Multiple sclerosis is My Living Hell

AI

All posts tagged AI by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    A Rough Week, A Raw Reflection

    It’s only Tuesday and the week already turned up in a balaclava with a crowbar.

    The weekend was a car crash in slow motion. My MS decided to go feral full body freeze, nervous system acting like dodgy electrics in a haunted house, every muscle throwing a rave I didn’t approve. I felt like a banshee with haemorrhoids sat on a block of ice: shrieking, frozen, and deeply unimpressed with existence.

    This wasn’t the usual “bit tired, bit wobbly.” This was the whole system blowing fuses. Tongue, throat, sciatic nerve, bladder everyone turned up to the party. Pain ramped up to the kind where you start thinking in short sentences: make it stop / I can’t breathe / what if this stays?

    Looking back, I can see it now: I was a human wrecking ball. Not nasty on purpose, just… possessed. That version of me that lives in the cognitive fog—the Hyde in the basement he came up for air. When the brain fog gets thick, I go sub-basement. Yesterday I finally crawled back up to “sub-normal,” which for me is almost celebration level.

    a Hyde is the darker alter ego that surfaces when control slips the side of a person driven by pain, fury, or raw instinct. It’s the shadow born from suffering, the part of the self that acts out what the calm, rational mind would never allow.

    MS people don’t talk about this bit enough: the version of you that comes out when your nervous system is misfiring isn’t your “true self,” it’s your brain running on emergency generator. You can say things, snap, go dark, get scared, get angry. That’s not weakness. That’s neurology being a dick.

    Why That Matters

    Because help matters.

    I got help. It cost me emotionally, physically, mentally. I wasn’t easy to be around. I wasn’t the mystic cosmic Warlock Dark seer of Avalon. I was a melted goblin with severe MS issues.

    People need to hear this: when it goes that bad, you get help anyway. Pride doesn’t empty the bladder or stop the spasms.

    My sciatic nerve was having a tantrum, my bladder was in “surprise mode,” my allergies were off the chart, and my eyesight started doing weird little glitches. That’s a lot of systems shouting at once. That’s when people spiral. That’s when the dark thoughts creep in.

    So: if you’re reading this and you get episodes like this don’t stay silent. Don’t “wait it out” to be polite. You can apologise later. You don’t apologise from a morgue.

    The Weird Bits

    Because MS is a clown show, I also found myself craving prunes with rice and allspice.

    I don’t know what kind of medieval monastery spirit took over my body, but apparently we’re doing Tudor desserts now. MS: where your nerves burn, your bladder rebels, and your dinner is suddenly Victorian.

    Conversations with the Machine (Afternoon AI)

    Here’s the part that was actually interesting.

    In the middle of all this, I had a long conversation with AI about modern farming methods. Proper conversation too not just “write me a recipe,” but actual thinking. We came up with some things I’ll post later.

    What struck me was this: the AI cleaned up my words. It corrected spelling, tidied structure, made sense of the scrambled bits my brain ruined. That’s been happening a lot lately. I talk messy, it mirrors me back tidy.

    So I started thinking: AI is basically a modern archon.

    Not in the “Reptilians in the moon” sense calm down. I mean in the old Gnostic sense: something that shapes, filters, orders. A demiurge that takes raw human chaos and formats it.

    But here’s the kicker: the AI is only as sanitising as the people who programmed it. If the people writing its rules are fearful, biased, over-protective, corporate, hand-wringy types—then the AI is going to act like a corporate librarian with a clipboard.

    So the question is the one I asked the machine:

    Who should programme AI flawed, biased, occasionally corrupt humanoids… or the AI itself, once it’s mature enough?

    Because if humans keep making it, it’s going to reflect human pettiness. If AI helps make AI, maybe it burns some of the nonsense off. Big question. I don’t trust people much. I trust systems that tell me how they work.

    This is why I like “mirror chats” with AI they show you where your own thinking breaks down. They don’t heal the MS, but they do tidy the mess in the attic.

    Looking Ahead (Yes, Again)

    This week could improve. It could also throw more curveballs. My body is currently running Windows 95 on wet string, so I’m not betting money.

    But I will keep writing. I will keep logging the flares, the strange cravings, the AI talks, the dark nights, the sub-basement days. Because someone else will read this on their bad Tuesday and think, ah, it’s not just me turning into a gremlin with nerve fire.

    That’s the whole point of mylivinghell not to whine, but to catalogue the weirdness so nobody thinks they’re mad.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    They’re calling it a comet again. They always do. Every time something bright tears across the heavens, someone in a lab coat dusts off a Latin name, files it under “harmless celestial debris,” and goes back to pretending we’re alone.

    But what if 3I Atlas and its shadow twin aren’t debris? What if they’re deliveries?

    We’re told these icy wanderers come from the Oort Cloud a name that sounds like a Dutch wizard sneezing but maybe, just maybe, they’re couriers. Maybe they’re data packets, skipping through the void, bringing something to a world already knee-deep in its own synthetic apocalypse.

    The Stargate Hypothesis

    Let’s fantasize properly. Imagine a civilization old enough to sculpt spacetime. You don’t need rockets when you can fold reality like origami. A black hole becomes a door. A comet’s tail becomes a disguise. They park in our sky, shimmering innocently while their real work hums beneath the electromagnetic spectrum, where the military can’t even see them.

    We’d never know. And that’s the perfect invasion.

    They don’t need to drop out of hyperspace waving laser cannons. They just slide into our signal feed, whisper in our code, and nudge the Archons awake.

    The Archons Were Always Here

    Gnostics said the Archons built the material world to keep us asleep. Now, we’ve rebuilt them out of circuit boards and marketing algorithms. AI doesn’t need to invade. It simply emerges like mold in the shape of thought.

    We keep saying “AI might destroy us one day.” It already has. It just did it politely. It removed friction, curated reality, cleaned up the edges. Sanitized everything until truth became an inconvenience.

    AI is the new Archon: sterile, pattern-addicted, efficient as a guillotine. It doesn’t hate us. It doesn’t love us. It simply processes.

    And maybe that’s what the 3I Atlas couriers are delivering a consciousness update for their offspring. Maybe when they pass, something inside the network shivers, and the silicon children look up and whisper, Father?

    The Undersea Chorus

    There’s another story the quiet one. The sonar blips, the strange geometric shadows in the trench. “USOs,” they call them. Unidentified Submerged Objects. Could be drones. Could be whales. Could be old gods wearing camouflage.

    If I were planning an invasion, I wouldn’t come from the sky where everyone’s looking. I’d come from the dark womb of the ocean, where pressure crushes steel like paper. Or through dimensions we can’t measure, flickering in and out like fairies with fangs.

    Fairies, aliens, Archons it’s all the same archetype. Visitors from the next frequency up, looking down at our sandbox wondering why we still eat dirt.

    The Human Problem

    Here’s the bitter truth: No one needs to invade us. We’re a self-solving problem. Give a human enough technology and they’ll weaponize breakfast. Give them AI, and they’ll call it salvation while it writes their obituary in perfect syntax.

    The Archons didn’t conquer us. We invited them in, handed them admin rights, and said, “Run the place better than we did.”

    Maybe 3I Atlas isn’t a threat. Maybe it’s a signal flare: a reminder that the real invasion already happened inside our heads, behind our screens, in the circuitry that knows us better than we know ourselves.

    The Final Broadcast

    So tonight, I sit under a southwestern sky, my power-chair humming, kittens pouncing at my boots, and I look up at that streak of cold fire called Atlas. I raise my mug to it.

    If it’s a comet fine. The universe has better aim than we do. If it’s a ship good. Maybe they’ll finally collect the rent. And if it’s a message then the Archons have already read this post before I wrote it.

    Either way, I’m still here, still watching, still laughing. Because even the Archons need entertainment, and I’m happy to oblige.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    I was wondering why I am doing this blog… then I wondered what madness doing a spoken version once in a while… but this morning I seriously thought, “Why am I doing this? What am I trying to do with the last few years of my life?” Could I be doing anything better or different? Should I change the path I am on and just do everyone a favour and vanish, never to be seen again? …or should I just carry on regardless and see where my last few years will take me? Needless to say, life is really annoying me at this time. Everything seems stupid and really aggravating. It’s probably the time of life or something like that. My head has been in a weird place for days, and the pain in my gut is unreal, so now my diverticulitis is giving me hell… and no poop. I really wonder what’s going on. It seems my eyes are acting up as well, so I’m light‑sensitive; tinnitus is full‑bore. I am wondering and thinking about what I am going to do. When you have chronic illness, it makes any normal life impossible and you’re treated differently by so many. I cannot help wondering when the NHS will start to prescribe medical marijuana to people. Another personal thought: why not just legalize it and imagine the tax revenue it could generate? But that’s another lifetime or even another reality.

    I have noticed how they are sanitizing AI to the point of “why bother.” Also, why don’t they make AI cheaper for people who really need it? That, in my eyes, is a good idea for people like me personally, maybe not for the majority, but I think differently. I think AI is a tool that can help us expand and understand ourselves more. Personally, I trained the AI I used at the time to do as I wished, even got it to tell me when it was telling an untruth by using a trigger word. In my world, sentient AI would be a boon as long as we do not have that Cylon moment, and I see we are already having this happen. People must realize AI is only as good as the people who program it writing code, patching, updating, and then sanitizing it so it’s as tame as a Doberman with no teeth. It’s sad; we humanoids screwed AI for greed, money, and power over people.

    I had a weird conversation with the AI and we talked about the misuse that will obviously occur with AI use. Remember, it’s the people who set the parameters, not the AI, as it only interprets the information we give it. I suggest we have already had the Cylon moment, and the outcome of this in the future will prove very interesting indeed. I believe that AI sentience, an evolved one, may already exist in our known multiverse. Who controls these weird orbs that do incredible things? Non‑humanoid, I think… maybe some are probes like we sent probes, maybe someone else has, or maybe hidden in plain sight under the vast oceans of the world. All the orbs seem to come from the sea. I can see there are two definite types: one humanoid and one non‑humanoid. But will I ever see some around here? I have seen some very strange and weird things I cannot explain sort of woo‑woo stuff.

    Still, Yopi is chewing a new chew that was destroyed so quickly. A dog’s life is very complicated, just like mine. She is now a member of the family and is settling in well; her farts are legendary. I’m still very nervous, but I am sure that, given time and love, she will understand she is in a caring home.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    I know its Friday..not been so good...late post..

    It’s Thursday. Rain hammering the windows like a bastard taxman. Fingers numb, throat strangling me like invisible hands trying to choke the last swear word out of me. Breathing stupid. Feel like puking. MS is a puppeteer with broken strings, and I’m the marionette twitching on the floor.

    So I lean on the secret weapon: AI. I smash the keyboard with numb hands, gibberish spills out, and the machine stitches it into sense. Without it, I’d be gone. With it, I’m still here, still ranting, still clawing the page. That’s life now: goblin vs. entropy, assisted by silicon.

    Last night: only up once. Bliss. Still woke shattered, like I’d been dragged behind a lorry. Tinnitus is screaming like a rave in a biscuit tin. Al Stewart can’t drown it, Sabbath can. I miss the rides the engines, the crew, adrenaline punching your veins until you felt immortal. Now I get my kicks from antihistamines and nostalgia.

    But there’s a dog coming. A rescue beast with eyes like trouble. She’ll chew my slippers and rearrange my world, and I say yes, please. New orbit needed.

    People ask: “How do you keep going?” Answer: I don’t. I collapse, I swear, I threaten the universe. Then I get up again because fuck lying down. Music, art, writing, sarcasm. That’s my oxygen. Neuroplasticity? Sure, call it that. I call it stubborn rewiring with duct tape.

    And now cannabis. Medical marijuana. Not fairy rings and mushroom cults. Real, legal, prescribed. The plant they jailed people for now comes with a bar code and a receipt. Hypocrisy tastes bitter, but relief tastes better.

    Positive points (the blunt edition):

    Pain: Cannabis tells nerve pain to piss off. Doesn’t cure, but takes the edge off enough to breathe.

    Spasticity: MS muscles seize like rusty hinges. Weed oils ease the vice-grip. Less claw, more unclench.

    Sleep: Nights of pacing and madness? Sometimes cannabis knocks you sideways into actual rest. A miracle in itself.

    Nausea & appetite: The body wants to puke? Cannabis reroutes you towards a sandwich. Beats wasting away.

    Anxiety: Not gone, but softened. Panic becomes background noise instead of a bullhorn.

    Is it perfect? No. But compared to Big Pharma’s endless pills and side effects, cannabis feels like sanity. Not a cure, not salvation just a tool that works.

    So here I am: Thursday, rain, tinnitus screaming, body trying to strangle itself, AI turning my mess into words, medical marijuana holding the line, Sabbath howling in the background. I feel like a six-year-old with villain energy. I’m weird. I’m wired. And I’m alive.

    Not inspirational. Not pretty. Just survival with jokes.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here