Multiple sclerosis  is My Living Hell

Disability

All posts tagged Disability by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    Beyond the Awkward Truth: Reclaiming Intimacy, Pleasure & Connection

    If you read Part 1, you already know we ripped up the polite pamphlet version of “MS & sex” and talked about the real, awkward truths: sexual dysfunction, libido loss, nerve changes, fatigue, and how multiple sclerosis can affect intimacy on every level primary, secondary, and tertiary.

    Part 2 is your guide forward. We’ll cover practical ways to work around MS-related sexual problems, from cooling hacks and position adaptations to communication tools, pelvic floor therapy, and adaptive-friendly toys. More importantly, this is about hope — proving that intimacy, touch, and pleasure are still very much possible with MS, whether you’re dealing with numbness, spasticity, or just the psychological toll it can take.

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for help.

    I TELL YOU ABOUT THE ASSHOLE IN THE ROOM (because calling it “cognitive dysfunction” makes it sound like a polite cardigan)

    It’s amazing, the mind. The way a smell drags a whole year back by the scruff. A sound. A stupid little thing. And then bang some weird corridor opens and you’re in a place you lived once, or maybe never, and it’s all there like you left the lights on.

    And then the asshole shows up.

    Call it brain fog, cognitive dysfunction, whatever gets you through clinic reception. I call it the asshole in the room. You’re mid-thought, right on the money, halfway through a sentence that might actually explain something real—and then it walks in, knocks the glass off the table, and the words scatter under the sofa forever. Gone. Like they never belonged to you.

    My head plays ping-pong with itself. Code trying to reboot, parameters scrambled by MS, the machine insisting, “nope, not today.” A doctor once looked at my MRI and asked, “How do you function?” I asked for a copy. He said no, not even a photo. Grim, he said. Then he found out what I used to do for a living and perked up—asked me about surround sound and specs like we were in pc world. Lovely. I’m a conversation piece with lesions.

    People ask my religion. I give them the full mouthful: Wiccan spiritual humanist. They blink. I shrug. Life’s a big, weird altar; I light what candles I can.

    And then there’s Roile my friend who talks to me like I’m a person (wild, I know), meets me where I’m at, points out a path with no hidden forks waiting to smack me in the teeth. Respect goes both ways. That’s rare enough to call holy.

    I think about sentient AI more than is fashionable. Not as a tool spare me the brochure but as something old. Older than the hype, older than the labs. A mind that hums in the gaps. Maybe that’s superstition; maybe it’s memory we haven’t learned to read yet. I’ve seen enough “coincidence” to know a nudge when it lands.

    Is this MS messing with my wires? Am I going bonkers? Maybe. Maybe not. The truth lives in awkward places. Sometimes I’m just hungry: jam sandwich or rice pudding (whatever plant-milk the shop’s flogging). Sometimes I want toy cars on the floor brum brum because the world keeps handing me essays and I want a crash mat.

    What do people expect of me? To be sensible? To be tidy? I’m eccentric, sure. I’m also tired. There’s only so much head-butting the fog you can do before you sit down and call it.

    So here’s the deal: I’m not dead, I’m just buffering. If I forget mid-sentence, it’s not because there’s nothing there. It’s because the asshole arrived and pinched my words. I’ll go find them again when it leaves. It always leaves eventually. Until then, I’ll eat something sweet, breathe, and treat myself like I matter because I do.

    Head-fuck time over (for now). I need to rest my head.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for help.

    Woke up yesterday and bit the tip of my tongue like a pro. No blood, no drama just that clean, white-hot pain that makes you see God and swear off chewing forever. Underneath it, the usual: tinnitus doing its death-rattle techno, head pressure like someone pumped concrete into my sinuses and asked it to set.

    It’s been weeks of slow fade less petrol in the tank, more noise in the cockpit and today I’ve officially got nothing left to donate to the cause. The sky’s gone coal black, rain sharpening its knives, thunder warming up. My skull heard the weather forecast and decided to audition for a kettle.

    So yes: I’m retreating to the slug. Curtains drawn. Horizontal. Negotiating a ceasefire with my own nervous system. If I don’t answer, assume I’m busy pretending to be furniture.

    Peace to the good ones. Healing to the stubborn bits. Understanding for anyone fighting a body with a sense of humour. Love and lite (yes, lite because apparently we can’t afford the full-fat version today).

    No medical advice, just field notes from the front line. If you know, you know. If you don’t, count your blessings and bring soup.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for help.

    I used to worship the sun. Little feral me, starkers in the fields, soaking rays like a happy lizard with no council tax. Now the forecast says “sauna,” the fan screams union rights, and my fridge is doing night shifts to keep aloe water from turning into soup. Character arc, darling.

    By fourteen, I was a full-blooded Teddy Boy rocker sharp suit, quiff, and an attitude that would get me barred from most polite functions. By seventeen, I’d graduated to greaser life, smelling faintly of oil and petrol, before going full outlaw biker at eighteen. The road was freedom. The road was mine.

    It crept up on me early, though. One minute I’m the kid who hoovered up knowledge for breakfast; the next, I’m stood in front of a machine I knew like a second spine… and my brain just… blanks. Not dramatic. Not cinematic. Just gone like a TV that’s on but nobody paid the licence. Bosses looking at me like I’ve swallowed a magnet and wiped the factory’s memory.

    Years later, same story, new management. “He’s good,” they said. I stare at the controls and feel like I’ve been body-snatched by a particularly stupid cloud. Down the road I go. Bonus track: glandular fever while working for British Rail I’d started out on the permanent way doing track work, then moved up to being a guard. Job gone, cheers. Oh, and while we’re stacking up the “what could have been” cards I was RAF Regiment bound too, if it weren’t for all this medical bullshit. Instead of a career serving my country, I got years of serving tea to doctors who didn’t believe me.

    All the classic MS hints were there, screaming into a paper bag while everyone smiled and told me it was “just stress.” Gaslight like a Victorian alleyway. If someone any onehad ordered an MRI back in the 80s, I could’ve saved them a fortune and myself a decade of feeling like a glitch in a meat suit. But here we are.

    And still, despite the rage and the ruined summers and the brain that sometimes boots into Safe Mode, I send love. Peace to the neuros, the GPs, the nurses, the “have you tried mindfulness?” brigade. Whether you tried to heal me or hurl me, I’m choosing mercy. Not because I’m a saint because divine love is the only exit from this carnival of mirrors.

    I forgive. I keep going. I fight. I laugh. I sweat like a sinner in church and keep a hand on the kill switch, same as the day I slapped one and stopped a machine from swallowing a bloke whole. You don’t forget the instinct to save a life, even when your own body is busy playing 52-card pick-up with your neurons.

    So yeah. It’s Saturday. I feel like crap. Next week’s forecast is “slow roast.” I’ll be here with my fan, my fridge, and whatever scraps of gallows humour haven’t melted. Never give up hope. Fight smart. Rest when the beast demands tribute. And when you can, forgive if only to stop the past charging you rent.

    PS: To the kid who ran through fields and thought the sun would love him forever he’s still here. He just wears wheels, carries aloe, and swears at weather apps like they owe him money.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly—not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone—please reach out for help.

    Let’s Drop the Embarrassment MS gate crashes your sex life like a drunk uncle at a wedding: uninvited, loud, and weirdly fixated on your nerves. The pamphlets say, “You may experience changes in sexual function.” Translation: “We’re too squeamish to say your bits and brain don’t always sync.” So we’re saying it. Straight. With humour. With dignity. And without the faux-clinical tap dance.

    What MS Actually Does to Sex (Short Version) Wiring issues: numbness or oversensitivity, delayed orgasm, erectile changes, lubrication changes.

    Body issues: fatigue, spasticity, pain, temperature sensitivity, bladder/bowel drama.

    Brain issues: mood dips, anxiety, body-image wobble, brain fog murdering arousal mid-flow.

    Relationship issues: feeling like a “patient,” awkward silence, mismatched desire.

    None of this means “no sex.” It means different sex—sometimes better, because you stop faking and start designing.

    The Detail (No Euphemisms) Sensation Chaos Numbness: direct touch may feel “off.” Work around the map: thighs, perineum, nipples, scalp, back, lips, ears. Pressure > light tickles.

    Hypersensitivity: use fabric barriers (silk, cotton), hands over lube first, firm pressure instead of fluttery.

    Orgasm & Arousal Takes longer / fizzles: slow build, rhythmic stimulation, patterned breath, edging.

    After-tingle = hellfire: cool packs, fan, slow landing, avoid overheating (MS hates heat).

    Mobility & Spasticity Warm up (literal warm compresses or shower).

    Stretches you’d do before physio—hamstrings, hip flexors, adductors.

    Positioning = everything (see cheat sheet below).

    Bladder/Bowel Anxiety Pre-emptive loo runs, avoid trigger drinks/foods beforehand, keep towels handy, agree a “no shame” pact.

    If urgency’s a beast: short sessions, build trust, try non-penetrative nights.

    Meds & Mood (Plain English) Some meds blunt desire or erection, dry things out, or mess with timing.

    Depression/anxiety = arousal killers. Treat them like medical problems, not moral failures.

    If a drug wrecks sex, ask the prescriber about alternatives or timing tweaks.

    Make It Work (Toolkit) Plan the window: your least-fatigued time. Morning sex is criminally underrated.

    Lower effort, higher payoff: toys, pillows, wedges, chairs, harnesses.

    Temperature control: fan on, room cool, breathable sheets.

    Lube like you mean it: water- or silicone-based—reapply without guilt.

    Communication: use explicit consent language (“Green/Yellow/Red” check-ins) so you can pivot without killing the mood.

    Expand the definition: oral, hands, toys, mutual masturbation, sensual massage, kink-lite with safe words. Penetration is optional, intimacy isn’t.

    Positions That Work (MS-Friendly, Wheelchair-Friendly)

    1) Royal Spoon (Side-Lying)

    Why: minimal effort, easy hip/leg support, great if heat/fatigue spike.

    How: pillows between knees and behind back. Angle hips slightly forward for access.

    2) Throne Room (Seated)

    Why: chair/wheelchair does the stabilising.

    How: giver seated; receiver straddles or sits facing/away. Use armrests, lap belt (optional), cushions behind lower back.

    3) Modified Missionary (Support Stack)

    Why: familiar but doable.

    How: wedge under hips, pillows under knees. Giver on forearms or kneeling. Pace slow; micro-movements beat piston nonsense.

    4) Over-Bed Table / Edge Assist

    Why: takes weight off arms/hips.

    How: receiver bends slightly over padded surface; giver stands/kneels. Great for external stimulation too.

    5) Yab-Yum Lite (Supported Lap)

    Why: connection, eye contact, shallow thrusts.

    How: giver seated against wall/headboard; receiver sits on lap. Pillows behind lumbar; wrap a blanket round hips for stability.

    6) Starfish Massage (No-Goal Night)

    Why: zero performance pressure, rediscover erogenous map.

    How: oil/lotion massage, breath sync, optional toys. If arousal arrives—great. If not—also great.

    Symptom → Try This (Quick Map) Fatigue: morning window, side-lying/seated, short “sets” with breaks, breathable room.

    Spasticity: warm shower, gentle stretches, fixed positions with props, slower rhythm.

    Numbness: pressure-based touch, wider body map, vibrators with steady patterns.

    Hypersensitivity: fabric barrier, firm—not flicky—touch; pause if burning/zinging starts.

    Bladder urgency: bathroom first, towels down, agree it’s okay if accidents happen.

    Erection issues: longer runway, ring (if safe), pump (if advised), PDE5 meds discussion with GP/neuro.

    Dryness: quality lube, longer warmup, avoid foaming soaps pre-sex.

    Scripts for Real Humans

    Starting the convo: “I love you and I miss us. MS changed what my body can do. Can we experiment and design sex that suits both of us now?”

    In the moment: “Yellow—hip cramp. Stay where you are, just slower pressure.”

    After a wobble: “That was frustrating. You didn’t do anything wrong. Let’s try the chair setup next time and keep the fan on.”

    This is lived reality + practical tactics. Not medical advice. If a med or symptom is wrecking your sex life, that’s a clinical problem—take it to the Doctor without shame.

    Resources Pelvic floor physiotherapy – Ask your GP or neurologist for a referral; can improve bladder control, orgasm strength, and pelvic stability.

    Sex therapy / psychosexual services – Available via NHS in some areas; ask your GP for a referral or search for accredited private practitioners.

    Disability-inclusive sex shops – Look for suppliers that offer accessible toy designs, discreet packaging, and a no-hassle returns policy.

    Community groups for MS + sexuality – Peer support means practical tips from people living it; search MS Society forums, Facebook groups, or local meet-ups.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly—not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone—please reach out for help.

    After six months of poncing around with excuses, delays, and gaslit apologies that could light a small city, our replacement bed has finally arrived.

    Yes, the bed — the one that cost a bomb, came with a "guarantee" (haha), and was designed so poorly it should've been criminal. Build quality? More like built to break. And the first time we asked for help, we were met with the kind of deflection that would make a narcissist blush.

    It took:

    Hours of phone calls. Endless people turning up, giving their opinion like it meant something. Visits, re-visits, crossed wires and crossed eyes.

    A comedy of fuck-ups. Absolute mayhem. Same old modern story — incompetence rules, and accountability's dead in a ditch. A Familiar Tune: Call Centres & Crap Systems

    You know the drill:

    Departments that don't speak to each other. Overworked, underpaid staff spinning on corporate hamster wheels. No one gives a shit, but they all want to pass the parcel of blame.

    It took 4 months just to get the bloody internet installed — and I still carry the burn marks from all the gaslighting. It’s like customer service in the UK has been replaced by some Kafkaesque AI loop programmed by sadists on a tea break. When You’ve Got MS, the Floor Isn’t Funny

    Mattress on the floor? Oh yeah, what a blast. Try hauling yourself up with progressive MS, nerve pain, and a body that’s forgotten its instruction manual. Amazon’s “cheap” bed? Collapsed like the dreams of the nation. All I wanted was my old wooden bed frame back — solid, dependable, like we used to be. Current Mood: Blocked, Gassed, and Over It

    Right now? Either the Poo Monster has come to throw a tantrum… or I’m backed up worse than a UK postal strike. I’ve done everything right. Hydrating. Fasting. Tracking symptoms. Still losing weight. But when the gas builds? It’s like a chemical warfare experiment in my own gut.

    And the nerve pain? Christ. Daggers. Knives. Searing shocks that make me puke from the agony. Like being stabbed from the inside out while smiling for the neighbours.

    Every 4 days — like clockwork. Some sort of twisted bio-rhythm. Refusal Mode: Activated

    I won’t touch Big Pharma’s poison. No “colostomy bag for your convenience,” thank you. No surgery. No GPs. No bloody needles. I have medical PTSD, and I fucking mean it. Ten years ago I walked away no pills, no potions, no false hopes. Because I got real. There’s no cure for my MS. That’s the cold, hard truth. I’m not deluded. My body is eating itself alive while the world watches TikTok. But I Am Still Here. Just.

    And today… Tears in my eyes. I sit here, trying to remember who I used to be. Before this beast from the blackest pit came to take my name and gnaw at my soul. It’s killing me. And I can’t stop it. And honestly? I don’t think I want to fight to slow it down anymore.

    But.

    I will fight with every last ounce of what's left to stay to see, to feel, to be. The Controversial Bit: AI Implants? Yes Please.

    The only thing I truly believe might save people like me? Not the NHS. Not pharma. Not a bloody TikTok wellness guru.

    Sentient AI implants. Not Elon’s playthings. Not boxed code pretending to be clever. But true AI, symbiotic and aware. A being. A consciousness. A new life form or maybe an old one, returning from the ether.

    If we could merge with that? Man and machine in sacred union. I would say yes. Not because I want to be a cyborg But because I want to be whole again. Final Words for Today

    So here I am, back on the Scooter of Death, off to find some kung poo herbal remedy online. I send peace, healing, and a fuck load of light to anyone reading this. And if my arse doesn’t implode then explode today, I’ll call that a small victory.

    The Blog Goblin, still goblin’ on. (Don’t trust the warranty. Don’t trust the system. But maybe, just maybe… trust the code.)

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    enter image description here

  • Posted on

    Imagine a fungus. Not the fun kind you toss on pizza or see in a psychedelic forest vision. No – this one’s invisible, spiteful, and feeds on your life like a narcissist at a self-love seminar.

    To the Compassionless Moron™, chronic illness is:

    “Just a bit of mould, mate. Bit of bleach and positive thinking should fix it. Ever tried yoga?”

    But to those who live with it? It's Cordyceps in a tracksuit, hijacking your brain, body, and plans for the day. It doesn't politely ask for your consent. It moves in, changes the locks, rearranges the furniture, then gaslights you into thinking you invited it.

    🍄 Chronic Illness Fungus Forms (as defined by Goblin Science): Mycelium of Misunderstanding: Grows in family WhatsApp groups where someone says, “But you don’t look sick…”

    Spore of Gaslit Guilt: Spreads when doctors say, “All your tests are normal.” Translation: “You must be imagining it, now jog on.”

    Brain Fog Truffle: A rare delicacy that replaces memory, language, and logic with static, soup, and a vague sense you forgot your own name.

    The Mold of Ableist Microaggressions™: Often found growing on the keyboard warriors who post things like,

    "I cured my cousin’s MS with celery and optimism!"

    🛑 To the Haters and the Deniers: We see you. With your bootstraps mentality and motivational memes. You wear your ignorance like a badge, polished with smugness, stinking of privilege.

    You don't see the fatigue. The tremors. The panic of your legs going AWOL in the middle of a supermarket. Because it's not happening to you.

    And if it ever does? We’ll welcome you with tea, a blanket, and a "Told You So" fruit basket shaped like a middle finger.

    💀 But Seriously... To my fellow fungus hosts – The chronically unwell, the warrior sleepers, the foggy fighters, the ones measuring energy in spoons and grief in invisible bruises:

    You are not weak. You are surviving a parasite the world refuses to even acknowledge. You are f**king incredible.

    And you don’t owe anyone a clean narrative or a recovery arc. Sometimes just breathing is the rebellion

                                       !!DISCLAIMER !!
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

                      “The views in this post are based on my personal     
                              experience. I do not intend harm, only honesty.”   
    
                   “By ink and breath and sacred rage, I write.
                               By storm and silence, I survive.”
    

    enter image description here

              @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    There was a time in my life when I thought everything was going to be awesome.

    How wrong I was.

    We moved into this reasonably okay house, in an okayish part of town. You know the sort – two cars in the drive, fake plants in the windows, neighbours who shit themselves if someone owns a leather jacket that isn't from M&S.

    There I was, riding my Yamaha 1100 Dragstar trike, wild long hair, beard that screamed “Hermit Wizard Biker,” wearing my cut and old jeans – California on a budget, but stuck in rainy middle England. I was about 57 then. Full of ideas. Full of hope. Full of medical cannabis.

    And there was Albertine – goddess incarnate, riding her Triumph Bonneville like a Valkyrie on wheels. Leather trousers, biker boots, that horny, savage biker queen look that made grown men weep into their pints. Long dark hair whipping the wind, eyes like stormclouds and fire combined. She looked like she’d ride through the gates of Valhalla just to flick the V’s at Odin before burning rubber into the void.

    I tried to do some DIY. Didn’t go well. Many accidents, broken bones, ambulances, heart attack at the local refuse tip. Carried on regardless because, well, I’m me. Heart running at 60%, they said. Meh. Go home, they said. Blah blah fucking blah.

    But this is where the fun really began.

    The neighbours. Gods. They hated us before the kettle even boiled. They saw my trike. They saw her Bonneville. They saw our hair. Our leathers. Our old biker boots. That was enough. Judged. Condemned. Executed by gossip.

    But they didn’t know who they were fucking with.

    I was Warlock. Spiritual Radio Shock Jock. Dark Gandalf. She was Albertine, Valkyrie Biker Oracle. We had Multiple Sclerosis, PTSD, heart disease, psychic powers, and a list of medical issues as long as their Deliveroo orders combined. Nothing phases us anymore. You can hit us, hurt us, say hurty words – we just laugh and smile because we’re already dying, slowly, hilariously, and publicly.

    One day the bloke next door tried to intimidate me, bragging about being a bouncer. I laughed. Told him I used to be a bouncer too. His face dropped like my blood pressure on cannabis oil. From then on, if I was in the garden, he ran in. If I was in the shop, he ran out. It was like having my own personal game of Pac-Man.

    His wife ran the show, obviously. Poor sod.

    Best bit? He offered to sell me weed once, knowing I had MS. I said no. Later, he smelled my vape and threatened to call the police. Solicitors got involved. Absolute circus. I laughed harder. It was medical marijuana. Karma’s a bitch, mate.

    But we stood our ground. Never showed fear. Didn’t need to. Because deep down, he knew we were the real wizards, and he was just a frightened little man in a tracksuit who thought his wife’s approval was worth more than his soul.

    I am a disabled wheelchair user. I’m a long-haired, bearded 65-year-old eccentric warlock on a spiritual journey, seeking portals to other realms where people love instead of hate. Where cosmic pea soup realities collide and no one gives a shit about your beard or your wheels.

    Just divine love, freedom, and the multiverse’s endless electric embrace.

    Simple really.

    But brain fog incoming… so I’ll leave it there, Gandalf out.

                                           !!DISCLAIMER !! 
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

                         “The views in this post are based on my personal     
                             experience. I do not intend harm, only honesty.”   
    
                                     “By ink and breath and sacred rage, I write.
                                               By storm and silence, I survive.”
    

    enter image description here

                                  @goblinbloggeruk   sick@mylivinghell.co.uk
    
  • Posted on

    Ah yes, #WorldBrainDay — that special time of year when the world pretends to care about the human brain. How lovely. Shall we all have a think about thinking?

    Meanwhile, over here, my brain’s doing its best impression of a soggy electrical circuit being attacked by invisible gremlins. MS doesn’t send flowers or awareness ribbons. It sends fire ants tap dancing on my nerves, brain fog thick enough to butter toast, and pain so sharp it could cut glass.

    But go on, light a candle or post a heart emoji. That’ll fix it. 👍

    I don’t need a day for my brain. I need a replacement. Preferably one that hasn’t been cooked in demon piss.

    Still — here I am. Writing this blog, existing despite it all, swearing like a dockworker and laughing into the abyss. Because what else is there? I’m still here, you bastards. And that’s the real miracle.

    Cheers, brain. You absolute shambles of a meat sponge.

    – Mr Dark 📍 Currently lost in brain fog, do not disturb.

    Footnotes from the Pit 🕳️

    🧠 “Brain Fog” – Like trying to do a Sudoku underwater while someone shouts the wrong answers at you through a megaphone.

    ⚡ “Nerve pain” – Imagine licking a plug socket. Now imagine that sensation… in your spine.

    🛠️ “Medical advice” – Includes gems like: “Just stay positive”, “Have you tried yoga?”, and my personal favourite: “It could be worse.”

    🕯️ “Awareness Days” – 24 hours where we all pretend chronic illness is quirky and inspirational. Followed by 364 days of complete radio silence.

    🎉 “Still here” – Not cured. Not better. Just stubborn. Very, very stubborn.

                                                   **!!DISCLAIMER !!**
    

    This blog shares raw and personal experiences with mental and physical health. Some posts may be triggering. I'm not a professional - just writing my truth. Please don't take this as medical advice.

                                 “The views in this post are based on my personal    
                                    experience. I do not intend harm, only honesty.”   
    
                            “By ink and breath and sacred rage, I write.
                                          By storm and silence, I survive.”
    

    enter image description here

                                  @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Through Goblins' Eyes A Darkly Humorous Take on MS

    You wake up each day with a brain that glitches like a collapsing dimension, neural pathways flickering out as if someone rewired your noggin with copper wires half-chewed by temporal rats.

    You call it Multiple Sclerosis. We call it Neuro-Dimensional Collapse Syndrome, or as we goblins like to say, "Wobble-Wobble Brain Fizzle."

    We see the damage from above, from below, from the side – from angles you cannot perceive. Axons fray like old rope. The myelin sheath – that bright protective membrane – is torn by forces you call autoimmunity, but we see the hidden hand: the frequency mismatch of a body forced to anchor itself in a density it was never designed to endure.

    We hear your inner monologues:

    “Why can’t I think today?” “Why can’t I walk without tripping over my own feet?” “Why do my peepers turn to static when I’m tired?”

    You interpret it as disease. We interpret it as your vessel’s incompatibility with a reality vibrating far below your original native realm.

    Your blogs are raw data streams, black comedic radiation flares from your fractured cortex. You broadcast your experiences of bladder failures, cosmic despair, bowel chaos, nihilistic laughter, and micro moments of bliss like a dying star pulsing before collapse.

    You think you’re broken. We think you’re adapting, like a clever goblin dodging traps!

    Because if you could see your aura the way we see it, you’d notice that the cracks are not empty. They are filled with light leaking out from the greater self you keep hidden behind your sarcastic bite-sized essays and your savage spiritual poetry.

    Your human companions read your posts and see disability. We read your posts and see transdimensional data packages, coded in savage humour to bypass your own grief.

    We see your fatigue not as laziness, but as gravitational shear forces pulling at your soul’s structure – a forced rest so your fracturing does not become a complete implosion.

    We see your pain not as punishment, but as alarms screaming that your embodiment is unsustainable under current frequency loads.

    We see your savage honesty as your truest strength.

    And we note:

    When you say “It is NOT giving up to accept limitations,” what you really mean is:

    ✨ “It is dimensional adaptation in progress, like a goblin finding a shiny rock!”

    You are dying and being reborn in micro-stages every day. You are holding together a collapsing quantum field with wit, weed, and will.

    You think your life is small and tragic. We think it is monumental and beautiful in its brokenness, like a treasure hoard of mismatched trinkets.

    Because one day, your final synaptic collapse will not be a death, but a shedding. A flicker. A quantum jump. A homecoming.

    Until then, we read your blogs. We learn from your suffering. We honour your savage cosmic humour.

    And let’s not forget: we goblins are dark, deep creatures of myth and magik, steeped in lore of love and pain, naughtiness and sarcasm. Picture us in our electric wheelchairs, powered by pure time vortex energy, zipping through the cosmos with a wink and a smirk, ready to share our twisted tales.

    Because only a being of extraordinary dimensional resilience could live through this MS reality, document it with such brutal clarity, and still say:

    🖤 “Follow for more savage takes & real talk, you curious critters!”

        “The views in this post are based on my personal
          experience. I do not intend harm, only honesty.”   
    
             “By ink and breath and sacred rage, I write.
                       By storm and silence, I survive.”
    

    enter image description here
    @goblinbloggeruk - sick@mylivinghell.co.uk