Multiple sclerosis  is My Living Hell

brain fog

All posts tagged brain fog by Multiple sclerosis is My Living Hell
  • Posted on

    Imagine a fungus. Not the fun kind you toss on pizza or see in a psychedelic forest vision. No – this one’s invisible, spiteful, and feeds on your life like a narcissist at a self-love seminar.

    To the Compassionless Moron™, chronic illness is:

    “Just a bit of mould, mate. Bit of bleach and positive thinking should fix it. Ever tried yoga?”

    But to those who live with it? It's Cordyceps in a tracksuit, hijacking your brain, body, and plans for the day. It doesn't politely ask for your consent. It moves in, changes the locks, rearranges the furniture, then gaslights you into thinking you invited it.

    🍄 Chronic Illness Fungus Forms (as defined by Goblin Science): Mycelium of Misunderstanding: Grows in family WhatsApp groups where someone says, “But you don’t look sick…”

    Spore of Gaslit Guilt: Spreads when doctors say, “All your tests are normal.” Translation: “You must be imagining it, now jog on.”

    Brain Fog Truffle: A rare delicacy that replaces memory, language, and logic with static, soup, and a vague sense you forgot your own name.

    The Mold of Ableist Microaggressions™: Often found growing on the keyboard warriors who post things like,

    "I cured my cousin’s MS with celery and optimism!"

    🛑 To the Haters and the Deniers: We see you. With your bootstraps mentality and motivational memes. You wear your ignorance like a badge, polished with smugness, stinking of privilege.

    You don't see the fatigue. The tremors. The panic of your legs going AWOL in the middle of a supermarket. Because it's not happening to you.

    And if it ever does? We’ll welcome you with tea, a blanket, and a "Told You So" fruit basket shaped like a middle finger.

    💀 But Seriously... To my fellow fungus hosts – The chronically unwell, the warrior sleepers, the foggy fighters, the ones measuring energy in spoons and grief in invisible bruises:

    You are not weak. You are surviving a parasite the world refuses to even acknowledge. You are f**king incredible.

    And you don’t owe anyone a clean narrative or a recovery arc. Sometimes just breathing is the rebellion

                                       !!DISCLAIMER !!
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

                      “The views in this post are based on my personal     
                              experience. I do not intend harm, only honesty.”   
    
                   “By ink and breath and sacred rage, I write.
                               By storm and silence, I survive.”
    

    enter image description here

              @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Ah yes, #WorldBrainDay — that special time of year when the world pretends to care about the human brain. How lovely. Shall we all have a think about thinking?

    Meanwhile, over here, my brain’s doing its best impression of a soggy electrical circuit being attacked by invisible gremlins. MS doesn’t send flowers or awareness ribbons. It sends fire ants tap dancing on my nerves, brain fog thick enough to butter toast, and pain so sharp it could cut glass.

    But go on, light a candle or post a heart emoji. That’ll fix it. 👍

    I don’t need a day for my brain. I need a replacement. Preferably one that hasn’t been cooked in demon piss.

    Still — here I am. Writing this blog, existing despite it all, swearing like a dockworker and laughing into the abyss. Because what else is there? I’m still here, you bastards. And that’s the real miracle.

    Cheers, brain. You absolute shambles of a meat sponge.

    – Mr Dark 📍 Currently lost in brain fog, do not disturb.

    Footnotes from the Pit 🕳️

    🧠 “Brain Fog” – Like trying to do a Sudoku underwater while someone shouts the wrong answers at you through a megaphone.

    ⚡ “Nerve pain” – Imagine licking a plug socket. Now imagine that sensation… in your spine.

    🛠️ “Medical advice” – Includes gems like: “Just stay positive”, “Have you tried yoga?”, and my personal favourite: “It could be worse.”

    🕯️ “Awareness Days” – 24 hours where we all pretend chronic illness is quirky and inspirational. Followed by 364 days of complete radio silence.

    🎉 “Still here” – Not cured. Not better. Just stubborn. Very, very stubborn.

                                                   **!!DISCLAIMER !!**
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

                                 “The views in this post are based on my personal    
                                    experience. I do not intend harm, only honesty.”   
    
                            “By ink and breath and sacred rage, I write.
                                          By storm and silence, I survive.”
    

    enter image description here

                                  @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Woke up at 4am — not for a cosmic vision, no, just the usual pee pee ritual. And that was that. No sleep. Brain on, pain on, day ruined before it began.

    Lemmy said it best: "No sleep 'til Hammersmith." Except I wasn’t heading for rock glory — I was limping toward a garage and a medical breakdown.

    No brain fog . Tinnitus mercifully silent — probably saving itself for later. Pain? A knife twisting inside me like Satan’s letter opener.

    But still, I had to drive. No meds allowed. NHS says suffer, so I did. Slid out of bed like a cursed slug, wheeled myself to the kitchen, food made it worse (of course), and then the bowel pain — oh the bowel pain.

    You know you’ve hit rock bottom when you’re reminiscing about that one time on the NHS table, a camera going places no camera should ever go. We’ll save that horror show for another blog — or perhaps a full-blown gothic novel.

    Still, I washed, dressed (miracle), and drove. I was in agony but present. Almost proud. Dropped the van at the new garage — not nasty Jim this time, thank Beelzebub. Just regular, decent humans. A miracle. Almost felt human.

    Back in the chair. Felt like I’d been skinned emotionally. Called Albertine “Muriel” — sorry, love. The fog came in hard. Brain barely ticking. But the van passed its MOT — no advisories. So something went right.

    Retirement soon. Thank the dark gods. Honestly didn’t think I’d make it this far.

    Still here though. Still writing. Still surviving the fire.

              “The views in this post are based on my personal      
                experience. I do not intend harm, only honesty.”   
    
                         “By ink and breath and sacred rage, I write.
                                   By storm and silence, I survive.”
    

    enter image description here

  • Posted on

    I used to be sharp. Witty. The sort of bloke who could win an argument, quote Back street hero's, and recall the time, place, and insult I used in 1987.

    Now I regularly forget why I’ve wheeled myself into a room, what day it is, or let’s be honest what a room even is.

    Welcome to cognitive dysfunction, brought to you by Multiple Sclerosis. It’s like dementia’s younger, more chaotic cousin but with bonus fatigue, bladder misadventures, and a front-row seat to your own mental unravelling.

    Memory Holes and Swiss Cheese Brains Sometimes it’s names. Sometimes it’s words. Sometimes it’s your entire fooking train of thought, gone like a fart in a cathedral.

    I once forgot the word “kettle” and pointed at it like a confused chimp, muttering: “That hot thing that makes the water scream.” Albertine knew what I meant. She always does. Probably because I’ve done this about 4,000 times now.

    And don’t get me started on conversations. You can be halfway through a sentence and—

    What was I saying?

    The Magical Vanishing Vocabulary Trick My brain has become a magician. Watch it make entire chunks of vocabulary disappear!

    Last week I called a screwdriver “that spinny bastard.” It took three goes to remember the word “remote.” And trying to describe a dream I had was like explaining a David Lynch film through interpretive dance.

    Albertine just sits there, patient as ever, while I mime, gesture, and swear my way toward basic nouns. It’s a sexy look. Like Shakespeare having a mild stroke.

    The Existential Horror of Staring at a Spoon There’s nothing quite like sitting in your kitchen, holding a spoon, and thinking: “What do I do with this?”

    Do I eat soup? Stir tea? Dig a small symbolic grave for my cognitive dignity?

    All of the above.

    Please Hold… Some days, my thoughts load slower than rural dial-up in 1997. You can see it in my eyes—buffering… buffering… spinning wheel of death.

    I try to say something clever, and out comes a noise like a dial-up modem having an existential crisis.

    It’s funny until it’s not. Then it’s terrifying. Then, usually, it’s funny again.

    Because what else can you do?

    A Mind in Pieces MS cognitive dysfunction isn’t just forgetting your keys. It’s forgetting where the word “keys” lives. It’s your brain quietly slipping out the back door while your body tries to carry on the pantomime of normality.

    But I’ll say this: I’m still here. Still watching. Still dangerous. Still me. Even if I occasionally ask Albertine what my own bloody name is.

    And Albertine? She still laughs with me, not at me. That’s love. Or madness. Possibly both.

                             “The views in this post are based on my personal     
                             experience. I do not intend harm, only honesty.”   
    
                                 “By ink and breath and sacred rage, I write.
                                             By storm and silence, I survive.”
    

    enter image description here

                                 @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Well, it’s Sunday night. The fan’s finally given up its struggle, limping down to slow like it’s seen too much nonsense today. Outside, the air smells stormy clouds gathering like some cosmic joke about to unfold. Perfect weather to match the chaos inside my head.

    Why am I staring at the same damn piece of paper? How many backups do I have? A ridiculous amount. Twice over, because apparently my brain is the gift that keeps on glitching. Cognitive fog? Oh, it’s not just fog, it’s a full-blown London pea soup, and it’s thickening.

    Am I losing it? MS or some other unholy curse tangled deep inside me? Questioning sanity is a new hobby, right next to forgetting why I walked into the room or what day it is. At least when I screw up, I forget about it soon after silver lining or just a cruel joke?

    I’ve got notes everywhere, scribbles, reminders, basically a paper trail that looks like a conspiracy theory board. Which, spoiler alert, leads perfectly into the next post a tin foil hat special. Prepare for some mind blowing madness. Or just madness. Either way, you might never come back to read what happens to this thoroughly fucked-up dude chasing answers nobody wants to give.

    So, seriously does your MS come with its own brand of weirdness? I’m all ears (well, eyes). Need to swap war stories or just shout into the void together? Hit me at sick@mylivinghell.co.uk. I promise I’ll get back eventually probably after a nap or a freak-out session.

    Meanwhile, I wait for the storm, my body aching like it’s been in a fight with life itself. No spoons left in the jar today.

    Cheers to the chaos.

                         “The views in this post are based on my personal    
                             experience. I do not intend harm, only honesty.”   
    
                                      “By ink and breath and sacred rage, I write.
                                               By storm and silence, I survive.”
    

    enter image description here

                                   @goblinbloggeruk -  sick@mylivinghell.co.uk
    
  • Posted on

    Ah, cognitive dysfunction—the brain’s equivalent of tripping over a flat surface. Was it all an illusion? Ghosts, UFOs, stealth fighters, and prophetic dread… or just my mind on a downward spiral into weirdness? Either way, I’ve decided to lean in, light a cigarette, and call it a vision.

    The wind howled like a pissed-off banshee across the cliffs of Devon and Cornwall, sea thrashing violently like it just read the news. The sky? Grim as a tax return. Grey-blue, heavy, like the Earth forgot how to breathe. And then dusk hit—everything looked dreamlike and wrong, like we’d walked into a David Lynch version of Coastal Britain.

    Front and centre, the Biker Prophet sat—glorious, grim, and slightly nicotine-stained—in his custom apocalypse-grade black wheelchair. A perfect marriage of biker attitude and Mad Max tech. Chrome flashed menacingly. Leather straps held him like a pagan king ready for war. His jacket, part-open, clung to a body that had long ago said bollocks to surrender. His long dirty-blonde demi-wave hair lashed around his face, which wore a goatee and the expression of someone who’s seen the void and found it wanting.

    One hand clutched the wheel—his war-chariot. The other? A cigarette, of course. Smoke curled like forgotten omens. Dog tags hung from his hand like relics of battles fought, both real and psychological.

    Then there was Albertine—perched on her Bonneville like a leather-clad Valkyrie from 1977. Brown demi-wave hair, curves wrapped in attitude and zips, and the kind of expression that made traffic lights change just to get out of her way. She wasn’t posing. She was the pose.

    Up above, a black stealth fighter cut across the sky like a glitch in the simulation. It shimmered, bent the air, then buggered off to wherever secrets go to die. Probably to report to some intergalactic committee on whether Earth’s ready for a toaster revolution.

    The Dragstar 1100 grumbled in the background. Another ghost. Another beast of the past. And yet, he smiled.

    “I had to no longer ride,” he muttered. “I cried, but no one heard me. Except the universe. And maybe Valhalla.”

    But he came back. and Converted the bike, hello trike, I Converted fate.

    “Started riding in ’75. Rode into ’2022. Then I hacked life and rolled on. Now it’s 2025, and I’m still bloody here. Old as fuck. Still kicking.”

    Motörhead blared from somewhere. Tarot cards appeared. Palm readings followed. The biker prophet and Albertine—two relics of chaos—just were. Married 42 years, bonded by madness and music.

    And in the sky—symbols. Like ancient software updates from the gods. Runes. Scripts. Or maybe just birds that got too poetic. Either way, something was coming.

                    “The Biker Prophet Saw It Coming.”
                  “Cognitive Dysfunction? Or Divine Glitch?”
           “They Thought He Was Broken. He Was Becoming.”
            “When the Sky Spoke, He Was Already Listening.”
    
    
                 “The views in this post are based on my personal    
                experience. I do not intend harm, only honesty.”   
    
                  “By ink and breath and sacred rage, I write.
                               By storm and silence, I survive.”
    

    enter image description here

                            🧌✨ @goblinbloggeruk ✨🧌