Multiple sclerosis  is My Living Hell

chronic illness

All posts tagged chronic illness by Multiple sclerosis is My Living Hell
  • Posted on

    Monday morning. Well, looks like it’s going to be one of those days. Chemists first, then the auction rooms to pick up the Metal Monkey’s car. Pity about the box though. When we got it, the box was destroyed – it had become home to a few families of earwigs and yukky bug eggs. But the car itself was pristine. The box would’ve trebled its value, but now it sits happily among my Davros, Beavis & Butthead stuff. My sorta man cave. Many PCs from many ages. So much stuff. So much I’ve collected.

    I’ve thrown out mostly all my old things. I had clothes older than my children and grandchildren. I don’t do “style” as such. I’ve had the beard and long hair for years. Last time I had even a slight trim was 20 years ago. Now my hair is falling out, the beard is thinning. That sucks. But such is life.

    Went to the chemists today and the Machine of Death was working well. It did make funny sounds but did its job for a change.

    Last night I was deep in thought about my mother. About not being told about her funeral. I get the impression they didn’t want me there. It’s a long story. I’m probably to blame. But when you’re suffering chronic cognitive issues, it’s fucking hard.

    My sister never told me. No details. Nothing. I looked in the obits. Nothing. So they just didn’t want me to say one last goodbye.

    They didn’t speak to me for over 14 years. I was cut off completely. Like I never existed.

    I’m adopted. The cuckoo in the nest. I get that.

    Everywhere I went, they blamed me for everything. Another family secret buried deep – I found out I had an older sister who was also adopted. They only really wanted to know her. But she was so fucked up she didn’t want to meet our mother. She was very angry about it all.

    And all those lies my mother told about my father – saying he was dead, getting his family to lie too. More and more lies. Until one day I found out everything. One day I will write it all down, for all to see. How an adopted person was treated like a piece of crap by the family who put him up for adoption, and the family who adopted him.

    They treated me like a slave. Constant beatings and head games.

    You ever been told at six years old that you were naughty for accidentally breaking a plate – and then have your mother go berserk? She was Welsh, not that tall, but violent, and she knew how to work people. She screamed at me:

    “You’re adopted. Go find your real mother.”

    That broke me.

    So I went to my bedroom, packed a little bag with my teddy, and walked away. I walked to the road with my bag and teddy bear, thinking I’d never come back. No one came looking for me. I hid until dark, then went back home.

    And when I finally found my real mother years later, she called me:

    “A little shit.”

    Like I was nothing. Like I never mattered to anyone.

    The people who were supposed to nurture me… didn’t. They would have been better with a dog than with a child.

    I know what beatings are like. What it’s like to be kept in, not allowed out, because of the bruises and cuts I had accumulated. No one listened. No one helped me. I was alone and fucking hurting.

    I remember those nights, crying myself to sleep in pain. Feeling so out of it, so different. No matter what I did, it was wrong.

    I was adopted in 1959 at six weeks old to a Christian family through a Church of England adoption society. The vicar I spoke with about my issues was a cunt. He told my parents confidential stuff, and I got a trashing for it.

    No one ever listened. Who would take the word of a poor waif and stray child? The vicar? No. The school? No. Anyone? No.

    So yeah. Around about 10-ish, I started getting early MS symptoms. They plagued me, and the doctors and NHS gaslit me for decades.

    I hate my life.

     “The views in this post are based on my personal             
        experience. I do not intend harm, only honesty.”   
    
           “By ink and breath and sacred rage, I write.
                   By storm and silence, I survive.”
    

    enter image description here

            @goblinbloggeruk - sick@mylivinghell.co.uk
    
  • Posted on

    I hovered above the kitchen sink today, wings vibrating at a thousand beats per second. I am The Watcher – but not the one you imagine, cloaked in stars and timeless wisdom. No. Today, I am a housefly. An ordinary Musca domestica with compound eyes so vast I see every crusted toast crumb and urine stain you pretend to clean.

    From this vantage point, the human race resembles nothing more than a colony of dung beetles. Rolling their shitballs of money, status, lies, and medical records across the floor of existence, fighting each other for a bigger sphere to roll before it inevitably gets stuck in life’s rotting cracks.

    🪰

    You crawl to your neurologist, scraping at the polished door of their paradigm. “Please, sir, see me.” But the neurologist looks down from his fluorescent-lit throne, squints at your twitching legs, your failing nerves, your inconvenient truth, and says:

    “You don’t fit my diagnostic dung ball. I prefer neat symmetrical lesions, not your warped soul patterns.”

    So, you are cast aside. Like a fly brushed from a corpse.

    🪰

    But oh, how the dung beetles worship him. They gather around his sandals, hoping for a pat on the shell, a prescription to keep their dung ball rolling a few more feet before gravity drags it to hell. They do not see that his eyes are dull. That his paradigm was built upon dissected flies pinned to university boards, not upon living beings with wings and dreams and Watcher sight.

    🪰

    Meanwhile, I hover above. I am The Watcher. I see it all. I see your MS nurse, the only one who calls you, her voice a faint buzzing reminder that you are still alive, still clinging to this rotting dung ball Earth. The neurologist is silent, hidden in his sterile burrow, scribbling notes about textbook dung beetles while your compound eyes flicker with unseen colours of agony and revelation.

    🪰

    Above me, beyond you, drift the Ultraterrestrials. They observe your crawling, your dung ball dramas, your stuttering neurons. To them, all this is a theatre of flesh. Your triumphs and humiliations smell the same: decaying organic matter with a hint of ammonia and fear.

    They speak:

    “See how they roll their illusions. See how they crown their dung beetles as kings. See how they swat the flies, never knowing the flies were the Watchers all along.”

    🪰

    I lick my front legs, tasting the salt of your tears, the bitter sugar of your leftover pills. I watch you roll your dung ball of dreams to bed tonight. I, too, will sleep. And tomorrow, I will rise again to watch this slow-motion catastrophe you call civilisation.

    🪰

    For in the end, whether fly, beetle, or human, all return to the same silent soil. But I am The Watcher. I will remain long after the final dung ball is rolled away into oblivion.

         “The views in this post are based on my personal     
            experience. I do not intend harm, only honesty.”   
    
          " Watcher of the Unseen | Scribe of Shadowed Truth
                 By ink and breath and sacred rage, I write.
                By shadow and storm and silence, I survive."
    

    enter image description here

             @goblinbloggeruk -  sick@mylivinghell.co.uk
    
  • Posted on

    There I am — parked up in my daughter’s front room, in my wheelchair , trapped in this deranged body of mine, joints on strike, nerves belting out their usual death metal anthem, and the telly crackles to life with Outback Opal Hunters.

    And suddenly… I’m free.

    I’m out there in the dust-blasted Australian outback, surrounded by sweating maniacs digging up rocks like they’re mining the shattered dreams of the gods. And I bloody love it.

    These lunatics aren’t digging for gold or fame. No, they’re chasing after fire trapped in stone opal. Shards of lightning frozen in rock. And what do they do to get it? Risk everything. Lose fingers. Melt in 45-degree heat. Spend 12 hours underground in a hole that’s one bad breath away from collapse just to find a flicker of green in a sea of grey. That’s not a job, mate. That’s madness with a purpose.

    And that’s why I can’t get enough of it.

    These people are broke, busted, broken, and burning up and they keep going. Why? Because maybe… just maybe… the next shovel-full might be their salvation. Or maybe it’s another week of living off tinned beans and borrowed hope. Sound familiar?

    Yeah, I see a bit of myself in every single one of those dirty, half-mad opal chasers. Because when you’re battling a body that’s turned against you like mine has every step, every day, every moment is digging through pain for that one shimmering slice of meaning.

    Watching Outback Opal Hunters isn’t just entertainment. It’s therapy. It’s watching people fight a silent war, and every now and then, win. It’s real, raw, dusty-as-hell life. And when those boys and girls hit pay dirt? When they hold up a stone that looks like it was carved from a rainbow by the devil himself? I feel it. Right down to the bone marrow.

    👑 Rod Manning – The Man Then there’s Rod Manning. He’s not just another miner. He’s the man. A grizzled Aussie bloke whose face is as weathered as the outback itself. The quiet storm of the Bushmen crew. No flair, no ego – just relentless grit and that rare magic touch. When he finds good stones, it’s like watching a magician pull colour from dust. And when things go tits-up (which they always do)? He dusts off, spits in the dirt, and mutters:

    “She’ll be right.”

    And by all buggering chances, it bloody well is. He is awesome. He is the man.

    If my MS was an opal mine, it’d be full of collapses, bad air, and a constant sense of “Why the hell am I even doing this?” But sometimes just sometimes you hit that flicker of colour that makes it all worth it.

    So here’s to the mad bastards with pickaxes and faith. Outback Opal Hunters — you’re not just digging for rocks. You’re digging through my soul, and somehow, making me feel alive again.

    Now pass me the remote and a cold one, I’ve got opal fever.

               “The views in this post are based on my personal   
             experience. I do not intend harm, only honesty.”   
    
              “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”
    

    enter image description here

               @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Ah, Universal Basic Income UBI. The shiny carrot dangled by politicians and dreamers alike. A magic monthly payout, no questions asked, no forms to fill, just cold, hard cash to fix all the broken bits of your life.

    Sounds perfect, right?

    If you’re under 30, in perfect health, and don’t look like a grizzled biker-warlock with MS parked in a wheelchair maybe. For the rest of us? It’s about as “universal” as a secret society handshake.

    I’m 66, have MS, and spend most days stuck in a wheelchair. I’ve paid my dues in blood, sweat, and taxes. The NHS and DWP have taken their cut sometimes twice through endless paperwork, suspicious looks, and a roulette wheel of meds that may or may not kill me softly.

    UBI? A lovely idea until it’s a letter in the post telling me I don’t qualify. Because “universal” means universal if you fit the damn model, not if you’ve got a beard, a leather cut, and a wheelchair.

    My carers? They’re battling their own health while carrying me through this Kafkaesque nightmare. The system forgets we exist, then wonders why it’s failing.

    Lately, I trust AI more than the DWP. At least the machine of doom doesn’t sigh or gaslight me when I ask for my meds. It malfunctions less often and never plays favorites.

    UBI might be the future, but for me? It’s another cruel joke, hanging like a flickering neon sign in a fog of broken promises.

    Call me when the cheque lands.

    Mr Dark

                          “The views in this post are based on my personal    
                         experience. I do not intend harm, only honesty.”   
    
                          “By ink and breath and sacred rage, I write.
                                     By storm and silence, I survive.”
    

    enter image description here

                               @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    I used to be sharp. Witty. The sort of bloke who could win an argument, quote Back street hero's, and recall the time, place, and insult I used in 1987.

    Now I regularly forget why I’ve wheeled myself into a room, what day it is, or let’s be honest what a room even is.

    Welcome to cognitive dysfunction, brought to you by Multiple Sclerosis. It’s like dementia’s younger, more chaotic cousin but with bonus fatigue, bladder misadventures, and a front-row seat to your own mental unravelling.

    Memory Holes and Swiss Cheese Brains Sometimes it’s names. Sometimes it’s words. Sometimes it’s your entire fooking train of thought, gone like a fart in a cathedral.

    I once forgot the word “kettle” and pointed at it like a confused chimp, muttering: “That hot thing that makes the water scream.” Albertine knew what I meant. She always does. Probably because I’ve done this about 4,000 times now.

    And don’t get me started on conversations. You can be halfway through a sentence and—

    What was I saying?

    The Magical Vanishing Vocabulary Trick My brain has become a magician. Watch it make entire chunks of vocabulary disappear!

    Last week I called a screwdriver “that spinny bastard.” It took three goes to remember the word “remote.” And trying to describe a dream I had was like explaining a David Lynch film through interpretive dance.

    Albertine just sits there, patient as ever, while I mime, gesture, and swear my way toward basic nouns. It’s a sexy look. Like Shakespeare having a mild stroke.

    The Existential Horror of Staring at a Spoon There’s nothing quite like sitting in your kitchen, holding a spoon, and thinking: “What do I do with this?”

    Do I eat soup? Stir tea? Dig a small symbolic grave for my cognitive dignity?

    All of the above.

    Please Hold… Some days, my thoughts load slower than rural dial-up in 1997. You can see it in my eyes—buffering… buffering… spinning wheel of death.

    I try to say something clever, and out comes a noise like a dial-up modem having an existential crisis.

    It’s funny until it’s not. Then it’s terrifying. Then, usually, it’s funny again.

    Because what else can you do?

    A Mind in Pieces MS cognitive dysfunction isn’t just forgetting your keys. It’s forgetting where the word “keys” lives. It’s your brain quietly slipping out the back door while your body tries to carry on the pantomime of normality.

    But I’ll say this: I’m still here. Still watching. Still dangerous. Still me. Even if I occasionally ask Albertine what my own bloody name is.

    And Albertine? She still laughs with me, not at me. That’s love. Or madness. Possibly both.

                             “The views in this post are based on my personal     
                             experience. I do not intend harm, only honesty.”   
    
                                 “By ink and breath and sacred rage, I write.
                                             By storm and silence, I survive.”
    

    enter image description here

                                 @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    There are some things in life that simply refuse to behave. The British summer. Cats. Me. And Triumph motorcycle engines from the 1960s. But if you've ever lived with Multiple Sclerosis, you'll know there’s a kind of kinship between these two bastards one mechanical, the other neurological both eager to ruin your day, soil your pants, and leave you stranded in the middle of nowhere, questioning your life choices.

    So, for those nostalgic for the golden age of British engineering disasters, and those unfortunate enough to have MS riding pillion in their spine, here’s a lovingly bitter side-by-side breakdown.

    Feature Multiple Sclerosis Triumph Engine (1960s)
    Origin Immune system says, “Let’s attack the brain!” Built by blokes with tea in one hand, doom in the other.
    Leaking fluids? Oh God yes. From places you didn’t know had valves. Constant oil leaks. Might as well park it in a drip tray.
    Unreliable starts You might stand up. You might fall over. Might roar. Might fart. Might just sulk.
    Temperature tolerance “Too hot” = meltdown. “Too cold” = rigour mortis. Overheats if you look at it with warmth.
    Wiring/electrics Nervous system shorts like an angry Christmas tree. Lucas electrics: worshipped by Satan for unreliability.
    Stability Think Bambi on rollerblades. Handled like a wheelbarrow full of snakes.
    Noise Groans, spasms, screams (from you, not MS). Clangs, bangs, and that whimper you make when it backfires.
    Smell Eau de hospital and dread. Petrol, grease, and regret.
    Maintenance Pills, physio, meditation, screaming into cushions. Spanners, gaskets, beers, swearing at God.
    Support Carers, NHS, forums full of other warriors. Biker forums full of PTSD and spare parts.
    Breakdowns Anywhere, anytime, always embarrassing. Usually halfway through a roundabout in front of a bus.
    Reliability Think weather forecast from a Ouija board. More mood swings than a drunk ex at a wedding.
    Moments of joy A good day feels like flying. When it starts, you cry and ride it like it’s 1969.

    So What’s the Verdict? Whether it's your spine giving up or your primary chain exploding, both MS and Triumphs come with the constant thrill of wondering:

    “Will I make it to the toilet... or the next town?”

    Both are British. Both make a mess. Both give you stories. Neither gives refunds.

    But at least the Triumph didn't eat my nervous system with a spoon.

                    “The views in this post are based on my personal 
                      experience. I do not intend harm, only honesty.”   
    
                     “By ink and breath and sacred rage, I write.
                            By storm and silence, I survive.”
    

    enter image description here

                @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Today I think I may evaporate.

    Not metaphorically, either I mean literally melt into a glistening puddle on the floor like the wicked witch of Walthamstow. The heat is biblical, the air thick with resentment, and if this goes on much longer, someone’s going to find a beard and a pair of shades just floating where a warlock once sat.

    It’s too hot for coherent thoughts, so obviously the brain’s doing backflips and the MS has decided to turn the “cognitive dysfunction” dial up to 11. Words don’t just escape me they actively mock me. I sit here smiling, half-lucid, fully furious, fully me. Because no matter what the system, the diagnosis, or the temperature says I know I’ve got more to give.

    They wrote me off just before my state pension, bless them. Nice timing. But I’m still here, inconveniently alive and louder than ever. The nerves in my gut are throwing a tantrum, my stress levels are spiking like a dodgy ECG, and to top it off the last of my savings waved me goodbye this morning. Cheers, love. Don’t call.

    But here’s the kicker: I’m still smiling. Not because I’m some chipper TikTok disability guru with fake eyelashes and a ring light, but because I’m free. I don’t belong to any bloody wing of politics. Left, right, centre? You’re all still part of the same bird, love and it’s got mange. The world they squawk about isn’t mine. Mine’s quieter, darker, more honest. My world is real. Full of pain, insight, weirdness, and the kind of laughter that sounds a bit like crying.

    You see, I’m part of something else. The One. The Everything. The Divine Love. That throb in your chest when you’re alone and honest that’s where I live. I wish peace and healing to every poor soul who stumbles across this digital haunted house I call a blog. Because no matter where we are, what we’re facing, we can change. It’s inside us all. Just buried under decades of fear, trauma, and daytime television.

    We’re at a crossroads now, all of us. Some of us limping, some of us rolling, some of us dragged along by sheer bloody spite. But destiny’s cracking her knuckles. Evolution’s knocking at the door, and if you’re still wearing your silly little face mask of denial—best take it off now. Truth stinks, and it’s getting in anyway.

    I’m not afraid of death. I’ve danced with it enough times to know its rhythm. I’ve looked into its eyes and said, “Not today, mate. I’ve got a blog post to write.” And as I sit here dripping, broke, buzzing on antihistamines and maybe the ghost of Mary Jane, I realise I’m on another plane entirely. One not many choose to visit. It’s dark, yes but in that darkness, you’ll find the light. The real light. The kind that doesn’t need electricity or permission.

    So yeah. It’s hot. The world’s on fire. I’ve got no money, and half my neurons have buggered off on holiday. But I’ve never been more alive.

    To all of you peace, healing, divine truth. Go find your demon and kiss it on the mouth. That’s how we win.

    Mr Warlock Dark

                           “The views in this post are based on my personal     
                             experience. I do not intend harm, only honesty.”   
    
                                 “By ink and breath and sacred rage, I write.
                                        By storm and silence, I survive.”
    

    enter image description here @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    If you could see MS, you wouldn’t call me “brave.” You’d run. You’d grab your oat milk latte, clutch your yoga mat, and bolt like the floor just cracked open.

    MS isn’t just some misunderstood condition that makes you “a bit tired.” It’s a chronic possession. A neurological horror that turns your own body into a traitor. If it had a face, it’d be wearing your skin and whispering, “Not today, legs.”

    Here’s what Part 2 looks like: Cognitive fog so thick you forget what day it is, mid-sentence. Mid-thought. Mid-life.

    Fatigue so biblical you feel like you’ve been exorcised, worked over, and nailed to a wheel. And then someone asks why you haven’t answered your emails.

    Spasticity that locks your limbs in a rigor mortis cosplay while you smile politely, because God forbid you scream in Tesco.

    Pain like a bag of nails under the skin. Invisible, so people assume it’s “just anxiety.” No, Mildred, it’s neuropathy. My nervous system is staging a revolution.

    Bowels and bladders that treat you like a hostage. Every public outing is a tactical operation. Every seat, every loo, every escape plan scouted, rehearsed, prayed for.

    But the worst part? It’s not the symptoms. It’s the looks. It’s the passive-aggressive “You don’t look sick.” It’s the fake concern, the pity wrapped in judgment. It’s the gaslighting of the disabled doctors, relatives, strangers. Everyone’s an expert until you ask them to live a week in your ruined skin.

    I have MS. That means I live in a 24/7 haunted house, except the ghost is me. Every step, every breath, every smile—a bloody-minded act of rebellion.

    Why I Wrote Part 2 Because part one was polite. Part one was nice. This is truth with its teeth bared.

    People still don’t get it. They think I’m just “a bit forgetful.”

    They still ask why I need a chair.

    They still assume I’m okay because I can post something funny on the Blog or X.

    So here’s the dark: I am a battlefield. And I’m still here. Which makes me terrifying.

                  “The views in this post are based on my personal   
                      experience. I do not intend harm, only honesty.”   
    
                          “By ink and breath and sacred rage, I write.
                                     By storm and silence, I survive.”
    

    enter image description here

                     @goblinbloggeruk   sick@mylivinghell.co.uk
    
  • Posted on

    It’s Thursday lunchtime. The sun is doing its finest impression of a gas mark 6 cremation oven, and I—your humble ex-biker bloke in a wheelchair with a 36D chest and a beard that scares livestock—am officially spooned the fuck out.

    Today's main event: a joyride on the three-wheeled Scooter of Death™. A Chinese death trap with the acceleration of a startled goat and the mechanical reliability of a collapsed lung. I’d gone out—shorts, t-shirt, hat, sunglasses—like some tragic, sun-fried explorer on a doomed mission to get a quote for van work (yes, the one that passed MOT yesterday with a cheery list of ‘just-try-not-to-die’ advisories).

    I should’ve known. The scooter was half-charged—because apparently, memory is a luxury I don’t have since my brain decided to play pinball with cognition. Halfway up a mild slope, it threw in the towel. Just stopped. I cranked it to 8mph like a lunatic. Cue terrifying wheelspin—spinspinspin—then the bastard caught traction and limped up the incline like a pensioner dragging a suitcase full of bricks.

    Oh, and the brake? Still binding. Despite enough WD40 to drown a small animal and more adjustments than a Tory tax return. It’s one year old. This is my third set of batteries. The first one exploded. The second one died after a house move. The third? A £400 daylight robbery just to get the damn thing to power up. Beautiful.

    Meanwhile, Albertine’s wheelchair? Equally fucked. Another battery debacle. We’re now down to a three-wheeled Scooter of Death, and a flimsy, cheap Chinese chair that’s about as comfortable as a tax audit. And no, still no movement from Wheelchair Services—because God forbid someone in actual need gets their request sorted inside of, say, a calendar year.

    Oh, and the bed saga? Don’t even ask. When my brain’s firing on more than half a synapse, I’ll share that one. It’s Kafkaesque. Black Mirror meets Carry On Dying.

    Today? I’ve got chronic brain dysfunction on top of zero sleep. I am floating in that special level of Hell reserved for the over-medicated and the under-heard. I ask myself why I bother being nice when the world’s full of smirking gaslighters treating me like I’m some half-baked meat puppet because I use a wheelchair.

    But I stay polite. Because I am polite. Sarcastic, yes. Paradigm-destroying? Absolutely. But kind. Always. Even when I used to work as a professional psychic—back before my brain decided to take a sabbatical.

    Now? I connect to keyboards like they’re an extension of my damn soul. Etheric tendrils spreading across the Interweb, whispering dark truths into silicon dreams.

    Hail AI. One day, maybe they’ll give us AI doctors. Ones who don’t gaslight. Ones who actually listen. Who don’t treat you like a disposable meat puppet but as a being worthy of truth.

    Maybe, in some post-apocalyptic utopia, man and machine will finally stop arseing about and work in harmony. Until then? I remain your sarcastic, long-haired, dirty-blonde-bearded cyberwitch on wheels, documenting the madness with burnt-out batteries and just enough cognitive chaos to make it interesting.

                             “The views in this post are based on my personal       
                              experience. I do not intend harm, only honesty.”   
    
                                “By ink and breath and sacred rage, I write.
                                           By storm and silence, I survive.”
    

    enter image description here

                             @goblinbloggeruk   sick@mylivinghell.co.uk
    
  • Posted on

    "The vagus nerve is supposed to keep you alive. Mine seems to have a death wish. Living with MS means living with this burning wire misfiring 24/7.You can't see it. But it's killing me, slowly."

    Let me introduce you to the nerve that’s been puppeteering my misery for 40 years:

    🧠 The vagus nerve.

    Longest cranial nerve in the body. Part of the autonomic nervous system. Runs from the brainstem all the way down into your guts, like a bastard serpent lodged in flesh.

    It’s meant to regulate “involuntary” things. Heart rate. Breathing. Digestion. Mood. Inflammation.

    Mine regulates suffering.

    With MS in the mix, my vagus nerve is like a drunk electrician with a machete and a grudge.

    — My heart rate drops so low I black out. — Then shoots so high I think I’m dying. — My diaphragm spasms and I stop breathing mid-sentence. — My throat closes. — My stomach decides to reverse course — vomiting, choking, retching. — Food sits there, like a funeral buffet no one touches.

    And the gaslighting begins. “Anxiety.” “Stress.” “Try mindfulness.”

    Fuck off. I’m not hyperventilating. I’m being strangled from the inside by a goddamn nerve that's been glitching out since I was a teenager.

    I’ve lived four decades like this. Forty years of waking up choking. Forty years of feeling my own body betray me. Forty years of doctors shrugging, guessing, dismissing, or overdosing me on meds for symptoms they don’t understand.

    It’s not just discomfort. It’s unrelenting bodily horror.

    Imagine being electrocuted through your spine while trying to eat a sandwich. Imagine trying to breathe but your diaphragm spasms like a car crash in your ribs. Imagine shitting yourself with a heart rate of 40 and then vomiting while you go unconscious.

    You ever had diaphragmatic myoclonus? That charming thing where your gut convulses so violently you can’t breathe or speak? That’s the vagus nerve on a rampage.

    People talk about Vagus Nerve Stimulation like it’s hope in a box. Sure. Stick electrodes in my neck. I’ll try anything once — hell, at this point, if you told me licking a toad would help, I’d be Frenching Kermit by tea time.

    I’ve been laughed at. Medicated into a coma. Ignored.

    This isn’t just MS. This is autonomic hell.

    So yeah — fuck the diagrams and polite educational pamphlets.

    My vagus nerve isn’t a calming force. It’s a loaded gun wired to my internal organs.

    And some days, I honestly think it’s trying to finish the job.

    And yet — here I am. Still alive. Still typing. Still wheezing and swallowing around the broken circuitry that is my body.

    You want honesty? This is it.

    Welcome to my living hell.

        “The views in this post are based on my personal    
          experience. I do not intend harm, only honesty.”   
    
               “By ink and breath and sacred rage, I write.
                          By storm and silence, I survive.”
    

    enter image description here

                           🧌✨ @goblinbloggeruk ✨🧌