Multiple sclerosis is My Living Hell

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  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    (A Guide for People Who Are Sick of Medical Bullshit)

    Let’s be honest: if you’re reading this, you probably already suspect the vagus nerve is responsible for half the weird crap your body does and you’re not wrong. The vagus nerve is basically the body’s faulty fibre-optic broadband, running all the way from your brain down through your chest and into your gut, sending messages like a drunk carrier pigeon on a windy day.

    It’s the longest nerve you’ve got, and when it behaves, life ticks along nicely. When it misbehaves? Your whole system goes down like a dodgy second-hand Dell tower from the 90s.

    Here’s the real breakdown the stuff they never explain properly while you’re half-collapsed in A&E, being poked by somebody who can’t pronounce “vagal.”

    The Vagus: The Autopilot Wire

    The vagus nerve runs your parasympathetic nervous system, which is medical jargon for the “calm down, chill out, don’t die” mode. It’s the opposite of fight-or-flight. It’s rest-and-digest. It’s autopilot.

    The problem? When this giant nerve gets irritated, inflamed, or just decides it hates you, it can pull the emergency brake on your entire body with zero warning — which is why vagus-related symptoms always come out of nowhere and hit like a bloody freight train.

    1. Your Heart’s On a Leash

    This nerve tells your heart when to slow down. That’s lovely until it overdoes it.

    Too much vagus activity? Heart rate plummets.

    Cue dizziness, sweating, that “oh, this is it then” feeling, and your blood pressure going on holiday.

    2. It Runs the Gut Literally

    Every vomit, every bowel spasm, every time your stomach has a tantrum the vagus nerve is involved.

    If it’s irritated or under-performing, expect:

    nausea

    diarrhoea

    constipation

    stomach cramps

    digestion that behaves like a toddler with a drum kit

    Basically, it decides whether food moves… or doesn’t.

    3. Blood Pressure: The Vagus Controls the Dimmer Switch

    It works with your baroreceptors (those tiny sensors in your arteries) to keep things steady. When the vagus goes rogue? Blood pressure drops like a stone and you’re left gripping the kitchen counter thinking this is how you die — again.

    4. Breathing

    Calm vagus = slow and steady. Stressed vagus = shallow, panicky little puffs.

    Ever wondered why deep breathing exercises work? They’re literally tugging on the vagus nerve to force it to chill out.

    5. Stress, Panic, the Whole Sensory Meltdown

    The vagus nerve mediates your stress response. When it freaks out, YOU freak out. Even if nothing’s wrong.

    That’s why vagal attacks feel like:

    impending doom

    full-system shutdown

    heart weirdness

    tunnel vision

    sweating

    trembling

    fainting

    sudden need for a toilet you cannot reach in time

    It’s the nerve pulling the plug on itself and everything else.

    6. Why People With MS Get It Worse

    Your wiring’s already compromised. MS damage → hypersensitive nerves → vagus acting like a frayed extension lead.

    So triggers for you can be:

    pain

    heat

    eating

    standing

    lying

    stress

    not enough stress

    random cosmic spite

    Basically: your vagus nerve is a diva.

    7. Why Doctors Don’t Take It Seriously

    Most GPs are trained to see the vagus nerve as “the fainting nerve.” They don’t get that it affects:

    heart rhythm

    gut function

    blood pressure

    breathing

    swallowing

    voice

    inflammation

    fatigue

    neurological flare-ups

    migraines

    seizures

    pain

    It’s involved in almost everything your body does automatically — so when it misfires, it’s bedlam.

    In Plain English

    The vagus nerve is the massive communication cable between your brain and your organs. When it behaves, it keeps you alive. When it glitches, you become a collapsing, sweating, nauseous sack of biological chaos wondering who you upset in a past life.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
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  • Posted on

    A very good morning from the slightly crispy edge of reality.

    It’s early, the sun’s already threatening to scorch us into lizards, and I’m camped in front of the fridge like it’s a portal to Narnia—except Narnia’s got central air. The tinnitus is humming away like some deranged synthwave backing track, and I’m contemplating whether I dare mount my three-wheeled Scooter of Death for the weekly pilgrimage to the chemist.

    Yes, the chemist. That temple of modern medicine where, thanks to the miracle of automation, I once again got someone else’s prescription. I swear, it’s like a game show:

    “Step right up and spin the magical dispensing machine! Today’s lucky contestant wins… Sertraline!”

    Antidepressants. Brilliant. Just what someone with multiple sclerosis needs to top off the cocktail. Meanwhile, someone out there is probably wondering what the hell carbamazepine is and why their depression suddenly feels like a seizure.

    Dr. Fist and the Dental Apocalypse

    As if that weren’t enough chaos for one day, I got a call from my dentist—well, former dentist. He’s out of action with a broken fist. Yes, a broken fist. I didn’t ask. I daren’t ask. My imagination’s already taken that one to some very questionable places. Possibly involving a disgruntled patient or a bar stool.

    So now I’m off to meet a new dentist. Let’s hope I don’t draw Dr. Pain, DDS from the horror movie extras department. Probably someone who sharpens their tools on wrought iron fences and thinks anesthesia is for the weak.

    Which is a shame, really, because Dr. Fist (I’m afraid he’ll always be “Dr. Fist” now) was actually the best dentist I’ve ever had. Gentle, non-threatening, and didn’t treat my jaw like a door hinge in need of WD-40. I wish him a speedy recovery—and maybe a good pair of gloves.

    The NHS, Surprisingly… Not Awful?

    In a refreshing twist of fate, I had my first appointment with the new NHS health centre today. Braced myself for the usual bureaucratic disaster—but shocker: the doctor was great.

    Listened. Advised. Seemed human. When you’ve got full-blown White Coat Syndrome, that’s a miracle. For the uninitiated:

    White Coat Syndrome: When your blood pressure hits Olympic pole-vaulting levels simply because you walked into a room with someone in a lab coat. It’s not illness—it’s sheer, uncut medical anxiety.™

    So, small miracle there. I might actually trust this new place. That's not a sentence I say lightly.

    Vape, Clouds, and the Eternal Wait for Sanity Back to the window—clouds are looming, the heat’s easing, and it’s time for my medical cannabis vape and a bit of THC oil. Helps with the pain and the spasms. And also with the absurdity of life, which seems to be running at full volume today.

    Anyway, that’s enough rambling for one morning. If you made it this far, you officially qualify for a biscuit. Possibly two. Rich Tea if you’re feeling ironic.

    Thanks for dropping by.

    Until next time, stay cool, stay sarcastic, and for heaven’s sake—check your meds before you leave the chemist. You never know what flavour of mental health you might accidentally walk out with. Cheers, stay cool, and remember: if the prescription machine gives you methadone next week, try not to start a jazz band.

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

             “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
                  “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”