Multiple sclerosis  is My Living Hell

DisabledAndSpiritual

All posts tagged DisabledAndSpiritual by Multiple sclerosis is My Living Hell
  • Posted on

    In the season they call SAD, when the clouds refuse to blink, And rain is just sky sweat with delusions of grandeur, She came like a banshee on a Bonneville, Tyres hissing spells in the petrol dusk— A woman? No. A prophecy in leather and eyeliner, Named Albertine, Long-suffering wife of Death himself, Who sulks in a wheelchair and smokes cloves ironically.

    Her hair: a demi-wave abyss. Her smile: pure tarot seduction, One glance and even the moon blushed, Then wept behind cirrostratus shame.

    Oh, Albertine! You ride like prophecy, Read palms with a sneer, And throw cards with such venom They hit truths no therapy ever could.

    She is palmist, astrologer, Tarot priestess of all things doomed, With a Motorhead patch sewn onto her soul And eyeliner sharp enough to open portals.

    By her side, in his wheeled throne of bone, Death groans through another solstice, Wearing a “Don’t Talk To Me I’m Mourning” T-shirt. She calls him Mad Moon Ms. in public. He hates it. We love her more.

    They arrive at Ritual Panic, That sacred sabbat of forgetting where you put the damn wand. She lights incense that smells like resentment and rosemary. He levitates just to show off. She tells your future with a flick of the wrist And a voice that sounds like bourbon-soaked prophecy:

    “You’ll fall in love with a ghost and regret everything but the kissing.”

    Full Moon Tantrum follows, When the skies go hormonal And witches cry glitter. She dances. Oh gods, she dances. The kind of dance that ends marriages and starts cults.

    You ask,

    “Albertine, are you a goddess?” And she just laughs, Blows smoke in your face, And says, “No love. I’m worse. I’m aware.”

    Post-Script from Death (dictated, not written): “If you see her again, run. She’ll read your birth chart, your palm, your doom, and your libido. She’ll burn through your soul like it’s a sage bundle on discount. But gods... what a sexy ass.”

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

              “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
             “By ink and breath and sacred rage, I write.
                      By storm and silence, I survive.”
    

    enter image description here

  • Posted on

    @goblinbloggeruk Stumbles onto X (Because apparently living with MS wasn’t hard enough without Elon’s algorithms) Right then. Let’s get this out of the way: We’re on X. Twitter. Whatever dystopian rebrand it’s hiding behind now.

    After a minor battle with verification, vanishing posts, and the creeping suspicion that this platform doesn’t like disabled, outspoken spiritual types... we’re still here. Because giving up isn’t really an option when your entire existence already feels like a test of cosmic patience.

    This blog — My Living Hell: Multiple Sclerosis — isn’t for the faint of heart. It’s for those of us navigating chronic illness with brain fog, nerve pain, and the quiet rage of someone who’s been told to “try yoga” one too many times.

    We don’t sugar-coat. We don’t do toxic positivity. We do truth, grit, spiritual resilience, and a hefty dose of sarcasm — often from a bed-fort with a heated blanket and a cat judging us from the pillow.

    So if you’ve ever felt invisible, exhausted, or like your soul is screaming in a language no one hears — welcome home.

    🔗 Read the latest: The Fizzy Girl’s Lost Milk Stand Spellbook (A spiritual guide for surviving MS with sass, soul, and no apologies.) The Fizzy Girl’s Lost Milk Stand Spellbook

    looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

              “The views in this post are based on my personal  
              experience. I do not intend harm, only honesty.”  
    
               “By ink and breath and sacred rage, I write.
                      By storm and silence, I survive.”
    

    enter image description here