â ď¸ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. Iâm not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.
By Warlock Dark â The Kittens-of-Doom-Tolerated Version
Let me tell you something most doctors wonât say out loud because it ruins the tidy little world they live in: there is no such thing as âmultiple sclerosisâ.
Not as one thing.
Not as one condition.
Not as one neat textbook chapter.
What exists out here, in the trenches where the real people live, is millions of different versions of MS one for every poor sod whose nervous system it chose to torment.
My MS isnât your friendâs MS.
Your friendâs MS isnât your neighbourâs MS.
And your neighbourâs MS isnât the version your doctor read about at medical school 30 years ago before caffeine, stress and pharmaceuticals turned their brain into soup.
Thatâs the real problem.
And thatâs what nobody talks about.
So today Iâm talking about it.
Because this isnât theory this is my lived experience, and the lived experience of every chronic illness warrior out there whoâs been patronised, misdiagnosed, over-prescribed, under-listened to and told to âtrust the scienceâ while their body is doing a completely different opera in a completely different key.
Your MS Is Not My MS And Thatâs the Heart of the Issue
Iâve been dealing with this beast for years. And it didnât take long to realise the obvious truth: MS behaves differently in every single person.
Not a little bit differently but massively, dramatically differently.
To the point where two MS patients in the same postcode can look like theyâve got completely unrelated illnesses.
One gets fatigue.
One gets spasms.
One gets cognitive collapse.
One gets mood surges.
One gets vision problems.
One gets pain.
One gets none of the above.
One gets all the above.
One wakes up feeling normal and collapses by afternoon.
One collapses in the morning and rallies at night like a nocturnal raccoon.
And somehow⌠the medical system insists itâs all the same condition.
Itâs not.
It never has been.
It never will be.
MS is not a single disease it is a collection of personalised neurological catastrophes wearing the same name tag.
Every nervous system reacts differently.
Every immune profile is different.
Every flare is different.
Every trauma history matters.
Every hormonal cycle matters.
Every bit of diet tolerance matters.
Every gut problem matters.
Every tiny bit of stress matters.
MS is a fingerprint, not a formula.
This is why the âone size fits allâ approach to treatment falls apart before it even starts.
Doctors Donât Live in Our Bodies Thatâs the Core Failure
Letâs be blunt.
Doctors donât have MS.
They donât wake up with burning nerves, spasming muscles, brain fog thick enough to butter bread with, or the charming experience of waking up in a body that refuses to obey basic commands.
They donât know the sudden dread of a flare.
They donât know the nights where the pain turns you into a sleepless, twitching banshee.
They donât know the fear that comes from a throat that stops working, or a leg that decides itâs clocking off for the day.
And because they donât live it, they can only treat it academically.
Which works about as well as giving someone directions to a town youâve never visited.
Medicine needs to stop pretending everything is predictable.
Itâs not.
The only predictable thing about MS is its unpredictability.
Why Natural Medicine Often Works Better Than Pharma The Truth Nobody Likes to Hear
Let me be clear: this isnât anti-science.
This is anti-stupidity.
Thereâs a difference.
Iâve done the pharma route.
Iâve swallowed the pills.
Iâve taken the injections.
Iâve sat in the chair for the infusions.
And Iâve been in the hell where you take one drug, and then three more drugs to counteract the first drug, and then another drug to deal with the side effects of the side effects.
Itâs not a treatment plan.
Itâs a chemical hostage situation.
Polypharmacy wrecks people.
Not sometimes often.
It makes fatigue worse.
It makes cognition worse.
It messes with the gut.
It interacts with itself.
And before you know it, youâre a walking medicine cabinet with a pulse.
Natural medicine?
It does something the pharmaceutical world still struggles with:
It treats the person, not the âaverage patientâ.
Thatâs why medical cannabis changed my life. THC has been more stabilising for me than a decade of prescription chaos.
Lionâs Mane helped my cognition when nothing else did.
Vitamin D and magnesium did more for my mood and nerves than SSRIs ever could.
Some things worked.
Some things didnât.
But the point is: they worked according to my biology, not a clinical trial with 500 strangers.
Thatâs the golden rule chronic illness patients learn the hard way:
There is no universal cure because there is no universal body.
Everyoneâs Illness Is a Different Monster â Even with the Same Name
Hereâs the part doctors donât like:
Two people can have âthe same illnessâ
and need completely different treatments,
foods, drugs, supplements, or habits.
Your body might be able to tolerate one thing that destroys someone elseâs stomach.
Your nervous system might benefit from THC while someone else gets overwhelmed by it.
You might thrive on Lionâs Mane while someone else feels nothing.
Thatâs not placebo.
Thatâs biology.
Neurology is personal.
Immunity is personal.
Trauma is personal.
Symptoms are personal.
So treatment has to be personal too.
No neurologistâs office in the world is set up for this kind of nuance.
But itâs the only approach that works.
What the System Doesnât Understand But Patients Do
The real experts are the ones living with the condition.
Not the clinicians.
Not the researchers.
Not the textbooks.
The people who wake up inside these bodies every day.
We understand patterns doctors miss.
We recognise triggers before blood tests do.
We notice neurological shifts before MRI scans catch up.
We know when food wrecks us.
We know when weather hits us.
We know when stress snaps something inside us.
We know when the meds help â and when they poison.
And the reason we know is simple:
We donât have the luxury of being wrong.
Doctors can be wrong and move on.
Patients pay the price.
Your MS, My MS, and the Future of Chronic Illness
Hereâs the truth I wish the world would catch up to:
MS should be treated as dozens of sub-types,
not one umbrella diagnosis.
If medicine ever wants to improve MS outcomes, it needs to:
personalise treatment
map symptom patterns
respect lived experience
stop treating outliers as âexceptionsâ
integrate natural therapies
merge medical science with actual patient data
stop pretending everyoneâs body reacts the same
People arenât machines.
Bodies arenât standardised.
And chronic illness doesnât follow rules.
You want real progress?
Start listening to the people living the reality â not just the ones writing the guidelines.
My Conclusion? Simple. Brutal. True.
Your MS is yours.
Mine is mine.
Nobody experiences the same version,
and nobody should be treated like they do.
Doctors need to understand this.
Medicine needs to evolve.
And patients deserve to be treated as individuals,
not numbers on a chart.
Until the system catches up,
we keep learning our bodies the hard way â
one flare, one insight, one victory at a time.
And honestly?
Lived experience isnât just âvaluableâ.
Itâs the only thing that actually saves lives.
Warlock Dark
Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)
@goblinbloggeruk - sick@mylivinghell.co.uk
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