Multiple sclerosis is My Living Hell

Medical Cannabis

All posts tagged Medical Cannabis by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    “Cannabis isn’t a cure. But for me (and many others) it sometimes feels like lowering the waterline so I’m not constantly drowning.”

    Living with multiple sclerosis is like being handed a body that’s half-conspirator, half-prison guard. One day it lets you move, the next it locks you in with pain, spasms, and exhaustion. People who don’t live it often don’t get it. That ignorance can make conversations about treatments uncomfortable—especially when cannabis comes up.

    Cannabis still carries heavy stigma. For decades it’s been painted as the drug of lazy teenagers, a dangerous gateway, or a “last resort.” But the reality is more complicated. For many with MS, cannabis isn’t about chasing a high it’s about clawing back a bit of life. It’s not a cure, and it never will be. What it can do, in the right form, for the right person, is bring relief. Sometimes small, sometimes significant, always worth noticing.

    What the evidence actually says

    Science is messy, but let’s strip it down to what we know. Cannabis is a plant, yes, but the two compounds that matter most in MS treatment are:

    THC (tetrahydrocannabinol): The part that makes people high. Psychoactive, strong, and for some people, too much.

    CBD (cannabidiol): Doesn’t produce a high. Interacts differently in the body, often described as the calming counterpart to THC.

    Together, in carefully balanced medical products, they can target symptoms that MS brings to the table.

    Spasticity: where cannabis shines

    This is the symptom where cannabis shows the clearest benefit. Studies and lived experience show that THC+CBD sprays such as Sativex (available in the UK under specialist prescription) can reduce muscle stiffness and spasms. People report less pain, easier sleep, and more control. Clinical tools that doctors use don’t always capture the full effect, but patients’ own reports matter. Relief you can feel is relief that counts.

    Neuropathic pain: promising, but mixed

    Neuropathic pain is one of the cruellest symptoms of MS burning, stabbing, electric shocks that don’t stop. Some trials show cannabis extracts help reduce this pain, particularly when other drugs fail. Others find only modest benefits. What’s clear is that many patients experience genuine improvement, even if not every study proves it on paper.

    Sleep and quality of life: secondary gains

    When stiffness and pain ease, sleep improves. Better sleep ripples out into mood, energy, and daily functioning. These knock-on benefits often don’t make it into study data, but they matter enormously in real life.

    Why the stigma lingers

    Say “cannabis” and too many people still picture a stoner on a sofa surrounded by crisp packets. For someone with MS, that stereotype is a slap in the face. You’re not looking to escape you’re trying to ease spasticity enough to get through the night without screaming into your pillow.

    The stigma is political and cultural, not medical. Cannabis was demonised for decades, and even though attitudes are shifting, the old narratives cling on. In the UK, cannabis-based medicines are legal—but only under strict circumstances, and only through specialist doctors. Most GPs can’t or won’t prescribe. That leaves many people sourcing CBD oils or black-market products, where quality is questionable and legality is a grey cloud hanging overhead.

    Risks and realities

    Let’s not polish this into a miracle. Cannabis has risks. Honesty is what dismantles stigma, not over-promising.

    Cognitive fog: MS already messes with memory and focus. THC can worsen that for some.

    Mental health risks: High-THC strains can trigger anxiety or paranoia, especially in people already vulnerable.

    Physical side effects: Dizziness, fatigue, nausea, and changes in heart rate or blood pressure.

    Dependence: Rare with medical, controlled use, but not impossible.

    These don’t mean cannabis is “bad.” They mean it’s a tool, and tools need skill to use safely. The difference between relief and trouble often comes down to dose, formulation, and medical oversight.

    Why it matters anyway

    Here’s the thing: when you live with MS, symptom relief is gold dust.

    Even a 20% drop in pain, even one less night of spasms, even an extra hour of sleep it all adds up. That can mean the difference between being stuck in bed all day or having enough energy to make breakfast. Between drowning in pain and keeping your head above water.

    Cannabis offers that to some. Not all, not always, but enough that it deserves respect and consideration rather than judgement and whispers.

    What needs to change

    Research is still catching up. Decades of stigma slowed everything down. What we need now are:

    More trials: Larger, longer, better-designed studies.

    Clearer guidance: What dose works? Which formulation spray, oil, vapor, capsule?

    Doctor training: So patients aren’t left educating their own clinicians.

    Legal access: Safe, regulated supply that doesn’t force people into the shadows.

    Until then, people with MS continue to experiment quietly, often without the support they deserve.

    The bottom line

    Cannabis won’t cure MS. It won’t rewind the clock, repair nerves, or erase uncertainty. But it can lower the waterline. It can turn nights of relentless spasms into nights of sleep. It can dull the sharp edge of pain. It can hand back small fragments of control, and in a life where MS takes so much, those fragments matter.

    So let’s talk about cannabis without shame, without stigma, and without fantasy. Let’s call it what it is: a tool. Not a miracle, not a menace, but something that, for many, makes life with MS just a little more bearable.

    Quick facts: Cannabis & MS

    Not a cure. Cannabis doesn’t reverse MS; it’s used for symptom relief.

    Most evidence = spasticity. THC+CBD sprays (e.g., nabiximols/Sativex) show the clearest benefit for muscle stiffness and spasms.

    Pain help is promising. Many people report reduced neuropathic pain; trials are mixed but patient reports matter.

    Sleep & quality of life: Indirect benefits (better sleep, less waking from spasms) often improve day-to-day functioning.

    Risks exist: possible cognitive slowing, anxiety/paranoia with high-THC, dizziness, cardiovascular effects, and dependence risk.

    Formulation matters: spray, oil, vaping, or edibles deliver different effects — dose and ratio (THC:CBD) are key.

    Legal note (UK): Medicinal cannabis is prescribable but tightly regulated; specialist prescription is usually required.

    Practical tip: Start low, go slow. Use reliable sources and consult a clinician familiar with MS and cannabis.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
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    @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    Time is a drunk clown in cheap shoes doing cartwheels in my skull. Welcome to progressive MS, where your brain hits the brakes mid-thought and your day folds in on itself like a damp deckchair.

    I’ve done the pharma carousel. Twenty to thirty pills a day, side-effects breeding side-effects like horny gremlins, needles for dessert. Result: zombie mode. Chair-bound, fogged, half a human. That’s not medicine. That’s chemical cosplay.

    Then there’s medical cannabis oil and flower basic, honest, grown-in-dirt relief. It doesn’t cure MS (nothing does, spare me the miracle clickbait), but it calms the spasms, dulls the pain, gives sleep a chance, and lets me feel human without the opiate hangover. No “inspirational warrior” bullshit; just reality that works.

    Benefits of Medical Weed (minus the brochure voice)

    Pain Management Chronic pain and gnawing neuropathic nonsense stop chewing through my nerves. No opiate fog, no “what planet am I on?”

    Mental Health Anxiety down, black dog naps. Depends on strain/dose, sure but I’m not staring at the wall planning my own funeral anymore.

    Anti-Inflammatory Less swelling, less misery, less “scream into a cushion.” Crohn’s, RA—people report relief. “Early studies” say promise; my body says thanks.

    Nausea & Appetite Chemo pukes? Weed body-checks them. Appetite returns without force-feeding pills and prayers.

    Neurological CBD has receipts for seizures. For MS: spasms and stiffness throttle back. I can sit without my body re-enacting a mechanical bull.

    Sleep Relaxation shows up, anxiety sods off, and I actually sleep before 4 a.m. Staring at ceilings is not a hobby.

    Benefit What NHS/Pharma Say What Actually Happens (My Reality)
    Pain Management “May reduce discomfort.” Spasms shut the fuck up. Nerve pain finally chills where opiates failed.
    Mental Health “Some report mild improvement.” Anxiety eases, depression loosens. No death-stare at the wall.
    Anti-Inflammatory “Early studies show promise.” Less swelling, less agony, fewer F-bombs per hour.
    Nausea & Appetite “Helps chemo-induced nausea.” Vomitfest canceled; appetite returns without the pill pyramid.
    Neurological “May help seizures/spasticity.” CBD reins in seizures; MS spasms stop playing rodeo.
    Sleep “Improves sleep in some cases.” Real sleep. Not sedated oblivion. Actual rest.

    Progressive MS + Weed: Straight from the trench

    Spasticity: THC/CBD together take the edge off the iron-bar tightness. Oil for baseline, flower for flare-ups.

    Neuropathic pain: The burning/zinging is less murderous. Not gone just not in charge.

    Sleep: Indica-leaning strains knock me down gently. Not a sledgehammer, more a firm hand on the shoulder.

    Mood/anxiety: Calmer. Not blissed, just steadier footing in a tilting room.

    Fatigue: Mixed bag. Some days better, some days couch-glue. Timing + dose matter.

    Cognition: Helps because pain/spasms back off. Too much THC? Hello marshmallow brain. Respect the line.

    What it isn’t

    A cure.

    A halo.

    A licence to hotbox yourself into next week. It’s medicine—treat it like one.

    My takeaway

    I’d rather be a weed-smelling goblin in an electric wheelchair than an NHS-approved opiate zombie. Weed doesn’t fix MS. It makes life with MS bearable. That’s the whole game.

    (Standard sanity note: your body isn’t mine. Talk to a clinician who treats cannabis like medicine, not scandal. Start low, go slow, keep notes, don’t be a hero.)

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    It’s Tuesday. Allegedly. My head swears blind it’s Sunday. Sometimes it feels like both at once, which is the joy of progressive MS brain fog. You don’t just lose track of time, you lose the bloody concept of time. Hours, days, weeks it all dribbles into one big puddle of confusion until you’re sat there thinking, what the fuck was I just doing?

    That’s the real head-fuck. It’s not just forgetting your keys or leaving the milk out. It’s thought itself freezing mid-air, like someone slammed down a steel shutter in your brain. You go from “I’m making tea” to “Who am I? Where am I? Why does this kettle look like a spaceship?” in seconds. It’s surreal. It’s exhausting. And it happens over and over, until you stop panicking and just shrug: oh, here comes another blackout in my head.

    And yeah, I knew these days were coming. You don’t get diagnosed with progressive MS without seeing the future written in big black letters: this will get worse. But knowing it’s coming doesn’t make it easier when it hits. It just means you sit in the fog muttering, ah yes, the prophecy is fulfilled.

    That’s why I lean on AI now. Because my spelling’s shot, my coherence goes missing like a drunk in a hedge, and some days even stringing a sentence together is like trying to herd feral cats. So I use my AI mate to bang it into words. And it works. No fluff. No “inspiration porn.” Just my reality in print.

    Meanwhile, real life keeps grinding on. Two weeks from now, I finally get a call from wheelchair services. Six months I’ve waited. Six months of struggling without a powerchair. Six months of suffering because someone’s paperwork sat in a pile. A phone consultation is coming because what I needed all along was more time sat still on my arse waiting for the system to remember I exist.

    And the pain clinic? They’re fine. Professional. A bit of NLP-lite sprinkled in, which makes me laugh. You can’t gaslight me I’ve been gaslit more times than a Victorian street. They mean well, but until you live inside this mess, you don’t get it. You can nod. You can sympathise. But you don’t know.

    Here’s what I know: I don’t want their “coping strategies.” I don’t want another rebrand of pseudo-science telling me how to breathe through my agony. I’ve done the pills 20, 30 a day. I’ve done the needles. I’ve done the zombie shuffle where you’re doped so heavily you forget you even exist. No thanks. I’ll take my medical weed, roll it up, and live in a way that actually calms the spasms without frying my brain into porridge.

    I’m not delusional. I know there’s no cure. Death walks next to me every day like a bad smell that won’t piss off. And when you face death daily, not in the cinematic “battle cancer and win” way, but in the slow, grinding “death is waiting in the next room” way, it changes you. You stop being afraid. You start being blunt.

    Friends? None. Illness strips them away. Chronic illness is a private club and only those inside it get the membership card. That’s not bitterness, that’s just reality.

    And because the universe has a sick sense of humour, I’m plagued by bloody flies. Everywhere. The zapper’s gone on strike. Motorhead’s blaring loud enough to melt glass, but even Lemmy’s bass won’t fry a single one. So I’m left in the fog, swatting flies, laughing at the absurdity of it all.

    So yeah. Tuesday. Sunday. Who cares? It’s another day in the trenches. Another day in the slow death suit. Another day where brain fog fucks with me, the flies mock me, and I carry on anyway.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

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