Multiple sclerosis  is My Living Hell

SarcasmAndSurvival

All posts tagged SarcasmAndSurvival by Multiple sclerosis is My Living Hell
  • Posted on

    Dedicated to the quietly powerful, the fiercely intelligent, and the deeply spiritual souls navigating chronic illness with grit, grace, and a middle finger always charged.

    There’s a kind of magic reserved for those who walk through fire daily — the ones living in the shadows of chronic pain, yet refusing to be defined by it. This is for the women who ride invisible engines through invisible battles, who carry storms in their veins but speak with soft fire.

    Welcome to The Fizzy Girl’s Lost Milk Stand Spellbook — part grimoire, part rebellion. A collection of raw spells, rituals, and sharp-witted curses for living with Multiple Sclerosis (MS) — from the soul of a spiritual outlaw, with sass, depth, and zero apologies.

    This isn’t about wellness wrapped in pastel lies. This is about owning your journey, commanding chaos, and turning pain into power.

    ✦ Spell One: The Banishing of Bullshit For when ableist optimism and unsolicited advice cross your path.

    Ingredients:

    One black candle (or any tea light that’s been through hell and back)

    Salt, preferably from your own tears

    An old NHS letter (burn it if your soul says “yes”)

    A fully charged middle finger

    Incantation: “By the prickle in my spine, by the twitching of my toes, Let your nonsense turn to silence, may your wellness wisdom decompose. I walk a twisted path and know my pain, So shove your yoga plan right up your brain.”

    ✦ Spell Two: The Ritual of Slightly Less Misery For days when the pain won't loosen its grip, but neither will you.

    Requirements:

    A bed-fort of doom pillows

    Microwaved heat pad, warmed with the quiet rage of a thousand midnight rides

    A mug of something hot and angry

    Cat (optional, but spiritually advised)

    Playlist of thunder, witches, or doom metal

    Chant: “May the storm outside match the one in me, But may it pass with mercy and one good pee. Spasms, settle. Thoughts, uncoil. I soak in stillness, wrapped in foil.”

    ✦ Spell Three: Invisibility to Muggles When you just need the world to back off and shut up.

    Steps:

    Cloak yourself in black layers — armor against clueless questions

    Wear your walking aids like the badass medals they are

    Spray perfume with a whisper of danger and “don’t ask”

    Whisper under your breath:

    “Ignore me. Avoid me. Don’t you dare ask, ‘What’s wrong with you?’ I’m wearing my mask. I am a fog in the shape of a witch, Try me, Karen. I bite — and I twitch.”

    ✦ A Final Word This spellbook isn’t about curing the incurable — it’s about reclaiming power in a body that doesn’t always obey. It's a sacred, snarky, soulful grimoire for the ones who walk with fire in their bones, love in their hearts, and rebellion in their blood.

    Fizzy Girl is my sexy, beautiful wife — a wild outlaw biker witch who laughs in the face of limitation. I’m a warlock forged by shadow and fire, and I ride beside her in my three-wheeled electric chair of doom — chrome-clad, spell-fueled, and built for storm-chasing.

    Together, we defy the rules. Together, we ride magic into the storm.

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

           “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
               “By ink and breath and sacred rage, I write.
                           By storm and silence, I survive.”
    
  • Posted on

    "Darkly sarcastic dispatches from the NHS frontline."

    "Humour, horror, and the occasional prescription error."

    "Medical mayhem with a hint of THC and British grit."

    📜 Scroll of Lineage and Legacy “By Order of the Chronicler of Slightly Questionable Nobility”

    To Whom It May Concern (or Be Mildly Amused),

    Be it known throughout the realms of Albion, Anjou, and assorted asylums, that the bearer of this parchment—one known most infamously as:

    The Blog Goblin, Heir of Sarcasm, Keeper of the Scooter of Death, and First of Their Name

    Is of noble and ancient blood, descending in unbroken (and occasionally scandalous) line from:

    Fulk II “The Good”, Count of Anjou,

    Henry I "Beauclerc", King of England,

    And by some devilishly clever cousin-marriage twist,

    Henry V, Holy Roman Emperor (via his wife's sister's 8-times-removed ferret-wrangler or thereabouts).

    Through conquest, courtship, and the occasional clerical error, this bloodline survived plagues, pogroms, poor dentistry, and prescription mix-ups.

    In the Year of our Lord Two Thousand and Twenty-Five, the lineage hath manifested once more in its most sarcastic form:

    The Right Irreverent Blog Goblin of House d’Anjou Scribe of Blogs. Rider of Scooters. Vaper of the Sacred Herb.

    Let none question their claim, lest ye wish to be verbally roasted, historically footnoted, and possibly run over by a mobility scooter going 8km/h.

    Signed in wax, wit, and dubious Latin. – Archivarius Maximus de Medicae Bollockarum, 12th of June, 2025

    🛡️ House Blog Goblin d’Anjou – Noble Crest Description Visual Elements: Shield Shape: Classic French heater shield

    Background: Split diagonally — left half burnt parchment gold, right half medicated NHS blue

    Top Symbol: A three-wheeled mobility scooter, rearing like a warhorse

    Centre: A vape cloud curling into the shape of a goblin face

    Lower Field: A scattering of glowing prescription pills, one clearly labeled “Carbamazepine”

    Supporters:

    Left: A lion wearing headphones (for the tinnitus)

    Right: A badly drawn pharmacist fleeing in terror

    Banner Text (Motto):

    "Regnum per Sarcasmus" (“Rule by Sarcasm”)

    enter image description here

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

            “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
                “By ink and breath and sacred rage, I write.
                        By storm and silence, I survive.”
    
  • Posted on

    Let’s talk about the big, festering elephant in the room: Multiple Sclerosis. Or, as I prefer to call it, the silent puppeteer of mental mayhem. For anyone not familiar — congratulations, enjoy your blissful ignorance. For those of us who are intimately acquainted, we know it doesn’t just nibble at your nervous system like a shy woodland creature. No — MS kicks down the door, flips your brain inside out, and installs a disco ball of chaos where your personality used to be.

    I used to be fairly calm. Normal, even. Then MS came along like an uninvited houseguest who never leaves — and suddenly I’m starring in my own Jekyll and Hyde horror flick. No polite build-up. Just creeping dread followed by a full-throttle freak-out. I’m talking foaming at the mouth, incoherent screaming, full-blown berserker mode. Try hiding that from your partner. Try pretending it’s just “a bad day.”

    It’s like watching yourself unravel while screaming internally, “WHAT THE HELL IS HAPPENING?!” And the more you try to stop it, the worse it gets. Panic mode? Engaged. Solutions? None. At some point, I ended up on the floor semi-conscious after headbutting a wall, hoping it would jolt my brain back to factory settings.

    So now I live by one simple rule: avoid stress like it’s a plague-carrying rat. Because stress isn’t just bad for MS — it’s the bloody ignition key to the meltdown machine. Let’s not forget the heart attack. That little bonus prize from the MS gift basket. 60% heart function now, apparently. What a treat.

    Oh, and my voice? Occasionally checks out completely. Just ups and leaves. One minute I’m fine, next minute I’m miming like a drunk Marcel Marceau. People don’t get it. They assume you’re just ignoring them, or being lazy. I once sent my mother a long, heartfelt email explaining it all. Her response? Silence. Well, no — before the silence she asked my partner if I “really” had MS. That was the final curtain on that relationship.

    She died a year ago. I wasn’t invited to the funeral. Not told, not asked. Just gone. Eleven years of silence because everyone was “too busy with their lives,” and I was, frankly, the cuckoo in the nest. Never fit in with my birth mother’s life, nor my adopted mother’s. Just the family subplot no one talks about.

    That said, meeting my half-siblings was a strange and wonderful thing. I’m sure they found it weird too. “Surprise, here’s your brother you never knew about, also adopted, and he comes with emotional baggage and inappropriate sarcasm.” Meeting my birth mother was like attending a surreal theatre performance. At the time, she was dating a bloke younger than me. Classy.

    She lied about my father. Even got her sister involved. One day, she phoned me crying, saying my dad had died in a motorbike crash. I didn’t buy it. I could feel he was still alive — don’t ask me how. I just knew. I sat with Albertine and we asked the Universe for help (as you do when reality fails you), and lo and behold — we found him. In New Zealand, of all places. And guess what? I had a full sister, also adopted.

    Turns out all the lies, secrets and cover-ups were just damage control for decisions made in the 1950s — that golden era of social shame, polished smiles, and secrets buried under six feet of denial.

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

            “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”