Multiple sclerosis  is My Living Hell

DisabledLife

All posts tagged DisabledLife by Multiple sclerosis is My Living Hell
  • Posted on

    1966… yeah, apparently I was there. I can just about remember World Cup Willy – England’s football mascot when they actually won something back then. Distant memories flicker… it’s amazing how smells can trigger memories. I remember walking with my auntie in Isleworth, London. Those big shops – well, big to me, coming from a small town. Key Markets, the library, swimming baths… rows of local shops buzzing with life. The smell of London buses and car fumes, the clang of the Routemaster bus bell, those iconic patterns on the seats. All those sounds and smells etched themselves somewhere deep in my foggy goblin brain.

    Now? My sense of smell is pretty much shot, along with taste. Thanks, MS. My throat is a daily battle. It’s like my brain just forgets how to swallow properly. One day the herbal tea goes down fine, the next it feels like I’m choking on air or my own spit. Sometimes it’s weakness in the muscles, other times it’s just the brain signals messing up the timing. Talking gets tiring too – voice goes weak, slurred, raspy as the day drags on. Another delightful surprise from MS… making even breathing and swallowing feel like hard work.

    That’s why my trusty thermos cup with a flip lid or a straw is the business for me. Knock it over? No problem. It’s like spill-proof dignity in a cup.

    I remember the tube too… the smells, the sounds. London was rocking (or swinging) in the 60s. All those sights, the fashions, the swirling psychedelic colours. Mesmerising for this poor goblin. Innocence wasn’t lost back then, but it came close – reality eventually hit like a sledgehammer.

    Looking back, it felt happy. But now… I wonder why it makes me feel so sad. Memory is rubbish these days. Brain fog wipes out birthdays and important dates. Honestly… it sucks. But that’s life in the MS lane, isn’t it?

              “ The views in this post are based on my personal    
                experience. I do not intend harm, only honesty.”   
    
                   “By ink and breath and sacred rage, I write.
                              By storm and silence, I survive.”
    

    enter image description here

                              🧌✨ @goblinbloggeruk ✨🧌
    
  • Posted on

    You’d think buying a watch is simple. You choose one. You wear it. It tells the time. Job done.

    Nope.

    Instead, it’s a full-scale psychological assault. Amazon probably thinks I’m running a black-market watch dealership by now with the amount I’ve sent back.

    All I wanted was a watch that:

    Tells the time

    Tells the date

    Has a big face so I can see it

    Doesn’t require a PhD in Chronology to set it up

    Instead, I got:

    ⏰ Knobs that have a life of their own, turning randomly like a possessed ouija board.

    ⏰ Buttons that demand fingers with precision I no longer have, thanks to numb hands that make the simplest task feel like I’m defusing a bomb underwater while blindfolded.

    In the end, I went atomic. Or “atomik”, as I now call it to sound edgy and slightly deranged.

    This atomic watch apparently speaks the time and date. Brilliant, I thought. It arrived, promising “easy setup” in the advert. 😂 Easy setup my arse. It took Albertine several hours of cursing to set up. She’s my go-to tech guru when life’s gadgets decide to humiliate me, and even she looked ready to launch it out the window.

    I just sat there, numb hands useless, staring at it and laughing like a lunatic while she pressed random buttons in despair.

    But hey, it works now. It talks to me. It’s large enough to see. And it hasn’t tried to kill me in my sleep yet. So it’s a win. Kind of.

               “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”
    
         “The views in this post are based on my personal
          experience. I do not intend harm, only honesty.” 
    

    enter image description here 🧌✨ @goblinbloggeruk ✨🧌