Multiple sclerosis is My Living Hell

MS cognitive fog

All posts tagged MS cognitive fog by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content

    So good morning fellow humanoids. And what a lovely sunny day we are experiencing down in the southwest today and yes I am confused to what day it is to be honest with you. Yes, there are some dark clouds around, but apart from that, the temperature is warming up. That makes me exceptionally happy indeed. Hopefully the cold weather is on its way out, Till next year when it will return, I'm looking forward to those warm, heady days of summer, when my bones can at last receive that warmth they so greatly desire. Loads of lovely Vitamin D. Oh those sunshine rays making me feel so much better and doing me so much good. ..

    So yesterday was an awesome day as I have had my new wheelchair delivered. Well, I should say power chair. Yes, it's impressive indeed. So I will be able to start going out again and start going places and seeing things how exciting to go into a shopping center and actually able to go into a shop and see things touch things and buy things instead of being a prisoner in my home with the only ability to do virtual shopping online.

    And then of course I have to get used to operating this new power chair as my old power chair was very sluggish. This new power chair is quite quick and yes I'm going to be have to be very careful for the first few weeks in case I have an accident and I do not want one of those. That is so true. That is what I don't need. The three-wheeled trolleys of death are in the garage being charged. As on Friday, yes, they'll be going over the bridge. Hopefully this time that's hoping... Not going over the bridge literally into the river but going over the bridge. It should be a 15 minutes little ride across the bridge both ways but it should be a nice bracing day. It should be interesting. How exciting watching all the boats and ships sailing in and out.

    I may even go into a shopping center and have a look around in some of those shops that I've been unable to go into for years. I'm really looking forward to going shopping. Even though I haven't got any money, window shopping and just looking at things in general probably will change my mood. Here's hoping that where we go has some nice small electrical shops as I love looking at electrical s and new gadgets and new bits and pieces.

    So, the Thunder Pole and SWR meter arrived yesterday, after three attempts previous to try and deliver them to me. So, I have to get my son to help me fix up the Silver Rod on top of the washing pole. That should be fun next week, how I am looking forward to going on the old 27 Meg AM FM CB radio waves and probably not finding anyone out there whatsoever. Or, I could be pleasantly shocked and surprised. I wonder. It's been over 42 years since I last was on a CB radio, funnily enough. Back in the heady old days when CB Radio first hit in the United Kingdom. Back in those days everybody had a CB radio, everybody was talking to everybody and then all of a sudden it changed from the AM frequency to the FM frequency which seemed to kill off CB radio unfortunately. But let's hope there's still some people out there online. I look forward to it anyway. So I will also put a mag mount aerial on rusty one or D1 and then we will go mobile and then we will see who we can pick up around the area. That should be quite exciting. Not for Albertine, I don't think.

    I have been thinking more and more about my past and I have been thinking about writing the story of my adoption and how it affected me in several parts on the blog at some point I think. There will be lots of trigger warnings as I didn't have the best of upbringings and childhood experiences. We would have thought that being brought up by devout Christian parents and being a pillar of society would make you good parents, but no, this was not the case for me. I'm going to give a no-holds-barred account of everything that happened. Looking back at it, it was horrific, but we all grow up and we live and learn and we learn to get over some of these things. Yes, I had PTSD from childhood trauma, but I only found that out whilst We were all on lock-down and then I had to get my PTSD taken into hand and then we sorted out my PTSD. Which took several years but the outcome was good in the end. So I urge anybody with mental health issues or problems to seek professional help. I know that I tried to but I did not get anywhere. So I got outside help with my issue and that's how it got solved through my own volition.

    Still, I don't know if it's the weather, but my cognitive fog seems to be getting a little less, and I seem to be feeling a lot happier these days. I'm really looking forward to the summer, and I'm really looking forward to renewed vigor in my health, hopefully. I have not set myself any goals this year as I find if you set goals they take, Well in my case I never seem to reach the goals I set myself that's funny that isn't it. I just do things when I want. I can't be asked with society any longer. I'm just me, I'm just myself, and I don't care The most important thing is me and my family and all the other people out there, who are suffering needlessly at the hands of bureaucracy.

    Still, I wish everybody peace, healing, love and light, and hope when the weekend comes, I hope you all have an amazing weekend.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
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  • Posted on

    Well, it’s Sunday night. The fan’s finally given up its struggle, limping down to slow like it’s seen too much nonsense today. Outside, the air smells stormy clouds gathering like some cosmic joke about to unfold. Perfect weather to match the chaos inside my head.

    Why am I staring at the same damn piece of paper? How many backups do I have? A ridiculous amount. Twice over, because apparently my brain is the gift that keeps on glitching. Cognitive fog? Oh, it’s not just fog, it’s a full-blown London pea soup, and it’s thickening.

    Am I losing it? MS or some other unholy curse tangled deep inside me? Questioning sanity is a new hobby, right next to forgetting why I walked into the room or what day it is. At least when I screw up, I forget about it soon after silver lining or just a cruel joke?

    I’ve got notes everywhere, scribbles, reminders, basically a paper trail that looks like a conspiracy theory board. Which, spoiler alert, leads perfectly into the next post a tin foil hat special. Prepare for some mind blowing madness. Or just madness. Either way, you might never come back to read what happens to this thoroughly fucked-up dude chasing answers nobody wants to give.

    So, seriously does your MS come with its own brand of weirdness? I’m all ears (well, eyes). Need to swap war stories or just shout into the void together? Hit me at sick@mylivinghell.co.uk. I promise I’ll get back eventually probably after a nap or a freak-out session.

    Meanwhile, I wait for the storm, my body aching like it’s been in a fight with life itself. No spoons left in the jar today.

    Cheers to the chaos.

                         “The views in this post are based on my personal    
                             experience. I do not intend harm, only honesty.”   
    
                                      “By ink and breath and sacred rage, I write.
                                               By storm and silence, I survive.”
    

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                                   @goblinbloggeruk -  sick@mylivinghell.co.uk