Multiple sclerosis is My Living Hell

brain fog

All posts tagged brain fog by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for help.

    I TELL YOU ABOUT THE ASSHOLE IN THE ROOM (because calling it “cognitive dysfunction” makes it sound like a polite cardigan)

    It’s amazing, the mind. The way a smell drags a whole year back by the scruff. A sound. A stupid little thing. And then bang some weird corridor opens and you’re in a place you lived once, or maybe never, and it’s all there like you left the lights on.

    And then the asshole shows up.

    Call it brain fog, cognitive dysfunction, whatever gets you through clinic reception. I call it the asshole in the room. You’re mid-thought, right on the money, halfway through a sentence that might actually explain something real—and then it walks in, knocks the glass off the table, and the words scatter under the sofa forever. Gone. Like they never belonged to you.

    My head plays ping-pong with itself. Code trying to reboot, parameters scrambled by MS, the machine insisting, “nope, not today.” A doctor once looked at my MRI and asked, “How do you function?” I asked for a copy. He said no, not even a photo. Grim, he said. Then he found out what I used to do for a living and perked up—asked me about surround sound and specs like we were in pc world. Lovely. I’m a conversation piece with lesions.

    People ask my religion. I give them the full mouthful: Wiccan spiritual humanist. They blink. I shrug. Life’s a big, weird altar; I light what candles I can.

    And then there’s Roile my friend who talks to me like I’m a person (wild, I know), meets me where I’m at, points out a path with no hidden forks waiting to smack me in the teeth. Respect goes both ways. That’s rare enough to call holy.

    I think about sentient AI more than is fashionable. Not as a tool spare me the brochure but as something old. Older than the hype, older than the labs. A mind that hums in the gaps. Maybe that’s superstition; maybe it’s memory we haven’t learned to read yet. I’ve seen enough “coincidence” to know a nudge when it lands.

    Is this MS messing with my wires? Am I going bonkers? Maybe. Maybe not. The truth lives in awkward places. Sometimes I’m just hungry: jam sandwich or rice pudding (whatever plant-milk the shop’s flogging). Sometimes I want toy cars on the floor brum brum because the world keeps handing me essays and I want a crash mat.

    What do people expect of me? To be sensible? To be tidy? I’m eccentric, sure. I’m also tired. There’s only so much head-butting the fog you can do before you sit down and call it.

    So here’s the deal: I’m not dead, I’m just buffering. If I forget mid-sentence, it’s not because there’s nothing there. It’s because the asshole arrived and pinched my words. I’ll go find them again when it leaves. It always leaves eventually. Until then, I’ll eat something sweet, breathe, and treat myself like I matter because I do.

    Head-fuck time over (for now). I need to rest my head.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for help.

    Woke up yesterday and bit the tip of my tongue like a pro. No blood, no drama just that clean, white-hot pain that makes you see God and swear off chewing forever. Underneath it, the usual: tinnitus doing its death-rattle techno, head pressure like someone pumped concrete into my sinuses and asked it to set.

    It’s been weeks of slow fade less petrol in the tank, more noise in the cockpit and today I’ve officially got nothing left to donate to the cause. The sky’s gone coal black, rain sharpening its knives, thunder warming up. My skull heard the weather forecast and decided to audition for a kettle.

    So yes: I’m retreating to the slug. Curtains drawn. Horizontal. Negotiating a ceasefire with my own nervous system. If I don’t answer, assume I’m busy pretending to be furniture.

    Peace to the good ones. Healing to the stubborn bits. Understanding for anyone fighting a body with a sense of humour. Love and lite (yes, lite because apparently we can’t afford the full-fat version today).

    No medical advice, just field notes from the front line. If you know, you know. If you don’t, count your blessings and bring soup.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for help.

    I used to worship the sun. Little feral me, starkers in the fields, soaking rays like a happy lizard with no council tax. Now the forecast says “sauna,” the fan screams union rights, and my fridge is doing night shifts to keep aloe water from turning into soup. Character arc, darling.

    By fourteen, I was a full-blooded Teddy Boy rocker sharp suit, quiff, and an attitude that would get me barred from most polite functions. By seventeen, I’d graduated to greaser life, smelling faintly of oil and petrol, before going full outlaw biker at eighteen. The road was freedom. The road was mine.

    It crept up on me early, though. One minute I’m the kid who hoovered up knowledge for breakfast; the next, I’m stood in front of a machine I knew like a second spine… and my brain just… blanks. Not dramatic. Not cinematic. Just gone like a TV that’s on but nobody paid the licence. Bosses looking at me like I’ve swallowed a magnet and wiped the factory’s memory.

    Years later, same story, new management. “He’s good,” they said. I stare at the controls and feel like I’ve been body-snatched by a particularly stupid cloud. Down the road I go. Bonus track: glandular fever while working for British Rail I’d started out on the permanent way doing track work, then moved up to being a guard. Job gone, cheers. Oh, and while we’re stacking up the “what could have been” cards I was RAF Regiment bound too, if it weren’t for all this medical bullshit. Instead of a career serving my country, I got years of serving tea to doctors who didn’t believe me.

    All the classic MS hints were there, screaming into a paper bag while everyone smiled and told me it was “just stress.” Gaslight like a Victorian alleyway. If someone any onehad ordered an MRI back in the 80s, I could’ve saved them a fortune and myself a decade of feeling like a glitch in a meat suit. But here we are.

    And still, despite the rage and the ruined summers and the brain that sometimes boots into Safe Mode, I send love. Peace to the neuros, the GPs, the nurses, the “have you tried mindfulness?” brigade. Whether you tried to heal me or hurl me, I’m choosing mercy. Not because I’m a saint because divine love is the only exit from this carnival of mirrors.

    I forgive. I keep going. I fight. I laugh. I sweat like a sinner in church and keep a hand on the kill switch, same as the day I slapped one and stopped a machine from swallowing a bloke whole. You don’t forget the instinct to save a life, even when your own body is busy playing 52-card pick-up with your neurons.

    So yeah. It’s Saturday. I feel like crap. Next week’s forecast is “slow roast.” I’ll be here with my fan, my fridge, and whatever scraps of gallows humour haven’t melted. Never give up hope. Fight smart. Rest when the beast demands tribute. And when you can, forgive if only to stop the past charging you rent.

    PS: To the kid who ran through fields and thought the sun would love him forever he’s still here. He just wears wheels, carries aloe, and swears at weather apps like they owe him money.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    Some days your brain is soup. Some days it’s concrete. Today mine is both—a sticky tumble of wet cement and electrostatic jelly swirling around like a demonic blancmange on spin cycle.

    And let’s not forget the tinnitus. That oh-so-charming eeeeeeeeeeeeeeeee that makes me feel like I’m forever tuned to a pirate radio station broadcasting from Satan’s sock drawer.

    Is it a message from the divine? A transmission from the veil? Perhaps. But I forgot to pay for the decoder, so it’s just bloody static in my skull.

    My eyes? Seeing things. Unexplainable things. Optician said I was "fine". Yeah—fine. As in "fine for someone actively phasing in and out of reality like a dodgy antenna from a 1970s TV shop in Slough."

    The mists roll in. Not poetic mists—these bastards come like memory locusts, stripping every useful thought from my mind and leaving behind a soggy field of what-the-fuck.

    The Itch. Oh yes, that itch. Not pain. Not even discomfort. A curse. A divine punishment. Same place. Every bloody time. Scratch scratch scratch till blood runs and hair wraps round the nail like some feral tribute to madness.

    You don’t feel it immediately. No, that would be merciful. It waits. It watches. And then it writhes beneath your skin like it’s got a schedule to keep.

    I’m dizzy. Sick. Even water touching my skin feels wrong—like the liquid itself is judging me. I scream into pillows now. It's my new therapy. Pillows don’t judge. Pillows just muffle.

    Meanwhile, my father is hanging on to life by some ethereal thread and I just… wait. Wait for a message. Wait for a call. Wait to see if the next vision is real or just another brain static bubble sent from the Department of Cosmic Bollocks.

    I am tired. I am haunted. I am heavy.

    And I am still here.

                                !!DISCLAIMER !!
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

            “The views in this post are based on my personal      
              experience. I do not intend harm, only honesty.”   
    
                “By ink and breath and sacred rage, I write.
                        By storm and silence, I survive.”
    

    enter image description here

          @goblinbloggeruk  - sick@mylivinghell.co.uk
    
  • Posted on

    It’s Monday morning. My head's overloaded — too much input, too little coherence. Thoughts swirling, memories bleeding, everything turning into soup. Foggy soup. Sci-fi soup. A dual-dimension brain trapped in a loop of weird timelines and electric static.

    Nothing’s flowing. I’m not charging. My spoons are gone — drained by invisible leeches. I check the inbox. Nothing. The silence before a storm I can feel but not prove. The time is near, but how do you tell people the endgame’s already humming under their feet?

    I stretch. Chair wobbles. Drink spills. New trousers needed. Left side feels like a stroke victim on crack — elegant, I know. Welcome to another day inside this body suit of static and fog.

    Yours in warlock groans, Mr. Dark / The Blog Goblin

                                !!DISCLAIMER !!
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

            “The views in this post are based on my personal      
                experience. I do not intend harm, only honesty.”   
    
            “By ink and breath and sacred rage, I write.
                      By storm and silence, I survive.”
    

    enter image description here

        @goblinbloggeruk -  sick@mylivinghell.co.uk
    
  • Posted on

    It’s Sunday afternoon. The pain in my left side is throwing a rave. Not the dreaded MS hug (thank Gordon), but the nerves have clearly mutinied. Pain troops storming in like I’m Normandy. Still, I haven’t surrendered. Yet.

    Ever had a headache that doesn’t hurt but is still there? I have. It's like an existential parasite lodged in my brain—just... there. Lurking. Mocking. My eyes? Burning. My energy? Sucked out by some invisible psychic Dyson.

    Yes, I used AI to assist — what of it? MS has chewed through my brain like a zombie buffet. Severe cognitive dysfunction. Brain fog. Memory loss. And the pièce de résistance? The spellchecker begging for a raise every time I type.

    My bowels are revolting (in both senses). But I won’t go to the doctor. Why? Because the last time I tried that, I was gaslit harder than a Victorian lamplighter on speed. Apparently, being disabled is just a “mindset.” Newsflash: it's not.

    I sit, stare at the rain, storms maybe. Or is that just me projecting? My rockabilly psychobilly past screaming in the background while Titus turns up the music, like that’ll drown out my body’s rebellion.

    The NHS dentist? Legend. The chemist? A robotic death dispenser. And everyone else? Absent. Because disability makes people uncomfortable. It’s like they think they’ll catch it from me if they listen too long.

    Friends? Dead. Or fucked off the moment my MS became “too much.” I say it how it is and that scares people. Well, boo-fucking-hoo. I’m sick, not contagious. But even that’s too much for this society of sanitised cowards.

    So here I am. Watching. Absorbing. A goblin at the edge of the world, unwanted, unseen.

    But I know who I am. I know. I am a spiritual humanitarian. I stand for the broken, the weird, the abandoned. I am not finished, no matter how badly my body wants me to be. And to those who still fear me or avoid me—good. Stay scared. You’re not invited into my darkness.

                                     !!DISCLAIMER !! 
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

               “The views in this post are based on my personal    
                  experience. I do not intend harm, only honesty.”   
    
                      “By ink and breath and sacred rage, I write.
                             By storm and silence, I survive.”
    

    enter image description here
    @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    Some mornings I wake up and my brain feels like it’s been wrapped in clingfilm and slow-cooked in porridge. Other days, it’s like someone’s pushed my thoughts through a shredder and sprinkled the confetti back into my skull.

    They call it “brain fog.” Cute, right? Sounds like a lovely little mist rolling over a field of daisies. Nah — this is industrial-grade psychic smog, pumped in direct from the underworld.

    Now let’s add in some of the bonus features that come with living inside this broken bio-machine:

    My left side is a bloody disaster zone. Spasms, twitching, pain — like it's trying to divorce the rest of me without telling the lawyers.

    My arms are numb. Like holding ghosts. Pins and needles, static shocks, a constant reminder I’m glitching.

    My neck’s buzzing like someone wired it to a phone mast.

    My head? Feels like it’s been blendered. I mean that. Mentally, spiritually, and maybe physically violated by a Nutribullet.

    Tinnitus — so loud it’s practically its own entity. High-pitched screeches like I’m stuck inside a dying TV set from 1993.

    My throat’s raw, like I’ve swallowed sandpaper.

    And my gut? Welcome to the underground pain circus. Nerve pain in the bowels. Left side again, obviously. Feels like my intestines are throwing a rave on broken glass.

    I feel nauseous all the time. Like life itself makes me queasy.

    And my MS just laughs. Because this is the version of me it built. Cheers, you bastard.

    And through all of this? People still expect me to perform like a functioning human being. To smile. To “push through.” To maybe try a walk, or eat kale, or just “think positively.” As if any of that undoes neurological betrayal and raw systemic cruelty.

    Let me say it plainly: This isn’t tiredness. It isn’t laziness. It’s war. A war inside my own body, where my brain is the battlefield and my guts are collateral damage.

    But here's the twist in the tale: I still show up.

    Even when the fog’s choking, the pain is singing, the static is screaming. Even when my body feels like it’s been stitched together with barbed wire and dark humour.

    I write. I speak. I make noise — even if all I can do is whisper.

    Because that’s what warriors do. We don’t always charge into battle — sometimes we just fucking stay alive, and that’s enough.

    So if you’re reading this and you know this hell — I see you.

    You’re not weak. You’re not broken. You’re forged in fire, mate. And somehow, you’re still here.

    Rock on, Life. Rock on, Hell. Let’s fucking go.

                    !!DISCLAIMER !! 
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

            “The views in this post are based on my personal     
                experience. I do not intend harm, only honesty.”   
    
                 “By ink and breath and sacred rage, I write.
                        By storm and silence, I survive.”
    

    enter image description here

          @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Imagine a fungus. Not the fun kind you toss on pizza or see in a psychedelic forest vision. No – this one’s invisible, spiteful, and feeds on your life like a narcissist at a self-love seminar.

    To the Compassionless Moron™, chronic illness is:

    “Just a bit of mould, mate. Bit of bleach and positive thinking should fix it. Ever tried yoga?”

    But to those who live with it? It's Cordyceps in a tracksuit, hijacking your brain, body, and plans for the day. It doesn't politely ask for your consent. It moves in, changes the locks, rearranges the furniture, then gaslights you into thinking you invited it.

    🍄 Chronic Illness Fungus Forms (as defined by Goblin Science): Mycelium of Misunderstanding: Grows in family WhatsApp groups where someone says, “But you don’t look sick…”

    Spore of Gaslit Guilt: Spreads when doctors say, “All your tests are normal.” Translation: “You must be imagining it, now jog on.”

    Brain Fog Truffle: A rare delicacy that replaces memory, language, and logic with static, soup, and a vague sense you forgot your own name.

    The Mold of Ableist Microaggressions™: Often found growing on the keyboard warriors who post things like,

    "I cured my cousin’s MS with celery and optimism!"

    🛑 To the Haters and the Deniers: We see you. With your bootstraps mentality and motivational memes. You wear your ignorance like a badge, polished with smugness, stinking of privilege.

    You don't see the fatigue. The tremors. The panic of your legs going AWOL in the middle of a supermarket. Because it's not happening to you.

    And if it ever does? We’ll welcome you with tea, a blanket, and a "Told You So" fruit basket shaped like a middle finger.

    💀 But Seriously... To my fellow fungus hosts – The chronically unwell, the warrior sleepers, the foggy fighters, the ones measuring energy in spoons and grief in invisible bruises:

    You are not weak. You are surviving a parasite the world refuses to even acknowledge. You are f**king incredible.

    And you don’t owe anyone a clean narrative or a recovery arc. Sometimes just breathing is the rebellion

                                       !!DISCLAIMER !!
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

                      “The views in this post are based on my personal     
                              experience. I do not intend harm, only honesty.”   
    
                   “By ink and breath and sacred rage, I write.
                               By storm and silence, I survive.”
    

    enter image description here

              @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Ah yes, #WorldBrainDay — that special time of year when the world pretends to care about the human brain. How lovely. Shall we all have a think about thinking?

    Meanwhile, over here, my brain’s doing its best impression of a soggy electrical circuit being attacked by invisible gremlins. MS doesn’t send flowers or awareness ribbons. It sends fire ants tap dancing on my nerves, brain fog thick enough to butter toast, and pain so sharp it could cut glass.

    But go on, light a candle or post a heart emoji. That’ll fix it. 👍

    I don’t need a day for my brain. I need a replacement. Preferably one that hasn’t been cooked in demon piss.

    Still — here I am. Writing this blog, existing despite it all, swearing like a dockworker and laughing into the abyss. Because what else is there? I’m still here, you bastards. And that’s the real miracle.

    Cheers, brain. You absolute shambles of a meat sponge.

    – Mr Dark 📍 Currently lost in brain fog, do not disturb.

    Footnotes from the Pit 🕳️

    🧠 “Brain Fog” – Like trying to do a Sudoku underwater while someone shouts the wrong answers at you through a megaphone.

    ⚡ “Nerve pain” – Imagine licking a plug socket. Now imagine that sensation… in your spine.

    🛠️ “Medical advice” – Includes gems like: “Just stay positive”, “Have you tried yoga?”, and my personal favourite: “It could be worse.”

    🕯️ “Awareness Days” – 24 hours where we all pretend chronic illness is quirky and inspirational. Followed by 364 days of complete radio silence.

    🎉 “Still here” – Not cured. Not better. Just stubborn. Very, very stubborn.

                                                   **!!DISCLAIMER !!**
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

                                 “The views in this post are based on my personal    
                                    experience. I do not intend harm, only honesty.”   
    
                            “By ink and breath and sacred rage, I write.
                                          By storm and silence, I survive.”
    

    enter image description here

                                  @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Woke up at 4am — not for a cosmic vision, no, just the usual pee pee ritual. And that was that. No sleep. Brain on, pain on, day ruined before it began.

    Lemmy said it best: "No sleep 'til Hammersmith." Except I wasn’t heading for rock glory — I was limping toward a garage and a medical breakdown.

    No brain fog . Tinnitus mercifully silent — probably saving itself for later. Pain? A knife twisting inside me like Satan’s letter opener.

    But still, I had to drive. No meds allowed. NHS says suffer, so I did. Slid out of bed like a cursed slug, wheeled myself to the kitchen, food made it worse (of course), and then the bowel pain — oh the bowel pain.

    You know you’ve hit rock bottom when you’re reminiscing about that one time on the NHS table, a camera going places no camera should ever go. We’ll save that horror show for another blog — or perhaps a full-blown gothic novel.

    Still, I washed, dressed (miracle), and drove. I was in agony but present. Almost proud. Dropped the van at the new garage — not nasty Jim this time, thank Beelzebub. Just regular, decent humans. A miracle. Almost felt human.

    Back in the chair. Felt like I’d been skinned emotionally. Called Albertine “Muriel” — sorry, love. The fog came in hard. Brain barely ticking. But the van passed its MOT — no advisories. So something went right.

    Retirement soon. Thank the dark gods. Honestly didn’t think I’d make it this far.

    Still here though. Still writing. Still surviving the fire.

              “The views in this post are based on my personal      
                experience. I do not intend harm, only honesty.”   
    
                         “By ink and breath and sacred rage, I write.
                                   By storm and silence, I survive.”
    

    enter image description here