Multiple sclerosis  is My Living Hell

death

All posts tagged death by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    So, my dad’s finally passed. No tears, no fuss just a nice, quiet obliteration. Dead as yesterday’s news, and honestly, a bit of relief: nearly 90, more aches and pains than a used Vauxhall, and now he’s ghosting about pain-free, probably giving the afterlife staff hell.

    We didn’t have the typical family drama. We had 1,000s of miles of Skype buffering, WhatsApp conspiracy theories, and two decades of gene-detective work, chasing dead brothers and rejected half-sisters like a couple of Poirots. No “happy endings,” just hard drive clutter and unanswered emails. Dad’s long lost brother Eric? Still a ghost in the records. Maybe he’s haunting someone else’s family tree now.

    Adoption, by the way, is a real bastard if you want answers. You end up playing Guess Who with a stack of birth certificates and the emotional stability of a tired magpie. We even signed up for a DNA site hoping for a ping, maybe a new cousin or two. Instead, plot twist: I found out I have a daughter in the USA (cheers, genetic lottery), plus three grandkids who were expecting a Disney dad, not some knackered old biker in a wheelchair with a line in gallows humour. Fair play to them they ran for the hills.

    What can I say? MS turned me from “not bad for a weird bloke” to “the goblin on wheels who says the quiet part loud.” No more Mr. Nice Guy. People don’t like raw truth especially family. Most of them would rather pretend I’m a ghost, too. That’s fine by me. I’m not here to collect friends like tea towels. I’ve got Albertine, a rescue dog on the way, and enough old stories to fill a thousand pub sessions. If that’s not a win, what is?

    Mum’s funeral? Missed it. No invite, no closure, just another adoption special “Sorry mate, she’s gone. By the way, don’t come round.” Classic. Different’s never sat well with the clan. The looks I get are priceless; I could sell tickets.

    So here’s to my dad spiritualist elder, late bloomer, stubborn bugger, and the reason I know the truth always tastes better with a dash of venom and a twist of disbelief. Rest easy, you old bastard. I’ll keep riding (even if it’s just in my head).

    Life’s a circus, death’s the punchline, and I’m still here, loving every bit of the weirdness.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    The phone rings at stupid-o’clock. 4am. A voice asks if it’s me as if anyone else would be answering my phone, in my bed, in my life. And I knew what came next. The words arrived like a polite hit-and-run:

    He’s gone.

    A few weeks shy of ninety. Restless sleep, family at the bedside, curtain down, lights out, roll credits. If endings have to happen, fine do it quietly with the people who love you. Very tasteful. Five stars on TripAdvisor: Would die again.

    I wasn’t there. Because New Zealand is thousands of miles away and my body is… well, let’s just say progressive MS is the world’s shittest tour manager. But we did the long game: Skype, WhatsApp, years of digging deep, arguing, laughing, comparing scars across a cable that pretends it’s a conversation and sometimes actually is.

    We had a lot in common mostly that we were both adopted at birth, which is destiny’s way of saying: “Good luck out there, kid. Try not to break on re-entry.” I only met him when he came to Cardiff for the millennium. Imagine that: you’re supposed to be dazzled by fireworks, and instead you meet your own face with slightly different mileage.

    Later, before my health slammed the travel door shut, Albertine and I clawed together enough cash to fly over and meet the half-brothers, half-sisters, full-size family. Legends, the lot of them made us feel like we’d always belonged, even if it took half a lifetime to arrive. After that it was back to screens and time zones and the emotional juggling act that passes for modern kinship.

    Tuesday was his last call. He said he loved me. I said I loved him. Sometimes the Universe lets you finish the sentence before it flips the table.

    He used to say it straight: “Crossing the veil.” Fine. He’s crossed it. He’s through. He’s taken the midnight ferry to the Quiet Side. If you’re listening, old man: you’ve still got signal here. I can’t guarantee Tom the Weed-Whacker won’t interrupt, but you know how it is in this house liminal doors everywhere and not a single Do Not Disturb sign that works.

    I’m sad. I’m grateful. I’m furious. I’m relieved. I’m all of it. Grief is a nightclub with no fire exits, and the DJ plays your memories until you’re sick. But I’m also proud we found each other at all—two adoptees, late to the party, still managing to say the one thing that mattered before the lights went out.

    So cross the veil, Dad. I’ll hold the line here. Frankie will bark at the shadows. Albertine will hold the fort. And I’ll keep watch, like I do, because that’s the job: Watcher among watchers. If you’ve got any good gossip from the other side, you know where to find me. The hedge is still a door. The domes are probably still there. I’ll bring the cheese.

    And yes I love you too.

    Warlock Dark.... your son

    “Grief is a nightclub with no fire exits, and the DJ plays your memories until you’re sick.”

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here