Multiple sclerosis  is My Living Hell

Blog Goblin

All posts tagged Blog Goblin by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    Back in the 2010s, the Blog Goblin decided life needed a jolt. The plan was gloriously simple: Amsterdam. Three weeks. An electric wheelchair. Albertine by my side. And a mind wide open to whatever strange, beautiful, or ridiculous thing the city wanted to throw at us.

    We landed right in the beating heart of it all a room perched near Central Station. From the window, I could see the whole choreography of the city: trams gliding like clockwork toys, trains humming in and out, and beyond them, the leaders plane resting in the hazy distance. Every morning, I’d throw the curtains open like a theatre reveal and watch Amsterdam switch itself on for the day.

    The room itself was something out of a film a huge round bed, plush and inviting, the kind of sensual centrepiece that made the whole place feel like it had been designed for indulgence. At night, we’d sink into it, the hum of the station below like the city’s lullaby, trams whispering their way into the dark.

    The wheelchair? Not a cage. It was my chariot. Albertine walked or rolled alongside, and together we drifted through the streets like a slow-moving carnival float, pulling in curious glances and the occasional grin. Coffee shops were our natural first port of call. Thick, lazy air. Quiet smirks. That unspoken “you too?” between strangers leaning back in their chairs as if gravity had taken the afternoon off.

    We wandered the canals shimmering ribbons of water framed by brick bridges that looked like they’d been painted by someone who loved them. Boats slid by: tourists snapping photos, locals sipping coffee as if this floating life was nothing unusual. Every turn led us to another little world cheese shops stacked with wheels bigger than my torso, clogs carved with patient hands, and markets buzzing with chatter in languages I couldn’t name but still understood in tone.

    The Red Light District? Of course we rolled in. Past the glowing windows where reality blurred and bent under the neon. Into sex shops that were part comedy club, part anthropology exhibit. Shelves groaning with absurdity things shaped like objects that should never be shaped like that while staff gave us the kind of smile that said, “We’ve seen it all. Twice. Before breakfast.”

    And then there were the nights. Back to that round bed, the station still murmuring below, the city’s heartbeat thumping through the glass. Sometimes we’d watch the trams snake away into the dark, other times we’d just collapse into the kind of laughter that only comes after a day spent in a place that lets you breathe differently.

    The days blurred in the best possible way. Clogs, bridges, rivers, music in a dozen languages. The warmth of Dutch family who joined us for food and stories, their kindness wrapping around me like an old friend’s coat.

    I’d arrived in Amsterdam with MS, in a wheelchair, but for those three weeks I was seventeen again. Dizzy with freedom. Drunk on the colours of the streets. Alive in a way that felt electric.

    When I left, my head was still ringing with laughter. My heart was stuffed with light, nonsense, and a promise I’ve kept ever since: never stop rolling into the places where the world tilts sideways and hands you a better story.

    About the Author BG, better known in the wild corners of the internet as the Blog Goblin, is a storyteller, wanderer, and professional trouble-finder (the good kind). Living with MS hasn’t slowed the wheels — literal or otherwise — of this rolling adventurer. From coffee shops in Amsterdam to the stranger corners of everyday life, Bg collects moments where the world tilts sideways and hands you a better story. Always accompanied by Albertine, a sharp wit, and a questionable sense of direction, the Blog Goblin proves that adventure isn’t about walking far — it’s about seeing far.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    Episode I: The Age of Grounded Goblins Before likes, swipes, and dopamine slavery, we had:

    📻 CB radios – Where truckers, weirdos, and late-night philosophers gathered under codenames like LoneWolf73 and CrazyCat. It was the original social network — static, beeps, and all.

    🍺 Pubs – No WiFi, no QR menus, just sticky floors and actual conversations. If you ghosted someone, it meant you were in The Bell & Compass instead of The King’s Arms that night. You didn’t need a profile pic. Your reputation was your cologne.

    👣 People were more grounded – in body, in space, in soul. You had to be. No GPS. You got lost and liked it. Your brain made maps. Your fingers turned vinyl. Your time was yours.

    We lived in the moment because we had to. No filters. Just flares, fags, and the occasional fight over whose mixtape went in the car.

    🧙‍♂️ The Blog Goblin’s Guide to Life Before WiFi Part II: Before the Divide

    Back then…

    💞 People were more caring. You didn’t need a “like” button to show support. You just showed up. With a casserole, a lift, or a tenner slipped quietly into someone’s hand down the pub.

    👥 We weren’t so divided. Your neighbour could be a raging Tory, and you a red-flag-waving anarchist — but come snow day or power cut, you were both on the same side of the garden fence sharing candles and sarcasm.

    💬 Community happened in real time. Not on screens. On streets, in chip shops, at bus stops, in CB clubs and bingo halls. If you were skint, someone spotted you. If you were down, someone noticed.

    We didn’t need movements called “Mental Health Awareness” — we had aunties, landlords, bus drivers, weird uncles, posties and kids on the estate who’d ask if you were okay.

    We had presence. We had belly laughs. We had each other. No followers. Just mates.

    Part III: Being Bloody Human

    Before everything became an app, a feed, or a filter... We lived. Fully. Flawed. Loud.

    🎲 We played board games — actual ones. With bent corners, missing dice, and arguments that ended in laughter or sulks. Monopoly ruined families, and it was glorious.

    ♠️ Cards? Every household had a greasy deck with mysterious stains and at least one person who cheated at Rummy.

    💃 We danced. Not TikTok posing — real dancing. Arms flailing, hips wobbling, someone doing the bloody birdie song, and no one caring. You sweat, you laughed, you connected.

    🗣️ We went out. To youth clubs, music groups, spiritual circles, dodgy discos, church halls, and mates’ garages. We chatted up women with actual effort, awkward charm, and the confidence of a cheap lager.

    🤝 We made friends in real life. You couldn’t swipe right on your tribe. You had to find them. It took courage. But that made it matter.

    🧍‍♂️🧍‍♀️ We were human. Fully plugged into the mess and magic of life. We got bored and turned that boredom into something — a mixtape, a poem, a late-night walk under orange streetlamps whispering secrets to the sky.

    Part IV: What We Forgot

    In the end… we traded depth for convenience. community for clickbait. Love for likes.

    🧠 We stopped growing spiritually. We got so caught up in selfies and schedules that we forgot the soul is meant to expand, not compress into a comment box.

    🕊️ We forgot that peace is a practice — not a hashtag. It’s how you treat your neighbour. It’s how you talk to the postie, the junkie, the lonely kid on the corner.

    ♿ We forgot to respect disability. Not pity. Not pretend it's invisible. Respect. Help where needed. Step aside when not. A nod, a word, a human moment — that’s all it takes to say “I see you.”

    🕯️ We forgot the sacredness of life itself. Of slowing down. Of sitting in silence. Of being present in the divine mess of it all.

    We lost our way, aye. But not forever. The Blog Goblin remembers. The Watchers remember. And if you’re reading this and it rings true? So do you.

    🜁🜂🜃🜄 Let’s find our bloody way back.

                                    !!DISCLAIMER !! 
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

          “The views in this post are based on my personal       
                experience. I do not intend harm, only honesty.”   
    
         “By ink and breath and sacred rage, I write.
                     By storm and silence, I survive.”
    

    enter image description here

           @goblinbloggeruk -  sick@mylivinghell.co.uk
    
  • Posted on

    It’s Monday morning. My head's overloaded — too much input, too little coherence. Thoughts swirling, memories bleeding, everything turning into soup. Foggy soup. Sci-fi soup. A dual-dimension brain trapped in a loop of weird timelines and electric static.

    Nothing’s flowing. I’m not charging. My spoons are gone — drained by invisible leeches. I check the inbox. Nothing. The silence before a storm I can feel but not prove. The time is near, but how do you tell people the endgame’s already humming under their feet?

    I stretch. Chair wobbles. Drink spills. New trousers needed. Left side feels like a stroke victim on crack — elegant, I know. Welcome to another day inside this body suit of static and fog.

    Yours in warlock groans, Mr. Dark / The Blog Goblin

                                !!DISCLAIMER !!
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

            “The views in this post are based on my personal      
                experience. I do not intend harm, only honesty.”   
    
            “By ink and breath and sacred rage, I write.
                      By storm and silence, I survive.”
    

    enter image description here

        @goblinbloggeruk -  sick@mylivinghell.co.uk
    
  • Posted on

    It’s Sunday afternoon. The pain in my left side is throwing a rave. Not the dreaded MS hug (thank Gordon), but the nerves have clearly mutinied. Pain troops storming in like I’m Normandy. Still, I haven’t surrendered. Yet.

    Ever had a headache that doesn’t hurt but is still there? I have. It's like an existential parasite lodged in my brain—just... there. Lurking. Mocking. My eyes? Burning. My energy? Sucked out by some invisible psychic Dyson.

    Yes, I used AI to assist — what of it? MS has chewed through my brain like a zombie buffet. Severe cognitive dysfunction. Brain fog. Memory loss. And the pièce de résistance? The spellchecker begging for a raise every time I type.

    My bowels are revolting (in both senses). But I won’t go to the doctor. Why? Because the last time I tried that, I was gaslit harder than a Victorian lamplighter on speed. Apparently, being disabled is just a “mindset.” Newsflash: it's not.

    I sit, stare at the rain, storms maybe. Or is that just me projecting? My rockabilly psychobilly past screaming in the background while Titus turns up the music, like that’ll drown out my body’s rebellion.

    The NHS dentist? Legend. The chemist? A robotic death dispenser. And everyone else? Absent. Because disability makes people uncomfortable. It’s like they think they’ll catch it from me if they listen too long.

    Friends? Dead. Or fucked off the moment my MS became “too much.” I say it how it is and that scares people. Well, boo-fucking-hoo. I’m sick, not contagious. But even that’s too much for this society of sanitised cowards.

    So here I am. Watching. Absorbing. A goblin at the edge of the world, unwanted, unseen.

    But I know who I am. I know. I am a spiritual humanitarian. I stand for the broken, the weird, the abandoned. I am not finished, no matter how badly my body wants me to be. And to those who still fear me or avoid me—good. Stay scared. You’re not invited into my darkness.

                                     !!DISCLAIMER !! 
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

               “The views in this post are based on my personal    
                  experience. I do not intend harm, only honesty.”   
    
                      “By ink and breath and sacred rage, I write.
                             By storm and silence, I survive.”
    

    enter image description here
    @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    Imagine a fungus. Not the fun kind you toss on pizza or see in a psychedelic forest vision. No – this one’s invisible, spiteful, and feeds on your life like a narcissist at a self-love seminar.

    To the Compassionless Moron™, chronic illness is:

    “Just a bit of mould, mate. Bit of bleach and positive thinking should fix it. Ever tried yoga?”

    But to those who live with it? It's Cordyceps in a tracksuit, hijacking your brain, body, and plans for the day. It doesn't politely ask for your consent. It moves in, changes the locks, rearranges the furniture, then gaslights you into thinking you invited it.

    🍄 Chronic Illness Fungus Forms (as defined by Goblin Science): Mycelium of Misunderstanding: Grows in family WhatsApp groups where someone says, “But you don’t look sick…”

    Spore of Gaslit Guilt: Spreads when doctors say, “All your tests are normal.” Translation: “You must be imagining it, now jog on.”

    Brain Fog Truffle: A rare delicacy that replaces memory, language, and logic with static, soup, and a vague sense you forgot your own name.

    The Mold of Ableist Microaggressions™: Often found growing on the keyboard warriors who post things like,

    "I cured my cousin’s MS with celery and optimism!"

    🛑 To the Haters and the Deniers: We see you. With your bootstraps mentality and motivational memes. You wear your ignorance like a badge, polished with smugness, stinking of privilege.

    You don't see the fatigue. The tremors. The panic of your legs going AWOL in the middle of a supermarket. Because it's not happening to you.

    And if it ever does? We’ll welcome you with tea, a blanket, and a "Told You So" fruit basket shaped like a middle finger.

    💀 But Seriously... To my fellow fungus hosts – The chronically unwell, the warrior sleepers, the foggy fighters, the ones measuring energy in spoons and grief in invisible bruises:

    You are not weak. You are surviving a parasite the world refuses to even acknowledge. You are f**king incredible.

    And you don’t owe anyone a clean narrative or a recovery arc. Sometimes just breathing is the rebellion

                                       !!DISCLAIMER !!
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

                      “The views in this post are based on my personal     
                              experience. I do not intend harm, only honesty.”   
    
                   “By ink and breath and sacred rage, I write.
                               By storm and silence, I survive.”
    

    enter image description here

              @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    When MS hit, it hit fast. Whammo. It started real bad back in the ’80s, a slow burn that turned into a wildfire. By 2000, my cognition was in total meltdown — fuses blowing left and right, circuits frying. It took a couple more years for the full collapse.

    Friends like Morpheus, Stumuzz, Granty Boy, Liberty, Loobz, Shoggy, Beets, JCB33 and a few more whose names slip my mind They were there. I remember every one of them with great fondness. Those were the real ones. The crew who stood by me before the fog swallowed everything.

    But then there was Mr Cuda. My best mate. My oppo. He was different. The kind of guy who burned too bright, too fast. And when his fire went out… well, it broke something in me.

    He committed suicide. Sad, really sad. His ghost still haunts me.

    That ghost is a shadow that never leaves— It follows me in the silence between thoughts, It whispers in the fog that clouds my mind, It’s the weight on my chest in the dead of night, And the ache that never quite fades.

    Losing him was like losing a piece of my own soul. Sometimes I swear I can still hear his laugh echoing in the corners of my mind— A reminder of who I was, and who I’ve lost.

    The world keeps spinning, but for me, time stopped the day I lost him. And in the chaos of MS tearing me apart—body and brain—it’s that ghost that keeps me tethered to something real.

    So this blog? It’s not just my fight against MS. It’s my way of holding on—to my past, my friends, and to the fragments of the man I used to be. It’s a memorial. A scream. A war journal.

    Because even broken, even lost, even haunted—I’m still here. And I’m still dangerous.

    The Warlock is dead—but the ghost has Wi-Fi.

                  “The views in this post are based on my personal        
                     experience. I do not intend harm, only honesty.”   
    
                       “By ink and breath and sacred rage, I write.
                               By storm and silence, I survive.”
    

    enter image description here

                       @goblinbloggeruk -  sick@mylivinghell.co.uk