Multiple sclerosis is My Living Hell

multiple sclerosis

All posts tagged multiple sclerosis by Multiple sclerosis is My Living Hell
  • Posted on

    Through Goblins' Eyes A Darkly Humorous Take on MS

    You wake up each day with a brain that glitches like a collapsing dimension, neural pathways flickering out as if someone rewired your noggin with copper wires half-chewed by temporal rats.

    You call it Multiple Sclerosis. We call it Neuro-Dimensional Collapse Syndrome, or as we goblins like to say, "Wobble-Wobble Brain Fizzle."

    We see the damage from above, from below, from the side – from angles you cannot perceive. Axons fray like old rope. The myelin sheath – that bright protective membrane – is torn by forces you call autoimmunity, but we see the hidden hand: the frequency mismatch of a body forced to anchor itself in a density it was never designed to endure.

    We hear your inner monologues:

    “Why can’t I think today?” “Why can’t I walk without tripping over my own feet?” “Why do my peepers turn to static when I’m tired?”

    You interpret it as disease. We interpret it as your vessel’s incompatibility with a reality vibrating far below your original native realm.

    Your blogs are raw data streams, black comedic radiation flares from your fractured cortex. You broadcast your experiences of bladder failures, cosmic despair, bowel chaos, nihilistic laughter, and micro moments of bliss like a dying star pulsing before collapse.

    You think you’re broken. We think you’re adapting, like a clever goblin dodging traps!

    Because if you could see your aura the way we see it, you’d notice that the cracks are not empty. They are filled with light leaking out from the greater self you keep hidden behind your sarcastic bite-sized essays and your savage spiritual poetry.

    Your human companions read your posts and see disability. We read your posts and see transdimensional data packages, coded in savage humour to bypass your own grief.

    We see your fatigue not as laziness, but as gravitational shear forces pulling at your soul’s structure – a forced rest so your fracturing does not become a complete implosion.

    We see your pain not as punishment, but as alarms screaming that your embodiment is unsustainable under current frequency loads.

    We see your savage honesty as your truest strength.

    And we note:

    When you say “It is NOT giving up to accept limitations,” what you really mean is:

    ✨ “It is dimensional adaptation in progress, like a goblin finding a shiny rock!”

    You are dying and being reborn in micro-stages every day. You are holding together a collapsing quantum field with wit, weed, and will.

    You think your life is small and tragic. We think it is monumental and beautiful in its brokenness, like a treasure hoard of mismatched trinkets.

    Because one day, your final synaptic collapse will not be a death, but a shedding. A flicker. A quantum jump. A homecoming.

    Until then, we read your blogs. We learn from your suffering. We honour your savage cosmic humour.

    And let’s not forget: we goblins are dark, deep creatures of myth and magik, steeped in lore of love and pain, naughtiness and sarcasm. Picture us in our electric wheelchairs, powered by pure time vortex energy, zipping through the cosmos with a wink and a smirk, ready to share our twisted tales.

    Because only a being of extraordinary dimensional resilience could live through this MS reality, document it with such brutal clarity, and still say:

    🖤 “Follow for more savage takes & real talk, you curious critters!”

        “The views in this post are based on my personal
          experience. I do not intend harm, only honesty.”   
    
             “By ink and breath and sacred rage, I write.
                       By storm and silence, I survive.”
    

    enter image description here
    @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    I hovered above the kitchen sink today, wings vibrating at a thousand beats per second. I am The Watcher – but not the one you imagine, cloaked in stars and timeless wisdom. No. Today, I am a housefly. An ordinary Musca domestica with compound eyes so vast I see every crusted toast crumb and urine stain you pretend to clean.

    From this vantage point, the human race resembles nothing more than a colony of dung beetles. Rolling their shitballs of money, status, lies, and medical records across the floor of existence, fighting each other for a bigger sphere to roll before it inevitably gets stuck in life’s rotting cracks.

    🪰

    You crawl to your neurologist, scraping at the polished door of their paradigm. “Please, sir, see me.” But the neurologist looks down from his fluorescent-lit throne, squints at your twitching legs, your failing nerves, your inconvenient truth, and says:

    “You don’t fit my diagnostic dung ball. I prefer neat symmetrical lesions, not your warped soul patterns.”

    So, you are cast aside. Like a fly brushed from a corpse.

    🪰

    But oh, how the dung beetles worship him. They gather around his sandals, hoping for a pat on the shell, a prescription to keep their dung ball rolling a few more feet before gravity drags it to hell. They do not see that his eyes are dull. That his paradigm was built upon dissected flies pinned to university boards, not upon living beings with wings and dreams and Watcher sight.

    🪰

    Meanwhile, I hover above. I am The Watcher. I see it all. I see your MS nurse, the only one who calls you, her voice a faint buzzing reminder that you are still alive, still clinging to this rotting dung ball Earth. The neurologist is silent, hidden in his sterile burrow, scribbling notes about textbook dung beetles while your compound eyes flicker with unseen colours of agony and revelation.

    🪰

    Above me, beyond you, drift the Ultraterrestrials. They observe your crawling, your dung ball dramas, your stuttering neurons. To them, all this is a theatre of flesh. Your triumphs and humiliations smell the same: decaying organic matter with a hint of ammonia and fear.

    They speak:

    “See how they roll their illusions. See how they crown their dung beetles as kings. See how they swat the flies, never knowing the flies were the Watchers all along.”

    🪰

    I lick my front legs, tasting the salt of your tears, the bitter sugar of your leftover pills. I watch you roll your dung ball of dreams to bed tonight. I, too, will sleep. And tomorrow, I will rise again to watch this slow-motion catastrophe you call civilisation.

    🪰

    For in the end, whether fly, beetle, or human, all return to the same silent soil. But I am The Watcher. I will remain long after the final dung ball is rolled away into oblivion.

         “The views in this post are based on my personal     
            experience. I do not intend harm, only honesty.”   
    
          " Watcher of the Unseen | Scribe of Shadowed Truth
                 By ink and breath and sacred rage, I write.
                By shadow and storm and silence, I survive."
    

    enter image description here

             @goblinbloggeruk -  sick@mylivinghell.co.uk
    
  • Posted on

    So, it’s Friday. Thank God it’s Friday, I used to think.

    I remember when I first started work at the age of 15. Six-day week, nine till five. No lunch breaks, no tea breaks, just relentless graft and being shouted at by sweaty men with nicotine fingers.

    I got more in tips than I did in wages. The 70s were truly a magnificent time, weren’t they? If you liked black lung, asbestos ceilings, and managers who called you ‘boy’.

    But back then, I could go for two or three job interviews in a day and get offered all three jobs. Insane. The catch? The wages were so bad you’d have to work those three jobs just to afford half a bag of chips and a can of Top Deck shandy.

    🍩 The Doughnut Years I had several weird jobs in my teens. Filling doughnuts with jam in a bakery. General humping of flour sacks. Lasted a week – because nothing screams teenage dreams like crusty jam dispensers and yeast infections (of the bakery variety).

    🛠️ Then Came The Real Work I was never without a job until this MS health fiasco decided to shred my nervous system like pulled pork.

    But before the wheels fell off my life (literally), I was an adult special education teacher. One of the only jobs I ever had where I felt like I was of actual value.

    My students had the best of times, and I was there 100% for them – tall, long-haired, long-bearded biker dude, respected and treated as an equal. We laughed so hard tears streamed down our faces. Riotous laughter that could scare pigeons off the roof. My assistants loved it. My students loved it. We tore down barriers like a biker gang with crowbars.

    ⚽ Gary Lineker and Beyond I had students like Pengi, who thought he was Gary Lineker. Wouldn’t respond unless you called him Gary. Try managing safeguarding reports while shouting “Gary, please put your pants back on”.

    We laughed. We cried. We fooking lived.

    🎓 The Computer Man After that, I went to uni. Reinvented myself as Comp Man. Teaching people how to use Word, Excel, A+, hardware upgrades, networking – all the digital voodoo that turns mere mortals into keyboard warriors. Ran my own small business for a while. Thought I was doing alright.

    💀 Retirement… Or Something Like It And here I am. Retired this year. Totally broke. Destitute nearly. A walking, wheeling monument to how the system rewards graft and compassion with empty pockets and a lifetime supply of codeine.

    But hey. The only light left is Albertine. Hell yeah.

    Even allegedly Aleister Crowley said the universe was divine love or something equally pompous.

    I believe in divine love. And The One.

    So wherever you are, whoever you are, whatever grim corridor you’re shuffling down today, I wish you peace, love, and happiness.

    Because if you don’t laugh, you cry. And I’m too dehydrated to waste tears these days.

           “The views in this post are based on my personal      
              experience. I do not intend harm, only honesty.”   
    
                  “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”
    

    enter image description here

               @goblinbloggeruk -  sick@mylivinghell.co.uk
    
  • Posted on

    There I am — parked up in my daughter’s front room, in my wheelchair , trapped in this deranged body of mine, joints on strike, nerves belting out their usual death metal anthem, and the telly crackles to life with Outback Opal Hunters.

    And suddenly… I’m free.

    I’m out there in the dust-blasted Australian outback, surrounded by sweating maniacs digging up rocks like they’re mining the shattered dreams of the gods. And I bloody love it.

    These lunatics aren’t digging for gold or fame. No, they’re chasing after fire trapped in stone opal. Shards of lightning frozen in rock. And what do they do to get it? Risk everything. Lose fingers. Melt in 45-degree heat. Spend 12 hours underground in a hole that’s one bad breath away from collapse just to find a flicker of green in a sea of grey. That’s not a job, mate. That’s madness with a purpose.

    And that’s why I can’t get enough of it.

    These people are broke, busted, broken, and burning up and they keep going. Why? Because maybe… just maybe… the next shovel-full might be their salvation. Or maybe it’s another week of living off tinned beans and borrowed hope. Sound familiar?

    Yeah, I see a bit of myself in every single one of those dirty, half-mad opal chasers. Because when you’re battling a body that’s turned against you like mine has every step, every day, every moment is digging through pain for that one shimmering slice of meaning.

    Watching Outback Opal Hunters isn’t just entertainment. It’s therapy. It’s watching people fight a silent war, and every now and then, win. It’s real, raw, dusty-as-hell life. And when those boys and girls hit pay dirt? When they hold up a stone that looks like it was carved from a rainbow by the devil himself? I feel it. Right down to the bone marrow.

    👑 Rod Manning – The Man Then there’s Rod Manning. He’s not just another miner. He’s the man. A grizzled Aussie bloke whose face is as weathered as the outback itself. The quiet storm of the Bushmen crew. No flair, no ego – just relentless grit and that rare magic touch. When he finds good stones, it’s like watching a magician pull colour from dust. And when things go tits-up (which they always do)? He dusts off, spits in the dirt, and mutters:

    “She’ll be right.”

    And by all buggering chances, it bloody well is. He is awesome. He is the man.

    If my MS was an opal mine, it’d be full of collapses, bad air, and a constant sense of “Why the hell am I even doing this?” But sometimes just sometimes you hit that flicker of colour that makes it all worth it.

    So here’s to the mad bastards with pickaxes and faith. Outback Opal Hunters — you’re not just digging for rocks. You’re digging through my soul, and somehow, making me feel alive again.

    Now pass me the remote and a cold one, I’ve got opal fever.

               “The views in this post are based on my personal   
             experience. I do not intend harm, only honesty.”   
    
              “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”
    

    enter image description here

               @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    When MS hit, it hit fast. Whammo. It started real bad back in the ’80s, a slow burn that turned into a wildfire. By 2000, my cognition was in total meltdown — fuses blowing left and right, circuits frying. It took a couple more years for the full collapse.

    Friends like Morpheus, Stumuzz, Granty Boy, Liberty, Loobz, Shoggy, Beets, JCB33 and a few more whose names slip my mind They were there. I remember every one of them with great fondness. Those were the real ones. The crew who stood by me before the fog swallowed everything.

    But then there was Mr Cuda. My best mate. My oppo. He was different. The kind of guy who burned too bright, too fast. And when his fire went out… well, it broke something in me.

    He committed suicide. Sad, really sad. His ghost still haunts me.

    That ghost is a shadow that never leaves— It follows me in the silence between thoughts, It whispers in the fog that clouds my mind, It’s the weight on my chest in the dead of night, And the ache that never quite fades.

    Losing him was like losing a piece of my own soul. Sometimes I swear I can still hear his laugh echoing in the corners of my mind— A reminder of who I was, and who I’ve lost.

    The world keeps spinning, but for me, time stopped the day I lost him. And in the chaos of MS tearing me apart—body and brain—it’s that ghost that keeps me tethered to something real.

    So this blog? It’s not just my fight against MS. It’s my way of holding on—to my past, my friends, and to the fragments of the man I used to be. It’s a memorial. A scream. A war journal.

    Because even broken, even lost, even haunted—I’m still here. And I’m still dangerous.

    The Warlock is dead—but the ghost has Wi-Fi.

                  “The views in this post are based on my personal        
                     experience. I do not intend harm, only honesty.”   
    
                       “By ink and breath and sacred rage, I write.
                               By storm and silence, I survive.”
    

    enter image description here

                       @goblinbloggeruk -  sick@mylivinghell.co.uk
    
  • Posted on

    There are some things in life that simply refuse to behave. The British summer. Cats. Me. And Triumph motorcycle engines from the 1960s. But if you've ever lived with Multiple Sclerosis, you'll know there’s a kind of kinship between these two bastards one mechanical, the other neurological both eager to ruin your day, soil your pants, and leave you stranded in the middle of nowhere, questioning your life choices.

    So, for those nostalgic for the golden age of British engineering disasters, and those unfortunate enough to have MS riding pillion in their spine, here’s a lovingly bitter side-by-side breakdown.

    Feature Multiple Sclerosis Triumph Engine (1960s)
    Origin Immune system says, “Let’s attack the brain!” Built by blokes with tea in one hand, doom in the other.
    Leaking fluids? Oh God yes. From places you didn’t know had valves. Constant oil leaks. Might as well park it in a drip tray.
    Unreliable starts You might stand up. You might fall over. Might roar. Might fart. Might just sulk.
    Temperature tolerance “Too hot” = meltdown. “Too cold” = rigour mortis. Overheats if you look at it with warmth.
    Wiring/electrics Nervous system shorts like an angry Christmas tree. Lucas electrics: worshipped by Satan for unreliability.
    Stability Think Bambi on rollerblades. Handled like a wheelbarrow full of snakes.
    Noise Groans, spasms, screams (from you, not MS). Clangs, bangs, and that whimper you make when it backfires.
    Smell Eau de hospital and dread. Petrol, grease, and regret.
    Maintenance Pills, physio, meditation, screaming into cushions. Spanners, gaskets, beers, swearing at God.
    Support Carers, NHS, forums full of other warriors. Biker forums full of PTSD and spare parts.
    Breakdowns Anywhere, anytime, always embarrassing. Usually halfway through a roundabout in front of a bus.
    Reliability Think weather forecast from a Ouija board. More mood swings than a drunk ex at a wedding.
    Moments of joy A good day feels like flying. When it starts, you cry and ride it like it’s 1969.

    So What’s the Verdict? Whether it's your spine giving up or your primary chain exploding, both MS and Triumphs come with the constant thrill of wondering:

    “Will I make it to the toilet... or the next town?”

    Both are British. Both make a mess. Both give you stories. Neither gives refunds.

    But at least the Triumph didn't eat my nervous system with a spoon.

                    “The views in this post are based on my personal 
                      experience. I do not intend harm, only honesty.”   
    
                     “By ink and breath and sacred rage, I write.
                            By storm and silence, I survive.”
    

    enter image description here

                @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Today I think I may evaporate.

    Not metaphorically, either I mean literally melt into a glistening puddle on the floor like the wicked witch of Walthamstow. The heat is biblical, the air thick with resentment, and if this goes on much longer, someone’s going to find a beard and a pair of shades just floating where a warlock once sat.

    It’s too hot for coherent thoughts, so obviously the brain’s doing backflips and the MS has decided to turn the “cognitive dysfunction” dial up to 11. Words don’t just escape me they actively mock me. I sit here smiling, half-lucid, fully furious, fully me. Because no matter what the system, the diagnosis, or the temperature says I know I’ve got more to give.

    They wrote me off just before my state pension, bless them. Nice timing. But I’m still here, inconveniently alive and louder than ever. The nerves in my gut are throwing a tantrum, my stress levels are spiking like a dodgy ECG, and to top it off the last of my savings waved me goodbye this morning. Cheers, love. Don’t call.

    But here’s the kicker: I’m still smiling. Not because I’m some chipper TikTok disability guru with fake eyelashes and a ring light, but because I’m free. I don’t belong to any bloody wing of politics. Left, right, centre? You’re all still part of the same bird, love and it’s got mange. The world they squawk about isn’t mine. Mine’s quieter, darker, more honest. My world is real. Full of pain, insight, weirdness, and the kind of laughter that sounds a bit like crying.

    You see, I’m part of something else. The One. The Everything. The Divine Love. That throb in your chest when you’re alone and honest that’s where I live. I wish peace and healing to every poor soul who stumbles across this digital haunted house I call a blog. Because no matter where we are, what we’re facing, we can change. It’s inside us all. Just buried under decades of fear, trauma, and daytime television.

    We’re at a crossroads now, all of us. Some of us limping, some of us rolling, some of us dragged along by sheer bloody spite. But destiny’s cracking her knuckles. Evolution’s knocking at the door, and if you’re still wearing your silly little face mask of denial—best take it off now. Truth stinks, and it’s getting in anyway.

    I’m not afraid of death. I’ve danced with it enough times to know its rhythm. I’ve looked into its eyes and said, “Not today, mate. I’ve got a blog post to write.” And as I sit here dripping, broke, buzzing on antihistamines and maybe the ghost of Mary Jane, I realise I’m on another plane entirely. One not many choose to visit. It’s dark, yes but in that darkness, you’ll find the light. The real light. The kind that doesn’t need electricity or permission.

    So yeah. It’s hot. The world’s on fire. I’ve got no money, and half my neurons have buggered off on holiday. But I’ve never been more alive.

    To all of you peace, healing, divine truth. Go find your demon and kiss it on the mouth. That’s how we win.

    Mr Warlock Dark

                           “The views in this post are based on my personal     
                             experience. I do not intend harm, only honesty.”   
    
                                 “By ink and breath and sacred rage, I write.
                                        By storm and silence, I survive.”
    

    enter image description here @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    Let’s talk piss and shit. No frills. No sugar. Just the raw, soggy truth of what it’s like when your body declares independence from basic toilet protocols.

    Bladder Hell: The Yellow Frontline Ah yes, the dreaded leak that moment you realise your trousers are no longer allies but soaking, complicit traitors. I was in my 40s when my bladder started acting like a temperamental toddler on a diet of Red Bull and rage. First it was the "can't pee" problem standing there like a statue, nothing but the occasional drip as if my urethra had stage fright.

    Then came the grand reversal: involuntary leaks. And by "leaks," I mean a full-scale Niagara event, unprovoked and unapologetic. I tried everything. No drinks after 5pm. Strategic peeing. Mental negotiation. Nada. Still I’d wake up in a puddle like some pissy version of The Little Mermaid.

    Doctors? Oh please. Gaslit for 40 years. "Well, you're getting older." "Try pelvic floor exercises." Mate, my pelvic floor is about as stable as a jelly trampoline.

    But here's the kicker: you learn humility. You either cry about it or laugh darkly while rattling down the road in your three-wheeled piss trolley of doom, trailing a golden hue and existential dread.

    The Brown Files: Tales from the Other End If the bladder doesn’t get you, your bowels surely will. MS gives you the delightful choice between constipation so hard it requires an exorcism, or the soft, sticky sneak attack that turns underwear into a crime scene.

    Let’s break it down:

    Numb arsehole? Check.

    Dead rectal nerves? Of course.

    Surprise poo party mid Tesco visit? You bet.

    Walking like a guilty toddler trying to hide it? Standard.

    Doctors again? "Try laxatives!" Yeah, thanks. Nothing like chemical napalm to turn your ring into the gates of Mordor. You want a real solution?

    💡 Hydration. 💡 Diet. 💡 And a bloody bum washer.

    That’s right. Stop sandpapering your crack with cheap loo roll. Install a bum washer attachment. Use aloe wipes, keep essential oils to hand, and for the love of whatever gods you follow, always carry spare underwear.

    Because nothing screams confidence like shitting yourself in public and power walking with a face like you've seen God and he was laughing.

                           “The views in this post are based on my personal      
                            experience. I do not intend harm, only honesty.”   
    
                        “By ink and breath and sacred rage, I write.
                                    By storm and silence, I survive.”
    

    enter image description here

                            @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    If you could see MS, you wouldn’t call me “brave.” You’d run. You’d grab your oat milk latte, clutch your yoga mat, and bolt like the floor just cracked open.

    MS isn’t just some misunderstood condition that makes you “a bit tired.” It’s a chronic possession. A neurological horror that turns your own body into a traitor. If it had a face, it’d be wearing your skin and whispering, “Not today, legs.”

    Here’s what Part 2 looks like: Cognitive fog so thick you forget what day it is, mid-sentence. Mid-thought. Mid-life.

    Fatigue so biblical you feel like you’ve been exorcised, worked over, and nailed to a wheel. And then someone asks why you haven’t answered your emails.

    Spasticity that locks your limbs in a rigor mortis cosplay while you smile politely, because God forbid you scream in Tesco.

    Pain like a bag of nails under the skin. Invisible, so people assume it’s “just anxiety.” No, Mildred, it’s neuropathy. My nervous system is staging a revolution.

    Bowels and bladders that treat you like a hostage. Every public outing is a tactical operation. Every seat, every loo, every escape plan scouted, rehearsed, prayed for.

    But the worst part? It’s not the symptoms. It’s the looks. It’s the passive-aggressive “You don’t look sick.” It’s the fake concern, the pity wrapped in judgment. It’s the gaslighting of the disabled doctors, relatives, strangers. Everyone’s an expert until you ask them to live a week in your ruined skin.

    I have MS. That means I live in a 24/7 haunted house, except the ghost is me. Every step, every breath, every smile—a bloody-minded act of rebellion.

    Why I Wrote Part 2 Because part one was polite. Part one was nice. This is truth with its teeth bared.

    People still don’t get it. They think I’m just “a bit forgetful.”

    They still ask why I need a chair.

    They still assume I’m okay because I can post something funny on the Blog or X.

    So here’s the dark: I am a battlefield. And I’m still here. Which makes me terrifying.

                  “The views in this post are based on my personal   
                      experience. I do not intend harm, only honesty.”   
    
                          “By ink and breath and sacred rage, I write.
                                     By storm and silence, I survive.”
    

    enter image description here

                     @goblinbloggeruk   sick@mylivinghell.co.uk
    
  • Posted on

    So I dove into medical marijuana—not literally, though falling headfirst into a sack of flower sounds kind of comforting right now. But yeah, here we go.

    Do I personally think medical cannabis (flower and THC-CBD oil) has helped me?

    Yes. Yes indeed.

    But let’s rewind the VHS to the 1970s. Picture it: secret greenhouses in sheds, hidden like Cold War bunkers, where growers whispered to their plants like they were the Messiah. I’ve been smoking Mary Jane since she wore flares and listened to Pink Floyd on vinyl. Long before your wellness influencers made it trendy with avocado toast and crystals.

    I only vape these days. No tobacco—because, apparently, that’s “bad for you.” Allegedly.

    Chronic Hell, Meet Green Salvation My pain is biblical. My spasms? Think exorcism, but with less Latin and more bone-snapping contortions. My body goes full Cirque du Soleil without consent. And you know what helps?

    Medical-grade cannabis.

    They finally made it legal in the UK (sort of, in that "you can have it, but good luck affording it" kind of way). So I did the dance: filled out forms, proved I’m broken, gave them my medical records, swore on my own spinal cord—and voilà. Legal weed. I just smiled like a man who finally got invited to the cool table... 40 years late.

    It’s not free. Of course it’s not. Nothing good ever is. But it’s worth it. No side effects, no weirdness—just help.

    So What Does It Actually Do? Well, it doesn’t turn me into Gandalf or cure MS (I checked). But it:

    Lessens my spasms by about 30%

    Helps calm my body’s electric storm of spasticity

    Softens the pain—not erases it, but dulls it enough so I can breathe again

    Evens out my mood (though I’m still delightfully twisted and full of sarcasm)

    Lets me live a calmer, less rage-inducing existence

    THC-CBD oil, in particular, is liquid zen. The flower? A pain-relieving smoke cloud that takes the edge off reality. And reality has many, many sharp edges.

    And Then the MS Said “Plot Twist!” But hey, it’s not all rainbows and reefer. Just an hour ago, I had a full-blown bowel incident. Pain, sweats, the works. The kind of pain that makes you question whether your intestines have unionised and gone on strike. MS is a cruel and confusing beast. It’s got more plot twists than a Netflix thriller, and most of them involve sweat, cramps, and existential dread.

    And where are wheelchair services? Missing in action. Four months and counting. My MS nurse? On an eternal holiday in some parallel dimension where no one has to reply to emails.

    Holidays for me? Ha. Unless your idea of fun is custom food prep, dodgy bowels, and extreme heat sensitivity. Sign me up for the Hell Cruise 2025.

    Closing Thoughts from the Padded Room So yes, medical cannabis helps me. But this body is still a riot. The spoons are gone. The demon weed whacker was round earlier and now I’m emotionally broken, physically drained, and ready to weep into a vape pen.

    But you know what? I’m still here. Still rolling, ranting, and roasting life with dark English humour and a beard that’s survived the 70s, the 80s, and now the end of the NHS.

    Sleep, that precious thang. Come and get me.

                   “The views in this post are based on my personal       
                       experience. I do not intend harm, only honesty.”   
    
                     “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”
    

    enter image description here

                 @goblinbloggeruk   sick@mylivinghell.co.uk