Multiple sclerosis  is My Living Hell

SummerMadness

All posts tagged SummerMadness by Multiple sclerosis is My Living Hell
  • Posted on

    Stuck in this godforsaken dark room, Eyes screaming like they’ve been sprayed with bleach, Hands twitching like malfunctioning Tesco self-checkouts, My body shaking like it’s front row at a Motorhead concert – Head banging into oblivion, Neck snapping in rhythm with the pain That torments my poor sorry soul.

    Electric shocks crawl up my spine, Lightning bolts cracking down into my doom pit, My despair echoing like a pensioner’s cough in an empty bingo hall, Tinnitus whistles through my skull – Steam trains rampaging through The fragile tunnels of what remains of my brain.

    Vision fractures. Darkness descends. I lay there convulsing like a broken Tesco rotisserie chicken, Limbs flailing in demon possession, Shorts soaked in sweat and piss, The air thick with the pungent green stench – A Liam fart that could evacuate a small village.

    And there it is. The demon weed wacker Spinning around and around in my skull, Shredding what’s left of me Into salad garnish for hell’s buffet table.

    But deeper still it drags me – Past the pain into that hollow silent place Where blackness becomes the teacher, Shaking becomes the prayer, And decay becomes the doorway To glimpse whatever comes next.

    This is the jida journey, mate – The demon your mirror, The weed wacker your unholy crown, Doom your disciple, Despair your only true devotion.

    Here in the dark room, Spirit fractures, Mind collapses, Soul endures – And I become the darkness itself.

    🩸 “My brain feels like a demon weed wacker is shredding it into salad garnish for hell’s buffet table.”

    🩸 “Convulsing in piss-soaked shorts, I met the darkness and it called me home.”

    🩸 “This is not poetry. This is survival with a sarcastic scream.”

    🩸 “The tinnitus steam trains whistle through my skull tunnels all night long.”

    🩸 “Pain is my ritual. Shaking is my prayer. Darkness is my god.”

    🩸 “British humour, demon weed wackers, piss, and doom. Welcome to my living hell.”

    🩸 “Sometimes I wonder if Motorhead is playing a secret gig in my spine.”

    🩸 “The demon weed wacker spins. My soul is shredded. It’s a vibe.”

    🩸 “Darkness teaches me what light never could.”

    🩸 “My suffering is not beautiful. But it’s real.”

           “The views in this post are based on my personal  
            experience. I do not intend harm, only honesty.”   
    
             “By ink and breath and sacred rage, I write.
                      By storm and silence, I survive.”
    

    enter image description here

                          🧌✨ @goblinbloggeruk ✨🧌
    
  • Posted on

    Letting Windows 11 install itself is like giving the keys to a drunk valet — somehow, it worked out fine. No explosions, no blue screens. Quite the miracle, considering my experiences with Windows Millennium and its rogue’s gallery of dysfunctional predecessors.

    To be fair, Windows 10 and 11 are slick. But the code bloat? Don’t get me started. I miss the lean days of Windows 7 and XP, the glory years before Microsoft decided your machine needed 45 services just to check the weather.

    But I’ve moved on — I’m Linux-bound, baby. Mint on a USB stick. Kali for when I’m feeling dangerous. Both free. Both slick. And everything I need is already there. Open source is the truth. Why pay absurd amounts of money when SourceForge and the depths of the internet provide a smorgasbord of brilliance?

    Now imagine this: Black Sabbath is blaring – Iron Man rattling the walls, the Doobie Brothers soothing the existential dread, and some Bach organ symphonies levelling it all out. Meanwhile, joss sticks waft from the lavatory, and my body decides it’s time for another round with the infamous MS Hug — a vice grip on your ribs, only with the bonus prize of a surprise bowel evacuation.

    Yes, Multiple Sclerosis is the gift that keeps on giving: Pins and needles, numbness, muscle spasms — I’m basically a vibrating sex toy on Mach 10. If it weren’t painful, it’d be hilarious. Actually, it is hilarious, in a cruel cosmic way.

    But hey — it could be worse. Back in the ‘70s, I was 13, smashing pavement with a pneumatic drill during school holidays. Smoking Embassy Gold, Players No.6, or if I was desperate, the glorified paper stub that was No.10. My next-door neighbour Steve (legend and bad influence rolled into one) got me onto Marlboro and joints. Life was motorcycles, tattoos, rock ‘n’ roll, and too many warnings from mothers about dudes like me. Now? The wheels have changed — but the fire's still here. And the stories? They’re just getting started.

               “By ink and breath and sacred rage, I write.
                          By storm and silence, I survive.”
    
    “The views in this post are based on my personal  
        experience. I do not intend harm, only honesty.”  
    

    enter image description here

                    🧌✨twitter or x @goblinbloggeruk ✨🧌
    
  • Posted on

    🌀 Welcome to the scorched mindscape of a British misfit with MS, a dodgy air-con, and absolutely no time for your telly addiction. Expect sarcasm, storms, and suspicious noises from the fridge. 420, 27 Degrees, and the Wheelchair of Death

    It’s 4:20 in the afternoon — and I am, in every possible sense, well and truly baked. The sun’s decided to cosplay as Satan’s armpit, cranking the heat to a ripe 27°C. Not hot, you say? Try sitting in a disabled body that handles heat about as well as a vampire handles sunlight, and we’ll see how long before you start hallucinating the Ice Cream Man as your personal messiah.

    Blessed Be the Demon Weed Wacker Today’s miracle? The Demon Weed Wacker — a neighbour, friend, or possibly summoned entity — dug my old air-con unit out of the crypt I call a shed. The fact it actually works is a minor act of divine intervention, akin to Jesus showing up just to top off my water bottle and stick it in the freezer.

    Until then, I’d been sitting in front of the fridge. Not even for food — which is all poison anyway, thanks to the MS-induced digestive roulette — but for survival. I was bonding with the butter, staring at a melon like it owed me an explanation for my existence.

    Ever sat on the toilet projectile vomiting while simultaneously exploding out the other end, wondering if your intestines are trying to escape your body to start a new life? Add pain in certain areas that shall remain unnamed (but rhymes with "soul-destroying abyss") and you’ve got yourself a medical-themed horror short.

    Wheelchair of Death™ and the Conservatory Mistake I considered venturing outside, strapping into the Wheelchair of Death™, that faithful chariot of chaos and squeaky regret. But no. One foot outside and the sun said, “Ah yes, rotisserie human,” and I was done. I staggered into the conservatory like some sweaty Victorian ghost and instantly regretted it. Over 100°F in there. I could’ve slow-cooked a lamb shank in my lap.

    Now I’m left with a blinding headache, and the tinnitus is going off like Lemmy himself is playing a comeback gig in my skull. It’s like the gods of rock took personal offence to my brain and decided to hold a festival in my ear canal.

    Let There Be Storms There’s a storm rolling in now — proper biblical one by the feel of it. Black clouds, sudden wind, the smell of distant lightning. I love storms. The chaos, the noise, the sky throwing an emotional tantrum. Thunder’s just the Earth screaming, and I get that. I feel seen.

    20 Years Without the Idiot Box Random thought: I haven’t watched TV in over 20 years. People look at me like I’ve confessed to eating children. “But what do you do?” Well, for starters, not stare into a flickering box that vomits consumerism and stupidity at epileptic-inducing speed.

    With MS, television isn’t “entertainment,” it’s visual torture with background laugh tracks. Give me a silent room, a thunderstorm, and the slow hum of the Wheelchair of Death™ plotting my demise in the hallway.

    I’m off to lie in front of the air-con like a roadkill vampire, praying the power holds out. If not, you’ll find me back in the fridge, whispering to the yoghurt and preparing for the next exorcism session in the loo.

    Stay baked, stay bitter, and remember — if the food’s poison and the sky’s on fire, it’s probably just another Thursday.

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

            “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
            “By ink and breath and sacred rage, I write.
                     By storm and silence, I survive.”
    

    ⚡Thanks for reading. If you enjoyed this, you probably need therapy — or a fan. Or both. Come back soon for more tales from the Wheelchair of Death™, the Digestive Apocalypse, and the Conservatory from Hell.

    🛠️ Powered by sarcasm, swearing, and something that smells faintly of ozone.