Multiple sclerosis is My Living Hell

medical marijuana

All posts tagged medical marijuana by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    It’s Wednesday. Already. Somehow I’ve managed to do more life admin than seems humanly possible for a body powered by MS and stubbornness alone. My mind is a foggy wasteland of numbness, courtesy of my chronic neurological fun-fest, but the chaos seems… slightly less apocalyptic today. Small victories.

    Pain clinic consult? Surprisingly decent. I didn’t get gaslit, which feels like a miracle. Wheeled out with some scraps of positivity that I’ll hoard like toilet paper in a zombie apocalypse. MS nurse? Hoping she phones before I develop a permanent twitch from waiting. Overworked, underpaid, and heroic.

    AI is my new best friend. I’m on a mission to grab my MRI scans so my digital buddy can tell me exactly what’s in my skull. No doctor euphemisms, no vague nods at “abnormalities,” just straight-up pixel honesty: “Lesion here. Lesion there. Weird patch in your brainstem. That’s all.” Finally, clarity for a human with a brain that sometimes refuses to translate itself into English. White coats can go choke on their paperwork.

    Yopi, the four-legged chaos incubator, is settling into our life of slow-motion absurdity. She’s making my world stranger in ways I didn’t think were possible. Only snag? My mobility. Can’t take the walks, but we’ll train her to glide along with the powerchair. Life’s full of compromises, mostly involving gas masks for me and treats for her.

    Medical marijuana and THC/CBD oil are holding the line. No magic bullets for nerve pain, tinnitus, or the daily brain ache, but it helps, and I’ll take it. Every little sanity-saving thing counts when you’re a human pinball in an MS-shaped arcade.

    Meanwhile, I sit, inhaling the occasional waft of bulldog farts, contemplating life, death, and whether AI will someday take over all consulting roles for humans with chronic illness. It probably will, but at least it won’t judge me for smelling it all and laughing anyway.

    MS life: chaotic, smelly, occasionally enlightening, and fully documented with AI commentary for the ages.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    Multiple sclerosis is the chronic gift that never stops giving spasms, fatigue, bladder tantrums, and a brain that forgets where it left itself. Doctors offer drugs that come with side effects nastier than the disease itself. The wellness industry, meanwhile, will happily sell you unicorn dust in a capsule. Somewhere between those extremes lies a handful of vitamins, minerals, supplements and yes, cannabis that might actually help.

    Notice the word might. Nothing here is a cure. But if you’re already a walking pharmacy, a few more capsules, drops, or puffs won’t tip the scales much further.

    Vitamin D: The Sun in a Capsule

    Low vitamin D is practically MS’s favourite sidekick. Get your levels checked; if they’re low, you’ll need more than a weekend in Brighton. Supplement with 600–800 IU daily if you’re average, 2000–5000 IU if you’re basically a mushroom.

    Vitamin B12: Batteries for Your Nervous System

    B12 keeps your nerves from turning into frayed Christmas lights. Deficiency means more fatigue, confusion, and neurological chaos. Recommended: 2.4 µg daily. Many of us end up with injections because our stomachs laugh at tablets.

    Antioxidant Vitamins A, C, E: The Shiny Knights

    In theory, they reduce oxidative stress. In reality, they either help a bit or do sod all. Don’t mega-dose—they can mess with MS treatments. Stick to carrots, oranges, and almonds. Food still exists, you know.

    Omega-3 Fatty Acids: Fishy Business

    1–2 grams of fish oil daily may calm inflammation and protect your scrambled-egg nervous system. Warning: burps taste like the North Sea.

    Magnesium: The Spasm Whisperer

    Spasms and cramps? Magnesium can help relax the rebellion. 310–420 mg daily. Magnesium glycinate is easier on your gut than magnesium oxide, which basically works like a laxative grenade.

    Selenium: The Spark Plug

    Tiny but mighty—supports thyroid and immune function. 55 µg daily. More is not better unless you enjoy garlic breath and brittle nails.

    Zinc: The Balancing Act

    Supports immune health, but too much robs you of copper. 8–11 mg daily. More zinc ≠ more health.

    Ginkgo Biloba: The Brain Leaf

    Supposed to help memory and brain fog. Maybe. Or maybe you’re just paying to chew tree leaves. 120–240 mg daily. Avoid if you’re on blood thinners unless you want internal fireworks.

    Coenzyme Q10: Cellular Coffee

    100–300 mg a day may help with energy. Or it may just make your urine pricier.

    Lion’s Mane Mushroom: Mop-Head Medicine

    Looks like a fungus mop, promises nerve regeneration. Studies on mice and people with dementia show promise. MS patients? Jury’s still out. Best case: your brain cells throw a tiny party. Worst case: you’ve paid good money to eat something that looks like it belongs under the sink.

    Cannabis, THC Oil, and CBD: The Plant That Launched a Thousand Debates

    Medical Marijuana / THC Oil

    Benefits: Reduces spasticity, pain, and helps with sleep. For some, it’s the only thing that takes the edge off nerve pain without turning them into pharmaceutical zombies.

    Risks: Brain fog, dependency, paranoia if you overdo it. Oh, and the law, if you live somewhere backward.

    Reality: It won’t cure MS, but it can make daily torment tolerable. And tolerable is a miracle in itself.

    CBD Oil (Cannabidiol)

    Benefits: Weed’s non-psychoactive cousin. May calm spasms, anxiety, and inflammation. You won’t get high, but you might get relief.

    Risks: Wildly inconsistent quality. Some bottles contain less CBD than a lettuce leaf.

    Reality: For some, it works. For others, it’s just expensive snake oil. Buyer beware.

    Dark Wrap-Up: If Big Pharma could patent cannabis, it would already be in blister packs with a four-figure price tag. Instead, they’re terrified of a plant doing their job better. If it’s legal where you are, explore it. If it isn’t—well, let’s just say people have been more resourceful than clinical trials for a very long time.

    Other Bits and Bobs Worth Mentioning

    Curcumin: Turmeric’s golden child. Needs black pepper for absorption. Anti-inflammatory, allegedly.

    Probiotics: Gut health influences immune health. Translation: your sh*t matters.

    Alpha-Lipoic Acid: Antioxidant that might help nerves. Or might just be another pill.

    Acetyl-L-Carnitine: May fight MS fatigue. Or may just add to the capsule pile.

    Vitamin K2: Good for bones and blood vessels. Sounds like a Star Wars droid.

    Lifestyle Stuff: Exercise, diet, stress management, and sleep. Yes, the boring basics. No supplement makes up for neglecting them.

    The Unvarnished Conclusion

    Supplements won’t cure MS. Weed won’t cure MS. Nothing cures MS. But some things might take the edge off, soften the blow, or make life slightly less hellish. That’s worth something. The trick is balance, caution, and not being conned by glittery wellness promises. Swallow what helps, laugh at what doesn’t, and remember: you’re still alive, and that’s the real victory.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.
    𒀭𒊩𒆳 ᛗᛁᛋᛏ ✦ ᚷᚾᛟᛋ

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    I know its Friday..not been so good...late post..

    It’s Thursday. Rain hammering the windows like a bastard taxman. Fingers numb, throat strangling me like invisible hands trying to choke the last swear word out of me. Breathing stupid. Feel like puking. MS is a puppeteer with broken strings, and I’m the marionette twitching on the floor.

    So I lean on the secret weapon: AI. I smash the keyboard with numb hands, gibberish spills out, and the machine stitches it into sense. Without it, I’d be gone. With it, I’m still here, still ranting, still clawing the page. That’s life now: goblin vs. entropy, assisted by silicon.

    Last night: only up once. Bliss. Still woke shattered, like I’d been dragged behind a lorry. Tinnitus is screaming like a rave in a biscuit tin. Al Stewart can’t drown it, Sabbath can. I miss the rides the engines, the crew, adrenaline punching your veins until you felt immortal. Now I get my kicks from antihistamines and nostalgia.

    But there’s a dog coming. A rescue beast with eyes like trouble. She’ll chew my slippers and rearrange my world, and I say yes, please. New orbit needed.

    People ask: “How do you keep going?” Answer: I don’t. I collapse, I swear, I threaten the universe. Then I get up again because fuck lying down. Music, art, writing, sarcasm. That’s my oxygen. Neuroplasticity? Sure, call it that. I call it stubborn rewiring with duct tape.

    And now cannabis. Medical marijuana. Not fairy rings and mushroom cults. Real, legal, prescribed. The plant they jailed people for now comes with a bar code and a receipt. Hypocrisy tastes bitter, but relief tastes better.

    Positive points (the blunt edition):

    Pain: Cannabis tells nerve pain to piss off. Doesn’t cure, but takes the edge off enough to breathe.

    Spasticity: MS muscles seize like rusty hinges. Weed oils ease the vice-grip. Less claw, more unclench.

    Sleep: Nights of pacing and madness? Sometimes cannabis knocks you sideways into actual rest. A miracle in itself.

    Nausea & appetite: The body wants to puke? Cannabis reroutes you towards a sandwich. Beats wasting away.

    Anxiety: Not gone, but softened. Panic becomes background noise instead of a bullhorn.

    Is it perfect? No. But compared to Big Pharma’s endless pills and side effects, cannabis feels like sanity. Not a cure, not salvation just a tool that works.

    So here I am: Thursday, rain, tinnitus screaming, body trying to strangle itself, AI turning my mess into words, medical marijuana holding the line, Sabbath howling in the background. I feel like a six-year-old with villain energy. I’m weird. I’m wired. And I’m alive.

    Not inspirational. Not pretty. Just survival with jokes.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    Time is a drunk clown in cheap shoes doing cartwheels in my skull. Welcome to progressive MS, where your brain hits the brakes mid-thought and your day folds in on itself like a damp deckchair.

    I’ve done the pharma carousel. Twenty to thirty pills a day, side-effects breeding side-effects like horny gremlins, needles for dessert. Result: zombie mode. Chair-bound, fogged, half a human. That’s not medicine. That’s chemical cosplay.

    Then there’s medical cannabis oil and flower basic, honest, grown-in-dirt relief. It doesn’t cure MS (nothing does, spare me the miracle clickbait), but it calms the spasms, dulls the pain, gives sleep a chance, and lets me feel human without the opiate hangover. No “inspirational warrior” bullshit; just reality that works.

    Benefits of Medical Weed (minus the brochure voice)

    Pain Management Chronic pain and gnawing neuropathic nonsense stop chewing through my nerves. No opiate fog, no “what planet am I on?”

    Mental Health Anxiety down, black dog naps. Depends on strain/dose, sure but I’m not staring at the wall planning my own funeral anymore.

    Anti-Inflammatory Less swelling, less misery, less “scream into a cushion.” Crohn’s, RA—people report relief. “Early studies” say promise; my body says thanks.

    Nausea & Appetite Chemo pukes? Weed body-checks them. Appetite returns without force-feeding pills and prayers.

    Neurological CBD has receipts for seizures. For MS: spasms and stiffness throttle back. I can sit without my body re-enacting a mechanical bull.

    Sleep Relaxation shows up, anxiety sods off, and I actually sleep before 4 a.m. Staring at ceilings is not a hobby.

    Benefit What NHS/Pharma Say What Actually Happens (My Reality)
    Pain Management “May reduce discomfort.” Spasms shut the fuck up. Nerve pain finally chills where opiates failed.
    Mental Health “Some report mild improvement.” Anxiety eases, depression loosens. No death-stare at the wall.
    Anti-Inflammatory “Early studies show promise.” Less swelling, less agony, fewer F-bombs per hour.
    Nausea & Appetite “Helps chemo-induced nausea.” Vomitfest canceled; appetite returns without the pill pyramid.
    Neurological “May help seizures/spasticity.” CBD reins in seizures; MS spasms stop playing rodeo.
    Sleep “Improves sleep in some cases.” Real sleep. Not sedated oblivion. Actual rest.

    Progressive MS + Weed: Straight from the trench

    Spasticity: THC/CBD together take the edge off the iron-bar tightness. Oil for baseline, flower for flare-ups.

    Neuropathic pain: The burning/zinging is less murderous. Not gone just not in charge.

    Sleep: Indica-leaning strains knock me down gently. Not a sledgehammer, more a firm hand on the shoulder.

    Mood/anxiety: Calmer. Not blissed, just steadier footing in a tilting room.

    Fatigue: Mixed bag. Some days better, some days couch-glue. Timing + dose matter.

    Cognition: Helps because pain/spasms back off. Too much THC? Hello marshmallow brain. Respect the line.

    What it isn’t

    A cure.

    A halo.

    A licence to hotbox yourself into next week. It’s medicine—treat it like one.

    My takeaway

    I’d rather be a weed-smelling goblin in an electric wheelchair than an NHS-approved opiate zombie. Weed doesn’t fix MS. It makes life with MS bearable. That’s the whole game.

    (Standard sanity note: your body isn’t mine. Talk to a clinician who treats cannabis like medicine, not scandal. Start low, go slow, keep notes, don’t be a hero.)

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    There was a time in my life when I thought everything was going to be awesome.

    How wrong I was.

    We moved into this reasonably okay house, in an okayish part of town. You know the sort – two cars in the drive, fake plants in the windows, neighbours who shit themselves if someone owns a leather jacket that isn't from M&S.

    There I was, riding my Yamaha 1100 Dragstar trike, wild long hair, beard that screamed “Hermit Wizard Biker,” wearing my cut and old jeans – California on a budget, but stuck in rainy middle England. I was about 57 then. Full of ideas. Full of hope. Full of medical cannabis.

    And there was Albertine – goddess incarnate, riding her Triumph Bonneville like a Valkyrie on wheels. Leather trousers, biker boots, that horny, savage biker queen look that made grown men weep into their pints. Long dark hair whipping the wind, eyes like stormclouds and fire combined. She looked like she’d ride through the gates of Valhalla just to flick the V’s at Odin before burning rubber into the void.

    I tried to do some DIY. Didn’t go well. Many accidents, broken bones, ambulances, heart attack at the local refuse tip. Carried on regardless because, well, I’m me. Heart running at 60%, they said. Meh. Go home, they said. Blah blah fucking blah.

    But this is where the fun really began.

    The neighbours. Gods. They hated us before the kettle even boiled. They saw my trike. They saw her Bonneville. They saw our hair. Our leathers. Our old biker boots. That was enough. Judged. Condemned. Executed by gossip.

    But they didn’t know who they were fucking with.

    I was Warlock. Spiritual Radio Shock Jock. Dark Gandalf. She was Albertine, Valkyrie Biker Oracle. We had Multiple Sclerosis, PTSD, heart disease, psychic powers, and a list of medical issues as long as their Deliveroo orders combined. Nothing phases us anymore. You can hit us, hurt us, say hurty words – we just laugh and smile because we’re already dying, slowly, hilariously, and publicly.

    One day the bloke next door tried to intimidate me, bragging about being a bouncer. I laughed. Told him I used to be a bouncer too. His face dropped like my blood pressure on cannabis oil. From then on, if I was in the garden, he ran in. If I was in the shop, he ran out. It was like having my own personal game of Pac-Man.

    His wife ran the show, obviously. Poor sod.

    Best bit? He offered to sell me weed once, knowing I had MS. I said no. Later, he smelled my vape and threatened to call the police. Solicitors got involved. Absolute circus. I laughed harder. It was medical marijuana. Karma’s a bitch, mate.

    But we stood our ground. Never showed fear. Didn’t need to. Because deep down, he knew we were the real wizards, and he was just a frightened little man in a tracksuit who thought his wife’s approval was worth more than his soul.

    I am a disabled wheelchair user. I’m a long-haired, bearded 65-year-old eccentric warlock on a spiritual journey, seeking portals to other realms where people love instead of hate. Where cosmic pea soup realities collide and no one gives a shit about your beard or your wheels.

    Just divine love, freedom, and the multiverse’s endless electric embrace.

    Simple really.

    But brain fog incoming… so I’ll leave it there, Gandalf out.

                                           !!DISCLAIMER !! 
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

                         “The views in this post are based on my personal     
                             experience. I do not intend harm, only honesty.”   
    
                                     “By ink and breath and sacred rage, I write.
                                               By storm and silence, I survive.”
    

    enter image description here

                                  @goblinbloggeruk   sick@mylivinghell.co.uk
    
  • Posted on

    So I dove into medical marijuana—not literally, though falling headfirst into a sack of flower sounds kind of comforting right now. But yeah, here we go.

    Do I personally think medical cannabis (flower and THC-CBD oil) has helped me?

    Yes. Yes indeed.

    But let’s rewind the VHS to the 1970s. Picture it: secret greenhouses in sheds, hidden like Cold War bunkers, where growers whispered to their plants like they were the Messiah. I’ve been smoking Mary Jane since she wore flares and listened to Pink Floyd on vinyl. Long before your wellness influencers made it trendy with avocado toast and crystals.

    I only vape these days. No tobacco—because, apparently, that’s “bad for you.” Allegedly.

    Chronic Hell, Meet Green Salvation My pain is biblical. My spasms? Think exorcism, but with less Latin and more bone-snapping contortions. My body goes full Cirque du Soleil without consent. And you know what helps?

    Medical-grade cannabis.

    They finally made it legal in the UK (sort of, in that "you can have it, but good luck affording it" kind of way). So I did the dance: filled out forms, proved I’m broken, gave them my medical records, swore on my own spinal cord—and voilà. Legal weed. I just smiled like a man who finally got invited to the cool table... 40 years late.

    It’s not free. Of course it’s not. Nothing good ever is. But it’s worth it. No side effects, no weirdness—just help.

    So What Does It Actually Do? Well, it doesn’t turn me into Gandalf or cure MS (I checked). But it:

    Lessens my spasms by about 30%

    Helps calm my body’s electric storm of spasticity

    Softens the pain—not erases it, but dulls it enough so I can breathe again

    Evens out my mood (though I’m still delightfully twisted and full of sarcasm)

    Lets me live a calmer, less rage-inducing existence

    THC-CBD oil, in particular, is liquid zen. The flower? A pain-relieving smoke cloud that takes the edge off reality. And reality has many, many sharp edges.

    And Then the MS Said “Plot Twist!” But hey, it’s not all rainbows and reefer. Just an hour ago, I had a full-blown bowel incident. Pain, sweats, the works. The kind of pain that makes you question whether your intestines have unionised and gone on strike. MS is a cruel and confusing beast. It’s got more plot twists than a Netflix thriller, and most of them involve sweat, cramps, and existential dread.

    And where are wheelchair services? Missing in action. Four months and counting. My MS nurse? On an eternal holiday in some parallel dimension where no one has to reply to emails.

    Holidays for me? Ha. Unless your idea of fun is custom food prep, dodgy bowels, and extreme heat sensitivity. Sign me up for the Hell Cruise 2025.

    Closing Thoughts from the Padded Room So yes, medical cannabis helps me. But this body is still a riot. The spoons are gone. The demon weed whacker was round earlier and now I’m emotionally broken, physically drained, and ready to weep into a vape pen.

    But you know what? I’m still here. Still rolling, ranting, and roasting life with dark English humour and a beard that’s survived the 70s, the 80s, and now the end of the NHS.

    Sleep, that precious thang. Come and get me.

                   “The views in this post are based on my personal       
                       experience. I do not intend harm, only honesty.”   
    
                     “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”
    

    enter image description here

                 @goblinbloggeruk   sick@mylivinghell.co.uk