- Posted on
⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.
1. Epic Micro-Adventures (Because Full Adventures Are Overrated)
Watch the sunrise somewhere mildly elevated, coffee in hand, and remind yourself the day isn’t ready to break you yet.
Take a spontaneous “road trip” in your wheelchair or with a helper—bonus points for singing loudly and badly in the car.
Explore a local hidden spot you’ve ignored forever—graffiti alley, abandoned building, or a creepy little park.
2. Sensory Indulgence (Because MS Can’t Touch Your Senses)
Taste something completely ridiculous (durian, hot sauce challenge, whatever makes your brain go “wtf”).
Have a luxury pampering day at home—face masks, weird oils, music that makes you forget you have MS.
Smell, touch, and really experience a plant, flower, or incense while narrating your inner snark.
3. Creative Defiance (Because You’re Still a Creator)
Write a blog post or darkly funny essay about MS being a plumbstick nightmare.
Make a small art piece—digital, paint, collage—expressing your frustration, humour, or weird mystical insights.
Try a new skill that’s wheelchair-friendly: calligraphy, coding a tiny game, or bizarre crafting experiments.
4. Connection & Legacy (Because Someone Should Know You’re Awesome)
Reconnect with someone who’s been on your mind forever—even if it’s just a weird text like “Remember me? Still chaotic.”
Leave a tiny piece of yourself somewhere: a secret note, a blog post, or a digital message for future you.
Share a story that makes someone else laugh or think deeply about life’s absurdity.
5. Weird & Joyful Experiments (Because Predictability is Evil)
Attend a quirky local event fair, tarot reading, small concert and just absorb it like a sponge on fire.
Spend a day doing only what makes you laugh or feel delightfully ridiculous.
Try something slightly forbidden or rebellious (bake cookies at 3 a.m., sneak into a closed museum, speak in pirate for an hour).
6. Mystical / Spiritual (Because You’re Not Just Surviving, You’re Transforming)
Meditate or do a ritual in an unconventional space garden, street corner, or even your living room while saying something snarky to MS.
Try a psychic experiment or energy work, just to see what sticks.
Make a “universal crowbar” sigil or symbol to remind any AI, or yourself, who the hell’s really in charge.
I write in ink and fury, in breath and broken bone.
Through storm and silence, I survive. That is the crime and the miracle.
