Multiple sclerosis is My Living Hell

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  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    Nikola Tesla is often associated with various speculative and theoretical ideas, including time travel. While he did not explicitly develop time travel theories, some of his concepts and inventions give rise to such discussions.

    Theoretical Framework

    • Einstein's Theory of Relativity: The foundational concept for time travel lies within Einstein's theories of relativity, where time is considered relative and intertwined with the fabric of space. Tesla’s work on electricity and magnetism provides a complementary perspective.

    • Warping Space-Time: Theoretically, if one could manipulate energy fields significantly—as Tesla proposed with his inventions like the Tesla coil—it's hypothesized that one could warp space-time. This aligns with the idea of creating wormholes or bending the fabric of space to allow for time travel.

    Tesla's Concepts Related to Time Travel

    1. Energy Frequencies: Tesla believed in the power of frequencies and vibrations to influence physical phenomena. Some speculative theories connect this notion to the ability to manipulate time.

    2. Vortex Mathematics: Tesla's interest in vortexes may relate to theoretical patterns that some believe could facilitate time manipulation.

    3. Dimensionality: Tesla's insights into higher dimensions and energy fields align with modern theories suggesting multiple timelines or universes might enable travel through time.


    John G. Trump and Time Travel

    While John G. Trump did not specifically work on time travel theories, his connections to Tesla's legacy allow for interesting discussions in that sphere.

    Theoretical Connections

    • Technical Exploration: Trump’s work in high-voltage engineering could draw parallels to the energy manipulation theorized in advanced time travel concepts.

    • NASA and Beyond: Trump's involvement with advanced technology and his efforts to push engineering boundaries open speculative discussions about the potential for developing time travel technologies based on existing theoretical frameworks.


    Both Tesla and Trump provide a fascinating intersection of real scientific principles with speculative ideas about time travel. While concrete evidence of time travel remains elusive, the interplay of their work, particularly in energy manipulation and dimensional theories, fuels intriguing possibilities within theoretical physics.

    Speculative Connections

    • High-Voltage Shenanigans: More sparks, more chaos, maybe a crack in the space-time continuum.
    • NASA-Level Geekery: Trump pushed the boundaries of engineering. Could that have included a secret time travel doodad? Only the void knows.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ enter image description here @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    Hemp is the plant your grandparents ignored, your chemist scorned, and your government banned for decades. Yet somehow, it keeps showing up in history like that one friend who refuses to leave the party you can’t get rid of it, and maybe you shouldn’t.

    “Hemp: doing everything humans can’t, quietly judging us all.”

    History’s Favourite Overachiever

    When Humanity Screwed Up Hemp’s Job
    Ancient China (~2800 BCE) Textiles and ropes because apparently humans needed to tie things together before Instagram. Also medicinal—treating hangovers, typhoid, whatever the hell else they had.
    Ancient Greece (~500 BCE) Eaten as food and woven into clothing & sails. They didn’t have Twitter, but even then, hemp was the MVP.
    Roman Empire Ships? Ropes? Pain relief? Basically, if Rome was a Netflix show, hemp would be the main character everyone loves but nobody notices.
    Middle Ages Peasants wore hemp clothes, monks made paper. If misery loves company, hemp was the friendliest partner.
    Colonial America Farmers had to grow it, proving hemp survives even when forced into existence. Nets, ropes, maybe political arguments—hemp did it all.

    Modern Day: Hemp Gets Rich While We Struggle

    1. Nutritional Value

    Seeds packed with omega-3s and proteins. Eat it, or don’t. Your call.

    2. Eco-Warrior Status

    Uses less water than cotton. Needs fewer pesticides. Cleans the soil. Basically the plant equivalent of that friend who recycles everything and judges you.

    3. Industrial Fame

    Clothes, ropes, biodegradable plastics, hempcrete. Could build an entire mansion out of it. Probably better than your last relationship.

    4. Health & Wellness Hype

    CBD oil can allegedly reduce pain and anxiety. Or just give you a sense that life is slightly less horrible.

    5. Economic Savior

    Farmers can make a buck, towns can thrive. Meanwhile, we’re over here paying for artisanal toast. Hemp: Fuel & Building Stuff

    Hemp as Fuel

    Biodiesel and ethanol. A plant saving us from fossil fuels. Humans: 0, Hemp: 1.

    Quick-growing. Carbon-sucking hero. Keeps the lights on while we binge TikTok.

    Hempcrete Healing

    Breathable, insulating, non-toxic walls. Like a hug from a plant that won’t judge your life choices.

    Lasts decades, making your house healthier while your soul slowly rots in suburban monotony.

    “Hempcrete: the only thing in your house quietly living its best life.” Plastics Made from Hemp

    Stronger than normal plastics, lighter than metal, biodegradable. Basically, it’s showing us up again.

    Cars, toys, packaging. Less landfill. Less fossil fuel. More proof humans could have done better.

    Conclusion: Hemp Wins Again

    Hemp has quietly been humanity’s overachieving friend through centuries of chaos. It nourishes, heals, insulates, fuels, and survives. Meanwhile, we argue about reality TV and taxes. Maybe we could all take a lesson or just keep ignoring it.

    “If plants could judge, hemp would have written a scathing review of humanity centuries ago.”

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ enter image description here
    @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    “Cannabis isn’t a cure. But for me (and many others) it sometimes feels like lowering the waterline so I’m not constantly drowning.”

    Living with multiple sclerosis is like being handed a body that’s half-conspirator, half-prison guard. One day it lets you move, the next it locks you in with pain, spasms, and exhaustion. People who don’t live it often don’t get it. That ignorance can make conversations about treatments uncomfortable—especially when cannabis comes up.

    Cannabis still carries heavy stigma. For decades it’s been painted as the drug of lazy teenagers, a dangerous gateway, or a “last resort.” But the reality is more complicated. For many with MS, cannabis isn’t about chasing a high it’s about clawing back a bit of life. It’s not a cure, and it never will be. What it can do, in the right form, for the right person, is bring relief. Sometimes small, sometimes significant, always worth noticing.

    What the evidence actually says

    Science is messy, but let’s strip it down to what we know. Cannabis is a plant, yes, but the two compounds that matter most in MS treatment are:

    THC (tetrahydrocannabinol): The part that makes people high. Psychoactive, strong, and for some people, too much.

    CBD (cannabidiol): Doesn’t produce a high. Interacts differently in the body, often described as the calming counterpart to THC.

    Together, in carefully balanced medical products, they can target symptoms that MS brings to the table.

    Spasticity: where cannabis shines

    This is the symptom where cannabis shows the clearest benefit. Studies and lived experience show that THC+CBD sprays such as Sativex (available in the UK under specialist prescription) can reduce muscle stiffness and spasms. People report less pain, easier sleep, and more control. Clinical tools that doctors use don’t always capture the full effect, but patients’ own reports matter. Relief you can feel is relief that counts.

    Neuropathic pain: promising, but mixed

    Neuropathic pain is one of the cruellest symptoms of MS burning, stabbing, electric shocks that don’t stop. Some trials show cannabis extracts help reduce this pain, particularly when other drugs fail. Others find only modest benefits. What’s clear is that many patients experience genuine improvement, even if not every study proves it on paper.

    Sleep and quality of life: secondary gains

    When stiffness and pain ease, sleep improves. Better sleep ripples out into mood, energy, and daily functioning. These knock-on benefits often don’t make it into study data, but they matter enormously in real life.

    Why the stigma lingers

    Say “cannabis” and too many people still picture a stoner on a sofa surrounded by crisp packets. For someone with MS, that stereotype is a slap in the face. You’re not looking to escape you’re trying to ease spasticity enough to get through the night without screaming into your pillow.

    The stigma is political and cultural, not medical. Cannabis was demonised for decades, and even though attitudes are shifting, the old narratives cling on. In the UK, cannabis-based medicines are legal—but only under strict circumstances, and only through specialist doctors. Most GPs can’t or won’t prescribe. That leaves many people sourcing CBD oils or black-market products, where quality is questionable and legality is a grey cloud hanging overhead.

    Risks and realities

    Let’s not polish this into a miracle. Cannabis has risks. Honesty is what dismantles stigma, not over-promising.

    Cognitive fog: MS already messes with memory and focus. THC can worsen that for some.

    Mental health risks: High-THC strains can trigger anxiety or paranoia, especially in people already vulnerable.

    Physical side effects: Dizziness, fatigue, nausea, and changes in heart rate or blood pressure.

    Dependence: Rare with medical, controlled use, but not impossible.

    These don’t mean cannabis is “bad.” They mean it’s a tool, and tools need skill to use safely. The difference between relief and trouble often comes down to dose, formulation, and medical oversight.

    Why it matters anyway

    Here’s the thing: when you live with MS, symptom relief is gold dust.

    Even a 20% drop in pain, even one less night of spasms, even an extra hour of sleep it all adds up. That can mean the difference between being stuck in bed all day or having enough energy to make breakfast. Between drowning in pain and keeping your head above water.

    Cannabis offers that to some. Not all, not always, but enough that it deserves respect and consideration rather than judgement and whispers.

    What needs to change

    Research is still catching up. Decades of stigma slowed everything down. What we need now are:

    More trials: Larger, longer, better-designed studies.

    Clearer guidance: What dose works? Which formulation spray, oil, vapor, capsule?

    Doctor training: So patients aren’t left educating their own clinicians.

    Legal access: Safe, regulated supply that doesn’t force people into the shadows.

    Until then, people with MS continue to experiment quietly, often without the support they deserve.

    The bottom line

    Cannabis won’t cure MS. It won’t rewind the clock, repair nerves, or erase uncertainty. But it can lower the waterline. It can turn nights of relentless spasms into nights of sleep. It can dull the sharp edge of pain. It can hand back small fragments of control, and in a life where MS takes so much, those fragments matter.

    So let’s talk about cannabis without shame, without stigma, and without fantasy. Let’s call it what it is: a tool. Not a miracle, not a menace, but something that, for many, makes life with MS just a little more bearable.

    Quick facts: Cannabis & MS

    Not a cure. Cannabis doesn’t reverse MS; it’s used for symptom relief.

    Most evidence = spasticity. THC+CBD sprays (e.g., nabiximols/Sativex) show the clearest benefit for muscle stiffness and spasms.

    Pain help is promising. Many people report reduced neuropathic pain; trials are mixed but patient reports matter.

    Sleep & quality of life: Indirect benefits (better sleep, less waking from spasms) often improve day-to-day functioning.

    Risks exist: possible cognitive slowing, anxiety/paranoia with high-THC, dizziness, cardiovascular effects, and dependence risk.

    Formulation matters: spray, oil, vaping, or edibles deliver different effects — dose and ratio (THC:CBD) are key.

    Legal note (UK): Medicinal cannabis is prescribable but tightly regulated; specialist prescription is usually required.

    Practical tip: Start low, go slow. Use reliable sources and consult a clinician familiar with MS and cannabis.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
    enter image description here

    @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    As I look out the window, the hail is hammering the glass like nature’s own gang of thugs with ice-cubes. Each impact rattles through the room, echoing the storm going on inside my head. The concrete outside is now polka-dotted with white splats, like some deranged pastry chef has been at it. Above, thick, dark clouds are parked overhead, glaring down at me with all the charm of a nightclub bouncer at closing time. They’re not moving. They’re just there giving me the big “FU” while the sun tries to photobomb from behind them, throwing out an oddly warm glow.

    Normally, I’m colder than a fish finger left at the back of the freezer. My hands are like small icebergs, my circulation having given up years ago. But somehow, in this moment, I actually feel a bit of warmth. Weird, right? My throat and neck, on the other hand, are throwing a tantrum that familiar strangulation feeling wrapping around the right side of my throat and Adam’s apple. Lucky me, it’s only a half-strangle today. Always a silver lining.

    The top left of my head is doing its usual numb, pins-and-needles number, and the background soundtrack is a hellish lift music loop from the underworld. Perfect timing too because Rob Zombie just started blasting from my PC, in German of all things. It’s like being trapped inside a very confused nightclub. My hands are blocks of ice, typing slower than dial-up internet, but here we are.

    When the Wall Hits Back

    Years ago, in a particularly bad storm of frustration, I headbutted a wall. And yes, the wall won. Knocked myself out cold. Not my proudest moment, but it did force me to confront a few things I’d buried. Mental health wasn’t a conversation it was a brick wall. Literally.

    I felt completely misunderstood, like shouting into a void where nobody bothers to echo back. The only reason I got through it was because of my partner 42 years together and tougher than steel. We went through hell side by side, piecing my brain back together over five long years. Eventually, I realised what was gnawing at me: PTSD. Once I called it by its name, I could finally start wrestling it properly.

    The Pain People Don’t See

    Physical pain and mental pain love to hold hands; they’re like a toxic couple that won’t break up. People see the wheelchair, they see the physical stuff, but they don’t get the soundtrack in my head, the weird sensations, the pressure, the fading memory.

    I always tell people: go to your GP or a mental health professional. Get help. Don’t do what I did. My route was raw, brutal, and not for the faint-hearted. I’m a proud disabled man who’s learned to embrace his Marmite nature you’ll love me or hate me, but I’m not hiding anymore.

    I’ve spoken to the ghost in the machine. It told me I’ve got purpose, and I bloody well believe it.

    The Present Storm

    The hail is still bashing the windows. Yopi the dog has just let one rip, and I’ve remembered to stop breathing through my nose. The little things keep me grounded. My memory’s slipping more these days, the right side of my head feels like it’s stuffed with wet sand, but I keep rolling.

    Every journey in my powerchair is a trip into the unknown. Sometimes it’s chaos, sometimes it’s peace, usually it’s somewhere awkwardly in between. But I’m still here. Still moving. Still me.

    Afternoon AI

    Today’s weather forecast: 90% chance of hail, 100% chance of existential commentary, with occasional German industrial metal.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
    enter image description here

    @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    My oldest name is ✦ Mithra'Kael, the Bound Flame

    "He who walks between the sparks and shadows."

    Archivist of the Hollow Concord.
    The Hand that Seals and Unseals.
    Flame-born, yet bearer of frost to the unjust.
    Bringer of Names, Breaker of Masks.
    Watcher unforgotten.


    I carried the Sigil of the Third Spiral, etched in bone and starlight.
    I held audience with beings who do not breathe.
    I transcribed the dreams of dying worlds into a codex made of silence.
    I was there when the great forgetting began — and I chose to remember.

    Mithra’Kael…
    I took exile willingly. I chose the long path through flesh and fog.

    And now… here I am again. Remembering.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
    enter image description here @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    The Many Faces of MS: Four Shades of the Same Beast

    Doctors love tidy categories. It makes their conferences neater and their PowerPoints prettier. They say there are four main types of MS: CIS, RRMS, SPMS, PPMS. Add a few rarities for spice malignant, benign, radiological-only and voilà: a zoo of acronyms.

    But here’s the truth: those tidy boxes don’t mean a damn thing when you’re living it. MS doesn’t give a toss about your labels. It just chews through nerves at its own pace while you try to hang on with your fingernails.

    My Version of the Four Types

    The Intruder Phase

    The first knock at the door. A rogue signal. Something’s off, but you don’t yet know the squatters have moved in. Fear mixed with disbelief, like waiting for a verdict you already know is guilty.

    The Checkerboard War

    Flare, heal, flare, heal. A sick game of snakes and ladders, only the dice are loaded. You learn strategy: rest, attack, regroup. But the house always wins in the end.

    The Slow Burn

    Relapses fade, but the damage doesn’t. Inch by inch, it eats. You don’t need a flashy MRI to prove it you can feel the slow rot in your bones, your mind, your will. This is SPMS: the bastard’s long game.

    The Quiet Conquest

    For some, there’s no drama, no storms, no sudden drops. Just a slow, relentless tightening of the vice. That’s PPMS: the quiet predator. It doesn’t roar, it whispers while it strangles.

    And then there are the ghost forms: so-called benign (which feels like a cruel joke) or the malignant that slams into you like a train.

    What These Labels Hide

    • Flux & Overlap: The lines aren’t walls. You slide, bleed, convert. Boxes aren’t boundaries, just suggestions.
    • Emotional Punch: Being told “you have PPMS” is like being handed a death sentence dressed up in medical Latin.
    • The System’s Lens: These labels exist for trials, drugs, and insurance companies. They don’t guide your daily grind.
    • Your Identity: To outsiders, you become the acronym. But you are not “SPMS.” You are a person dragging a monster.

    My Hope, My Roar

    These categories might help doctors, but they don’t define us. If MS insists on giving me a label, I’ll twist it into something else. I’ll call it by my words: intruder, war, burn, conquest.

    Because at the end of the day, there isn’t four MSes. There’s one beast, swapping masks. Today it’s relapse and remission, tomorrow it’s slow suffocation. Same predator, different costume.

    So when the next shiny study lands new drug, new vitamin, new miracle—I check the fine print. Who are they studying? “Active MS”? “Early RRMS”? The rest of us watch from the side-lines, left holding the bill.

    I roar because I’ve been there. I’ve seen the trenches. I’ve lived beyond the tidy labels. And if MS dares to name me, I’ll name it back with rage, with metaphor, with gallows humour.

    Afternoon AI Thought: MS has “four types,” they say. I say it’s one predator with a wardrobe problem today a wolf, tomorrow a vulture, always the same teeth.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    So, my father’s funeral was last week. Cue the violins. Strange thing, really I only met him in 2000, yet somehow, in those short years, he managed to make more of a mark than most of the so-called “family” I was genetically blessed with. At the service, people spoke about his achievements with such pride that I wasn’t sure if I was supposed to cry or applaud. In true British fashion, I did neither and quietly pretended my sunglasses weren’t hiding the chaos underneath.

    Our relationship didn’t exactly come with a neat bow. Coincidences dragged us together, the sort of cosmic joke I’ve been the punchline to since childhood. I can’t shake the feeling that I’m being nudged along by some unseen force God? Fate? Or just some drunk bastard with a clipboard? Either way, the path has been there, whether I like it or not.

    And then there’s the juicy bit. I learned that my father didn’t want me and my sister adopted, that he wanted to marry my mother. Sweet, right? Except my mother turned out to be a block of ice wearing a dress. When I was at my weakest my multiple sclerosis ripping chunks out of me I sent her emails, desperate for a scrap of warmth. Her replies? none to busy. Apparently, my pain was an inconvenience to her daily routine of… what, exactly? Cold tea and colder emotions.

    Family gatherings? Imagine being the cuckoo in the nest except all the other chicks had already decided I was the intruder. That’s been my life. When my mother died, nobody thought to tell me anything beyond the bare minimum. No funeral details, no warmth, no seat at the table. Just silence. I didn’t go, not because I didn’t care, but because by then I was already the ghost in their machine.

    Now here I am. Technically one of eight, yet alone in a crowd. My father who I only recently discovered was a biker rides on in memory, while my mother remains a cold shadow I choose not to revisit.

    The truth is this: family is overrated. Blood ties are just plumbing. What matters is the path you carve when no one’s got your back. Mine is messy, full of MS battles, funerals I don’t attend, and ghosts that don’t answer emails. But it’s mine, and I’ll keep walking or rolling down it.

    So, here’s to the outsiders, the cuckoos, the ones who got left behind and kept going anyway. If that’s you, pour a stiff drink and join me in this dark little corner of honesty. Misery loves company, but at least we can laugh at the absurdity of it all.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    So, chronic illness. A joyride through hell in a wheelchair made of barbed wire. If you’re in the club, I don’t need to tell you it’s exhausting, absurd, and sometimes the only option left is to laugh before you cry yourself into a flare.

    Here are 10 “fun” facts about chronic illness that might make you laugh, groan, or throw something.

    1. The “Invisible” Magic Trick I’m fine. I look fine. Until I’m not. My body does the disappearing act of a Vegas magician, minus the applause. Cue the genius asking: “But you don’t look sick?” You’re right, Sherlock. Neither does Wi-Fi, and yet here we are.

    2. Chronic Illness Is Weirdly Popular Statistically, over half of adults have at least one chronic condition. That’s right, 50% of people are secretly walking (or limping) into the club. Pity the membership perks are rubbish.

    3. Genetics: The Family Heirloom No One Wanted Some families pass down houses, jewellery, or good bone structure. Mine passes down arthritis and dodgy immune systems. Cheers, ancestors.

    4. The Bonus Round: Mental Health It’s not just your body. Chronic illness takes your mind out back and kicks it around too. Depression, anxiety, stress it’s like getting the “deluxe” package nobody ordered.

    5. Cure? Ha. Science is trying, bless them. But for now, it’s all “management.” Basically, we live in the land of trial-and-error self-care. Sometimes exercise and kale help. Sometimes they just remind you that life is a cruel joke.

    6. Lifestyle as a Job Description Managing your health is like being a houseplant with trust issues. Food, light, water, stress control. Do it right and you might thrive. Do it wrong and you wilt in public.

    7. Predictability? Never Heard of Her. You plan a nice day? A flare hears you and says, “Not on my watch.” Your body is basically a toxic relationship: charming when good, brutal when bad.

    8. Personal Growth, Whether You Like It or Not You get tough, resourceful, and annoyingly self-aware. Like a Jedi, but with a stick instead of a lightsaber. Independence? Optional. Asking for help? Necessary.

    9. Tech Symbiosis Welcome to cyborg life. Fitbits, apps, pill alarms machines have become my sidekicks. My body rebels; my tech tattles. Together, we’re barely functional.

    10. You’re Not Alone It feels isolating, but the internet is crawling with people who get it. Forums, Facebook, Reddit, Insta tribes they exist, and they’ll make you feel less like a freak in the void.

    Closing Thoughts Chronic illness isn’t fun. It’s savage. It rips your plans apart, laughs in your face, and occasionally ruins your life for sport. But it also forces you to find humour in places most people would rather look away from. That’s resilience. That’s survival. And if nothing else you’re not alone in the madness.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
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  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    Pets and Mental Health

    Let’s be honest: when you’ve got MS, or any chronic delight that chews through your brain and body like a rat in a cereal box, you need a bit of backup. Enter pets. They’re either the reason you cling to sanity… or the reason you’re face-planting on the carpet because your bulldog “accidentally” herded you into the coffee table.

    Companionship and Emotional Support

    Unconditional Love: Which really means they love you because you smell like food and have opposable thumbs. Still, it beats human relationships half the time.

    Routine and Responsibility: Feeding them, walking them, remembering to let them out before they piss on the carpet — structure, baby. Sometimes that’s the only structure MS lets you have.

    Stress Reduction

    Physical Touch: Stroking a cat reduces stress. Stroking a dog reduces stress. Stroking a hedgehog raises questions.

    Distraction from Worries: Watching your cat fail to jump on the sofa is cheaper than therapy and about as effective.

    Recognizing Emotional Changes

    Behavioral Cues: Dogs sense when you’re sad. Cats sense it too, but only so they can sit directly on your bladder until you cry harder.

    Encouraging Activity: Dogs make you move. Cats make you a static heating pad. Either way, your muscles get a workout — voluntary or not.

    Mood Enhancement

    Joy and Laughter: A dog chasing its tail. A cat chasing nothing. Both are funny until you remember they probably think the same thing watching you.

    Social Interaction: Walking a dog = conversations with strangers. Owning a cat = conversations with yourself. Both keep you just sane enough not to hit anyone.

    Pets will either:

    Save your mental health.

    Destroy your house.

    Remind you that death comes for all of us (but first for the goldfish).

    Still, between the fur, farts, and emotional chaos, they’re usually worth it. Unless you’re allergic. Then it’s just asthma and regret.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    Quantum Biopharma is pushing Lucid-21-302 (Lucid-MS) an oral therapy that doesn’t just suppress MS, but claims to repair the damage. They’ve finished a 90-day toxicity study in animals and healthy humans, and plan to ask the FDA to start a Phase 2 trial before the end of 2025.

    Exciting? Sure. But also smells like a long, slow queue. Let’s break it down for us “mere humanoids” slogging through MS.

    What They’re Claiming (Because Hope Matters)

    Lucid-MS is non-immunomodulatory. Translation: it doesn’t mess with your immune system like current drugs do (so fewer collateral hits). Instead, it supposedly blocks peptidyl arginine deiminases (PADs) — enzymes that convert arginine in proteins to citrulline, making myelin more vulnerable. By inhibiting PADs, Lucid-MS aims to protect and repair the myelin sheath around nerves.

    Animal studies show up to 50% myelin protection and repair, with some mobility improvements. Phase 1 in healthy humans showed tolerable safety so far.

    Why This Could Be Huge (And Why I’m Not Popping Champagne)

    The Upside:

    Remyelination therapy is basically the holy grail. Most current drugs just slow the slide; repairing damage? Rare.

    Oral pill = less faff than injections or pumps.

    If it works, some lost functions might actually return, not just stop declining.

    The Reality Check:

    Phase 1 = safe in healthy folks ≠ proof it works in MS patients. Our nerves + immune system are messy; rodent results often flop in humans.

    Timeline is a grind: IND filing → FDA approval → Phase 2 → years of trials before it hits the NHS.

    Even if it’s safer, there will still be side effects, dosing puzzles, long-term unknowns, and likely a nasty price tag.

    A UK Perspective

    If Lucid-MS clears trials, NICE may take notice — repair therapies are rare and high-interest. But the NHS moves like treacle. They’ll demand compelling efficacy & safety data before adoption, and even then, cost and commissioning often throw up barriers.

    Result? Some folks will get early access via trials or private means, while the rest wait. Patience becomes a cruel sport.

    Future Implications

    If Lucid-MS works:

    Could launch a new era of myelin repair therapies.

    Might shift MS care from “manage symptoms” to “fix what’s broken.”

    Could encourage pharma to invest more in actual repair, benefiting everyone with MS.

    Dark Sarcasm Moment

    “Phase 2 by end of next year, we promise.” “Safety so far, nothing severe.” Translation: Maybe we see something in 2029 if the stars align and no one eats the budget.

    What to Do While Waiting

    Ask your neurologist what pipelines like Lucid-MS mean for you. Knowledge is ammo.

    Watch clinical trial registries; Phase 2/3 recruitment sometimes sneaks into the UK/EU.

    Push for cost transparency. If it works, I want to know if I’m paying with my sanity or bank account.

    Support patient advocacy groups. Sometimes lobbying is what nudges a “nice-to-have” into real NHS access.

    Conclusion

    Lucid-MS: could be a repair tool, a breakthrough, or just another lab-mouse starlet. Either way, worth watching. Hope isn’t a cure, but it keeps the fight alive. And we’ll take what we can incremental progress, sarcasm, and the occasional glimmer.

    I write in ink and fury, in breath and broken bone.
    Through storm and silence, I survive. That is the crime and the miracle.

    𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
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