NHS frustration

⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content

A Very Good morning, good afternoon, fellow humanoids and eti , where ever you may be, Well, it's a very wet day here in the southwest. We've been experiencing rainstorms most of the night and throughout this morning, unfortunately. And it is getting rather cold here as well. As I look out the window, all I can see is a grey nothingness of sky, full of rain and well grey yuck. Oh dear me, and today It promised to be a sunny warm day and afternoon. I suppose that tomorrow and the next day will be pretty much the same. Well, this is the sort of weather we get these days isn't it? It is quite amazing. Rain, rain and more rain and even more fog.

What happened to the weather?

Yes, it's depressing looking out of the window these days because well everything is so dull and drab there is no color to look at so to speak. The sky seems washed out all the time and then we have all these weird clouds It's quite strange really. Of course I can remember the 1960s to 1970s and the skies were lovely and blue. The sun was yellow and warm. We never had any of this horrible weather we have now. I remember going to school and it would rain and it would be a warm rain. It rained for a few minutes. It's gone. Yes, the weather has definitely changed. Well, I suppose it's getting colder. I say it's getting warmer but to me having MS it's like getting colder and hotter at the same time. I know it sounds a bit weird but when you have MS it can cause all sorts of issues. The heat and the cold. There is no such thing as a good temperate climate I'm afraid. Well, not in the UK anyway but I hear Portugal is supposed to be quite good.

No market, the weather is atrocious.

So I have been looking forward to this all week and yes, the market that we only get once a month Well, I'm not gonna be able to get there. What with the weather? It is too cold It is too wet and there are some quite mega puddles about I know it's only a couple of miles to the market But the thing is my three-wheel trolley of death does not like the wet weather and I fear that the brakes might not be very good in this wet weather either and Yeah, I don't want to be having an accident that would never do So it's in the garage and that's where it's going to stay till tomorrow when I'm going to try and go out for a few hours somewhere with Albertine and then hope it's fairly dry because the cold and the wet, well, these mobility scooters don't like the cold. No, they don't. It affects their performance quite drastically. It's... Battery does not last very long in the cold. It can drain overnight if you leave your battery outside. Yes, it can. And I have lost two sets of batteries over the past few years, and it's cost me nearly 400 quid each time, I think. And that's not good. But there we go. We learn. And when we learn at our own costs sometimes...

Maintenance of mobility scooters

The most important thing to remember whatever mobility scooter you have is to keep it regularly maintained. I found the most important thing is squirting lube on the bearings on the wheels. Because believe it or not those bearings do need lubrication and all you have to do is remove one nut on mine and you can see the bearing and just squirting in some silicon grease does the business. It makes that ball race go round like a dream. and also generally keeping an eye on the tightness of all your bolts as well as what I have found on my three-wheeled scooter of death literally after going out and coming back there are several nuts that decide to come loose, I have now got some lock nut solution on those to stop them coming undone but the quality of some of these nuts and bolts ....I've never seen such rubbishy nuts and bolts to be honest with you ...

The next mobility scooter that I'm getting

The next mobility scooter that I'm getting will be a four-wheeled mobility scooter and it will have solid tyres. Yes, punctures are a hazard on a mobility scooter if you're on the road or pavement as there are all sorts of horrible little things that can quite easily puncture your tyres. At the moment I have to carry a Tyre pump and a solution to putting the inner tube in case I have a puncture. Yes, being caught out in the middle of nowhere with a puncture is no fun as I have found out to my cost when I had to bring my three-wheeled scooter of death home on two wheels. That indeed was precarious. Also, I'm going to make sure it's a scooter that has a removable battery so I can put the scooter in the garage and charge the battery separately. And keep the battery out of the cold and also have a spare battery is also a good thing.

Also on the three-wheeled trolley of death or scooter of death or whatever we call it, there is a big big big problem and that is if you go too far, you're not coming home. Yes, the problem is here that the distance that it says in the book isn't the distance that you actually get when you're actually out on it. So, yeah, the mileage is a bit iffy to say the least because it's got to do with weather conditions. And as we know, weather conditions in the UK are pretty crappy, so it's going to be pretty crappy battery performance on a cold day. So yeah, the new scooter that I am hopefully getting does about 30 miles and I'll carry a spare battery so that'll give me maybe what 60 miles but who the hell wants to do 60 miles on the mobility scooter in a day? Well could you actually do that? Just imagine the traffic hold-ups and the abuse that you would suffer. It'd be quite comical really. It'd be a bit like having a tractor going slow with big bales on the back and yeah you get the picture.

UFO UAP disclosure and other things.

So they say aliens walk amongst us. I find that quite exciting if it's true. But what happens if we're the aliens? Has anybody ever thought of that? I know, that's a bit weird, isn't it? So I hear no one ask out there, well how's your autonomic dysfunction going? Well, how is it going? I'm managing to keep it down to a bearable level. using the AI to help me with what I can and cannot eat, and we went through a list of foods that can set off histamine reactions in my body, and also foods with histamines in that can cause a reaction. I was surprised to find that even some foods with no histamines in can cause a histamine reaction in the body and can cause the body to make histamine. I was surprised but I have done what the AI has told me to do.

Shh don't tell the nhs lol

Now, the thing is, let's keep this quiet lol . I used a medical AI. And to be honest with you, it's better than any doctor I have ever seen. And it helped me so much. It was unfucking believable. So if you're like me and you're really suffering and you are desperate for help and there is none coming from the NHS, what I suggest is try a medical AI. And it helped me, it put my mind at rest. And my autonomic dysfunction now is at bearable levels. I really have had my eyes opened that speaking to an AI about my MS and autonomic dysfunction has been more fruitful than ever talking to doctors, nurses, MS, nurses, or neurologists, or any healthcare professionals, to be honest with you. The thing is the AI listens and listens and listens and listens. It doesn't ignore you, it doesn't gaslight you, it doesn't treat you like a fucking idiot. That's the difference. AI treats you more like a human than the doctor or the neurologist does. You go see the neurologist or the doctor, it's a pat on the head. Good boy, good girl. Now fuck off. Go away. I'm not going to speak to you for weeks to tell you what's wrong with you. But I already know. You know, these people act like God. Well they're not gods. I've proved that because I've had AI help me and I trust AI over the triage I've ever had anywhere else.

But that's my own personnel opinion always seek help from a healthcare professional if your not me

So yes, I have used modern day tools to help me. But enough of all that, that was a bit of a rant I'm afraid. Well, I've been waiting for ten years to get this autonomic dysfunction sorted out, and well, you know, I'm nearly there, but I don't think I am.

Stress levels. It was due to a double glazing salesman would you believe?

This week has been one of the worst weeks for a long time for my stress levels. I suppose this is one of the first times I've ever talked about my stress levels. Well, I find that people can stress me out and when I get too stressed out, I tend to react. And yes, yesterday I had to leave the room due to getting so stressed out. It was unreal. It was due to a double glazing salesman would you believe? He was trying the hard sell and to be honest I could see he was trying to push bully maneuver you know the sort of thing your wheelchair use you're also a pensioner and yeah you know the real hard sell big boy pressure stuff So after about 10, 15 minutes of his bullshit, I decided that I was going to go.

But he kept on and on and on and my fuse was getting shorter and shorter and shorter and I was getting really wound up. You know what it's like and I just had, I just said, I'm not feeling too good and I had to leave the room and an Albertine deal with it because the guy had me really stressed and yeah, I was feeling so angry, it was unbelievable. I wanted to deck the bloke, I know, that's a really bad thing and it's a really bad place to be in. But when you're under pressure and somebody knows that you're ill and they're pressuring you, it's a nasty thing to do, isn't it? So I had to suffer massive stress. Yeah, well, if a certain person had been there, that wouldn't have happened. And well, there we go. So yes, when you are disabled and you are in a wheelchair, you can be at the mercy of people. And I don't find that very, very nice. Yes. So it really is a fucked up world.

Sometimes I think what's the point? To all of this bullshit that I have to go through every day. or the stress I have to go through every day, or the pain I have to go through every day, or the headfucks I have to go through every day, the brain fog, constant spasms, the constant, the constant horrible feelings I have to go through in my head and my body. If you go through this, do you truly understand what it's like to have pins and needles in your body? Lightning bolts going up and down your spine, going down your legs. Your tongue is half eaten away because when you try to eat food, your tongue's so numb, you chew your tongue off. When your tongue starts spasming, that is the freakiest fucking thing of all, and that really, really freaks me out. It's just awful. And the thing is it plays hell with your mental health as well. And really, really, really is debilitating and people just do not realize. In fact, I believe a lot of people don't give a fuck about me or care.

To be honest, I feel like I've been pushed in a corner by everybody and just left a fucking Rot. Yeah, that's the way it feels, but there we go. Life is generally very strange, but when you have a chronic illness, or you're me, life can get very strange. Yes, so fellow humanoids and maybe aliens out there who are reading this blog, I wish you a most pleasant happy weekend. And if I have said anything that has upset anybody, I am truly sorry. And yes, everybody have a good one because I need to at some point have a good time. But the hell I'm going through, fuck knows when it's going to happen.

Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

@goblinbloggeruk - sick@mylivinghell.co.uk 𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ

⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content

Well, at the time of writing this, it's Wednesday evening ( its Tuesday lol ), and it's quite a pleasant evening. So a very pleasant evening, morning, afternoon, wherever, or whoever you are in the world. Hello fellow humanoids. Well, it's been quite a week for me, I can tell you that. Yes, it's already started. My new medical dramas are about to start coming to fruition. So, as you know, I've been waiting for a neurologist's appointment, an urgent neurologist's appointment since November. That still has not happened. So, I phoned up my MS nurse. Well, I tell a slight lie, I dropped her an email and she made an appointment to phone me. And she informed me that I need to see an immunologist. And I said, "Well, why couldn't you tell me that?" months ago.

So, I'm not angry, I'm not pissed off, I'm not really that fed up. I'm just a bit miffed, to be honest with you, because I've had to use AI to manage my multiple sclerosis and my autonomic dysfunction episodes rather than my neurologist who I can never speak to, and my MS nurse when she's not on leave, sometimes. So yes, I'm in a worse situation than I was before, and on changing hospitals, that is now all on hold. It seems I am staying with my old neurologist who does not like me, who does not get along with me, and it looks like I'm going to get railroaded again. But I do not think I am going to put up with this, so I'm going to be fighting this tooth and nail, because to be honest with you, I'm getting rather fed up of all the bollocks that I'm having to put up with and to go through, just to go and see an immunologist to get my autonomic dysfunction sorted out, which it has taken them how many years to try and sort out. They've had a good, what, 10, 15 years of sticking tubes up and down my nose, going and seeing specialists and God knows what. I find out through AI what's giving me the trouble. Yes people, AI told me what the problem was, not a doctor, not a specialist, but they also agree now with what the AI is saying because of my symptoms. If only they would fucking listen to me. Why does nobody ever fucking listen? It makes me bloody angry. I am sorry for my swearing, but I feel really strongly about this.

So, you've got multiple sclerosis and then you have all the other bits and pieces with the MS which they really don't tell you about. You're supposed to go to a group or you're supposed to go on Google and Google it. They don't sit down with you and really explain to you the living hell that you're going to be going through for the next lot of years. It don't explain to you that the condition causes other conditions to get worse and can cause conditions you would have been dormant in your body to rise up and bite you on the arse. It's like I was okay with the MS but to have severe or autonomic dysfunction as well is mind blowing. You know, they never listened to me but I shouted loud enough and they listened. But now I'm having to shout even louder to try and see an immunologist to try and get some help. Every day is a living hell for me. Every night is a living hell for me. These people do not know what I am going through.

That is why I write this blog because I want to show that I'm not the only person that is going through this living hell. There's thousands of us with chronic illnesses out there who are suffering, who are unheard, whose voices are not heard. We are pushed to the back of the queue. We are not listened to. It really is a very sad situation in this society when people do not care for the sick, disabled and elderly in their society. I think that is a damning thing about the state of our society and the world we live in. The more I look at it, the more I see money and greed and power. That's all people are interested in. The empathy seems to have gone. It's just greedy pigs at all the troughs as usual. Well, I'm going to have to say allegedly because it probably, well, I don't know, to you. Some rambling words and thoughts going on my mind which I'm not prepared to say. lol

So yes, I got in contact with the medical center today, Albertine sent an email for me to get them to get me an appointment with the immunologist to see if that would help things move along, according to the MS nurse, it will. So I received a phone call saying, "Oh, you've got to come into the surgery this morning for triage." And I said, "Well, it's autonomic dysfunction. Why have I got to come in? I just need to see an immunologist." And I really can't work out why I've got to go and see a doctor. When I know what's wrong with me, they know what's wrong with me. Yet I've got to go through this weird system. It's already been over four months. You would have thought I would have been seen by an immunologist or even a neuro by now. But I haven't. So it just goes to show that I'm 66, so I'm retired. That means I'm old. That's box one. I'm sick. That's box two. Oh, dear. Yeah. Don't listen to me. I'm old, sick and disabled. I'll go to the back of the queue and just sort of curl up and roll a little ball and just stay there and rot.

But unfortunately, I'm not going to crawl into a little ball and rot. I am going balls to the wall. No, I'm just taking it slow and I'm taking it steady and I'm taking my time. And if I get seen, I get seen. And when I do get seen, I'll be able to sit there while they treat me like an idiot, as they always do. You know, when you're in a wheelchair and you've got somebody with you, they always talk to the person and not the person in the wheelchair, don't they? So yeah, I have a list of questions. I have quite a lot of evidence and yes, I will be going armed with all the evidence and yes, they cannot easily get away with all of this rubbish because in the end, they've got to see me. I mean, why can't they just take five minutes out of their day? You know, simple really, isn't it? I think in this day and age of everything being 24/7, doctors and dentists should be 24/7 as well, 365 days a year, because that's the society we have turned into. Still, I shall go and look out of the window and I will be listening to some music. And, well, just think myself lucky that My tinnitus is on low volume today.

So, an update from the doctor situation. "Would you believe I had a phone call from a doctor's surgery this morning? And they said to me, 'Can you come in today?' to come in for a nurse for triage?' I said, 'No, I am too ill. I cannot get there.' 'Oh,' she replied. The next thing, 'Oh, I shall get you an appointment,' I thought. 'Oh great, I might get to see somebody.' 'Uh, like a phone call or something.' 'No, I now have to wait a month to see a doctor.' The only reason I got in touch with the doctors was for them to arrange an appointment for me to see an immunologist. And I now have been waiting for months. And now it looks like I am going to be having to wait more time due to people not listening and acting correctly. So yes, I'm only one more autonomic dysfunction attack away probably from something very nasty and fatal happening to me. You just cannot make this stuff up. So now I'm going to have to email the MS nurse to try and get her to get her ass into gear and also to speak to the neurologist to try and get him to do something as well because to be honest with you I don't think I can put up much longer with what is going on with me.

So yeah, as you've guessed, it's Wednesday morning that I'm doing this and I did the earlier part of this blog on Tuesday evening, I think it was. I can't remember. I haven't been that well. So please remember, have fun out there and be safe.

Still, anyway, that's enough of my ranting and moaning today. Still, I'd wish you all a very good week ahead and send you peace and healing, and hope that things go well for you all. Whomever or whatever you are, wherever, or whomever you are.

Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

@goblinbloggeruk - sick@mylivinghell.co.uk 𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ

⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

please remember I suffer with severe cognitive dysfunction this may be a confusing read. non AI content

well fellow humanoids So, as ever, the nhs have screwed up yet again. I asked months ago to be transferred from one hospital to another because the neurology department where I'm at at the moment is not the best and I wanted to go to the better neurology department. Well, I've been waiting for months for an appointment. I received two letters today and apparently they've never even heard of me at that neurology department and they said even if they had it was so long ago we've destroyed all his records.

So you can guess that I'm a bit pissed off with everything. With everything I've been going through over the past load of months. And I thought I was actually going to get somewhere. But again, I have been proven wrong. I have to suffer just because somebody can't do their job properly.

They must think that I love having autonomic dysfunction and progressive multiple sclerosis, and have a B bundle block heart issue and a weakened heart wall and everything else that's going on with me. Because as far as I'm concerned, I can't see anybody who really gives a fuck about me, apart from my own family.

They must think that I like being in pain 24/7, they must think that I like not being able to eat anything due to my condition. And then if I eat the wrong food, I end up critically ill sometimes. Really, they don't give a damn. And nobody even listens. You're patted on the head and placated.

So now I'm completely stressed out due to somebody who cannot do their job properly. I feel absolutely sick to the stomach of all the gaslighting and BS that I have had to put up over these past 40 odd 50 odd years. It's been un bloody, believable what I've had to go through and how badly I've been treated. It seems the louder you shout, the further back in the queue you go. It just seems like nobody gives a damn anymore.

So, it's Tuesday and I am completely stressed out. My neck is no better. It is absolutely unbelievable. I had no sleep at all last night and my autoionic dysfunction has been on the edge as well. So yeah, I could have done with some better news but there we go.

Sending peace, healing, love and light to whomever or whatever you are. Sentience is a thing of wonder.

Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

@goblinbloggeruk - sick@mylivinghell.co.uk 𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ

⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

Still, the holidays are over. And yes, did I have a good time? Not really. I do miss the Christmases of many, many, many, many years ago though. The big family Christmases of maybe 20, 30 years ago. So I'm hoping everybody, no matter whom, had a fantastic holiday season.

Personally, the holiday season really sucked for me. Yes, it really did. To be fair, the weather really did for me more than anything else. It seems that the south-west went uber, uber-frosty. And yes, it had consequences that are going to be felt well into the new year. Oh, the joys. Rusty 1 the van. Oh, turn the key and the battery is as dead as a dodo. And I have to go to the wheelchair services to sort my new wheelchair out in the new year. So here's hoping that I can get the AA over to come and start the van up. Here's hoping I don't need a new battery, otherwise that's going to be a real pain in the bum. That's what really annoys me. It's everything coming to a halt. It seems when the holidays arrive, everything stops and there we go. But that's just me I suppose.

Not to mention my phone driving me mad with all the text messages from the chemist, telling me that I have to be there to pick my prescription up. And yeah, I get busy people. Yeah, when you receive like three text messages and you can't go to get them because it's impossible. Yeah, it makes you wonder, doesn't it? And then I have to go and see the machine of death and put my numbers in and see what comes out. Will I break the machine? Will the machine break me? What will happen? Will the people be really happy with me? Will the chemist give me one of those knowing looks of oh here comes the man with the three wheeled trolley of death. And he's come to break my dispensary machine. Yeah, well these electrical things are not built the best, but they're a very good idea in practice. And should I say in theory they're a very good idea but in practice probably not the best.

So now it's getting in touch with the AA, get the battery sorted, probably a new battery. Oh, the joys of that. And then there's having to travel, what is it, 60 miles to go to the wheelchair services? I can't do it locally. No, it's a bit daft. But there we go, such is life. And if it's snowing, then I won't be able to go. Oh, dear. Do you know it's going to be snowing and you know the weather's going to be bad because I got a January appointment. It's never good down here in the snow. So yeah, I could be waiting even longer for my new wheelchair. Apparently it goes up and down side to side and there's all sorts of weird stuff. So I am looking forward to getting that. I bet it actually get out the house and go more places, see more people. It might be a go, oh yeah. I mean, how unreal is that? Actually go out. Actually go somewhere. Actually see people. But then again, do I really want to go out? Everybody seems to have the colds, flu, diarrhea, all these bugs and illnesses going around everywhere.

Now I'm retired. I may as well just say, hey, just don't bother ever going out again. And then I'll feel, well, just as shitty with the MS and the dysfunction. But hey, now at least I won't have the flu. But then again, people who deliver me food and stuff. Yeah, so it's all very well, isn't it? But self isolation can only go so far really. And then the end, you can probably self isolate the point where you never ever go outside again. And you never want to speak to anyone again. So then it inpeeds on your mental health. So yeah, some people seem to think being disabled is a very easy life. I can tell you it's not. Even doing this is making my head hurt the point that I want to stop but I'm not. That's the problem with chronic illness. You push and push and push until you can't push anymore.

So the bane of my life at the moment seems to be batteries. The joys of batteries and battery discharges, batteries exploding, batteries that don't do what they say on the label. Honestly, I think I've spent most of my money on replacement batteries over the past load of years. It's quite incredible. And it's always just outside the guarantee as well. So you're thinking, "Ah, yes." No, it seems all the electrical stuff doesn't last very long these days. I can remember having a radio solid state when I was only a teenager that I still probably had up until a few years ago. That's how long stuff used to last 40, 50 years. These days things can't last five minutes. It's a bit weird that. Seems things got better but don't last as long. That is very strange.

January is coming and let's hope the weather warms a little. The physiotherapist is coming over to see me in January for a look over I believe. So that should be interesting. Let's see what new exercises they can give me to help me. I'm sure they're very helpful. The person sounded very helpful and very knowledgeable on the phone and I'm looking forward to this appointment. but still waiting to hear from the neurology department as I want to get into this dysfunction business with them so they can help me out more. It really is a silly thing sometimes. I should have moved hospitals years ago, but I didn't and now I'm regretting that I didn't. So yeah, yes, that's down to me unfortunately. I am fed up with all these symptoms down the left hand side of my body, like my body has had a stroke. Yes, this dysfunction or auto dysfunction or however they say it or spell it is causing me hell. Because I cannot have any histamine in anything I eat, otherwise it sends me into this really weird place. But I am having to try and deal with it, but it is causing me heart issues as well. So I am waiting to hear back from a cardiology thing as I had a heart monitor for a week as well. Yes, I know what I think is wrong with me and I am just waiting back to hear that it is not as bad as it could be, but it is still bad if you know what I mean....

So to be honest, I've spent the whole of these last past few days trying to relax and de-stress. It's been very cold here. I've been trying to stay warm. I've been really getting into trying to get my diet sorted out. Now I know what's really going on. And that's starting to help. Believe me, change of diet is everything. It done half-help, I'll tell you. MS and this autumn Munich dysfunction. Oh my word. Food really, really causes hell with it all.

Yeah, well, now my spelling. I'm using voice to text to do this as my fingers are completely numb and I cannot feel anything with my hands at the moment. My voice is slightly croaky and some of my words are, well, not what they seem. It's just too funny. But I refuse to put my words through AI as it sanitizes and changes my words too much. So you'll probably see the complete change in my writing style. Yeah. But there we go. I was told use your own words. Don't let the AI change your words. Then your real real words are true, genuine, not sort of AI made up stuff.

I have not forgotten about doing my spoken blog either and that is now being sorted out. We have a Spotify account and we are just getting everything ready and I have to get the confidence and I have to get my head together to do it as well. So that should be fun.

Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

@goblinbloggeruk - sick@mylivinghell.co.uk 𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ