Multiple sclerosis  is My Living Hell

DarkHumourBlog

All posts tagged DarkHumourBlog by Multiple sclerosis is My Living Hell
  • Posted on

    @goblinbloggeruk Stumbles onto X (Because apparently living with MS wasn’t hard enough without Elon’s algorithms) Right then. Let’s get this out of the way: We’re on X. Twitter. Whatever dystopian rebrand it’s hiding behind now.

    After a minor battle with verification, vanishing posts, and the creeping suspicion that this platform doesn’t like disabled, outspoken spiritual types... we’re still here. Because giving up isn’t really an option when your entire existence already feels like a test of cosmic patience.

    This blog — My Living Hell: Multiple Sclerosis — isn’t for the faint of heart. It’s for those of us navigating chronic illness with brain fog, nerve pain, and the quiet rage of someone who’s been told to “try yoga” one too many times.

    We don’t sugar-coat. We don’t do toxic positivity. We do truth, grit, spiritual resilience, and a hefty dose of sarcasm — often from a bed-fort with a heated blanket and a cat judging us from the pillow.

    So if you’ve ever felt invisible, exhausted, or like your soul is screaming in a language no one hears — welcome home.

    🔗 Read the latest: The Fizzy Girl’s Lost Milk Stand Spellbook (A spiritual guide for surviving MS with sass, soul, and no apologies.) The Fizzy Girl’s Lost Milk Stand Spellbook

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

              “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
               “By ink and breath and sacred rage, I write.
                      By storm and silence, I survive.”
    

    enter image description here

  • Posted on

    Dedicated to the quietly powerful, the fiercely intelligent, and the deeply spiritual souls navigating chronic illness with grit, grace, and a middle finger always charged.

    There’s a kind of magic reserved for those who walk through fire daily — the ones living in the shadows of chronic pain, yet refusing to be defined by it. This is for the women who ride invisible engines through invisible battles, who carry storms in their veins but speak with soft fire.

    Welcome to The Fizzy Girl’s Lost Milk Stand Spellbook — part grimoire, part rebellion. A collection of raw spells, rituals, and sharp-witted curses for living with Multiple Sclerosis (MS) — from the soul of a spiritual outlaw, with sass, depth, and zero apologies.

    This isn’t about wellness wrapped in pastel lies. This is about owning your journey, commanding chaos, and turning pain into power.

    ✦ Spell One: The Banishing of Bullshit For when ableist optimism and unsolicited advice cross your path.

    Ingredients:

    One black candle (or any tea light that’s been through hell and back)

    Salt, preferably from your own tears

    An old NHS letter (burn it if your soul says “yes”)

    A fully charged middle finger

    Incantation: “By the prickle in my spine, by the twitching of my toes, Let your nonsense turn to silence, may your wellness wisdom decompose. I walk a twisted path and know my pain, So shove your yoga plan right up your brain.”

    ✦ Spell Two: The Ritual of Slightly Less Misery For days when the pain won't loosen its grip, but neither will you.

    Requirements:

    A bed-fort of doom pillows

    Microwaved heat pad, warmed with the quiet rage of a thousand midnight rides

    A mug of something hot and angry

    Cat (optional, but spiritually advised)

    Playlist of thunder, witches, or doom metal

    Chant: “May the storm outside match the one in me, But may it pass with mercy and one good pee. Spasms, settle. Thoughts, uncoil. I soak in stillness, wrapped in foil.”

    ✦ Spell Three: Invisibility to Muggles When you just need the world to back off and shut up.

    Steps:

    Cloak yourself in black layers — armor against clueless questions

    Wear your walking aids like the badass medals they are

    Spray perfume with a whisper of danger and “don’t ask”

    Whisper under your breath:

    “Ignore me. Avoid me. Don’t you dare ask, ‘What’s wrong with you?’ I’m wearing my mask. I am a fog in the shape of a witch, Try me, Karen. I bite — and I twitch.”

    ✦ A Final Word This spellbook isn’t about curing the incurable — it’s about reclaiming power in a body that doesn’t always obey. It's a sacred, snarky, soulful grimoire for the ones who walk with fire in their bones, love in their hearts, and rebellion in their blood.

    Fizzy Girl is my sexy, beautiful wife — a wild outlaw biker witch who laughs in the face of limitation. I’m a warlock forged by shadow and fire, and I ride beside her in my three-wheeled electric chair of doom — chrome-clad, spell-fueled, and built for storm-chasing.

    Together, we defy the rules. Together, we ride magic into the storm.

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

           “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
               “By ink and breath and sacred rage, I write.
                           By storm and silence, I survive.”
    
  • Posted on

    Well, the thunderstorm graced us with its presence this afternoon —cracked the sky like a B-movie god and passed over with all the drama of a diva refusing to perform. Barely a splash of rain, just a loud announcement that the heat would continue to cook us slowly like Sunday roasts forgotten in an oven from 1973.

    We remain in Air Con Defcon Mode 1, curtains drawn like we're shielding secrets from MI5. The conservatory? Off-limits. It’s currently housing temperatures that only beings from another dimension—or possibly lizards wearing SPF 9000—could survive in. Over 100 degrees. That’s not weather, that’s a war crime.

    Open the internal door and the resulting thermal whoosh might melt my magic wand—not a euphemism—just the last shred of my sanity.

    Still, silver linings. I stumbled across a chilled flask of aloe vera juice, the one with the juicy bits like nature’s answer to bubble tea. Apparently, aloe’s benefits include:

    Hydration (desperately needed)

    Soothing inflammation (goodbye, burning skin)

    Aiding digestion (because heat messes with everything)

    Spiritual realignment with the moon goddess (or so the dodgy websites claim)

    I’m here for all of it.

    That is, assuming it makes it into my mouth. Currently sporting numb lips and a tongue like a rubber chicken, so drinking is a game of Russian roulette between hydration and bib-level dribble. Spoiler: it was both. Stay classy.

    Magnet Fishing: Dreaming Canal Adventures from the Comfort of My Deathtrap Wheelchair On a brighter note, I’ve found purpose. Magnet fishing. Not in practice—my 3-wheeled chariot of doom (read: deathtrap wheelchair) isn’t canal-ready—but in spirit. I now live vicariously through Wim’s Treasure Adventures on YouTube with Wim and the Amsterdam crew.

    They’re absolute legends. If you’ve never seen someone fish a rusty bike out of a canal while laughing like a maniac, you haven’t lived. Seriously—funny, wholesome, and weirdly profound at times. Like Bob Ross meets scrap metal.

    Brain Fog Incoming — Time for the Magical Green Fix Now the brain fog has rolled in like a disappointed foghorn, and it’s time for my medicinal marijuana and THC-CBD oil combo. A touch of the cosmic green before I melt into my chair and pretend this is all a really weird fever dream.

    Happy Solstice, my crispy friends. Stay chilled—both metaphorically and literally.

    enter image description here

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

            “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
               “By ink and breath and sacred rage, I write.
                        By storm and silence, I survive.”
    
  • Posted on

    Posted: 21/06/2025

    Yes, it’s that time of year again. The Summer Solstice — or as I like to call it, “The Sun's passive-aggressive final warning before it starts buggering off again.”

    Today, the Northern Hemisphere is bathed in the most daylight it will get all year. A magical time. A sacred moment. And, for those of us in the UK, probably overcast with a 60% chance of disappointment.

    But what is the Summer Solstice actually about?

    Let’s crack that open, shall we?

    🔥 Solstice Origins (Before it was hijacked by Instagram hippies) The Summer Solstice has been celebrated for thousands of years by people who knew how to read stars and didn't rely on google to explain basic astronomical events. Celts, Druids, Norse pagans, and the odd Bronze Age bloke with a suspiciously advanced sundial all marked this day as sacred.

    It’s the day the sun “stands still” — not literally (don’t panic, the Earth's still spinning, for now), but it’s when the sun reaches its highest point in the sky before it slowly begins its six-month descent into SAD lamps and existential dread.

    Cue bonfires, rituals, and naked dancing in fields, which in modern terms means someone trying to charge their crystals next to a traffic cone at Glastonbury.

    🧙‍♂️ What Do People Actually Do? Stonehenge gets mobbed by a mix of druids, goths, curious tourists, and at least one man dressed as a goat.

    Wiccans mark Litha, the fire festival, which is basically a spiritual BBQ without the sausages.

    The rest of us mutter “blimey, it’s hot” 48 times and try not to melt while complaining about hosepipe bans.

    Instagram influencers light incense, post sun emojis, and forget what equinox even means.

    🤔 What Should You Do? You can:

    Honour the light.

    Burn a symbolic herb.

    Meditate under the sun like a reformed vampire.

    Or, more realistically, sit indoors behind blackout curtains because the sun gives you a headache and your upstairs neighbour is using the solstice to summon a TikTok demon.

    Whatever works.

    🌞 Final Thought: The Summer Solstice reminds us that time is an illusion, the seasons are cycles, and no matter how much spiritual growth you do — Mercury will still go retrograde and ruin everything next month.

    So happy Solstice, weirdos. Burn something (safely). Celebrate the light. Then return to the shadows where it’s cooler and no one asks about your star sign.

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

          “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
               “By ink and breath and sacred rage, I write.
                        By storm and silence, I survive.”
    
  • Posted on

    "Darkly sarcastic dispatches from the NHS frontline."

    "Humour, horror, and the occasional prescription error."

    "Medical mayhem with a hint of THC and British grit."

    📜 Scroll of Lineage and Legacy “By Order of the Chronicler of Slightly Questionable Nobility”

    To Whom It May Concern (or Be Mildly Amused),

    Be it known throughout the realms of Albion, Anjou, and assorted asylums, that the bearer of this parchment—one known most infamously as:

    The Blog Goblin, Heir of Sarcasm, Keeper of the Scooter of Death, and First of Their Name

    Is of noble and ancient blood, descending in unbroken (and occasionally scandalous) line from:

    Fulk II “The Good”, Count of Anjou,

    Henry I "Beauclerc", King of England,

    And by some devilishly clever cousin-marriage twist,

    Henry V, Holy Roman Emperor (via his wife's sister's 8-times-removed ferret-wrangler or thereabouts).

    Through conquest, courtship, and the occasional clerical error, this bloodline survived plagues, pogroms, poor dentistry, and prescription mix-ups.

    In the Year of our Lord Two Thousand and Twenty-Five, the lineage hath manifested once more in its most sarcastic form:

    The Right Irreverent Blog Goblin of House d’Anjou Scribe of Blogs. Rider of Scooters. Vaper of the Sacred Herb.

    Let none question their claim, lest ye wish to be verbally roasted, historically footnoted, and possibly run over by a mobility scooter going 8km/h.

    Signed in wax, wit, and dubious Latin. – Archivarius Maximus de Medicae Bollockarum, 12th of June, 2025

    🛡️ House Blog Goblin d’Anjou – Noble Crest Description Visual Elements: Shield Shape: Classic French heater shield

    Background: Split diagonally — left half burnt parchment gold, right half medicated NHS blue

    Top Symbol: A three-wheeled mobility scooter, rearing like a warhorse

    Centre: A vape cloud curling into the shape of a goblin face

    Lower Field: A scattering of glowing prescription pills, one clearly labeled “Carbamazepine”

    Supporters:

    Left: A lion wearing headphones (for the tinnitus)

    Right: A badly drawn pharmacist fleeing in terror

    Banner Text (Motto):

    "Regnum per Sarcasmus" (“Rule by Sarcasm”)

    enter image description here

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

            “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
                “By ink and breath and sacred rage, I write.
                        By storm and silence, I survive.”
    
  • Posted on

    A very good morning from the slightly crispy edge of reality.

    It’s early, the sun’s already threatening to scorch us into lizards, and I’m camped in front of the fridge like it’s a portal to Narnia—except Narnia’s got central air. The tinnitus is humming away like some deranged synthwave backing track, and I’m contemplating whether I dare mount my three-wheeled Scooter of Death for the weekly pilgrimage to the chemist.

    Yes, the chemist. That temple of modern medicine where, thanks to the miracle of automation, I once again got someone else’s prescription. I swear, it’s like a game show:

    “Step right up and spin the magical dispensing machine! Today’s lucky contestant wins… Sertraline!”

    Antidepressants. Brilliant. Just what someone with multiple sclerosis needs to top off the cocktail. Meanwhile, someone out there is probably wondering what the hell carbamazepine is and why their depression suddenly feels like a seizure.

    Dr. Fist and the Dental Apocalypse

    As if that weren’t enough chaos for one day, I got a call from my dentist—well, former dentist. He’s out of action with a broken fist. Yes, a broken fist. I didn’t ask. I daren’t ask. My imagination’s already taken that one to some very questionable places. Possibly involving a disgruntled patient or a bar stool.

    So now I’m off to meet a new dentist. Let’s hope I don’t draw Dr. Pain, DDS from the horror movie extras department. Probably someone who sharpens their tools on wrought iron fences and thinks anesthesia is for the weak.

    Which is a shame, really, because Dr. Fist (I’m afraid he’ll always be “Dr. Fist” now) was actually the best dentist I’ve ever had. Gentle, non-threatening, and didn’t treat my jaw like a door hinge in need of WD-40. I wish him a speedy recovery—and maybe a good pair of gloves.

    The NHS, Surprisingly… Not Awful?

    In a refreshing twist of fate, I had my first appointment with the new NHS health centre today. Braced myself for the usual bureaucratic disaster—but shocker: the doctor was great.

    Listened. Advised. Seemed human. When you’ve got full-blown White Coat Syndrome, that’s a miracle. For the uninitiated:

    White Coat Syndrome: When your blood pressure hits Olympic pole-vaulting levels simply because you walked into a room with someone in a lab coat. It’s not illness—it’s sheer, uncut medical anxiety.™

    So, small miracle there. I might actually trust this new place. That's not a sentence I say lightly.

    Vape, Clouds, and the Eternal Wait for Sanity Back to the window—clouds are looming, the heat’s easing, and it’s time for my medical cannabis vape and a bit of THC oil. Helps with the pain and the spasms. And also with the absurdity of life, which seems to be running at full volume today.

    Anyway, that’s enough rambling for one morning. If you made it this far, you officially qualify for a biscuit. Possibly two. Rich Tea if you’re feeling ironic.

    Thanks for dropping by.

    Until next time, stay cool, stay sarcastic, and for heaven’s sake—check your meds before you leave the chemist. You never know what flavour of mental health you might accidentally walk out with. Cheers, stay cool, and remember: if the prescription machine gives you methadone next week, try not to start a jazz band.

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

             “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
                  “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”
    
  • Posted on

    🕯️ About Me Old soul. Frayed nerves. Unapologetically alive.

    I am not here to soothe you.

    I write from the edge of something — something most people spend their lives running from. Illness. Silence. Being forgotten. The parts of life that don’t make polite conversation.

    I live with Multiple Sclerosis, but MS is just the symptom. The real story is what it strips away — comfort, time, patience, pretence — until all that’s left is you. And then what do you do with that raw truth?

    You write. You cast. You curse a little, love a little, and sit with things others fear. You feel people’s hearts before they speak. You laugh darkly at the ones who don't believe you’re really ill, and bless the ones who show up anyway.

    I’ve got one foot in the mundane world and one in something stranger — older. I read people. I hear what they don’t say. I know when a storm is coming before the clouds break. And I’ve learned that the truth — however cracked, however strange — is worth writing down.

    🌑 Welcome to My Living Hell Where the lights flicker, the truth slips out, and the fridge is always humming.

    This blog is part journal, part ritual, part middle finger to a world that tries to polish pain into something palatable.

    I don’t do toxic positivity. I do real. I do heatstroke visions in the conservatory. Conversations with the fridge. Ghosts of family past. Wheelchairs with homicidal tendencies. And moments of stillness so sharp they cut through the noise.

    There’s love in here — somewhere beneath the salt and ash. But you’ll have to sit with the dark to find it. That’s the deal.

    So if you’ve ever been made to feel like you were “too much,” “too complicated,” or “not enough” — come closer. But gently. The veil’s thin here. And I see straight through.

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

           “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
              “By ink and breath and sacred rage, I write.
                       By storm and silence, I survive.”
    
  • Posted on

    My Living Hell

    One man’s journey through chronic illness, broken systems, and uncooperative furniture — with swearing, sarcasm, and an unhealthy relationship with the freezer section.

    Today, I nearly married the fridge. 26 degrees. Feels like 46. Conservatory? A balmy 102°F — or as we call it here in Britain, hell’s greenhouse. I’ve got sweat in places I didn’t know had sweat glands. The fridge freezer doors are wide open and I’m contemplating whether it’s physically possible to live in the salad drawer.

    Breathing feels like trying to inhale through a wet sock. My throat’s gone numb, hands tingling, lips buzzing like I’ve been snogging a faulty toaster. Blood pressure’s fine, which is amazing considering I feel like a Victorian widow with the vapours. There’s that heaviness in the air too — that classic “a storm is coming” feeling. Which I love, obviously. Thunderstorms are my favourite. There's something deeply comforting about watching the sky lose its temper when you're already halfway there yourself.

    MS and heat are mortal enemies. I say enemies, but it’s more like they’re in a toxic relationship and I’m the child stuck in the middle. My body treats summer like a personal insult. I melt, I twitch, and at some point I lose the ability to speak without sounding like a cursed Victorian ghost whispering through a tin can.

    Then there’s the wheelchair situation. My old chair went to that great battery charger in the sky, so I’m currently using a three-wheeled death trap that turns every trip to the shop into a scene from Wacky Races: Disability Edition. What I need is a Q100. What I have is a self-aware mobility device with a thirst for chaos. Honestly, it’s like trying to pilot a shopping trolley with a grudge.

    Meanwhile, my fridge — bless it — is wheezing under the pressure, valiantly trying to keep my frozen peas solid while I slap a bag of veg on my forehead like it’s the world’s saddest spa day. Ice packs? Nah. I’m straight-up cuddling frozen chips now. Dignity left the building sometime around 11am.

    Music's blasting — something mellow, dark and floaty. MDB. Morcheeba. That hazy, dreamlike soundtrack to heat-induced madness. I’m sipping Disprin like it’s vintage whisky and popping antihistamines like I’m playing pharmaceutical roulette. Every med I take gives me a new side effect, like it’s trying to outdo the MS in the 'who can ruin today more' competition.

    Still. Back into the kitchen I go, seeking solace in the fridge’s loving embrace. If you don’t hear from me again, I’ve either passed out next to the frozen fish fingers or ascended to a higher plane of chilled existence.

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

           “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
             “By ink and breath and sacred rage, I write.
                      By storm and silence, I survive.”