Multiple sclerosis  is My Living Hell

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All posts tagged healthcenter by Multiple sclerosis is My Living Hell
  • Posted on

    So I’ve been thinking — I know, shocking — but let's face it, MS really does blow chunks.

    You walk into a doctor’s surgery, tell them what's going on, and they're glued to their computer screen like they're checking the footie scores or writing a memoir. You wait for the questions, but it’s just nodding. Half-arsed. Then they look up at you like you’re the inconvenience.

    Let me paint the scene:

    I rock up in my wheelchair, scraping the doorframe because apparently, accessibility is still a mythical concept in parts of the UK. It’s one of those surgeries that's older than most of the patients — falling apart, steeped in the smell of wet plaster and resignation. I apologise for the door. It's that bad.

    I wheel in and the doc looks at me like I’ve just insulted his nan. I’ve found that neurologists in particular have a real flair for hating me — probably because I ask awkward questions that don’t come with a neat textbook answer. Their reaction? Condescension, mostly. “This is how you should feel,” they say. Oh, should I? How enlightening.

    To be honest, I didn’t want to be there. Waste. Of. Time.

    I’m sitting there trying not to blow a fuse while they judge me like I’m auditioning for Britain’s Got Neurological Issues. These days, though, I’m lucky. I moved. New docs. Better vibes. Now I hand over a list — symptoms, patterns, the works. I sit back and let them squirm.

    Still, I suffer from white coat syndrome so I’m already stressed the moment I see the antiseptic blue of NHS decor. But hey, the list helps. Unless you get that one GP who glances at your entire medical history like it’s a Wikipedia article they can’t be arsed to read.

    Everything, apparently, is caused by MS. I could sprout a second head and they’d say “Ah yes, classic MS.”

    So what have I learned?

    Being me — unapologetically, sarcastically, chronically ill me — is actually kinda liberating. I say it like it is (within reason… ish). I watch the world spin, watch my life fade out into this mad oblivion — and I keep fighting, whether it’s through brain fog, pain, or a poorly designed doorway.

    I’m sick as fuck, but such is life. And I’ll keep going — until my last breath or brain cell. Whichever taps out first.

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

              “The views in this post are based on my personal  
               experience. I do not intend harm, only honesty.”  
    
               “By ink and breath and sacred rage, I write.
                             By storm and silence, I survive.”
    

    enter image description here "MS blows chunks. I keep fighting."

  • Posted on

    A very good morning from the slightly crispy edge of reality.

    It’s early, the sun’s already threatening to scorch us into lizards, and I’m camped in front of the fridge like it’s a portal to Narnia—except Narnia’s got central air. The tinnitus is humming away like some deranged synthwave backing track, and I’m contemplating whether I dare mount my three-wheeled Scooter of Death for the weekly pilgrimage to the chemist.

    Yes, the chemist. That temple of modern medicine where, thanks to the miracle of automation, I once again got someone else’s prescription. I swear, it’s like a game show:

    “Step right up and spin the magical dispensing machine! Today’s lucky contestant wins… Sertraline!”

    Antidepressants. Brilliant. Just what someone with multiple sclerosis needs to top off the cocktail. Meanwhile, someone out there is probably wondering what the hell carbamazepine is and why their depression suddenly feels like a seizure.

    Dr. Fist and the Dental Apocalypse

    As if that weren’t enough chaos for one day, I got a call from my dentist—well, former dentist. He’s out of action with a broken fist. Yes, a broken fist. I didn’t ask. I daren’t ask. My imagination’s already taken that one to some very questionable places. Possibly involving a disgruntled patient or a bar stool.

    So now I’m off to meet a new dentist. Let’s hope I don’t draw Dr. Pain, DDS from the horror movie extras department. Probably someone who sharpens their tools on wrought iron fences and thinks anesthesia is for the weak.

    Which is a shame, really, because Dr. Fist (I’m afraid he’ll always be “Dr. Fist” now) was actually the best dentist I’ve ever had. Gentle, non-threatening, and didn’t treat my jaw like a door hinge in need of WD-40. I wish him a speedy recovery—and maybe a good pair of gloves.

    The NHS, Surprisingly… Not Awful?

    In a refreshing twist of fate, I had my first appointment with the new NHS health centre today. Braced myself for the usual bureaucratic disaster—but shocker: the doctor was great.

    Listened. Advised. Seemed human. When you’ve got full-blown White Coat Syndrome, that’s a miracle. For the uninitiated:

    White Coat Syndrome: When your blood pressure hits Olympic pole-vaulting levels simply because you walked into a room with someone in a lab coat. It’s not illness—it’s sheer, uncut medical anxiety.™

    So, small miracle there. I might actually trust this new place. That's not a sentence I say lightly.

    Vape, Clouds, and the Eternal Wait for Sanity Back to the window—clouds are looming, the heat’s easing, and it’s time for my medical cannabis vape and a bit of THC oil. Helps with the pain and the spasms. And also with the absurdity of life, which seems to be running at full volume today.

    Anyway, that’s enough rambling for one morning. If you made it this far, you officially qualify for a biscuit. Possibly two. Rich Tea if you’re feeling ironic.

    Thanks for dropping by.

    Until next time, stay cool, stay sarcastic, and for heaven’s sake—check your meds before you leave the chemist. You never know what flavour of mental health you might accidentally walk out with. Cheers, stay cool, and remember: if the prescription machine gives you methadone next week, try not to start a jazz band.

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

             “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
                  “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”