Multiple sclerosis  is My Living Hell
Posted on
Uncategorized

The Cuckoo in the Nest: Rejected by DNA and Crockery

Author

It’s kind of crazy — I never knew my grandfather. Not even a photo, not even a whisper. He died suddenly, somewhere in the Aylesbury area, back in the 1950s — that golden age when secrets were sealed with shame and buried under floral carpets.

Nobody in the family ever told me what he died of. “A very sudden illness,” was all I got. Probably delivered in the same tone someone might use to comment on the weather or sweep dust under the rug. Mysterious death, mysterious family — very on brand.

I asked my mother when I finally tracked her down, years later. She couldn’t (or wouldn’t) tell me either. Possibly she’d forgotten. Possibly she never knew. Possibly she just couldn’t be bothered giving answers to the cuckoo in the nest.

Here’s where it gets interesting, or tragic, or ironic — depending on your mood: Turns out my mum’s sister — my long-lost Auntie Valerie — also has multiple sclerosis. Same as me. Apparently, the same type. As if MS comes in flavours, like trauma gelato. She also has heart issues. Guess it runs in the family, right? The family that doesn’t know I exist.

Valerie lives in Australia. I’ve never spoken to her. Because, of course, I was adopted. Filed away like an inconvenient tax receipt from the 1950s.

I’ve spent years — decades, even — trying to find out how my grandfather died. But there’s nothing. It's like he evaporated. Maybe he was abducted by aliens. That would at least give me something to put on the family tree. As it stands, it’s just: [Grandfather] — cause of death: TBD. Whole existence: classified.

So I tried to contact Auntie Valerie. I figured maybe we could bond over mutual nerve damage and existential dread. But being a bastard (and not just in the literary, Victorian orphan sense, but in the real, modern “you’re not supposed to exist” sense), there was no reply. Not even a bounce-back email. Just the long, digital silence of “you don’t belong here.”

It’s sad, really. I wanted to know how she copes. I wanted to know what her life with MS looks like — or looked like. She’s probably in her 80s or 90s now. Maybe already gone. But I never got that chance.

No one in the family helped. They didn’t want to. I’m the cuckoo in the nest. I ruin the tidy little mythologies they built for themselves. The "perfect family" free of blemishes, scandals, or inconvenient babies. It’s easier, I suppose, to pretend I never happened. Easier to scroll past the DNA test notifications and sip tea with clenched jaws.

And just when you think it couldn’t get more delightful, you discover your own mother believed you were faking multiple sclerosis. Like I’m pulling a fast one for sympathy and early boarding privileges. As if I filled out a form to get chronic illness just to be dramatic.

But hey — she felt guilty. She gave two kids up for adoption and never told anyone. Probably thought she’d be judged. I mean, yeah, it was the 1950s — women were practically burned at the stake for sneezing out of wedlock. I get it. Sort of. Still, honesty would’ve been cheaper than all this generational denial.

Maybe one day, one of Valerie’s kids will spit in a tube, upload their DNA, and stumble across me. Maybe they’ll be curious. Maybe they’ll click “connect.” Maybe we’ll have one awkward, meaningful email exchange about shared symptoms and shattered mugs.

Speaking of which — Albertine just broke my Bob Lazar mug. Snapped the handle clean off. We got that thing 20 years ago at a Richard D. Hall show. Back when I still thought conspiracy theories were fun, not autobiographical. That mug had survived four moves, three breakups, and countless microwaved teas. And now? One slippery hand and it’s history. Just like my connection to my real family.

Let’s be real: I probably won’t get to meet Auntie Val. Or her kids. Or get that WhatsApp message that says, “Hey, turns out we’re related, and wow, MS sucks.” I’m the embarrassment. The smudge on the family photo. The ghost in the family machine.

I am the that which is not spoken of. The pecadillo best left in the footnotes of someone else’s better story. The unwanted chapter. The child made of shame and secrets.

But I’m still here. Drinking tea from a cracked cup. Waiting. Maybe for an email. Maybe for a match. Or maybe just for someone, somewhere, to admit I existed.

           “The views in this post are based on my personal      
             experience. I do not intend harm, only honesty.”   

               “By ink and breath and sacred rage, I write.
                       By storm and silence, I survive.”

enter image description here

                      🧌✨ @goblinbloggeruk ✨🧌