Multiple sclerosis is My Living Hell

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    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    Caps Lock was on. Fitting, really because this weekend deserves to be screamed.

    It’s been one of those days where tinnitus isn’t just a sound; it’s a blade, slicing through each ear like a mad surgeon practising on live flesh. My neck and throat are staging their own version of The Exorcist full-body spasms, tongue going numb, and that delightful creeping thought: “what if I swallow it?”

    Add a bit of breathlessness, some joint pain in every bloody bone, and the cold biting like a pack of wolves, and you’ve got the full package. Heating? Too expensive. Living? Apparently optional.

    Everything costs too much, even pretending to care.

    The one bright thought in this black pit? Magnet fishing. Yeah, you heard me. A rope, a magnet, a canal and maybe a bit of hope stuck to the end of it. I’ve been watching Wim and his magnet-fishing crew on YouTube absolute legends. Amsterdam, Rotterdam… the dream. Wim’s laughter, their ridiculous finds, their camaraderie it’s like a brief holiday from hell.

    And the pink cake challenge? I’d kill to try it. But I can’t. My diet’s so stripped-down it makes a monk look decadent. No meat, no dairy, no fat animal or vegetable. Even coconut oil’s on the blacklist. My body’s become a warzone where food’s the enemy. I’m wasting away, a ghost of myself.

    This afternoon I lay down and held Albertine my one anchor in this chaos. She’s the reason I’m still here, truth be told. When your brain starts glitching like a bad signal and fear crawls up your spine, a hug can feel like the last light in the storm.

    I’m slipping, I know it. The fatigue is monstrous. My eyes ache, the light stings, and sleep’s a cruel joke. Still, I keep trying. Keep clawing forward, because what else is there?

    I’ve even done a podcast raw, unfiltered, recorded between breakdowns. No one’s listened yet. But maybe one day they will. Maybe they’ll understand what it feels like to live like this half-human, half-howl.

    Last night, I dreamt of Yopi in a baby wheely chair. No idea why. Probably my brain finally imploding. Still, better that than another night of endless bathroom trips. I’m tired the kind of tired that lives in your bones. But I’m still here.

    Still fighting. Still swearing. Still darkly laughing. Because that’s all I’ve got left and I’ll use it till it burns out.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    @goblinbloggeruk - sick@mylivinghell.co.uk
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