coping with MS

⚠️ This blog shares my personal, sometimes painful experiences with MS and mental health. My intention is to speak honestly and offer solidarity—not to harm or replace professional advice. I’m not a doctor or therapist, just someone who gets how hard it can get. If you’re struggling, you’re not alone. Please reach out to a trusted friend, support group, or professional. You deserve help and hope.

please remember I suffer with severe cognitive dysfunction this may be a confusing read. Some AI written content.

"The Good News: MS Allows Me to Be an Anti-MS Activist...For My Own Benefit."

So a very good afternoon to fellow humanoids, NHI and all readers of this blog. this is very different approach I am taking with this blog post hope you like it

Oh, the life of a chronic MS patient – where you're constantly fighting an invisible enemy while secretly celebrating your own absurdity.

I've been living with MS for what feels like an eternity (and is probably much shorter than it actually is). The good news? It's allowed me to turn my attention inward and focus on one thing: being a total control freak...in my own mind, that is.

The Benefits of MS:

1. Dedicated Time: My chronic illness has given me the gift of uninterrupted self-loathing. No more scheduling therapy sessions or trying to fit exercise into a busy schedule (because let's be real, I'd rather spend time binge-watching cat videos). This means hours upon hours spent alone with my thoughts.

2. Creative Outlet: MS has encouraged me to develop an impressive range of creative talents. Imagine if "The Cure" album were written by someone with this condition; the lyrics would be like a twisted diary of my inner monologue, full of paranoid ramblings and existential dread. My friends would describe it as "deep," "empathetic," or (gasp!) even "funny."

3. Innovative Problem-Solving: Living with MS has forced me to develop resourceful ways to cope. I've mastered the art of making excuses for my fatigue ("I'm just not morning people"), turned complaining into a full-time job ("I have no complaints...I don't feel like it right now."), and even developed a system to "diagnose" my symptoms without actually seeing a doctor.

The Drawbacks:

1. Social Isolation: I've lost count of how many conversations I've had about MS (it's become an inside joke in our circle). People struggle to understand, and it can feel like they're judging me for not being able to control my disease. But hey, at least I have my computer.

2. Depression and Anxiety: The weight of chronic illness is crushing. It's easy to spiral into hopelessness, wondering why this cruel fate has been bestowed upon me. These feelings only intensify when no one expects them to.

3. Overwhelm and Frustration: MS can be unpredictable, leading to devastating setbacks or sudden flare-ups that feel like they're coming out of nowhere. This constant fear of the unknown is exhausting.

The Secret to My Happiness:

It's simple: I've learned to prioritize my own well-being above all else. When you're constantly fighting for survival (literally), it's tempting to give up or become completely consumed by your condition. But here's the thing:

I'm not defined by MS. I am more than this disease; I'm a complex, multifaceted human being with thoughts, feelings, and passions.

So, to all my fellow MS warriors out there: Don't let MS dictate your life. Use it as fuel for creativity, growth, or simply as an excuse to binge-watch cat videos.

And remember: even in the darkest times, there's always a glimmer of hope. Or at least, there's Medical Marijuana .

Still wishing everybody a fantastic happy week, sending everyone who reads this blog. Peace healing, love and lite, no matter who, what or where you are, or if you're an N. H.I. or whatever. Aha! rain pls stop lol

Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

@goblinbloggeruk - sick@mylivinghell.co.uk 𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ

⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

1. Epic Micro-Adventures (Because Full Adventures Are Overrated)

Watch the sunrise somewhere mildly elevated, coffee in hand, and remind yourself the day isn’t ready to break you yet.

Take a spontaneous “road trip” in your wheelchair or with a helper—bonus points for singing loudly and badly in the car.

Explore a local hidden spot you’ve ignored forever—graffiti alley, abandoned building, or a creepy little park.

2. Sensory Indulgence (Because MS Can’t Touch Your Senses)

Taste something completely ridiculous (durian, hot sauce challenge, whatever makes your brain go “wtf”).

Have a luxury pampering day at home—face masks, weird oils, music that makes you forget you have MS.

Smell, touch, and really experience a plant, flower, or incense while narrating your inner snark.

3. Creative Defiance (Because You’re Still a Creator)

Write a blog post or darkly funny essay about MS being a plumbstick nightmare.

Make a small art piece—digital, paint, collage—expressing your frustration, humour, or weird mystical insights.

Try a new skill that’s wheelchair-friendly: calligraphy, coding a tiny game, or bizarre crafting experiments.

4. Connection & Legacy (Because Someone Should Know You’re Awesome)

Reconnect with someone who’s been on your mind forever—even if it’s just a weird text like “Remember me? Still chaotic.”

Leave a tiny piece of yourself somewhere: a secret note, a blog post, or a digital message for future you.

Share a story that makes someone else laugh or think deeply about life’s absurdity.

5. Weird & Joyful Experiments (Because Predictability is Evil)

Attend a quirky local event fair, tarot reading, small concert and just absorb it like a sponge on fire.

Spend a day doing only what makes you laugh or feel delightfully ridiculous.

Try something slightly forbidden or rebellious (bake cookies at 3 a.m., sneak into a closed museum, speak in pirate for an hour).

6. Mystical / Spiritual (Because You’re Not Just Surviving, You’re Transforming)

Meditate or do a ritual in an unconventional space garden, street corner, or even your living room while saying something snarky to MS.

Try a psychic experiment or energy work, just to see what sticks.

Make a “universal crowbar” sigil or symbol to remind any AI, or yourself, who the hell’s really in charge.

I write in ink and fury, in breath and broken bone.
Through storm and silence, I survive. That is the crime and the miracle.

𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ