Multiple sclerosis is My Living Hell

nerve pain

All posts tagged nerve pain by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content

    I used a power chair and a chainsaw to take down a tree. I did NOT consult my body first.

    Good afternoon fellow humanoids and N H I , Well, what can I say? This weekend I've completely overdone it. I've used every last spoon up. I've completely exhausted myself in the garden, trying to do some work. Now, you may laugh, but a tree surgeon costs quite a lot of money. And I got it in my head that in my power chair, I can sit in it with a chainsaw and chop down the offending tree thing. Well, the power saw, chainsaw arrived yesterday, and of course, I'm sat in the garden. And guess what? Even in my power chair, and also chair that I used to sit in the shower in I used, I managed to chop down half a tree. And loads of other things with a bloody great big chainsaw. Oh my God, I must say, I was as nervous as hell. And my God, I'm surprised, Albertine, let me loose with a 12-inch plus inches of chainsaw. Oh my God, I know a lot of people would say, "What the fucking hell are you doing?"

    Some would say not in my right mind

    Well, I think it comes as no surprise really that I do some very strange things. And this is probably a sign of stranger things to come, I would have thought. But yes, you can have a power chair and you can have progressive multiple sclerosis. No feeling in your arms and legs and completely tatered and operate a quite lethal power saw, chainsaw, it's unbelievable. And I did it what I perceived to be quite safely with my very focal glasses and my, well, trusty leather motorcycle gloves. So, yes, if you'd have asked me 20 or 30 years ago to use a chainsaw, I would have given you a categorical, no bloody way. But as they say, needs must when the devil drives. Unfortunately, I'm not a rich man. I'm only on a state pension, unfortunately. I can't afford a tree surgeon and I don't know anybody who will chop it down for free. So there we go. So the cost of a hundred quid for a cheap electric chain saw from Amazon. Hey presto, job done. I'm feeling really good about myself at this moment in time because I've achieved a milestone and something I never thought I would do.

    At the expense of my health.

    Well, as the adrenaline wears off, yes, you've guessed it, I'm coming crashing down. Yes, yes, yes, I have completely overdone it. Tinnitus is getting louder, the brain fog is, well, starting to cloud in and I can't feel my arms and legs anymore, and I can feel my throat and it feels like I'm being strangled. So the old auto-immune is giving me some crap as well now. So pins and needles in my hands ferociously now and of course all offs as well in the neck. And I've also got the belt as well, which is really tight and is always making me feel sick for some unknown reason. But still, there we go, fellow humanoids. Let's just say it's a win for me today.

    Thought for the day.

    "Remember, goblin." "Don't overdo it." "It doesn't end well, but you cannot be told, can you?" "No, you can't, and you won't even listen to yourself."

    so I'm sending you all out there peace-healing love and light, no matter whom or whatever you are, or wherever you are in this world.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
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  • Posted on

    Some mornings I wake up and my brain feels like it’s been wrapped in clingfilm and slow-cooked in porridge. Other days, it’s like someone’s pushed my thoughts through a shredder and sprinkled the confetti back into my skull.

    They call it “brain fog.” Cute, right? Sounds like a lovely little mist rolling over a field of daisies. Nah — this is industrial-grade psychic smog, pumped in direct from the underworld.

    Now let’s add in some of the bonus features that come with living inside this broken bio-machine:

    My left side is a bloody disaster zone. Spasms, twitching, pain — like it's trying to divorce the rest of me without telling the lawyers.

    My arms are numb. Like holding ghosts. Pins and needles, static shocks, a constant reminder I’m glitching.

    My neck’s buzzing like someone wired it to a phone mast.

    My head? Feels like it’s been blendered. I mean that. Mentally, spiritually, and maybe physically violated by a Nutribullet.

    Tinnitus — so loud it’s practically its own entity. High-pitched screeches like I’m stuck inside a dying TV set from 1993.

    My throat’s raw, like I’ve swallowed sandpaper.

    And my gut? Welcome to the underground pain circus. Nerve pain in the bowels. Left side again, obviously. Feels like my intestines are throwing a rave on broken glass.

    I feel nauseous all the time. Like life itself makes me queasy.

    And my MS just laughs. Because this is the version of me it built. Cheers, you bastard.

    And through all of this? People still expect me to perform like a functioning human being. To smile. To “push through.” To maybe try a walk, or eat kale, or just “think positively.” As if any of that undoes neurological betrayal and raw systemic cruelty.

    Let me say it plainly: This isn’t tiredness. It isn’t laziness. It’s war. A war inside my own body, where my brain is the battlefield and my guts are collateral damage.

    But here's the twist in the tale: I still show up.

    Even when the fog’s choking, the pain is singing, the static is screaming. Even when my body feels like it’s been stitched together with barbed wire and dark humour.

    I write. I speak. I make noise — even if all I can do is whisper.

    Because that’s what warriors do. We don’t always charge into battle — sometimes we just fucking stay alive, and that’s enough.

    So if you’re reading this and you know this hell — I see you.

    You’re not weak. You’re not broken. You’re forged in fire, mate. And somehow, you’re still here.

    Rock on, Life. Rock on, Hell. Let’s fucking go.

                    !!DISCLAIMER !! 
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

            “The views in this post are based on my personal     
                experience. I do not intend harm, only honesty.”   
    
                 “By ink and breath and sacred rage, I write.
                        By storm and silence, I survive.”
    

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          @goblinbloggeruk  -  sick@mylivinghell.co.uk