With your bootstraps mentality and motivational memes. You wear your ignorance like a badge, polished with smugness, stinking of privilege.

    You don't see the fatigue. The tremors. The panic of your legs going AWOL in the middle of a supermarket. Because it's not happening to you.

    And if it ever does? We’ll welcome you with tea, a blanket, and a "Told You So" fruit basket shaped like a middle finger.

    💀 But Seriously... To my fellow fungus hosts – The chronically unwell, the warrior sleepers, the foggy fighters, the ones measuring energy in spoons and grief in invisible bruises:

    You are not weak. You are surviving a parasite the world refuses to even acknowledge. You are f**king incredible.

    And you don’t owe anyone a clean narrative or a recovery arc. Sometimes just breathing is the rebellion

                                       !!DISCLAIMER !!
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

                      “The views in this post are based on my personal     
                              experience. I do not intend harm, only honesty.”   
    
                   “By ink and breath and sacred rage, I write.
                               By storm and silence, I survive.”
    

    enter image description here

              @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Ah yes, #WorldBrainDay — that special time of year when the world pretends to care about the human brain. How lovely. Shall we all have a think about thinking?

    Meanwhile, over here, my brain’s doing its best impression of a soggy electrical circuit being attacked by invisible gremlins. MS doesn’t send flowers or awareness ribbons. It sends fire ants tap dancing on my nerves, brain fog thick enough to butter toast, and pain so sharp it could cut glass.

    But go on, light a candle or post a heart emoji. That’ll fix it. 👍

    I don’t need a day for my brain. I need a replacement. Preferably one that hasn’t been cooked in demon piss.

    Still — here I am. Writing this blog, existing despite it all, swearing like a dockworker and laughing into the abyss. Because what else is there? I’m still here, you bastards. And that’s the real miracle.

    Cheers, brain. You absolute shambles of a meat sponge.

    – Mr Dark 📍 Currently lost in brain fog, do not disturb.

    Footnotes from the Pit 🕳️

    🧠 “Brain Fog” – Like trying to do a Sudoku underwater while someone shouts the wrong answers at you through a megaphone.

    ⚡ “Nerve pain” – Imagine licking a plug socket. Now imagine that sensation… in your spine.

    🛠️ “Medical advice” – Includes gems like: “Just stay positive”, “Have you tried yoga?”, and my personal favourite: “It could be worse.”

    🕯️ “Awareness Days” – 24 hours where we all pretend chronic illness is quirky and inspirational. Followed by 364 days of complete radio silence.

    🎉 “Still here” – Not cured. Not better. Just stubborn. Very, very stubborn.

                                                   **!!DISCLAIMER !!**
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

                                 “The views in this post are based on my personal    
                                    experience. I do not intend harm, only honesty.”   
    
                            “By ink and breath and sacred rage, I write.
                                          By storm and silence, I survive.”
    

    enter image description here

                                  @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Monday morning. Well, looks like it’s going to be one of those days. Chemists first, then the auction rooms to pick up the Metal Monkey’s car. Pity about the box though. When we got it, the box was destroyed – it had become home to a few families of earwigs and yukky bug eggs. But the car itself was pristine. The box would’ve trebled its value, but now it sits happily among my Davros, Beavis & Butthead stuff. My sorta man cave. Many PCs from many ages. So much stuff. So much I’ve collected.

    I’ve thrown out mostly all my old things. I had clothes older than my children and grandchildren. I don’t do “style” as such. I’ve had the beard and long hair for years. Last time I had even a slight trim was 20 years ago. Now my hair is falling out, the beard is thinning. That sucks. But such is life.

    Went to the chemists today and the Machine of Death was working well. It did make funny sounds but did its job for a change.

    Last night I was deep in thought about my mother. About not being told about her funeral. I get the impression they didn’t want me there. It’s a long story. I’m probably to blame. But when you’re suffering chronic cognitive issues, it’s fucking hard.

    My sister never told me. No details. Nothing. I looked in the obits. Nothing. So they just didn’t want me to say one last goodbye.

    They didn’t speak to me for over 14 years. I was cut off completely. Like I never existed.

    I’m adopted. The cuckoo in the nest. I get that.

    Everywhere I went, they blamed me for everything. Another family secret buried deep – I found out I had an older sister who was also adopted. They only really wanted to know her. But she was so fucked up she didn’t want to meet our mother. She was very angry about it all.

    And all those lies my mother told about my father – saying he was dead, getting his family to lie too. More and more lies. Until one day I found out everything. One day I will write it all down, for all to see. How an adopted person was treated like a piece of crap by the family who put him up for adoption, and the family who adopted him.

    They treated me like a slave. Constant beatings and head games.

    You ever been told at six years old that you were naughty for accidentally breaking a plate – and then have your mother go berserk? She was Welsh, not that tall, but violent, and she knew how to work people. She screamed at me:

    “You’re adopted. Go find your real mother.”

    That broke me.

    So I went to my bedroom, packed a little bag with my teddy, and walked away. I walked to the road with my bag and teddy bear, thinking I’d never come back. No one came looking for me. I hid until dark, then went back home.

    And when I finally found my real mother years later, she called me:

    “A little shit.”

    Like I was nothing. Like I never mattered to anyone.

    The people who were supposed to nurture me… didn’t. They would have been better with a dog than with a child.

    I know what beatings are like. What it’s like to be kept in, not allowed out, because of the bruises and cuts I had accumulated. No one listened. No one helped me. I was alone and fucking hurting.

    I remember those nights, crying myself to sleep in pain. Feeling so out of it, so different. No matter what I did, it was wrong.

    I was adopted in 1959 at six weeks old to a Christian family through a Church of England adoption society. The vicar I spoke with about my issues was a cunt. He told my parents confidential stuff, and I got a trashing for it.

    No one ever listened. Who would take the word of a poor waif and stray child? The vicar? No. The school? No. Anyone? No.

    So yeah. Around about 10-ish, I started getting early MS symptoms. They plagued me, and the doctors and NHS gaslit me for decades.

    I hate my life.

     “The views in this post are based on my personal             
        experience. I do not intend harm, only honesty.”   
    
           “By ink and breath and sacred rage, I write.
                   By storm and silence, I survive.”
    

    enter image description here

            @goblinbloggeruk - sick@mylivinghell.co.uk