Multiple sclerosis is My Living Hell

raw stories

All posts tagged raw stories by Multiple sclerosis is My Living Hell
  • Posted on

    🎗️ This Blog is a space for honest conversations about my personal experiences with MS, mental health, and the weird paranormal, liminal, and everything in between. I’m not a doctor, therapist, or expert in the unexplained; I’m just someone sharing my story and offering solidarity. If you’re struggling, please reach out to a trusted friend, support group, or professional. And if the weird stuff sparks your curiosity, remember: stay open-minded, but always prioritise your well-being.🎗️

    please remember I suffer with severe cognitive dysfunction, and use AI to proof read and help solve this issue so you can understand it

    The First Proper Podcast

    Well, it looks like I've finally got all the technical problems sorted out with the podcast. So next week, I'm going to record the first proper episode.

    And believe me, this one is going to be quite interesting.

    The subject is MS — and what happens after you're told those two little words: Multiple Sclerosis.

    Because nobody really tells you what comes afterwards.

    What happens to your family? What happens to your friends? What happens to your relationships? And what happens to you when your life suddenly changes forever?

    I'm going to talk about my own experience. How people didn't believe me. How some people simply didn't want to know me any more because of those two stupid little letters: MS.

    It's going to be raw. It's going to be honest. And yes, you're going to hear it straight from the Warlock's mouth.

    No fancy production. No pretending everything is perfect. If I get brain fog, you'll hear the brain fog. If I lose my train of thought, you'll hear me trying to find the bloody thing again. 😂

    That's the whole point of this podcast.

    It's real.

    I'll probably also touch on adoption, because strangely enough, that is connected to my MS story. But I won't be telling the whole story in this episode, because my adoption deserves an episode of its own.

    That story goes back to when I was a child — when I was a waif and a stray, as they used to say. My older sister was taken away too.

    And there is a much bigger story there about being taken from our mother, being adopted, and what happened afterwards. My mother told me herself, when I eventually met her, that she didn't want me to be taken from her.

    That is a story I will tell.

    But that's for another episode.

    For now, we're going back to those two little letters:

    M. S.

    What they did to my life. What they did to the people around me. And what happened afterwards.

    So if you've been following the blog, thank you.

    And if you've listened to the test podcast, thank you for putting up with the world's least fancy podcast production. 😂

    There won't be bells and whistles. There won't be loads of editing.

    There will just be me.

    The real, unedited Warlock.

    So stay tuned to mylivinghell.co.uk

    The first proper episode is coming sooner rather than later — assuming my brain fog allows me to actually go deep enough to record the bloody thing.

    Have a fantastic weekend, take care...

    And I'll see you on the other side.

    — The Warlock

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)
    ☣ This Is Not A Blog About MS This Is My Life With MS ☣

    Tumblr is @livingwithmsblog twitter@livingwithms email warlock@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
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  • Posted on

    ⚠️ This blog shares my personal, sometimes painful experiences with MS and mental health. My intention is to speak honestly and offer solidarity—not to harm or replace professional advice. I’m not a doctor or therapist, just someone who gets how hard it can get. If you’re struggling, you’re not alone. Please reach out to a trusted friend, support group, or professional. You deserve help and hope.⚠️

    please remember I suffer with severe cognitive dysfunction, and used no AI to proof read and help solve this issue so you can understand it

    Well, it's Sunday morning, and it seems that most things are back to normal. Yes, it has been quite a week. That is for sure. All hell has broken loose, and everything was restored. So I wish all the readers of this blog a very happy good Sunday morning or afternoon or evening, wherever you may be, or wherever you may be from .

    Hacked! Oh my god!

    Well yes, on Tuesday morning at one o'clock, my living hell block got hacked and taken down unfortunately. It caused me a massive stress attack and it really sent me careering downhill health-wise as well. I just could not believe somebody would want to take out a blog about multiple sclerosis. It was completely beyond me why anybody would want to do that. So yes, I spent all of Tuesday and most of Wednesday in a seriously bad place. And then on Thursday things got a little bit better. Then on Friday everything went to hell in a hand basket, that's for sure.

    Good news, bad news.

    So, along came Friday and I had to drive Albertine to the hospital. And as you know, I cannot stand driving a two-hour round trip drive completely screws me up beyond anything you could imagine. The concentration alone is a killer. So as usual we left a couple of hours earlier than we needed to because when you get to the hospital every single disability place is gone you only have to go to their multi-story car park now which is usually full. So yeah you've got to get there really early and spend just about an hour looking for a parking space which is totally insane. So we get to the hospital and I spend about 20 minutes looking for a parking space and luckily yes there was a space and this was just before 9 in the morning. So the outcome of all this was Albertine, got the rest of the necrosis removed from her finger. Yes, so she's got to go again to hospital in her for three weeks to have the rest of the dead stuff removed apparently. So yes, she got back into the car after about half an hour's risk and I managed to drive home. But of course, I got home and I am feeling really, really bad because the night before I had not much sleep at all and my bowels were in stressed out hell and if you've got MS and you have bowel issues with your MS, you know what that's like to become stressed. It's not good. It screws with your whole system. Yes, it does. From the tip of your head to the bottom of your little toe. So I'm going off the subject a little bit like I usually do. But yes, when I got home I felt like hell and then I had yet another day in bed. I was feeling incredibly ill. It just really screwed me up and I was quite brain-fogged every part of my body ached and it just seemed like it was a relentless, horrible thing, you know? If you experience it, you know what I mean, but people have never experienced it. You can't really explain how just a simple drive of an hour can make you feel so ill you That sometimes you just don't want to carry on.

    Thank you

    But the good news, the server is all sorted out and up and done thanks to the web hosting company. Thank you Zfast. And I would also like to take time out to all the people who reached out to me as well over different forms of social media. I would like to thank you for your support. It means an awful lot to me. And that is why I'm going to carry on doing this blog. If you go back maybe two, three, four months ago, one of my blog posts, I had started a podcast and it didn't go very well. But now I've decided that I'm going to do my own Living Hell raw podcast. So that should be interesting. I probably won't hold back either. I will be talking about my whole life. It's going to be quite interesting because guess what? I'm going to be talking about a lot of things that people will say, "Hey man, you believe that? You must be eccentric. Yes, I am eccentric." I'm going to be talking about things that will literally blow your minds. Yes indeed. Or is it just the MS making me think that? We will know.

    So sending all the readers of this Blog, peace, healing, love and light, and may you have a most amazing weekend.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)
    ☣ This Is Not A Blog About MS This Is My Life With MS ☣

    twitter@mymsjourney - warlock@mylivinghell.co.uk
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