MS dark humour health blog

⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content

Good evening, good afternoon, wherever you are, fellow humanoids or extraterrestrials, or inter dimensional beings, whomever or whatever you are, hello and welcome to my blog.

Well, it has been quite a weekend and quite a few amazing days to start the week with. Yes, things have been quite hectic this week and this weekend, to be honest with you all. I have been doing in depth family tree research witch was absolutely draining and now I am paying for using up all my spoons, The brain fog has started to creep in, the pins and needles. Yes, everything is going. Slightly haywire. It looks as though I'm going to have to this afternoon, going to a dark room with no sound and just lie down. And I think that's going to be it for a while, as I can't see myself doing anything when I'm feeling like this. Still, unfortunately I'm going to have to keep this short, so sending everybody out there peace healing, love and light. And remember, a nothing burger could be UAP / UFO disclosure. We might not know for a while, but when we do, that might be quite interesting. Stay well everybody. until next time...

Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

@goblinbloggeruk - sick@mylivinghell.co.uk 𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ

⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

please remember I suffer with severe cognitive dysfunction this may be a confusing read. Some AI written content

What Causes Multiple Sclerosis? A Simple Explanation

And a very good afternoon to all my fellow humanoids and NHI readers, I trust all is well in your world or even realm... uap/nhi drop coming soon as well!!

Multiple sclerosis (MS) is a condition where the body’s immune system mistakenly attacks the brain and spinal cord. Over time, this can disrupt how nerves send signals, leading to problems with movement, vision, balance, and energy levels.

Scientists now believe MS doesn’t have a single cause. Instead, it develops when several factors come together: genes, infections, and environment.

1. Your Genes: The Starting Point

Some people are born with a higher chance of developing MS. This doesn’t mean they will definitely get it, just that their immune system is more sensitive.

Researchers have found many small genetic differences linked to MS. The most important ones affect how the immune system decides what is “safe” and what is “dangerous.”

Think of it like this: some people are born with an immune system that’s a little more easily confused.

2. A Common Virus: Epstein-Barr Virus (EBV)

Almost everyone is infected with Epstein-Barr virus at some point in their lives. It often causes mild illness or sometimes glandular fever.

What’s interesting is that nearly all people with MS have had EBV in the past.

Scientists think EBV may “confuse” the immune system in some people. After infection, the immune system may accidentally start attacking the body’s own nervous system instead of just fighting the virus.

This is currently one of the strongest clues in MS research.

3. Lifestyle and Environment

Certain everyday factors may increase or reduce risk, especially when combined with genetics.

Sunlight and Vitamin D

People who get less sunlight—especially during childhood—seem to have a higher risk of MS. This may be linked to vitamin D, which helps keep the immune system balanced.

Smoking

Smoking increases the risk of developing MS. It may cause inflammation and make the immune system more reactive.

Weight in Teenage Years

Higher body weight during adolescence is linked with a higher risk of MS later in life. Scientists think this may be due to long-term effects on inflammation and hormones.

Where You Grow Up

MS is more common in countries farther from the equator. Interestingly, if someone moves to a different country when they are young, their risk often changes to match their new environment.

This suggests that childhood exposure is especially important.

4. It’s the Combination That Matters

MS usually doesn’t come from just one thing.

It seems to happen when:

A person has a genetic tendency They are exposed to EBV Environmental factors like low sunlight or smoking add extra pressure

When these factors overlap, the immune system can become misdirected.

5. What Happens in the Body

Once MS begins, the immune system starts attacking the protective coating around nerves in the brain and spinal cord.

This damage can:

Slow down nerve signals Cause symptoms that come and go And over time, lead to lasting nerve injury

Even when symptoms improve, some quiet damage may still continue in the background.

Summary

MS is not caused by a single trigger. Instead, it develops through a mix of:

Genetics (how your immune system is built) A common virus (EBV) Environmental factors like sunlight, smoking, and early-life conditions

Scientists are still working to fully understand it, but one thing is clear: MS is a complex condition shaped by many small influences coming together over time.

wishing everybody peace healing love lite no matter whom what or where you are... I'm drifting through the digital fog like a ghost ship in a magnet storm

Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

@goblinbloggeruk - sick@mylivinghell.co.uk 𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ

⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content

Remember waking up to crackling radios and rock ‘n’ roll drifting through the air… before life became complicated?

Well, good morning, good afternoon, good evening, wherever you are, fellow humanoids and NHIs. Yes, it's the weekend and my weekend starts here. Do you remember those words back on the radio back in the 60s and 70s if you're that old? I do. I used to remember the weekends when I used to wake up and you used to hear the rock and roll music blaring out of the old transistor radio. Yes, listening to Tony Blackburn and radio one back in the 60s and 70s. What a lovely sunny, sunny morning you used to wake up, listening to Ed Stu-pot and his weird weird stuff. What absolute memories of a blast from the past. I know it may sound very cheesy now, but the music back then was essentially amazing. Some of the bands they had then still stand the test of time, even on these times that we live in now. And more so, I often think.

fun and motorcycles seem to go together

So when I was really, really young, I used to have a dirt bike and I used to take it up to the old railway track. And I suppose I would only have been 9, 11. When we used to do this myself and a group of friends and we used to spend the weekend just having fun. Without any care in the world whatsoever. It was an old gellira 80 and wow we used to do insane things riding up steep banks making jumps jumping over people doing all the sorts of things these days that would oh my god yes you'd need a safety man there and all sorts of safety equipment because it definitely wasn't health and safety time then my word no somebody could have really got hurt But it's only when you look back that you sadly realize these things, because when you're young you think you're completely indestructible. So most weekends we would take our old bikes, wheel them up to the old railway or the farmers field and we would spend the morning or an afternoon scrambling and riding around. Nobody really bothered us, nobody really cared. And we just had loads and loads of fun. On a Saturday and a Sunday afternoon, bothering no one. But that was the late 60s, early 1970s. Boy, how things have now changed.

Chemist's machine from hell.

Well amazing news on the chemist's machine from hell dispensing automation units. It's not going to have a problem with any of my prescriptions anymore. Isn't that fantastic? I went into the chemists and I've now managed to get it all sorted out. Oh wow. Yeah, that saves me many frustrating visits to the chemist. Trying to put a code into a machine that did not like me, that hated me, that I am sure when it saw me coming thought ah, we will get him, he will not get his medication. So I'm looking forward to my next prescription. Oh yes indeed. When I get my medication I will be hoping that it will go as smooth as smooth can be. But we will see. The thing is I don't like pressing buttons unless I've got gloves on because you never know what you can catch from buttons that you press. Oh indeed always remember take a pair of rubber or plastic gloves with you when you have to open doors and use petrol pumps etc because it's amazing where bugs and lurgies lay waiting to pounce Giving you a severe diarrhea dilemma or even a vomit virus. and a lot of people don't wash their hands and when they go to use a petrol pump or a door handle well there we go. So there we go take care when you're out there and remember wash your hands thoroughly wherever you go. I know I do.

Things I take with me on a trip.

I suppose the most important thing for me is to make sure I have everything on a trip. So even if it's to the local doctors or the local shop or even far away, I always make sure I have a bag packed in case of emergency because you never know when you're going to need things.

I always make sure that on my phone I have my ice numbers, that's in case of emergency numbers that people can phone. Well, in case of an emergency. And of course there's various articles of spare clothing and various medications. Always remembering to keep hydrated and to take a bottle of water with you as well. Yes. I can carry medical cannabis with me, funnily enough. So I have to keep my prescription with me when I carry it. So that's very weird. It's a very strange feeling when you're going in your power chair around a shopping center. And you've got a pot of cannabis on you and you're going past a policeman for instance. You sort of stop and you're sort of there thinking, "My God!" You know, that really does give me a head trip. But me personally, I have found that police very helpful when I have had dealings with them. In fact, they've always been very helpful. But that's on the occasions I've needed them. But I find them quite cheerful overall. And I suppose if you treat them with respect, they'll treat you with respect. And that's the way I think we should always pay respect to doctors, nurses, firemen, ambulancemen, and all the people out there who put their lives at risk for us.

Yes, we really should say a big thank you to all of them, no matter who they are. Even if it's down to the loneliest cleaner, we should say a massive big thank you. And I suppose that goes for most people in the community in the society we live in. You know, if we're all to be more polite and happier and smile towards each other, things might slowly change. But that's just me thinking a little bit outside of the box, remembering how things used to be in the 1960s and 1970s, and seeing things change so drastically. It's heartbreaking seeing some of those changes that have indirectly incurred on people's lives. It is truly, truly sad.

The weekend and AI

I was hoping to actually go somewhere this weekend, but there is nothing going on, nothing happening around here. So I guess I'm stuck inside again this weekend. I am still working on the AI project and I'm running an AI from my own computer now and not using the main server. I'm using my PC instead. I must say the answers that I am getting is a lot better than we would have got from the filtered AI on the usual AI platforms. Still, looking out the window it is very hot this morning, and my word, I think we're in for a scorching weekend. Saturday morning, looking out the window, oh my god, the weather is blowing me away. I think I'm going to have to get my power chair out and go for a ride this afternoon. Yes, indeed, it will be fun. But then again I might not. Just depends on how things go. My autonomic dysfunction is giving me a bad underlying feeling today and yeah that's not very pleasant. Tinnitus has calmed down quite considerably today which is itself a miracle. So I suggest if you're in a sunny place and get lots of sunshine and vitamin D, hydrate and go out and get warm and feel the warm sunshine rays of healing on your skin.

Still sending everyone who reads this blog, peace, healing, love and light, to whomever and whatever you are and wherever you are from.

Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

@goblinbloggeruk - sick@mylivinghell.co.uk 𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ

⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content

A chaotic yet victorious weekend of repairing a bizarre three-piece wheel hub, silencing squeaky bearings, and preparing the “Three-Wheeled Trolley of Death” for its triumphant return. Alongside the mechanical madness, a milestone of over 300 self-produced AI-enhanced music tracks marks a creative breakthrough.

The Three-Wheeled Trolley of Death is BACK

Well, good evening, good afternoon, fellow humanoids out there in the land of... Well, wherever we are at this time... And place in space. It has been quite the weekend so far. It took me a week, but between myself and Albertine and one of our neighbors, we managed to fix the puncture on the three-wheeled trolley of death. Yes, three people to change a inner tube , but putting the new tube in was not the easiest. I have never encountered taking the front of the wheel hub off. Yes, it was a really weird wheel. I encountered two putting two halves to make a whole wheel with the tube and the tire sandwiched in between. So I managed to get both the wheel nuts off both sides and guess what, there was no lubrication or anything on the bearings for the wheels. So a couple of squirts in there and we have got rid of the squeaks. So hopefully the three wheeled Trolley of Death won't squeak like a squeaky chair on cheap cola.

Still, as I look out of the window, I do see the sun but I see the sky and the clouds of doom are heading towards us im afraid, so it looks like I'm not going to be able to test the three-wheeled scooter of death till tomorrow. But the good news is, the Tyre is still up. Yes, so we didn't fail there. And I'm very much looking forward to taking it out tomorrow on its maiden voyage. It's had a lube job as well on all the bearings because it was the squeaky-squaky machine from squeaky land. Indeed, Albertine was embarrassed to be near me. That's how bad the squeak really was. Now the cat has decided to use my leg as a sharpening implement. Well, it's a good job, I can't feel that, isn't it really? And now she's jumped on my lap and yes, I've had to stop doing what I'm doing because she demands that I give her a good belly rub. Ha ha!

Still, the most amazing thing is I've now got over 300 music tracks that I have now produced. And I'm now using my own voice as well, would you believe? I'm using AI synthesis of some description. This is even better, so not only am I using my own lyrics, I'm now using my own voice. This is just like totally bonkers. I never would have thought this possible in all those many years that I've been alive. As basically, wow, it blows my mind the technology that we have these days and the things we're able to do, isn't it just so wonderful? Yet we can't find anybody to fix a pothole. Oh dear me, such is life though eh?

Still, I went out this morning with Albertine and the Tyre has stayed up and I made sure that the nuts were tightened up on the wheels and the bearings were lubed. We have no squeaks and all the Tyre are ready to go, so the three-wheel trolley of death gets its major outing again tomorrow. Oh yes, will it go faster? Well, anything's fast and about two miles an hour with a brake stuck on. Still, sending everybody peace and healing and trusting that you've had a good weekend as it comes to the end. And hopefully next week will be a better week for me and everybody else out there.

I write in ink and fury, in breath and broken bone.
Through storm and silence, I survive. That is the crime and the miracle.

@goblinbloggeruk - sick@mylivinghell.co.uk 𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ

⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

Ah, summer. Sun, ice cream, holidays… unless you’ve got multiple sclerosis. Then it’s basically the devil turning the thermostat up just to watch you squirm.

Welcome to Uhthoff’s phenomenon — or as I call it, “boiling alive in your own nervous system.”

What the Hell Is It?

Uhthoff’s phenomenon is when heat makes your MS symptoms worse. Not permanently, just temporarily. But temporary doesn’t mean pleasant — it means your body throws a tantrum until you cool the hell down.

Why? Because MS already stripped the insulation (myelin) off your nerves. Heat makes that damage even more obvious. It’s like taking a half-broken wire and then running extra current through it — sparks, short circuits, total chaos.

Triggers: The Everyday Tortures

Hot weather → 25°C feels like the Sahara.

Exercise → five minutes of effort and I’m a puddle.

Hot showers or baths → who knew basic hygiene could become extreme sport?

Fever → as if being sick wasn’t enough.

Sitting in a stuffy room → congratulations, you just bought a ticket to hell.

What It Feels Like

Pick your poison:

Blurred vision — like someone smeared Vaseline over your eyes.

Weakness — your legs forget they’re supposed to be legs.

Balance — wobbly as a drunk pigeon on roller skates.

Fatigue — next-level exhaustion, like gravity tripled overnight.

Brain fog — thoughts move slower than dial-up internet.

All your regular MS crap, amped up by heat.

The (Small) Mercy

The only good news? It’s temporary. Once you cool down, things usually settle back to “normal” (whatever your personal version of normal is). You’re not getting worse long-term — you’re just being tortured in the moment. Lucky you.

Coping (aka Not Melting to Death)

Stay hydrated (yes, I know, bladder hell — but dehydration makes it worse).

Fans, cold packs, cool showers.

Avoid heat like it’s an ex who still owes you money.

Build your life around shade and air-con if you can.

Basically: treat yourself like a vampire — avoid the sun, keep cool, drink fluids, and hope the day doesn’t cook you alive.

Why Write This?

Because no one tells you about Uhthoff’s until you’re the one keeling over in the heat. Doctors might brush it off like, “Oh, just avoid hot weather.” Yeah, thanks genius — let me just move to the Arctic.

The reality is: this is part of the MS package deal. It’s crap, but it’s survivable. And if nothing else, talking about it means the rest of us don’t feel like we’re losing the plot when our bodies shut down on sunny days.

So next time you see me looking like a melted candle in a conservatory, know this: it’s not laziness, it’s not in my head — it’s just Uhthoff’s. And it can piss right off.

I write in ink and fury, in breath and broken bone.
Through storm and silence, I survive. That is the crime and the miracle.