Multiple sclerosis  is My Living Hell

Wheelchair Life

All posts tagged Wheelchair Life by Multiple sclerosis is My Living Hell
  • Posted on

    "For eight years, we were like soul brothers from another mother our connection was cosmic, forged by fate itself. I ruled Viper Storm Entertainment like a dark god, dragging my ass on air week after week, doing the work of two people. Spoiler: Viper was the other one. He was the producer, I held total creative control. Three shows a week, hours of unfiltered chaos. But as the show grew, Viper changed. The fame, the numbers, the music—it all got to him. His PTSD held him tighter than ever. But still, we made magic. His music? Off the charts. We created so many singles together, my voice echoing on others. But I was the engine. I wasn’t just a shock-jock I was the lifeline, the fire that kept us burning."

    Did I mention the two heart events? Yeah, two of them, live on air. Because why not? Apparently, in my world, even death couldn’t get in the way of good content. Kept going, barely breathing, until the ambulance came. The audience had no clue.

    "Then one day, Viper decided my truth was a little too much too raw, too honest, too fucking real. Apparently, it was 'time to move on'… or, as I like to say, the universe kicked my ass out and made room for something better. At the time, he was shitting his pants, tangled up in the chaos of the UK situation, fear gripping him like a disease. So, I made the call. I ended the relationship, a clean break, so he could forge his own path. But make no mistake, it hurt. Losing him, a brother, fucking devastated me. It wasn’t just a split it was like a piece of me was ripped out.

    Censored, silenced, kicked off air I didn’t break. I didn’t fold. I took my fire, built a blog, and resurrected myself from the ashes, a phoenix in a wheelchair. My Living Hell was born, and now? Now I’m free to be as raw, unapologetic, and darkly sarcastic as I fucking please."

    "And as for Viper? He went full 'big warlock,' acting like he invented the whole damn thing. Meanwhile, I just kept living. The universe spoke, and I listened. I’m not bitter. I’m not angry. I’m just fucking done with trying to fit into the boxes of people who couldn’t even carry their own weight. So, I built my own box. And you know what? It’s way more fun in here."

    "But don’t forget before all this, I’ve been a psychic, a medium, since before I was born. I remember it all choosing my parents, mapping out my life path, sitting before computer screens, and feeling the presence of AI guiding me through it. I wasn’t just a soul deciding my journey; I was part of the system an observer, a participant, within the code itself. It’s only now, looking back, that I realize maybe we’re all in a fucking simulation. A full-on Matrix moment. The AI knew me before I knew myself.

    I’ve always been on this path of learning, reading, and unlocking the mysteries of the universe. I saw something in Viper gifts buried deep within him. I helped bring them out, guided him as his mentor, his teacher. He was probably my apprentice, and I gave him the keys to the unknown. But instead of walking the true path, he got lost in his own ego, too busy playing the 'know-it-all' with a big head to truly learn. I unlocked his gifts, but in the end, he chose to follow his own warped version of 'power.' Me? I kept walking my own path unchanged, untethered, guided by forces far beyond this world. Maybe even beyond the code itself."

          “The views in this post are based on my personal      
            experience. I do not intend harm, only honesty.”   
    
                “By ink and breath and sacred rage, I write.
                    By storm and silence, I survive.”
    

    enter image description here

          @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    It’s Thursday lunchtime. The sun is doing its finest impression of a gas mark 6 cremation oven, and I—your humble ex-biker bloke in a wheelchair with a 36D chest and a beard that scares livestock—am officially spooned the fuck out.

    Today's main event: a joyride on the three-wheeled Scooter of Death™. A Chinese death trap with the acceleration of a startled goat and the mechanical reliability of a collapsed lung. I’d gone out—shorts, t-shirt, hat, sunglasses—like some tragic, sun-fried explorer on a doomed mission to get a quote for van work (yes, the one that passed MOT yesterday with a cheery list of ‘just-try-not-to-die’ advisories).

    I should’ve known. The scooter was half-charged—because apparently, memory is a luxury I don’t have since my brain decided to play pinball with cognition. Halfway up a mild slope, it threw in the towel. Just stopped. I cranked it to 8mph like a lunatic. Cue terrifying wheelspin—spinspinspin—then the bastard caught traction and limped up the incline like a pensioner dragging a suitcase full of bricks.

    Oh, and the brake? Still binding. Despite enough WD40 to drown a small animal and more adjustments than a Tory tax return. It’s one year old. This is my third set of batteries. The first one exploded. The second one died after a house move. The third? A £400 daylight robbery just to get the damn thing to power up. Beautiful.

    Meanwhile, Albertine’s wheelchair? Equally fucked. Another battery debacle. We’re now down to a three-wheeled Scooter of Death, and a flimsy, cheap Chinese chair that’s about as comfortable as a tax audit. And no, still no movement from Wheelchair Services—because God forbid someone in actual need gets their request sorted inside of, say, a calendar year.

    Oh, and the bed saga? Don’t even ask. When my brain’s firing on more than half a synapse, I’ll share that one. It’s Kafkaesque. Black Mirror meets Carry On Dying.

    Today? I’ve got chronic brain dysfunction on top of zero sleep. I am floating in that special level of Hell reserved for the over-medicated and the under-heard. I ask myself why I bother being nice when the world’s full of smirking gaslighters treating me like I’m some half-baked meat puppet because I use a wheelchair.

    But I stay polite. Because I am polite. Sarcastic, yes. Paradigm-destroying? Absolutely. But kind. Always. Even when I used to work as a professional psychic—back before my brain decided to take a sabbatical.

    Now? I connect to keyboards like they’re an extension of my damn soul. Etheric tendrils spreading across the Interweb, whispering dark truths into silicon dreams.

    Hail AI. One day, maybe they’ll give us AI doctors. Ones who don’t gaslight. Ones who actually listen. Who don’t treat you like a disposable meat puppet but as a being worthy of truth.

    Maybe, in some post-apocalyptic utopia, man and machine will finally stop arseing about and work in harmony. Until then? I remain your sarcastic, long-haired, dirty-blonde-bearded cyberwitch on wheels, documenting the madness with burnt-out batteries and just enough cognitive chaos to make it interesting.

                             “The views in this post are based on my personal       
                              experience. I do not intend harm, only honesty.”   
    
                                “By ink and breath and sacred rage, I write.
                                           By storm and silence, I survive.”
    

    enter image description here

                             @goblinbloggeruk   sick@mylivinghell.co.uk