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⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.
please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content
Chronic Illness, MS Reality, Spiritual Gnosis & Goblin Truth Writing
Still good morning, good afternoon. Or hello to wherever or whomever you are, whether you're humanoid, whether you're extra terrestrial or whatever you are, a very good morning. And I don't even know what day it is today. Yes, the heat has really done for me. And yes, the cats, well, they are behaving very strangely in this weather indeed.
neck issues and a bad mood
So my neck issue has resurfaced again. The pain in the neck, ha ha, I know, is really, really bad. And of course I'd been and seen a physiotherapist about it. He said lean forwards your head, lean backwards, it will be okay. But I've done everything he said and it's getting worse. So, oh dear, I'm going to have to get in touch with somebody to try and get that sorted out now. Because it's very painful and it has me in a very weird mood. how can I say, touchy as the pain is just so intense. So that means I'm not getting very much sleep and with this heat it is a big major problem. It was 32 degrees here yesterday and as I look at my thermometer here or whatever you might call it, we're up to 28 degrees already. Yes, that's wonderful if you haven't got a chronic illness.
The Problem With Pharmacies
So Albertine said we have to go to the chemists and I said well it's okay whether and why not so we both climbed aboard our three wheel trolleys of death and we took our life in our own hands as we traveled at the speed of eight miles an hour on our way to the chemists. There was hardly any traffic on the road, that makes a change. And as we rolled up to the chemists, yes of course. We got there and we parked up and Albertine went to the door and guess what?
why wtf ?
The chemist was closed. The chemist was fucking closed. And there was a note in the window because they haven't got a... um... pharmacist. I mean, really... Is it too much trouble to get another pharmacist from another branch just to come in for a day or something? No! Just close it. So all the people that have to really force themselves out of the house to get there because they don't do prescription deliveries, And if you're stuck in a wheelchair or you've got no transport or you're relying on people, it's bad news really, to find that the chemist's shut.
I find it terrible. so we have to work our way up there and when we get there we have the machine of death. Now as you know the machine of death and me do not get on and I have had many of my prescriptions lost due to the stupidity of the chemists system because they forget to tell me that they have some of my stuff behind their counter that won't fit in their stupid machine. so lack of communication really....
So hopefully tomorrow morning we will be going early to the chemists and they will have someone there that can give us our prescriptions. That would be awesome, especially in this heat. Because to be honest with you, heat and chronic illness just don't go together as people know. You can lose so much energy and you dehydrate so quickly. You need to hydrate with as much hydration water as possible. Before you go out, make sure you wear a hat even. You know, sunglasses, look the part on your trolley or scooter of death or your wheelchair .
MS and Heat Intolerance
Well, yes, we are heading to that time where it seems to be quite warm. I myself find myself in the coolest room in the bungi. Then if that room gets too hot, I will put a fan on. If that gets too hot, I will go into the kitchen and I will open the fridge door. And that is where I will sit on and off for a little while, just listening to music. As I just overheat slightly, I will gently open the fridge door. Yes, that's pure heaven. The most worst thing for me is in the depths of winter I can feel too hot and yeah you get it in the depths of the summer I can feel too cold sometimes. Real double edged sword and trying to keep yourself day to day going is quite something else I think.
What's the point of people and friends?
I was just thinking to myself the other day and I was thinking how many people actually keep in contact with me in my family and I thought well as the years have gone by it's less and less and less to where well practically nobody even speaks to me anymore and I sort I wonder why. I sort of think to myself, well, they must be busy with their life and they have their life and, you know, but I have put myself out for my family over the years selflessly and sometimes it really does piss me off because people don't understand what chronic illness is all about. People don't see me all day long and see what I have to go through. They might just see quick snapshots of me.
This is the real me now ?
The thing is, if it's because I have MS, and that's the real reason that this chronic illness is sort of putting them off seeing me, I don't know. What is it with chronic illness that you loose or your friends and family? I know I've changed, but I'm a better person than I used to be. So I just can't understand why. Is it because I talk straight and I tell it like it is? Is that it? Is it because they think, oh, I might be dead next week, so what's the point of speaking to me? Because they think they're not going to get a sensible conversation. What is it? What have I done to deserve that? And it really does hurt me to the core sometimes. but I keep that to myself not to cause issues...
I admit to being a psychic and eccentric, slightly weird. Eh
I've never been a person to wear blinkers, I've always taken my blinkers off and thrown them down, and seen things basically for what they really, truly are. Yes, I am eccentric. Yes, I am slightly weird, I have weird thoughts about things. Some people might say, because my views on religion, I don't have many. I believe in gnosis. Now, that's me. That's my personal belief So I believe in Wicca gnosis and humanism, all three clacked into one. That's me, really. So, yeah. I only want good things, not bad things for people. And I just think that if people think that's a weird thing to want, then I'm glad I'm weird. I was talking about UFOs way back in the 1970s. I was talking about things back in the 70s when people were generally thought to be mad and I've been proven right that the things they thought in the 70s have happened. So there we go.
I was a professional psychic medium healer teacher for over 50 years
Also something people probably don't know about me. I was a professional psychic medium for well over 50 years. And also teaching others who were willing to learn free had many amazing students.. So there we go on that as well. So that adds to another string of my bow of weirdness. So that probably makes me weird because I like to tell the truth and I like to say how it is without being told I cannot say something but these days I am now self-censoring due to all of the sense and sensibility of the world going out of the window to be honest.
My personnel look
And then of course I was a lifestyle biker, old leathers originals. That's how I run for most of my life until I had to give up riding, because of the multiple sclerosis fucked me up big time. So I had to sell my trike, which I had converted about 15 years ago. I had a Yamaha 1100 drag star and I got it converted so I could stay on the road longer. And I managed 15 years, and it was 15 years of hell and pain. And yeah, I did it all on my own just with Albertine. Nobody else wanted to really know, but such is life when you're a disabled person. And a disabled person on a bike as well or a trike, people just sort of kind of ignore you or just point at you. I just find it really sick and sad in this society. Nobody wants to help anybody. Nobody wants to smile and nobody wants to be happy. Everything seems so divisive these days. It really is a sad place. So being a biker, being a bit scruffy, being a psychic and being a bit weird really doesn't help you when you've got long hair and a long beard. And you're quite tall, but when you're stuck in a power chair things get very different very quickly. So yeah, you should always make the most of what you've got until you lose it, that's what I say. .... never judge a book by the cover
Still sending everybody peace, healing, love and light, no matter who or where you are and hoping that if you are in the heat that you hydrate well and you get in the shade. And everybody take care until I drop the next blog post. So thank you very much for reading. I do appreciate all the readers.
Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)




