Multiple sclerosis is My Living Hell

Blogger With MS

All posts tagged Blogger With MS by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content Good morning, good afternoon. Fellow humanoids and nhi out there.Storm clouds gather over Southwest England while daily life becomes a battle against malfunctioning pharmacy machines, failing vehicles, autonomic dysfunction and chronic illness. Alongside these earthly struggles comes reflection on UFO/UAP disclosure, paranormal research failures and the search for answers in a world growing increasingly strange.

    head storms and rain clouds

    Looking out the window at the moment there are nothing but miles and miles of dark clouds surrounding us. Absolutely everywhere! And well it hasn't rained but it's looking like it's going to blow a massive rainstorm down here in the southwest of England at some point today. Hopefully it's going to pass over so I can go out on the three-wheeled trolley of death as I need to go to the chemists. Yes, going to the chemists is like, well, a trip in itself.

    chemists machine of much hope

    I suppose I will be dealing with the machine at the chemists, the machine of death. It does not like me, no. You can guarantee I'm going to put my code in and it's going to break down and make some very strange weird stupid noises. As it is when I go in the chemists, they look at me strangely, as my prescription always seems to break their machine. Yes, it is a thankless task. Well, you can go in it before the chemists opens as it has an outside wall dispenser, and that machine is even worse. It has caused me much problems over the past few years, I can tell you, and has caused me many moments of swearing as well. Yes, when your medication gets stuck and you're in desperate need. Yes, it's always the same. You cannot beat the human touch and over the counter service when they have enough staff on. Yet that is another thing. As chemists these days, the more automated they become, the worse they get. Just employ more staff. It's that simple. Then you won't have queues. I've lost count how many other people's prescriptions I've also had as well mixed in with mine. Must be three or four over the past year alone. But we live in hope that things will get better and yes, things will be a happier time when we arrive there, that's if it's not raining of course on the other hand.

    poor rusty one

    Well, the sad news is the Van Rusty one is off the road. It looks as though we have a problem with a sensor. And that makes the vehicle run lumpy, I think it's the air management system sensor somewhere. And that really does piss me off, because we only just had a new starter motor fixed to it. And when it goes for its MOT, I think I'm looking at a bill of well over 500 to 600 to 700 pounds. But such is life when you live down here, the salt air really does tear through and make the old vehicle get very rusty.

    poor d1

    And then of course there is our other van, D1. This is the specially wheelchair adapted van and we have had to pay out loads of money on this as we've had two injectors go in the past year which was very unfortunate for us but there we go. This is my wheelchair transport vehicle that I bought over ten years ago. still going quite well but there we go. We have had to put that on trickle charge as when we needed to go to the vet the other day to get the cats there Injections so they can go into boarding kennels or even go outside. So it seems We found out that D1 had a, well, no battery. Yes, the battery was as flat as a pancake, so that's now on trickle charge. And also we have a flat tire as well. How exciting this is. This month is going to be spend spend spend ha ha

    NHI ufos and uaps

    I have been looking in the newspapers and I have been looking at a few stories and I see that UFO UAP disclosure is on the cards. Personally I think it is a big nothing burger as the Comet 3I Atlas also was, I know I never went into the fifth dimension or spiritually elevated or went into another place as it went past or gained any spiritual energy, or even saw anything strange in the skies. For me, sitting in my power chair, that's where I was sat. Nothing much happened, to be honest, and I think that's what's going to happen with UFO/UAP disclosure. I think we'll get a few films, a few reports, but nothing really too alarming to be fair. As I believe this is all a Project Blue Beam pSyop. Well, that's what everybody's saying everywhere, so that's what they say, and well, you never know what's going on these days, do you?

    research issues and failures

    I have tried to get in touch with certain researchers in the UAP UFO paranormal field to help me with my quest. But as of this day, it has, well, completely failed, I believe. I've written to several groups and researchers in the UK, and I've had no replies whatsoever. So I'm not expecting anything, so there we go. What do I do when the researchers won't even get back to you? You know, wow, that's unreal. But I have one ace up my sleeve, that is the old group from the southwest in the 80s and 90s, southwestern alien, abduction, strange phenomenon unit. and the founder Sam Potage. who I have spoken to at great length at what has happened to me. And he is very surprised and he tells me to carry on and someone will pick it up. He is of course retired and very elderly now. But he has put me on the right path of where I need to be. And I thank him greatly for that, as he hasn't done any research or anything apparently since the 2000s.

    Autonomic dysfunction woes.

    Well, the whole weekend was marred with my autonomic dysfunction. Yes, it was quite bad. If you have autonomic dysfunction and you have a histamine intolerance and multiple sclerosis progressive, you'll know what I'm on about or if you've just got a histamine intolerance. Yeah. I've been on the edge or weekend. The nerves in my stomach and all the way through all the way up are bad. It feels like I'm being completely strangled. It's unreal and my breathing is acting all kind of crazy. I am trying to work out what I must have eaten that has caused this trigger event. When my autonomic gets triggered, it goes from 0 to 100 miles an hour fucking quickly. And I have to start taking antihistamine tablets or LaRazaPan because they're the only two things that work at the moment because I'm still waiting to see a neurosurgeon or neurologist, whatever they call him, or an immunologist. As you recently found out on this blog, I have no neurologist. No, I haven't had one for over five years, my doctor has said, which has caused quite an outrage I must say. But there we go. Nobody ever fucking listens to me in what I say and look where we are at the moment. Yes, we're or as my father would say, God bless him, we're in the cactus.

    Still wishing anyone who reads this blog piece, healing love and light. No matter who, what or where you are.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    π’€­π’Š©π’†³ α›žαš±αš¨αš·α›ŸαšΎ α›αš±αš¨αšΎα›‹αš²αšΊαš±α›α›–α›ž ✦ αšΉαš¨α›αš²αšΊα›–αš± π’€Έπ’€­ αš’αšΎα›’α›Ÿαš’αšΎα›ž
    enter image description here

  • Posted on

    please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content

    Hello fellow humanoids and I was just having a mind thought moment. I was speaking with somebody the other day who commented to me, "You don't own a television set?" And then they began to ask me why I gave up watching television 20+ years ago . to which was quite a quite Short reply. I can no longer watch TV because I find it all to be complete and utter garbage and rubbish. and they sort of looked at me and thought I was from another planet.

    I explained to them that growing up we only had two TV channels to start with and then we had a third. And if we were lucky and had a VHF, black and white TV, we were lucky we could get quite a few of the independent broadcasting companies signals on the old VHF aerials on the VHF black and white TV's back in the day. The guy sort of looked at me and then I explained about my old radio that I used to own which was an old valve radio. that I remember quite happily the smell of the dust on the warming valves as it crackled into life and Radio Caroline or Radio London boomed out. Oh my god, the sound was like you have never heard such a beautiful sound coming from a radio, not like the ones today, I'm sad to say.

    You had light wave medium wave short wave. It was absolutely awesome you could listen to radio stations all over the world. It was amazing I absolutely loved it. And right up until the eighties I still listen to the radio listening to all sorts of different stations all over the world, which brought me great enjoyment and I must say some of the programs were absolutely side splitting, amazingly amazin And then you have all these amazing radio stations and podcasts and all sorts of different media you can learn so much stuff i find it totally amazing and it's a constant source of mind blowing information. But of course all that has now been eclipsed by YouTube and other platforms like that on the internet, which are also absolutely mind blowing if you can sort the chiff from the chaff. remember you have to be very careful about what you take in as some of it can be a right load of all crap.

    I remember when I was on the radio for over eight years as a comedy radio shock jock but unfortunately I had to give it up due to severe health issues I'm afraid. and also censorship was becoming an issue as well. So it was probably a good job I got off when I did well over a year ago. But it was a great radio station I worked on. The other person was a great guy and well, yeah, I wish them all the best of luck. Maybe one day I might make a comeback, who knows, but I am definitely going to be making my own podcast about multiple sclerosis and my life in general, which should be interesting boring or well, there you go, not that good I suppose, but at least I try.

    Still, wishing everybody peace, healing, love and light, no matter who or what you are.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    π’€­π’Š©π’†³ α›žαš±αš¨αš·α›ŸαšΎ α›αš±αš¨αšΎα›‹αš²αšΊαš±α›α›–α›ž ✦ αšΉαš¨α›αš²αšΊα›–αš± π’€Έπ’€­ αš’αšΎα›’α›Ÿαš’αšΎα›ž
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    So I suppose I first started smoking marijuana when I was a teenager way back in the 1970s experimentation and all that stuff. And it was a very pleasant effect, I must say. I stopped smoking when I got married, I didn't find it did anything untoward to me but there we go.

    Anyway, about five six years ago I believe I decided to look into marijuana again and how it would affect my multiple sclerosis and also the THC oil as well. So, I did a lot of research and I spoke to a lot of people all over the world who had been using marijuana and THC oil to combat the effects of their multiple sclerosis.

    The reasoning for this is that I do not like taking opioids as they turned me into a total zombie. And it seems that all of the big farmer stuff I get from the doctors, if there is a side effect on the packet, I usually get it. That's the problem. My body is so damn sensitive to everything.

    That's why I went down the route of medical marijuana and THC -cbd oil I had heard from my MS nurse that marijuana, medical marijuana, was legal for people with illness in the UK. As the MS nurse had just come back from the conference and gave me the address of a website....

    I looked at the website in slight disbelief thinking, "Oh my gosh! Medical marijuana legal in the United Kingdom and THC CBD oil. That literally blew my mind." And then I looked on the website and, well, it asked some simple questions and I followed the questions and gave my answers and whatnot.

    I sent my records, my medical records, that is to the clinic and then I was given a consultation and after the consultation and after the reading of my medical records and everything, they then put me on THC, CBD oil. I sent my records, my medical records, that is to the clinic and then I was given a consultation over zoom and after the consultation and after the reading of my medical records and everything, they then put me on THC, CBD oil and the flower, which is marijuana oil and the flower, which is marijuana.

    I get my medical marijuana and THC oil delivered. It's a good system and I do recommend that you get in contact with one of these clinics as they really do help and they really do know what they're on about. I use the Sapphire Clinic in the UK and they are very good, very caring and listen. Yes, I know you have to pay for the consultations, but it is really well worth it. They don't rush you and they take time to understand what you're talking about. So yes, I would say it is amazing, brilliant and it has changed my life for the better.

    "Exactly. How did medical marijuana and THC oil help me

    Well exactly where do I start? How many accidents did I have? Well the spasms are... 50% gone. And it was the spasms that caused me to break more bones in my body than you could believe. Before I was in the power chair, I used to use sticks and I used to get such severe spasms that my legs, well I'd kick things for no reason. It's like oh look there's a dust bin and bang I would just kick it Yes, you guessed it. I have broken every toe on My both feet my God. It's absolutely a nightmare.

    The bruising the matter nails that came off Yes, so it is really bad news and Luckily, I haven't had those massive bad spasms anymore I've kicked doors door frames God knows what and it's bloody painful. That's for sure I've walked into door frames, I've concussed myself, God knows how many times when I've walked into things. Oh my God, I was like a walking accident waiting to happen.

    The thing is you still think you can do everything even when you can't and when you try it always results in an accident with me. It's not very funny but it's true. But I have since realised that being safe, being careful is the best way. Anyway, I'm getting off the subject that I was on about. So the CBD oil and the flour helped me with my spasms, helped me with my pain, they helped me just be me, they helped me relax, they helped me sleep, they make my life happier. I would say that I am more aware.

    I don't suffer the off my head side effects as I've been smoking it for nearly what, five years now. So it doesn't affect me like that. So yes, it is very strange, but it really does work. It really does get rid of a lot of the pain. And then you don't have to suffer all the constipation and all the other side effects that tablets may have on you like it did me.

    Switching to medical marijuana and THC oil was the best thing that I have ever done in my life and yes I know that some people might think oh dear it's a drug and it leads to other things. Well I can assure you it does not lead to other things it is not a gateway drug for me I use it specifically medically I don't even drink alcohol and I don't smoke tobacco So, the bottom line is, it just depends on who you are and how you feel about things, to be fair. Me, I thought, well, I've got to try this because I was going downhill at a rate of knots. That is unreal.

    Progressive MS is not a nice thing, and I have this histamine reaction thing which causes me even more problems with my vagus nerve, and then there's my autonomic dysfunction. You know, all these things, it's just mad, and then I have heart issues. So, yeah, the THC CBD is helping me, and personally for me it works. It might not work for other people, but there we go. That's my living truth. And I think really it's up to the person, but you should always seek medical help first before you go down that route and do some research.

    some useful links below to help maybe on your journey

    curaleaf clinic

    ms society

    Cannabis and multiple sclerosis

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    π’€­π’Š©π’†³ α›žαš±αš¨αš·α›ŸαšΎ α›αš±αš¨αšΎα›‹αš²αšΊαš±α›α›–α›ž ✦ αšΉαš¨α›αš²αšΊα›–αš± π’€Έπ’€­ αš’αšΎα›’α›Ÿαš’αšΎα›ž
    enter image description here