Multiple sclerosis  is My Living Hell

windows11

All posts tagged windows11 by Multiple sclerosis is My Living Hell
  • Posted on

    Sat here mumbling into my old iffy microphone today. Took me over a day to set up – drivers, updates, reinstalling Windows three bloody times because my brain fog decided to overwrite the system with a random USB stick. Genius, I know.

    Finally, the blog goblin’s computer has resurrected. Barely.

    Had yet another bad night. Partly my own fault this time. Thought I was the biker prophet and magically healed, so decided to stand up and shuffle furniture around like some nocturnal DIY hero. Clearly not my best idea. Lost my balance entirely, stumbled like a drunk, and smashed into the door frame.

    My shoulder’s killing me, bruised to hell, and possibly broken. Will probably end up in A&E later if it gets worse. For now, just sat here typing, all fingers and thumbs, trying to find old bits to post while ignoring the pain.

    Having MS makes me resilient, though. Even when my brain is fried and my body’s screaming betrayal, I keep crawling back like the stubborn goblin I am.

    Anyway. Hope your day is glitch-free and you aren’t slamming yourself into any door frames. Unlike me. 🖤

        ⚡️ Join the gremlin cult. You know you want to
    
      " The views in this post are based on my personal   
          experience. I do not intend harm, only honesty.”   
    
          “By ink and breath and sacred rage, I write.
                      By storm and silence, I survive.”
    

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                           🧌✨ @goblinbloggeruk ✨🧌
    
  • Posted on

    Letting Windows 11 install itself is like giving the keys to a drunk valet — somehow, it worked out fine. No explosions, no blue screens. Quite the miracle, considering my experiences with Windows Millennium and its rogue’s gallery of dysfunctional predecessors.

    To be fair, Windows 10 and 11 are slick. But the code bloat? Don’t get me started. I miss the lean days of Windows 7 and XP, the glory years before Microsoft decided your machine needed 45 services just to check the weather.

    But I’ve moved on — I’m Linux-bound, baby. Mint on a USB stick. Kali for when I’m feeling dangerous. Both free. Both slick. And everything I need is already there. Open source is the truth. Why pay absurd amounts of money when SourceForge and the depths of the internet provide a smorgasbord of brilliance?

    Now imagine this: Black Sabbath is blaring – Iron Man rattling the walls, the Doobie Brothers soothing the existential dread, and some Bach organ symphonies levelling it all out. Meanwhile, joss sticks waft from the lavatory, and my body decides it’s time for another round with the infamous MS Hug — a vice grip on your ribs, only with the bonus prize of a surprise bowel evacuation.

    Yes, Multiple Sclerosis is the gift that keeps on giving: Pins and needles, numbness, muscle spasms — I’m basically a vibrating sex toy on Mach 10. If it weren’t painful, it’d be hilarious. Actually, it is hilarious, in a cruel cosmic way.

    But hey — it could be worse. Back in the ‘70s, I was 13, smashing pavement with a pneumatic drill during school holidays. Smoking Embassy Gold, Players No.6, or if I was desperate, the glorified paper stub that was No.10. My next-door neighbour Steve (legend and bad influence rolled into one) got me onto Marlboro and joints. Life was motorcycles, tattoos, rock ‘n’ roll, and too many warnings from mothers about dudes like me. Now? The wheels have changed — but the fire's still here. And the stories? They’re just getting started.

               “By ink and breath and sacred rage, I write.
                          By storm and silence, I survive.”
    
    “The views in this post are based on my personal  
        experience. I do not intend harm, only honesty.”  
    

    enter image description here

                    🧌✨twitter or x @goblinbloggeruk ✨🧌
    
  • Posted on

    Another system rebuild. Another round of pretending this time it’ll work, that nothing vital will vanish into digital smoke. Maybe I’ll stick with Windows 11—just long enough to hate it all over again. Or maybe, finally, I’ll throw myself into Linux like a man falling from a burning building. Kodachi. Mint. Whonix. Take your pick, all flavours of escape.

    The plan? Dual life. Linux on a pen drive for when I need stealth and sanity. Custom Windows on the main drive for when I need chaos and legacy apps. But before anything happens, it’s backups. Backups of backups. Then backup the backup of the backup.

    I’ve lost too much already. Files. Art. Music. Decades of moments. Things that mattered. Gone because I trusted the wrong hard drive, or hit “yes” on a prompt I didn’t read at 4am because I couldn’t sleep from the pain—or the thoughts. Terabytes lost to time and stupidity.

    I’ve been part of this madness since the early 80s. When computing still felt like rebellion. When you could feel the electricity in the keys. Back when 40GB was god-tier and 32MB of RAM could change your life. When you didn’t need permission from five corporations to run software.

    Today, I did get out. Ended up at Fat Tony’s. Sex toys, incense, grinders, masks, and the surreal scent of liberation in the air. I could feel the laughter in my bones. Albertine grabbed a few curious bits and pieces. Good man behind the counter. Real. No masks. No script. Not like the world outside. Not like doctors.

    Came back home. Wheelchair of death started vibrating like it had unfinished business with the earth’s core. Loud enough to wake the ghosts I wish I could forget.

    The jam was a mistake. No sleep. Peeing every hour. Kidney screaming. Bladder playing drums. Night’s silence broken by the symphony of my body's decline.

    I asked the doctor for sleeping tablets. He laughed. Said I might sleep through an accident. “What,” I asked, “like shit myself?” He didn’t laugh back. Just stared at me like a creature in a tank. Something dying slowly behind glass.

    That same doctor once told me there was nothing more they could do. I rolled out of that office in my chair and into the hallway of despair. Slammed into the door just to feel something. I wasn’t a person to him—just another file closed. “Mr Goblin,” he said. As if I wasn’t already invisible.

    You think it ends there?

    I got a phone call years ago. I was stressed. The voice on the line? A GP. He tells me, flatly: “Oh yeah, you had a heart attack at some point.” Like it was the weather. Then the line goes dead.

    I went ice cold. Started spasming. Couldn’t breathe. Ambulance was called. Paramedics came. One looked like death in a hi-vis vest. He barked at me about not labelling my door clearly enough. I nearly told him to check my pulse and guess the address that way.

    ECG said yes, it happened. A “heart event.” Another ambulance came. The serious kind. They jabbed, they drugged, they stabilized the mess I was.

    But in that moment, on the floor, shaking and half-naked, I thought: So this is how it ends. Alone, misunderstood, staring at the cracked ceiling while the world rushes by outside.

    But no. I lived. Again. Like I always bloody do.

    And still my mind drifts. My half-sister. It’s been 10 years. Maybe she thinks of me. My older sister? Try 30. A lifetime of silence.

    Being adopted is a lifelong mind-fuck. You're the cuckoo in someone else’s nest. A mistake nobody admits. A problem to be hidden in a file folder somewhere.

    My family judged me because I lived in a council house. Because I was disabled. Because I wasn’t their version of clean or proper.

    But when they gave me a chance, I proved them wrong. Every time.

    Still… no calls. No letters. No visits.

    I wonder if my brothers are still alive. I wonder if they’d remember my voice.

    But hope is a slow suicide. So I smile instead. Laugh when I can. Back up my data like I’m guarding a soul in binary. Sit in my chair and watch the world pretend to care.

    I’m not done yet.

    Not by a long shot.

    Goblin still here

             “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    

    looking to buy a second hand q100 wheelcair or similar in the south west area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

              “By ink and breath and sacred rage, I write.
                        By storm and silence, I survive.”
    

    enter image description here