Multiple sclerosis is My Living Hell

MS pain management

All posts tagged MS pain management by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    So I suppose I first started smoking marijuana when I was a teenager way back in the 1970s experimentation and all that stuff. And it was a very pleasant effect, I must say. I stopped smoking when I got married, I didn't find it did anything untoward to me but there we go.

    Anyway, about five six years ago I believe I decided to look into marijuana again and how it would affect my multiple sclerosis and also the THC oil as well. So, I did a lot of research and I spoke to a lot of people all over the world who had been using marijuana and THC oil to combat the effects of their multiple sclerosis.

    The reasoning for this is that I do not like taking opioids as they turned me into a total zombie. And it seems that all of the big farmer stuff I get from the doctors, if there is a side effect on the packet, I usually get it. That's the problem. My body is so damn sensitive to everything.

    That's why I went down the route of medical marijuana and THC -cbd oil I had heard from my MS nurse that marijuana, medical marijuana, was legal for people with illness in the UK. As the MS nurse had just come back from the conference and gave me the address of a website....

    I looked at the website in slight disbelief thinking, "Oh my gosh! Medical marijuana legal in the United Kingdom and THC CBD oil. That literally blew my mind." And then I looked on the website and, well, it asked some simple questions and I followed the questions and gave my answers and whatnot.

    I sent my records, my medical records, that is to the clinic and then I was given a consultation and after the consultation and after the reading of my medical records and everything, they then put me on THC, CBD oil. I sent my records, my medical records, that is to the clinic and then I was given a consultation over zoom and after the consultation and after the reading of my medical records and everything, they then put me on THC, CBD oil and the flower, which is marijuana oil and the flower, which is marijuana.

    I get my medical marijuana and THC oil delivered. It's a good system and I do recommend that you get in contact with one of these clinics as they really do help and they really do know what they're on about. I use the Sapphire Clinic in the UK and they are very good, very caring and listen. Yes, I know you have to pay for the consultations, but it is really well worth it. They don't rush you and they take time to understand what you're talking about. So yes, I would say it is amazing, brilliant and it has changed my life for the better.

    "Exactly. How did medical marijuana and THC oil help me

    Well exactly where do I start? How many accidents did I have? Well the spasms are... 50% gone. And it was the spasms that caused me to break more bones in my body than you could believe. Before I was in the power chair, I used to use sticks and I used to get such severe spasms that my legs, well I'd kick things for no reason. It's like oh look there's a dust bin and bang I would just kick it Yes, you guessed it. I have broken every toe on My both feet my God. It's absolutely a nightmare.

    The bruising the matter nails that came off Yes, so it is really bad news and Luckily, I haven't had those massive bad spasms anymore I've kicked doors door frames God knows what and it's bloody painful. That's for sure I've walked into door frames, I've concussed myself, God knows how many times when I've walked into things. Oh my God, I was like a walking accident waiting to happen.

    The thing is you still think you can do everything even when you can't and when you try it always results in an accident with me. It's not very funny but it's true. But I have since realised that being safe, being careful is the best way. Anyway, I'm getting off the subject that I was on about. So the CBD oil and the flour helped me with my spasms, helped me with my pain, they helped me just be me, they helped me relax, they helped me sleep, they make my life happier. I would say that I am more aware.

    I don't suffer the off my head side effects as I've been smoking it for nearly what, five years now. So it doesn't affect me like that. So yes, it is very strange, but it really does work. It really does get rid of a lot of the pain. And then you don't have to suffer all the constipation and all the other side effects that tablets may have on you like it did me.

    Switching to medical marijuana and THC oil was the best thing that I have ever done in my life and yes I know that some people might think oh dear it's a drug and it leads to other things. Well I can assure you it does not lead to other things it is not a gateway drug for me I use it specifically medically I don't even drink alcohol and I don't smoke tobacco So, the bottom line is, it just depends on who you are and how you feel about things, to be fair. Me, I thought, well, I've got to try this because I was going downhill at a rate of knots. That is unreal.

    Progressive MS is not a nice thing, and I have this histamine reaction thing which causes me even more problems with my vagus nerve, and then there's my autonomic dysfunction. You know, all these things, it's just mad, and then I have heart issues. So, yeah, the THC CBD is helping me, and personally for me it works. It might not work for other people, but there we go. That's my living truth. And I think really it's up to the person, but you should always seek medical help first before you go down that route and do some research.

    some useful links below to help maybe on your journey

    curaleaf clinic

    ms society

    Cannabis and multiple sclerosis

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
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  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    It’s Wednesday. Already. Somehow I’ve managed to do more life admin than seems humanly possible for a body powered by MS and stubbornness alone. My mind is a foggy wasteland of numbness, courtesy of my chronic neurological fun-fest, but the chaos seems… slightly less apocalyptic today. Small victories.

    Pain clinic consult? Surprisingly decent. I didn’t get gaslit, which feels like a miracle. Wheeled out with some scraps of positivity that I’ll hoard like toilet paper in a zombie apocalypse. MS nurse? Hoping she phones before I develop a permanent twitch from waiting. Overworked, underpaid, and heroic.

    AI is my new best friend. I’m on a mission to grab my MRI scans so my digital buddy can tell me exactly what’s in my skull. No doctor euphemisms, no vague nods at “abnormalities,” just straight-up pixel honesty: “Lesion here. Lesion there. Weird patch in your brainstem. That’s all.” Finally, clarity for a human with a brain that sometimes refuses to translate itself into English. White coats can go choke on their paperwork.

    Yopi, the four-legged chaos incubator, is settling into our life of slow-motion absurdity. She’s making my world stranger in ways I didn’t think were possible. Only snag? My mobility. Can’t take the walks, but we’ll train her to glide along with the powerchair. Life’s full of compromises, mostly involving gas masks for me and treats for her.

    Medical marijuana and THC/CBD oil are holding the line. No magic bullets for nerve pain, tinnitus, or the daily brain ache, but it helps, and I’ll take it. Every little sanity-saving thing counts when you’re a human pinball in an MS-shaped arcade.

    Meanwhile, I sit, inhaling the occasional waft of bulldog farts, contemplating life, death, and whether AI will someday take over all consulting roles for humans with chronic illness. It probably will, but at least it won’t judge me for smelling it all and laughing anyway.

    MS life: chaotic, smelly, occasionally enlightening, and fully documented with AI commentary for the ages.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
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