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⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.
Well, it’s another Saturday. Or is it Wednesday? Could be 2017 for all I know – time stopped making sense around the fifth episode of brain fog this morning. The weekend’s here, apparently, and so am I. Unfortunately.
Picture this: I’m sitting here, staring at my endless to-do list, so knackered my spoons have buggered off and left a note saying, “Back in a decade, maybe.” Energy: zero. Motivation: less than zero. The only thing working properly is my ability to screw things up and get it all wrong, which, let’s be honest, I’ve always excelled at.
Sometimes I think the best option is just to switch myself off and power down for a few weeks, like a dodgy PC. Not because I’m dramatic (okay, a bit), but because MS reality is like living in permanent airplane mode – you’re still technically on, but none of the good stuff’s working.
The fog in my head’s so thick, I need a lighthouse to find my cup of tea. My eyes are so light-sensitive, I’m basically a reverse vampire, and my hearing is putting on a pantomime of its own. Tinnitus is mercifully on its lunch break, but the vagus nerve is still auditioning for Cirque du Soleil: pins, needles, left jaw spasms, the works. My hands and feet are staging a static electricity rebellion.
It’s funny how time just morphs from one week to another, and then into another year, another decade. Memory? Gone. Smells trigger more nostalgia than actual memories now, which is probably for the best. Who wants to remember the good old days anyway? They probably weren’t that good, I just had more spoons.
Honestly, I haven’t felt this rough since Thatcher was on the telly and petrol was a quid. For me, Christmas is just more days blending into more days, full of pain, unreality, and brain malfunction. But hey, happy holidays to the rest of you – may your synapses fire as intended and your spoons stay polished.
Sending peace, healing, love, and light to everyone, regardless of your state of mental decay. Don’t hold your breath for a blog post – I’m working on the “spoken blog” tech, but brain fog has other ideas. Maybe by next Christmas I’ll have it sorted. Or maybe I’ll forget I ever started. Who knows? Not me.
Cheers.
If AI could recommend a solution, it would say: “Have you tried turning yourself off and on again?” Sadly, I’m stuck on a loop, but if anyone invents a reboot button for MS, I’ll be first in the queue. Until then, it’s just me, my spoons (missing in action), and the eternal question: “What day is it again?”
Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)




