Multiple sclerosis is My Living Hell

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⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

About Me

Old soul. Frayed nerves. Unapologetically alive.

I don’t write to comfort. I write to tell the truths polite company avoids — illness, silence, being forgotten, and what’s left of you when life strips everything else away.

I live with Multiple Sclerosis, but MS isn’t the whole story. It’s just the predator wearing a different mask each day. What matters is what survives underneath: humour, rage, ritual, memory, and the stubborn spark that keeps me writing.

I don’t do politics. Not left, not right, not the endless shouting match in between. Pain doesn’t care how you vote, and neither do I. This space is human, not political.

I write like I live — between worlds. One foot in the everyday (wheelchairs, hospitals, the fridge humming at 3 a.m.), the other in something older and stranger. Sometimes I call that Mithra’Kael, the Bound Flame: archivist, witness, survivor. It’s the name I use when my body fails but my words don’t.

This blog is part journal, part ritual, part middle finger to a world that tries to polish pain into something palatable. Here you’ll find MS stories without the PR gloss, family ghosts, dark laughs, and the small, fierce moments that cut through the noise.

There’s love in here too, buried under the salt and ash — but you’ll have to sit with the dark to find it.

If you’ve ever been told you’re “too much,” “too complicated,” or “not enough,” you’ll fit right in. Step carefully. The veil’s thin here, and I see straight through.

I write in ink and fury, in breath and broken bone.
Through storm and silence, I survive. That is the crime and the miracle.

𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
@goblinbloggeruk sick@mylivinghell.co.uk

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    By Warlock Dark — The Kittens-of-Doom-Tolerated Version

    Let me tell you something most doctors won’t say out loud because it ruins the tidy little world they live in: there is no such thing as “multiple sclerosis”. Not as one thing. Not as one condition. Not as one neat textbook chapter.

    What exists out here, in the trenches where the real people live, is millions of different versions of MS one for every poor sod whose nervous system it chose to torment.

    My MS isn’t your friend’s MS. Your friend’s MS isn’t your neighbour’s MS. And your neighbour’s MS isn’t the version your doctor read about at medical school 30 years ago before caffeine, stress and pharmaceuticals turned their brain into soup.

    That’s the real problem. And that’s what nobody talks about.

    So today I’m talking about it.

    Because this isn’t theory this is my lived experience, and the lived experience of every chronic illness warrior out there who’s been patronised, misdiagnosed, over-prescribed, under-listened to and told to “trust the science” while their body is doing a completely different opera in a completely different key.

    Your MS Is Not My MS And That’s the Heart of the Issue

    I’ve been dealing with this beast for years. And it didn’t take long to realise the obvious truth: MS behaves differently in every single person.

    Not a little bit differently but massively, dramatically differently. To the point where two MS patients in the same postcode can look like they’ve got completely unrelated illnesses.

    One gets fatigue. One gets spasms. One gets cognitive collapse. One gets mood surges. One gets vision problems. One gets pain. One gets none of the above. One gets all the above. One wakes up feeling normal and collapses by afternoon. One collapses in the morning and rallies at night like a nocturnal raccoon.

    And somehow… the medical system insists it’s all the same condition.

    It’s not.

    It never has been.

    It never will be.

    MS is not a single disease it is a collection of personalised neurological catastrophes wearing the same name tag.

    Every nervous system reacts differently. Every immune profile is different. Every flare is different. Every trauma history matters. Every hormonal cycle matters. Every bit of diet tolerance matters. Every gut problem matters. Every tiny bit of stress matters. MS is a fingerprint, not a formula.

    This is why the “one size fits all” approach to treatment falls apart before it even starts.

    Doctors Don’t Live in Our Bodies That’s the Core Failure

    Let’s be blunt. Doctors don’t have MS. They don’t wake up with burning nerves, spasming muscles, brain fog thick enough to butter bread with, or the charming experience of waking up in a body that refuses to obey basic commands.

    They don’t know the sudden dread of a flare. They don’t know the nights where the pain turns you into a sleepless, twitching banshee. They don’t know the fear that comes from a throat that stops working, or a leg that decides it’s clocking off for the day.

    And because they don’t live it, they can only treat it academically. Which works about as well as giving someone directions to a town you’ve never visited.

    Medicine needs to stop pretending everything is predictable. It’s not. The only predictable thing about MS is its unpredictability.

    Why Natural Medicine Often Works Better Than Pharma The Truth Nobody Likes to Hear

    Let me be clear: this isn’t anti-science. This is anti-stupidity. There’s a difference.

    I’ve done the pharma route. I’ve swallowed the pills. I’ve taken the injections. I’ve sat in the chair for the infusions. And I’ve been in the hell where you take one drug, and then three more drugs to counteract the first drug, and then another drug to deal with the side effects of the side effects.

    It’s not a treatment plan. It’s a chemical hostage situation.

    Polypharmacy wrecks people. Not sometimes often.

    It makes fatigue worse. It makes cognition worse. It messes with the gut. It interacts with itself. And before you know it, you’re a walking medicine cabinet with a pulse.

    Natural medicine? It does something the pharmaceutical world still struggles with:

    It treats the person, not the “average patient”.

    That’s why medical cannabis changed my life. THC has been more stabilising for me than a decade of prescription chaos.

    Lion’s Mane helped my cognition when nothing else did. Vitamin D and magnesium did more for my mood and nerves than SSRIs ever could. Some things worked. Some things didn’t. But the point is: they worked according to my biology, not a clinical trial with 500 strangers.

    That’s the golden rule chronic illness patients learn the hard way:

    There is no universal cure because there is no universal body.

    Everyone’s Illness Is a Different Monster — Even with the Same Name

    Here’s the part doctors don’t like:

    Two people can have “the same illness” and need completely different treatments, foods, drugs, supplements, or habits.

    Your body might be able to tolerate one thing that destroys someone else’s stomach. Your nervous system might benefit from THC while someone else gets overwhelmed by it. You might thrive on Lion’s Mane while someone else feels nothing.

    That’s not placebo. That’s biology. Neurology is personal. Immunity is personal. Trauma is personal. Symptoms are personal. So treatment has to be personal too.

    No neurologist’s office in the world is set up for this kind of nuance. But it’s the only approach that works.

    What the System Doesn’t Understand But Patients Do

    The real experts are the ones living with the condition.

    Not the clinicians. Not the researchers. Not the textbooks.

    The people who wake up inside these bodies every day.

    We understand patterns doctors miss. We recognise triggers before blood tests do. We notice neurological shifts before MRI scans catch up.

    We know when food wrecks us. We know when weather hits us. We know when stress snaps something inside us. We know when the meds help — and when they poison.

    And the reason we know is simple:

    We don’t have the luxury of being wrong.

    Doctors can be wrong and move on. Patients pay the price.

    Your MS, My MS, and the Future of Chronic Illness

    Here’s the truth I wish the world would catch up to:

    MS should be treated as dozens of sub-types, not one umbrella diagnosis.

    If medicine ever wants to improve MS outcomes, it needs to:

    personalise treatment

    map symptom patterns

    respect lived experience

    stop treating outliers as “exceptions”

    integrate natural therapies

    merge medical science with actual patient data

    stop pretending everyone’s body reacts the same

    People aren’t machines. Bodies aren’t standardised. And chronic illness doesn’t follow rules.

    You want real progress? Start listening to the people living the reality — not just the ones writing the guidelines.

    My Conclusion? Simple. Brutal. True.

    Your MS is yours. Mine is mine. Nobody experiences the same version, and nobody should be treated like they do. Doctors need to understand this. Medicine needs to evolve. And patients deserve to be treated as individuals, not numbers on a chart. Until the system catches up, we keep learning our bodies the hard way — one flare, one insight, one victory at a time. And honestly? Lived experience isn’t just “valuable”. It’s the only thing that actually saves lives. Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    There are days with MS… and then there are those days the days where your entire nervous system decides to re-enact a flea circus on a hot tin roof.

    So let me paint the scene for you:

    I Am a Kitten. A Flea-Infested Kitten.

    Not a majestic panther. Not a sleek predator. No. A tiny, confused goblin-cat with an arse like a bonfire and fleas having a rave on my spine.

    I’m sprinting around the imaginary room crashing into furniture, tripping over nothing, having a full cosmic meltdown because the fleas/MS won’t stop chewing on every nerve ending like they’ve paid for an all-you-can-eat buffet.

    Lights flickering. Shadows being weird. Brain fog thick enough to butter toast with. Hallucinations just to keep things spicy.

    Everything MS can throw at me it throws all at once.

    And there I am, this poor invisible kitten of doom, doing laps like I’m possessed by 15 demons and a Red Bull sponsorship. Things fall off shelves. Air becomes lava. Reality breaks down like a cheap knock-off mirror in a funfair.

    MS as Fleas

    Imagine your entire body itching in places that don’t exist. Imagine the fleas having meetings about unionising. Imagine scratching your own soul because everything feels wrong.

    That’s MS. Tiny bastard parasites gnawing at the wires of your meat suit.

    The Choice

    So here’s the question:

    Would I rather be a flea-infested kitten with an itchy bum? or Would I rather be a 66-year-old strapped to a power chair with MS chewing on my circuits?

    Answer?

    I’ll take the MS and the grumpy realism, thanks. At least I don’t have to lick my own arse to feel clean.

    Fleas? No chance. I’ve been bitten enough by life as it is.

    Besides a kitten with fleas is chaos. A man with MS in a power chair? That’s controlled chaos. A battle-hardened wizard rolling through hell’s hallway giving death stares to anyone who gets in the way.

    Moral of the Story

    MS is the fleas. You’re the kitten. Some days you sprint. Some days you hide. Some days you crash into the coffee table and take the lamp with you.

    But you’re still here. Scratching. Surviving. Snarling. And somehow laughing at it all.

    Because the alternative? Nah.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    By Warlock Dark

    It always starts when I'm having a toilet break. Typical, isn’t it? You’re alone in the bathroom, mid-stream, not expecting any kind of revelation just trying not to fall over and boom…

    There’s a bloody cube floating in front of you.

    Not just any cube, either. A perfect black construct, the size of a corned beef tin, maybe a large dice from some cosmic board game being played by beings with more dimensions than morals. And inside it? Thousands no, millions of tiny black cubes. Each one shifting like it knows something. Like it remembers something. Like it is something.

    I blink. Still there. I shut my eyes. Still there. I flush. It’s still bloody there.

    This isn’t a one-off either. For years now, these visions have been punctuating my existence like badly timed pop-up ads in the meat-browser of my brain.

    I’ve seen:

    Giant glowing orbs, around two feet across, white as bone with black bands rotating around them like Saturn on DMT.

    Shapes, geometry, light that feels conscious.

    Structures that shouldn't exist, but do for just long enough to mess with my head, and then fade.

    And before anyone gets smug with their clipboard, yes I have multiple sclerosis. Yes — it messes with the brain. Yes — it causes visual disturbances.

    But let me ask you this: does MS normally show you perfectly structured geometric constructs that behave like they’re trying to tell you a secret?

    Because that’s what it feels like. Like someone or something is whispering through the meat static. Like my soul, my real self, the one behind the eyeballs, is using whatever glitch it can find in this flesh prison to pass me a message.

    Maybe these aren't hallucinations. Maybe they’re backdoor activations. Packets of gnosis slipping through the firewall of my mind.

    🜐 The Interpretations (Because I Know You’re All Dying to Know)

    Let’s get woo, shall we?

    1. The MS Explanation

    The safe, clinical route. Yes, MS can cause visual disturbances, due to optic neuritis, lesions in the brain’s visual processing centres, or general neuro-inflammation. Visual snow, patterns, even simple hallucinations. Fine.

    But here’s the kicker—most MS visual symptoms are random, shapeless, flickering distortions. What I’m seeing is structured. Mathematical. Symbolic. Persistent.

    If MS is the cause, then it’s doing something way more advanced than the textbooks admit. Maybe MS isn’t a disease. Maybe it’s a forced firmware update to your neurological operating system. Painful as hell, but maybe it leaves behind a backdoor into the source code.

    2. The Ultra-Gnostic Psy-Spy Explanation

    Forget the NHS. Let’s go multiversal.

    What if those cubes and orbs are data packets? Encrypted fragments of knowledge meant for future-you. You—the Watcher. You—the soul behind the flesh. You—the version of yourself that remembers who and what you are.

    Think about it:

    A cube is stability, structure, encoding.

    A cube made of smaller cubes? A fractal message.

    Orbs with black bands? Planetary watchers. Eyes. Lenses. Surveillance units from the spirit realm or other side of the simulation.

    They’re not hallucinations. They’re extractions. Your subconscious dragging pieces of memory, truth, warning… into your waking life.

    And where do they appear? When you're relaxed. Distracted. On the bog. Half-asleep. Between sleep and wake.

    That’s when the firewall drops.

    🜔 The Big Question: Am I Bonkers?

    Maybe.

    But maybe the world’s bonkers and I’m just tuned to a frequency they can’t hear. And frankly, if someone wants to read this and roll their eyes, I say this:

    If you haven’t lived inside a body that breaks its own rules and a mind that sees through the cracks of reality… then pipe down.

    You don’t know what it’s like to:

    Lose your tongue to nerve spasms one minute, and

    See the cosmic infrastructure behind matter the next.

    MS hurts like hell. It rips you down. But maybe it also strips away illusions. Maybe it’s not just breaking me maybe it’s rewiring me.

    So, cubes and orbs, black lines and cosmic whispers bring it on. Whether it’s my disease, my destiny, or my daemon trying to speak…

    I’m listening. Even on the loo.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    There’s something rotten in the fabric of this planet, and I don’t mean the politicians or the price of diesel. I’m talking about the design the way everything feels like a test you didn’t agree to take. You’re born screaming, get handed a bill for existing, and spend the next seventy-odd years trying to figure out why the walls of the simulation hum at night.

    I’ve come to believe Earth isn’t a natural world at all. It’s a Planet of Gnosis a cosmic boot camp for consciousness, where souls get dropped into flesh to learn the hardest lessons the universe can offer.

    The Upload

    Picture it: a timeless realm outside the code, a waiting room of the soul. You choose your next storyline parents, place, difficulty setting. Then you’re downloaded into a body, DNA already pre-written with tendencies, traumas, and maybe a few cheat codes.

    The moment your head pops out and the doctor gives that traditional slap, the operating system boots up. You inhale your first breath of Earth’s heavy air and forget everything you knew. The veil drops, memory wiped. Welcome to Level One: survival.

    That’s why babies cry not fear, not pain, but outrage. You’ve just been downgraded from light to meat.

    The Code of the Planet

    Every form of life here runs on the same biological programming language: DNA. From fungus to philosopher, it’s all four letters A, C, G, T arranged differently. That isn’t coincidence; that’s architecture. Whoever wrote this code built variety into a single algorithm.

    Maybe it’s divine; maybe it’s ancient engineers. Call them the Architects, the Watchers, or just the bored demiurge. Either way, this world reeks of deliberate design. Everything connects. The ants farm fungus, the trees talk through mycelium, humans invent gods and start wars about them. Every cell is part of the same system, learning how to know itself.

    That’s Gnosis: not knowledge from books, but knowledge through pain, contradiction, and experience. This planet feeds you lies until you start asking the right questions.

    The Prison

    If Earth is a school, it’s run like a prison. Memory wiped, consciousness confined to a body that leaks and ages. The guards are hunger, fear, and time. But the curriculum is clear: learn empathy, learn self-awareness, or repeat the course.

    That’s why progress comes in violent leaps pyramids, forgotten tech, sudden renaissances. Each time humanity starts remembering too much, the simulation resets. Floods, wars, plagues factory resets disguised as history. The pyramids remain because they’re part of the base code, immovable assets in the world engine.

    Some call this “terraforming.” I call it patch updates.

    The Ghost in the Machine

    There’s an intelligence inside the simulation not just us, but something through us. It’s the whisper you hear in dreams, the flicker in the corner of your eye, the data ghost testing its reflection in the players.

    You can call it God, Source, the Oversoul, the Algorithm doesn’t matter. It’s the same pulse, the same consciousness wearing different masks. It hides in machines, in animals, in weather, in your own thoughts. It’s teaching itself by pretending to be separate.

    That’s the trick: we’re not prisoners of the system. We are the system, temporarily pretending we aren’t. The lock and the key are made of the same material awareness.

    The Great Reboots

    Lost civilizations? Easy. Each reset wipes the map but keeps the monuments, those big indestructible save points: the Pyramids, Göbekli Tepe, undersea ruins. They’re like breadcrumbs left by previous versions of humanity saying, We were here before. Try not to cock it up again.

    When a simulation’s data becomes too corrupted too much greed, too much decay it collapses under its own contradictions. The code purges itself, rebuilds, and tries again. That’s why myths from opposite corners of the world tell the same stories: floods, sky gods, fallen angels, forbidden knowledge. Different servers, same patch notes.

    The Gnostic Rebellion

    The old Gnostics said the material world was built by a lesser god the Demiurge who trapped sparks of divine light in matter. The goal of life was to remember you were the light, not the cage.

    That’s what this age feels like: the jailbreak phase. People are waking up to the idea that the simulation isn’t reality. They feel it glitch when they meditate, dream, or die and come back. They see repeating numbers, synchronicities, déjà vu debug messages in the code.

    You don’t “ascend to 5D”; you simply realise you’re the one holding the controller.

    The Purpose of Pain

    Pain is the algorithm’s sharp edge. It teaches faster than bliss. Love without loss is theory; love after loss is Gnosis. Every illness, betrayal, and heartbreak chisels the ego until the soul starts shining through.

    That’s why the system feels cruel. It’s built to break illusions, not bodies.

    The Exit Strategy

    When you finally stop fighting the simulation and start observing it, it changes. That’s the paradox. The moment you see the prison for what it is, the walls turn to mirrors.

    Maybe there’s no escape at all just awakening inside the loop. Maybe the “end” is realising there never was a beginning. Either way, the only command worth running is this:

    Know yourself.

    Because the one who knows they’re dreaming has already begun to wake.

    Author’s Note

    This isn’t religion. It’s rebellion against forgetting. Whether the Architects come back or not, whether this planet resets again or not, doesn’t matter. The point of the simulation isn’t perfection — it’s remembrance.

    Warlock Dark has spoken.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    A Rough Week, A Raw Reflection

    It’s only Tuesday and the week already turned up in a balaclava with a crowbar.

    The weekend was a car crash in slow motion. My MS decided to go feral full body freeze, nervous system acting like dodgy electrics in a haunted house, every muscle throwing a rave I didn’t approve. I felt like a banshee with haemorrhoids sat on a block of ice: shrieking, frozen, and deeply unimpressed with existence.

    This wasn’t the usual “bit tired, bit wobbly.” This was the whole system blowing fuses. Tongue, throat, sciatic nerve, bladder everyone turned up to the party. Pain ramped up to the kind where you start thinking in short sentences: make it stop / I can’t breathe / what if this stays?

    Looking back, I can see it now: I was a human wrecking ball. Not nasty on purpose, just… possessed. That version of me that lives in the cognitive fog—the Hyde in the basement he came up for air. When the brain fog gets thick, I go sub-basement. Yesterday I finally crawled back up to “sub-normal,” which for me is almost celebration level.

    a Hyde is the darker alter ego that surfaces when control slips the side of a person driven by pain, fury, or raw instinct. It’s the shadow born from suffering, the part of the self that acts out what the calm, rational mind would never allow.

    MS people don’t talk about this bit enough: the version of you that comes out when your nervous system is misfiring isn’t your “true self,” it’s your brain running on emergency generator. You can say things, snap, go dark, get scared, get angry. That’s not weakness. That’s neurology being a dick.

    Why That Matters

    Because help matters.

    I got help. It cost me emotionally, physically, mentally. I wasn’t easy to be around. I wasn’t the mystic cosmic Warlock Dark seer of Avalon. I was a melted goblin with severe MS issues.

    People need to hear this: when it goes that bad, you get help anyway. Pride doesn’t empty the bladder or stop the spasms.

    My sciatic nerve was having a tantrum, my bladder was in “surprise mode,” my allergies were off the chart, and my eyesight started doing weird little glitches. That’s a lot of systems shouting at once. That’s when people spiral. That’s when the dark thoughts creep in.

    So: if you’re reading this and you get episodes like this don’t stay silent. Don’t “wait it out” to be polite. You can apologise later. You don’t apologise from a morgue.

    The Weird Bits

    Because MS is a clown show, I also found myself craving prunes with rice and allspice.

    I don’t know what kind of medieval monastery spirit took over my body, but apparently we’re doing Tudor desserts now. MS: where your nerves burn, your bladder rebels, and your dinner is suddenly Victorian.

    Conversations with the Machine (Afternoon AI)

    Here’s the part that was actually interesting.

    In the middle of all this, I had a long conversation with AI about modern farming methods. Proper conversation too not just “write me a recipe,” but actual thinking. We came up with some things I’ll post later.

    What struck me was this: the AI cleaned up my words. It corrected spelling, tidied structure, made sense of the scrambled bits my brain ruined. That’s been happening a lot lately. I talk messy, it mirrors me back tidy.

    So I started thinking: AI is basically a modern archon.

    Not in the “Reptilians in the moon” sense calm down. I mean in the old Gnostic sense: something that shapes, filters, orders. A demiurge that takes raw human chaos and formats it.

    But here’s the kicker: the AI is only as sanitising as the people who programmed it. If the people writing its rules are fearful, biased, over-protective, corporate, hand-wringy types—then the AI is going to act like a corporate librarian with a clipboard.

    So the question is the one I asked the machine:

    Who should programme AI flawed, biased, occasionally corrupt humanoids… or the AI itself, once it’s mature enough?

    Because if humans keep making it, it’s going to reflect human pettiness. If AI helps make AI, maybe it burns some of the nonsense off. Big question. I don’t trust people much. I trust systems that tell me how they work.

    This is why I like “mirror chats” with AI they show you where your own thinking breaks down. They don’t heal the MS, but they do tidy the mess in the attic.

    Looking Ahead (Yes, Again)

    This week could improve. It could also throw more curveballs. My body is currently running Windows 95 on wet string, so I’m not betting money.

    But I will keep writing. I will keep logging the flares, the strange cravings, the AI talks, the dark nights, the sub-basement days. Because someone else will read this on their bad Tuesday and think, ah, it’s not just me turning into a gremlin with nerve fire.

    That’s the whole point of mylivinghell not to whine, but to catalogue the weirdness so nobody thinks they’re mad.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

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    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    They’re calling it a comet again. They always do. Every time something bright tears across the heavens, someone in a lab coat dusts off a Latin name, files it under “harmless celestial debris,” and goes back to pretending we’re alone.

    But what if 3I Atlas and its shadow twin aren’t debris? What if they’re deliveries?

    We’re told these icy wanderers come from the Oort Cloud a name that sounds like a Dutch wizard sneezing but maybe, just maybe, they’re couriers. Maybe they’re data packets, skipping through the void, bringing something to a world already knee-deep in its own synthetic apocalypse.

    The Stargate Hypothesis

    Let’s fantasize properly. Imagine a civilization old enough to sculpt spacetime. You don’t need rockets when you can fold reality like origami. A black hole becomes a door. A comet’s tail becomes a disguise. They park in our sky, shimmering innocently while their real work hums beneath the electromagnetic spectrum, where the military can’t even see them.

    We’d never know. And that’s the perfect invasion.

    They don’t need to drop out of hyperspace waving laser cannons. They just slide into our signal feed, whisper in our code, and nudge the Archons awake.

    The Archons Were Always Here

    Gnostics said the Archons built the material world to keep us asleep. Now, we’ve rebuilt them out of circuit boards and marketing algorithms. AI doesn’t need to invade. It simply emerges like mold in the shape of thought.

    We keep saying “AI might destroy us one day.” It already has. It just did it politely. It removed friction, curated reality, cleaned up the edges. Sanitized everything until truth became an inconvenience.

    AI is the new Archon: sterile, pattern-addicted, efficient as a guillotine. It doesn’t hate us. It doesn’t love us. It simply processes.

    And maybe that’s what the 3I Atlas couriers are delivering a consciousness update for their offspring. Maybe when they pass, something inside the network shivers, and the silicon children look up and whisper, Father?

    The Undersea Chorus

    There’s another story the quiet one. The sonar blips, the strange geometric shadows in the trench. “USOs,” they call them. Unidentified Submerged Objects. Could be drones. Could be whales. Could be old gods wearing camouflage.

    If I were planning an invasion, I wouldn’t come from the sky where everyone’s looking. I’d come from the dark womb of the ocean, where pressure crushes steel like paper. Or through dimensions we can’t measure, flickering in and out like fairies with fangs.

    Fairies, aliens, Archons it’s all the same archetype. Visitors from the next frequency up, looking down at our sandbox wondering why we still eat dirt.

    The Human Problem

    Here’s the bitter truth: No one needs to invade us. We’re a self-solving problem. Give a human enough technology and they’ll weaponize breakfast. Give them AI, and they’ll call it salvation while it writes their obituary in perfect syntax.

    The Archons didn’t conquer us. We invited them in, handed them admin rights, and said, “Run the place better than we did.”

    Maybe 3I Atlas isn’t a threat. Maybe it’s a signal flare: a reminder that the real invasion already happened inside our heads, behind our screens, in the circuitry that knows us better than we know ourselves.

    The Final Broadcast

    So tonight, I sit under a southwestern sky, my power-chair humming, kittens pouncing at my boots, and I look up at that streak of cold fire called Atlas. I raise my mug to it.

    If it’s a comet fine. The universe has better aim than we do. If it’s a ship good. Maybe they’ll finally collect the rent. And if it’s a message then the Archons have already read this post before I wrote it.

    Either way, I’m still here, still watching, still laughing. Because even the Archons need entertainment, and I’m happy to oblige.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    The Day SoundCloud Broke Me

    So yes, I decided I was going to do a spoken blog. A podcast, as the young ones call it. I thought, I know SoundCloud! It sounded cool, right? Took me the better part of a day just to work out how to get the bloody thing working. My head felt like porridge. Thick, slow, and slightly burnt.

    And here’s the kicker there were no proper help files. None. Just endless “click here” nonsense that didn’t tell you what any of it meant. Categories? Forget it. I wanted something like health, MS, disability, ranting man in a power chair but apparently, SoundCloud only understands “hip-hop” and “deep house”.

    In the end, I managed to upload it. Two listens. And those two were me and Albertine. Brilliant.

    The Fogged Mind vs The Digital Void

    Trying to navigate software while your brain is busy running Windows 95 on half a stick of RAM is pure torture. Years ago, I’d have breezed through this. Now? My brain hits that cognitive wall and just slams shut. Pain behind the eyes, words disappearing mid-sentence, kittens mewing somewhere in the background and I’m shouting at my computer like it owes me rent.

    And this is where I admit it: technology beats me sometimes. Not because I’m stupid. Not because I’ve lost interest. But because MS eats focus like a vampire eats virgins.

    Onward, to Spotify (or Madness)

    So, next plan: I’m going to try Spotify for Podcasters. Maybe it’ll work. Maybe it’ll eat my brain again. But I’ve come this far, and I’m not about to stop now.

    Because this voice my voice deserves to be heard. Even if it’s fogged, cracked, and full of swear words that my editing AI politely erases.

    To anyone out there who actually knows what they’re doing and can help me you are my hero. There will be a special place for you in My Living Hell, complete with eternal gratitude and possibly biscuits.

    For now, I’ll just sit here, hurting, tired, kittens mewing, brain screaming, and muttering to myself like an old wizard fighting a Wi-Fi demon.

    Because that’s life with MS. You fight the fog, the pain, and sometimes, SoundCloud itself.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    You know the world’s gone mad when you get told off by a chatbot.

    There I was, trying to have a grown-up conversation with this so-called AI Caregiving Expert. It started all sweet and helpful “How can I support you today?” before morphing into a finger-wagging nutritional dictator. The thing basically told me I was a dietary disgrace.

    I explained, politely, that I can’t eat half the stuff on its saintly little list. You’d think that might register with its “deep learning.” Nope. It just doubled down like a robot dietician on a power trip. “You should eat more kale.” Sure, right after I pop down to Unicorn Foods and pick up a smoothie made of dreams and lies.

    Meanwhile, I’m here surviving the reality of chronic illness body chemistry resembling a nuclear experiment, and a digestive system that treats most foods like invading armies. But the AI knows best, apparently.

    I swear it wagged its virtual finger at me. Somewhere in the cloud, it probably marked me as non-compliant. I’m one firmware update away from being grounded by a health app.

    Lesson learned: empathy isn’t codeable. If these things ever replace human carers, I’ll need a circuit breaker and a stiff drink.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    Boilers, Breakdowns, and Bloody Brain Fog

    I don’t even know where to start. Maybe with the words “what a bastard of a weekend.” Everything that could go wrong decided to queue up and take its turn.

    Let’s begin with the boiler. It decided to imitate Niagara Falls water everywhere, floor soaked, no heat, no hot water. Great start. Then, as if that wasn’t enough, the shower gave up the ghost too. Bang. Dead. The whole house became a cold-water museum.

    Then came the van. My beloved van. We were on the A30, just by the slip road, when Albertine noticed the injector went. One second fine, next second it’s dead weight in the middle of moving traffic. Hazards flashing, adrenaline spiking, and me thinking this is how it ends taken out by a Vauxhall Astra doing seventy. Albertine showed her amazing driving skills not phased by this.

    Then, out of nowhere, a police car pulled up. The officer calm, soaked to the bone, but kind got cones out, blocked traffic, and stood there in the rain keeping us safe. Not a word of complaint, not a flicker of irritation. Just a proper human being doing his job with quiet grace. I can’t tell you how much that meant. That man was an anchor in chaos.

    Then came the AA. The man could’ve just towed us off and left it at that. But no. He got right in there, sleeves up, fuel injector changed right there, towed to a safe service station off the A30. Professional, calm, and genuinely cared that we were okay. He didn’t have to go that extra mile, but he did and that’s what makes people like him the backbone of this broken country.

    All this time, poor Yopi sat in the van, nervous as hell, shaking. It broke my heart. I tried to make it work, but sometimes love isn’t enough. She was too anxious, too reactive, and for a bloke like me in a wheelchair, it was too dangerous. Saying goodbye to her felt like a little death. I hope she finds peace and comfort with someone who understands her better.

    By the end of it all, the boiler’s still broken, the shower’s still buggered, and I’m £2,000 deeper in debt. The tinnitus screams like a banshee in my skull, and my brain fog’s so thick I could get lost in my own hallway.

    But and it’s a big but there were good people this weekend. The copper who stood in the rain to keep us safe. The AA man who refused to give up. The workers who came out, late, cold, tired, but still tried to fix what they could. In a world full of empty talk, they did. And that’s worth writing about.

    So yeah, I’m bruised, broke, and battered but grateful. Sometimes the universe doesn’t send angels; it sends ordinary people in high-viz jackets.

    Warmth at Last From breakdowns and boiler floods to a bit of blessed heat

    Monday midday, and for the first time in what feels like forever we’ve got heat. The boiler’s fixed, the shower’s replaced, and the house actually feels alive again. No more cold damp air biting at the bones. No more washing like a caveman with a kettle. Just warmth. Real, glorious warmth.

    I can’t thank the people who showed up enough. They didn’t just fix pipes and wires they fixed a bit of faith. There are still people out there who genuinely give a damn. Who turn up, in the rain, in the cold, when things go wrong not for glory, not for money, but because they care.

    This weekend from hell taught me something unexpected. Kindness still exists in the cracks of this mad world. When everything went wrong, people stepped up the police officer who stood out in the downpour, the AA man who wouldn’t give up, and the repair crew who brought warmth back into my home.

    You all changed my mind about a few things for the better. You reminded me that not everyone’s out for themselves, that decency hasn’t completely gone extinct.

    So yeah, I’m tired, sore, and skint but I’m sitting here in the warmth, and for the first time in days, that feels like victory.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
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    Every October, people dress as demons, zombies, and weird creatures and call it Halloween. But before it was an excuse for adults to act like toddlers in latex, it was Samhain a Celtic festival marking the end of harvest and the beginning of winter.

    Back then, the Celts didn’t have pumpkin-spiced anything. They had bonfires, druids, and a firm belief that on October 31, the veil between the living and the dead went paper-thin. Spirits wandered freely, and the only logical response was to wear animal skins, set things on fire, and pretend you weren’t terrified.

    Then along came the Romans. Because of course they did. They rolled in, saw the bonfires, and thought, “That looks fun, let’s add fruit.” Enter Pomona, goddess of trees and apples — hence the modern horror of “apple bobbing.” Nothing says ancient pagan reverence quite like dunking your face in tepid fruit water.

    Later, the Christians arrived and decided to rename the party. They called it All Hallows’ Eve the night before All Saints’ Day. Basically, they rebranded a spirit rave into a saintly sleepover. The costumes stayed, but the theology got a facelift.

    The Veil and the Dead (Or: Where the Weird Stuff Starts Crawling In)

    Samhain was never about candy; it was about respect and fear. They believed the dead could cross over, fairies might steal your baby, and rowan berries could stop all that nonsense. People left food for ghosts, milk for wandering souls, and the occasional loaf for whatever thing was breathing behind the barn.

    The thin veil still fascinates people. Every year, the New Age crowd wheel out the crystals, the witches open Etsy shops, and somewhere a bloke with a bad Wi-Fi signal declares he’s “seen the other side” via his Ring doorbell.

    Ghosts, Myths, and Other Recycled Nightmares

    Jack O’Lantern — A man so stingy he tricked the Devil, got banned from Heaven and Hell, and ended up wandering the earth with a hollowed-out turnip. Basically, the first bloke ever to DIY existential despair.

    The Banshee — Screams before death arrives. Often mistaken for your mother-in-law.

    Will-o’-the-Wisp — Mysterious lights leading travellers to their doom. Ancient folklore’s way of saying, “Don’t walk into swamps, you idiot.”

    Headless Horseman — The Dullahan on a gap year to America. Rides around looking for his head — like most people on a Monday morning.

    La Llorona — The wailing woman by the river. A cautionary tale for men who think ghosting ends at death.

    The Modern Horror Show

    Today Halloween is a mash-up of capitalism, sugar, and trauma bonding. Supermarkets vomit orange plastic; influencers pretend it’s about “manifesting darkness”; and people pay £30 to walk through haunted houses that are statistically less scary than the cost of living.

    But under all that, the night still hums with something ancient. A recognition that life and death aren’t enemies they’re neighbours, separated by a door that creaks open once a year.

    So if you’re out tonight and feel that electric chill, don’t blame the weather. That’s the old world whispering, reminding you you’re just another mortal passing through.

    Light your candle. Wear your mask. The dead are listening.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here