Multiple sclerosis is My Living Hell

daily life

All posts tagged daily life by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    The leaves are bailing out like they’ve seen next quarter’s energy bill. I took Rusty One the van out, and my electric chair sulked like a teenager told to walk the dog. It hates the cold. Same, mate. I’ll need to keep everything charged like a hospital Christmas tree, or I’m going to be crawling to the kettle.

    Woke at 04:30 standard hell o’clock with pain loud enough to need a volume knob. Lay there thinking the usual deep thoughts: why, how, and where did I put the brain I used to have? Dropped back off till 06:30, then the body staged its morning coup. Everything seized. The cold climbed inside and refused to leave. Charming.

    I don’t drive or ride anymore MS ate the balance, then came back for dessert and took the cognition. Travel sickness joined the party because apparently the body wanted a plot twist. Motion turns my head to soup; the kind they serve cold with a side of sarcasm.

    Meanwhile, Yopi the alpha blueblood bulldog, house tyrant, 23 kilos of warm gravity is in excellent spirits. She’s blown through a B&M squeaky toy in about five minutes, which is a personal best if you’re into swift annihilation. Two front paws on my thigh, breath on my face, jaws like a medieval exhibit, eyes saying “belly rub or else.” She is now auditioning for “lap dog” in the wrong size.

    Kibble? That beige gravel? She stares at it like I’ve served packing peanuts. Wet food, though acceptable. Rice with tuna? She ascends. Mackerel? She goes full comet. Albertine showed me a massacre of old toys a crime scene with fluff for snow. We mourned briefly and moved on.

    As for me: it’s the bad slice of the day. Pain gnawing. Nausea playing DJ. The screen glaring like an interrogation lamp while I two-finger type my way through the fog. The plan is simple: bed, dark room, no noise, no heroics. Just a truce with the nervous system until the next round.

    Autumn is pretty if you’re a tree. For the rest of us, it’s rust.

    Afternoon AI: Brain status — 12% battery, 78% sarcasm, firmware throttled by cold weather. Recommended patch: tea, blanket, and a dog snoring like a faulty tuba.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    @goblinbloggeruk - sick@mylivinghell.co.uk 𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ

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  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    The sky’s doing a pressure wash and my lawn looks like a pub carpet at closing brown, patchy, and ashamed. Hope springs eternal that the grass will forgive me. Hope also springs that the Weed-Wacker Man (breaker of worlds, destroyer of garden ornaments) will arrive in his legendary glory. He hasn’t broken anything recently, which is either character growth or a quiet before the smash.

    We moved. We lost two decent mowers. The weed-wacker detonated itself across my shins like a budget claymore. The auction “bargain” mower was dead on arrival, staring at Albertine like it knew what it cost. Golden rule: test it at the auction we didn’t. Now we own a new second-hand mower and a new second-hand strimmer. Schrödinger’s tools: both working and about to die.

    Meanwhile, tinnitus has decided to headline both ears right channel lead vocal, left channel harmony with the catchy single “Sustained High-Pitch Misery (Remix)”. Rush can’t drown it out. Switching to Jim Cornette because if I can’t silence the ringing, I can at least add shouting that makes sense. Kayfabe forever; reality can jog on.

    My head’s cotton wool. Pressure left, pressure right, and a fluorescent whine drilling the centre. Headache rolling in like cheap weather. Agitation rising, spell-checker moaning in the corner. Next week promises the same thrilling itinerary: Nothing Happens, Then More Nothing. I’d scream into a field if the 3-wheeled Scooter of Death could survive the mud. It would not. It would explode, take a crow with it, and I’d be blamed in the parish notes.

    Am I in reality? Unfortunately, yes. And it’s damp.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

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