Multiple sclerosis is My Living Hell

paranormal

All posts tagged paranormal by Multiple sclerosis is My Living Hell
  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content

    And a very good afternoon to all my fellow humanoids and NHI readers everywhere and anywhere.

    So it's Friday afternoon and it is looking quite okay outside. Very cloudy. Very, very cloudy. It's sort of, It might rain. It might not rain. But then again, it's been quite the week so far. We managed to get the two cats vaccinated today, so they will be allowed to go out into the wilds next week. That was a definite adventure for both of the kittens who are now not so little anymore. And now nine months old, I can't quite believe it. they have grown so large in the size in a short amount of time. They've been with us.

    d1 Transport woes, oh indeed not good.

    Well, in the week I had the misfortune to do a three-hour return trip into mid Devon and back, and oh boy, I felt really, really bad. My back, my shoulders, in fact, my whole body feels rattled to total death. Unbelievable. My neck, it's just like my whole body has just gone, nah, I shouldn't have done that, mate, and it's decided to give up on me. Luckily I was not driving, I have not driven for many years now, and Albertine was playing spot and missed the pothole. Yes indeed, and when you're carrying a chariot of death in the back of the van with some weight, then half give a clunk. When you hit a bump I must say. And now we find out that the one has a slow puncture. Oh, the joys. So we're going to have to take that to our local tire shop and get that sorted out.

    rusty one

    But the worst use is Rusty One is going for an early MOT. And this could be the end of Rusty One. This could be the one bill too far unfortunately. But we live and learn and we will soon see in two weeks time what will happen. As I know there's quite a few things that need doing and it's going to cost quite a lot of money. But when you're stuck in the middle of nowhere, you have to have transport. Otherwise, you go absolutely nowhere. We are lucky here, we have a local milkman who delivers eggs and milk and we have a brilliant farm shop as well, just down the road. So I can't complain. Food here is quite good for what I need, that's what counts the most.

    good news i hear you say ! Neurology appointments two weeks time.

    Well, I had a phone call at 5 to 9 this morning from the neurologist's secretary. And guess what? I've got an appointment for two weeks time. How unbelievable is that? It's not over the phone. It's a personal go to the hospital visit. Ooh! So, I'm going to get my medical AI fired up with every symptom and everything that has happened to me over the past, well, five years since he took me off his books and has ignored me. Yes, my doctor went and kicked some ass and finally people are starting to remember that I fucking well exist about time I say so, but then again, of course this neurologist does not like me. He thinks I'm weird because when I first saw him, of course, I was riding an 1100cc Yamaha drag star, long hair, long beard, biker clothing. I look well, you can imagine what I look like people. And of course, when you're in your sixties and you're dressed like that, it sort of makes them feel a bit strange. And then of course I actually knew what I was on about and he didn't like that because it questions his God complex. And also guess what? Get out of your wheelchair and I will give you loads of drugs and smarties. And I kind of looked at him and said, "Nah, I'm happy where I am, thank you." And then after that, he just sort of let me out to pasture, I think, and I only ever spoke to an MS nurse for five to six years. Never heard or saw hide nor hair of the neurologist until my doctor had told me that I was under no neurology department. And he was shocked and he was very angry. I would say the word "pissed off" would sound more the word I was looking for.

    UFO, UAP and much strangeness.

    So we are seeing four types of alien or non-human intelligence reported by the government that are the extraterrestrials or NHI that have been visiting our planet since Roswell. And I would hazard a guess thousands of years before that. If this is not Project Blue-beam, then it will be a very interesting thing. As I am looking forward to meeting these inter-dimensional non-human intelligence's, as I would like to have a very deep chat with them about certain things that have happened to me over my 66 years on this planet, with the weirdness of tricksters and other strange things that have been going on in my life that I would like to understand. And they also say that these aliens could be demons or Nephilim, or they could be angels or fallen angels or whatever they are. It's a very interesting thing because everybody's got their own take on this. Personally, I don't know why any extraterrestrial intelligence would want to get in touch with us as we are such a war-like planet. To be honest with you, we seem to find something new and if we want it we just go and take it and that's my take if we went out to space what we'd be like and maybe that's why we are living in a simulation. Yes indeed, simulation theory, it's something maybe you should go up and look at because it does not say "Oh there is no God" in fact it talks about the demi urge , gnosis etc. It is really worth looking up and doing some research.

    Still, I wish everybody who reads this blog no matter who, where or what, where you're from, a fantastic, happy weekend, and if you're in the UK, have a happy bank holiday weekend. And don't do anything I would do.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    please remember I suffer with severe cognitive dysfunction this may be a confusing read. no AI written content

    Living with multiple sclerosis has changed more than just my physical health it has altered how I perceive the world itself. Over time, I’ve learned to distinguish between neurological visual disturbances and something far more complex. From small, cube-like shapes to large, intricate forms, and even unexplained orbs captured on infrared camera, this journey raises a deeper question: are these simply symptoms, or glimpses of something beyond our current understanding?

    Good morning fellow humanoids, or is it afternoon or evening wherever you read this? I trust that everybody has had a good weekend as you can have. Yes, it has been quite an eye-opener this weekend. Yes, there has been more things seen of the nature of non-neurological things I might add. I have decided that I can tell the difference between the shapes that my mind produces with the MS. It is quite weird. And they are small cubes or small dark squares. I would say the size of a furry speed dice from the old 1970s that they used to have in cars.

    The other liminal shapes that I see are much bigger and of a grander scale, and they are more intricate. And I believe those to be of non-human form. And I believe these are not caused by my multiple sclerosis, or any condition that I have. I have been researching this for a while now and have been comparing the things that I have been seeing. So yes, I do see some things that are to do with the MS. I see these weird small furry square dice type black squares. It's hard to describe really when you see them, but I see them now and again.

    But another startling revelation. Yes, we were watching using our IR camera and we have been recording orbs, white orbs, and yesterday we captured a white orb and then we captured something very strange indeed. We captured what seemed to be not an orb but what seemed to be shaped like a cylinder or a ruler and it seemed to sort of weave its way across the room. Not just I saw this so did Albertine as well and it's on film and I will post these films.

    Many years ago i was doing a live broadcast or a live podcast and i was chatting to viper and i was showing him live the orbs and he could not quite believe it. And then he saw the shape of the person in the van as well yes we have seen some quite unbelievable strange things over the years and i do have witnesses for quite a lot of these things that have been seen. That is why i am still trying to make people understand that. MS and what i see. And what i can do are different and that there is a marked plane difference but certain people and certain things cannot understand this.

    But as ever there are people who say it's fake film, you're making it up. Well, when you see these things like I have, like Albertine has, like even Viper, you come to realise that things are not quite what they seem. So yes, I've been going through this battle for many, many years trying to find out what is truly going on with me and I have reached some startling conclusions.

    I am not going mad. I am not insane. I believe that what I am seeing is from beyond the veil, so to speak. Yes, I know some people might think it is madness, but a lot of people might not. Maybe people with chronic illnesses or brain injuries can see things that people cannot either see because our brains have been fucked with. My brain is really bad. When I saw the MRI scan of my brain and the doctor said to me I don't know how you function. And i just sort of looked at him and said well it's just you've got to carry on you never give up. That's the thing you go through the pain you go through the stress you go through the mental torture you go through this. Undescribable life change and it changes you and it changes the way you think and the things you do and who you are and it truly makes you take stock of your life. And of all the people in your life it truly changes you.

    In fact, it will change you beyond anything that you would have thought. I am not the same person I used to be. It's changed me. People don't even recognize me. People have said I have completely 110% changed. Yes, karma. Am I? I'm not as mad. I'm not as weird. I'm not as eccentric. But that's just me. Just being quiet. not shouting out very loudly. But I digress from my original point. So there have been orbs and what have been called rods. That's something that was seen in South America in caves. And I have seen rods before using infrared and that was quite astounding as well. So, I have come to the conclusion that we do not live alone on this big blue marble, that there are many dimensions, that there are many unseen races of people, or things we do not quite yet understand, to think that we are the only sentient people is rather weird and mad, really, isn't it? it just blows my mind sometimes.. adjusts tin foil hat lol

    Still wishing you all out there peace, healing, love and light no matter who or whatever you are. Have a most fantastic week ahead.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    please remember I suffer with severe cognitive dysfunction this may be a confusing read. non AI content

    hello fellow Humanoids So, disclosure, are there such things as extraterrestrials, ultra-terrestrials, hybrid aliens from other planets from other dimensions? I have even heard of cryptoid inter-dimensional beings, no less. And to be honest with you, I was just wondering why they want to visit us on this planet, or plane, or whatever we like to call it. So yes, I have been watching some YouTube videos and I have been watching in disbelief at some of the things that I have seen and watched with my own eyes. Yes indeed, I believe that probably 75 to 80% of the videos are not what they claim to be either. I know it is a slightly contentious issue with people, but I believe that we are not alone on this earth plane. I myself have had many personal, paranormal and things happen to me that I cannot explain and that other people cannot explain to me either.

    So, I am wondering if Alien Disclosure by the American Donald Trump is a big nothing burger like the three eye atlas that flew past recently because everybody was saying, "Ooh, we're going into the fifth dimension and things are going to change for us all." I was sat in my power chair waiting. I was waiting for all these changes and yet nothing happened. I think sometimes people grab for things that try to turn their lives into something more interesting, incorporating the fantasy of the paranormal. I myself have been looked on with the Vision over the past 50 years because of my beliefs and what I have seen. Even I have changed my beliefs as I have got older and wiser.

    My theory is if they are intelligence, ultra or extraterrestrials or even races of people on this planet that we cannot see. Why would they want anything to do with us as we seem to be, well, not the most peaceful race of people in the universe?

    I also find it funny that the alleged disclosure is going to be said by Donald Trump on the alleged anniversary date of the Roswell crash in New Mexico. So that should be very interesting indeed and I'm wondering if this is a dead cat on the table or is in fact the real deal.

    I have heard many people say, "Oh, the aliens are going to invade us. They're going to eat us. They're going to kill us all and turn us all into slaves or automatons." Well, let me say one thing. Aliens allegedly have been visiting us since man crawled out of the alleged swamp. So, they could have knocked us off at any time. 15, 16, 1700s? Not a problem. So it just goes to prove my theory that they are friendly and that they don't want war with us. Because if they did, they could have done it hundreds if not thousands of years ago.

    It’s rational to believe life likely exists elsewhere.

    It’s irrational to claim verified contact without evidence.

    Governments admitting “we don’t know what that was” is not the same as disclosure.

    Humanity tends to mythologize uncertainty.

    The most powerful question isn’t “Are they coming?” but “Why do we want them to?”

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    ⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

    please remember I suffer with severe cognitive dysfunction this may be a confusing read...some AI medical content

    Well, it's Monday afternoon and I am in quite considerable pain. I can't move my neck to my left or to my right and have been unable to do for a couple of days. Pain is absolutely unbelievably bad news. I'm still carrying on, but let's hope it goes soon. Apparently, I've got some ossyphates in my neck, that's bone growths that also complicate things with

    the progressive MS and the autonomic dysfunction, yes, and a few other things wrong as well. But yeah, multiple sclerosis does not come on its own.

    It can cause other things to happen to you. Indirectly due to the MS and what it does to your body via the nerves. Find enclosed a short brief statement from an AI about what it does.

    AI Stuff Worst-case impacts of progressive Multiple Sclerosis (MS):

    Permanent mobility loss – progressive weakness, spasticity, and balance failure can lead to needing a wheelchair full-time. Paralysis – partial or, in severe cases, near-complete loss of movement in legs or arms. Severe fatigue – crushing, daily exhaustion that doesn’t improve with rest. Chronic neuropathic pain – burning, stabbing, electric-shock sensations. Loss of bladder & bowel control – incontinence or retention requiring catheterization. Sexual dysfunction – reduced sensation, erectile dysfunction, loss of libido. Cognitive decline – slowed thinking, memory problems, poor concentration (“brain fog”). Depression & anxiety – very common; risk of suicidal thoughts is higher than in the general population. Personality or mood changes – emotional lability, irritability, apathy. Speech & swallowing problems – choking risk, need for modified diets or feeding support. Vision loss – optic nerve damage leading to blurred or permanent partial vision loss. Tremors & coordination loss – severe shaking that interferes with eating or writing. Muscle contractures – limbs becoming stiff and fixed due to prolonged immobility. Pressure sores – from long-term wheelchair or bed use. Recurrent infections – especially urinary tract infections and pneumonia. Breathing weakness – in advanced stages, respiratory muscles can be affected. Increased cardiovascular risk – reduced mobility contributes to higher risk of blood clots, deconditioning, and secondary heart strain. Shortened life expectancy (in severe cases) – usually due to complications rather than MS itself. MS doesn’t directly damage heart muscle the way a primary cardiac disease does. But it can disrupt autonomic nervous system pathways in the brainstem and spinal cord — the wiring that controls heart rate and rhythm. When those signals misfire, you can see: Heart rhythm abnormalities Conduction issues (like bundle branch block) Unstable heart rate (too fast, too slow, erratic) Blood pressure dysregulation Orthostatic intolerance (feeling faint on standing) On top of that: Reduced mobility → deconditioning of the cardiovascular system Chronic inflammation → increased long-term cardiovascular risk Severe fatigue → less activity → compounding strain on the heart So while doctors sometimes treat heart issues as “separate,” in progressive MS the nervous system disruption can absolutely be part of the cascade. And the frustrating bit? It’s often under-discussed.

    thank you AI

    You see it's not the multiple sclerosis that will kill you. It is often something else. But as the AI pointed out, it's not very well discussed. It's not a very big topic. So I intend to research and do some more on this topic because it might be very interesting to some people.

    I don't think people realize just how our immune system screwed. People with MS and progressive MS have a completely screwed auto immune system. So, just a common cold to us is the worst thing that can happen. Imagine flu or something of that order. That is the worst thing that can happen to somebody with MS. Or a chest infection. That's not the best either. Or sickness and diarrhea. That's even worse. I mean, there's some of these things people don't realize. When you have an altered or a dysfunctional immune system, it causes havoc over all of the body. Yes, it does. It causes total havoc.

    So you have to relearn how to live your life daily because of all the issues that you have. And to be honest, people probably wouldn't realize what you have to do just to overcome one or two simple issues in a day. The fatigue, the brain fog, and the sheer pain and the sheer pain in the head and the pain in the body. And that feeling in the head of, I just can't go on, I've just got to go and lie down. And then when you lay down, you're just as bad as when you were standing up. Yeah, that's fatigue, mental fatigue, stress, and all those things that other people kindly put in a cupboard. and politely do not talk about either, because it is an emotive subject between couples, I would imagine, and even parents and children and parents Who are unfortunate enough to be dealing with multiple sclerosis or any chronic illness.

    So, I have been trying the Linux Mint over the past few days and it has been going quite well. I've only been managing bite size 10 minutes here and 10 minutes there. But I must say I'm learning one or two new things a day and I think that's just enough to be remembering. So on this blog post I decided to use AI Help with some of it, but not all of it, just the bits that are medical so I don't fuck up. Aha!

    The weekend was quite fraught with the kittens who were in season and Missy the kitten has taken to jumping on the top of the door and looking around the room and mewing at us. So yeah, that's all good, isn't it? So she's done most doors in the house now and we've got scratch marks up and down doors. Oh well, that means Tom the painter man's going to have to come round and sort that out.

    Still, I suppose it's the physiotherapist this week, but I may just put him off because I feel really bad, and I think that's what I'm going to do. Hopefully by the end of this next month, we should have the new garage door and side door fitted. We've been waiting for quite a time for this. And hopefully it will coincide with my new power chair, the quickie 300 that I'm getting. I've been waiting a few years, but it's definitely worth it. I'm going to be able to get out and about, and I'm able to go out and live my life and do those things that you just cannot do on the three-wheel trolley of death.

    Talking of the three-wheel trolley of death, we have to head out in the week to go to the chemists. To go and see the AI machine of certain death, destruction and dementia. The chemists machine that distributes the prescriptions. Yes, it always seems to go funny when it sees me it will break down. Yes, it is a machine that hates me. But my three-wheeled machine of death, let's hope the battery is up to doing what it needs to do. As yes, how many more new batteries do we need this year? and the three-wheel trolley of death with the brakes that are non-existent and the balance of a drunk kipper on a night out with a jellyfish whilst drinking whiskey.

    And changing the subject totally, we have seen quite a few white orbs in the living room. We have managed to record them on infrared cameras. And we are looking at the film and seeing what they could possibly be. As many years ago, I would say 30 or 40 years ago, I was handed some photographs by some very strange people claiming to be reporters from a local paper. And they handed me these photographs. And it was pictures of fields and they had these white orbs. And they were bigger than footballs. I would say two or three times the size of footballs. Now, funnily enough, I put these pictures through AI because I thought they were fake. And the AI said these photographs were genuine. But going back, this is probably the early 90s, late 80s when this paper came round. And anyway, I had contacted the paper and they'd never heard of these people before. So yeah, that was quite a mind fuck.

    This is when all the great strangeness started And in real terms has never since gone away. Just because I reported something, 'bufora' and it caused a chain of events which, to be honest with you, has blown my mind for the past 42 plus years. But still, that's life, as they say.

    Still fellow humanoids, I trust you had a great weekend. If you didn't, I can well understand. Anyhow, sending everybody out there, peace, healing, love and light, no matter who or what you are. Especially the sentient ones from all the weird dimensions and places out there. You are no doubt watching us. I'd like to say a big hello, make yourself known.

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)

    @goblinbloggeruk - sick@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
    enter image description here

  • Posted on

    Ah, cognitive dysfunction—the brain’s equivalent of tripping over a flat surface. Was it all an illusion? Ghosts, UFOs, stealth fighters, and prophetic dread… or just my mind on a downward spiral into weirdness? Either way, I’ve decided to lean in, light a cigarette, and call it a vision.

    The wind howled like a pissed-off banshee across the cliffs of Devon and Cornwall, sea thrashing violently like it just read the news. The sky? Grim as a tax return. Grey-blue, heavy, like the Earth forgot how to breathe. And then dusk hit—everything looked dreamlike and wrong, like we’d walked into a David Lynch version of Coastal Britain.

    Front and centre, the Biker Prophet sat—glorious, grim, and slightly nicotine-stained—in his custom apocalypse-grade black wheelchair. A perfect marriage of biker attitude and Mad Max tech. Chrome flashed menacingly. Leather straps held him like a pagan king ready for war. His jacket, part-open, clung to a body that had long ago said bollocks to surrender. His long dirty-blonde demi-wave hair lashed around his face, which wore a goatee and the expression of someone who’s seen the void and found it wanting.

    One hand clutched the wheel—his war-chariot. The other? A cigarette, of course. Smoke curled like forgotten omens. Dog tags hung from his hand like relics of battles fought, both real and psychological.

    Then there was Albertine—perched on her Bonneville like a leather-clad Valkyrie from 1977. Brown demi-wave hair, curves wrapped in attitude and zips, and the kind of expression that made traffic lights change just to get out of her way. She wasn’t posing. She was the pose.

    Up above, a black stealth fighter cut across the sky like a glitch in the simulation. It shimmered, bent the air, then buggered off to wherever secrets go to die. Probably to report to some intergalactic committee on whether Earth’s ready for a toaster revolution.

    The Dragstar 1100 grumbled in the background. Another ghost. Another beast of the past. And yet, he smiled.

    “I had to no longer ride,” he muttered. “I cried, but no one heard me. Except the universe. And maybe Valhalla.”

    But he came back. and Converted the bike, hello trike, I Converted fate.

    “Started riding in ’75. Rode into ’2022. Then I hacked life and rolled on. Now it’s 2025, and I’m still bloody here. Old as fuck. Still kicking.”

    Motörhead blared from somewhere. Tarot cards appeared. Palm readings followed. The biker prophet and Albertine—two relics of chaos—just were. Married 42 years, bonded by madness and music.

    And in the sky—symbols. Like ancient software updates from the gods. Runes. Scripts. Or maybe just birds that got too poetic. Either way, something was coming.

                    “The Biker Prophet Saw It Coming.”
                  “Cognitive Dysfunction? Or Divine Glitch?”
           “They Thought He Was Broken. He Was Becoming.”
            “When the Sky Spoke, He Was Already Listening.”
    
    
                 “The views in this post are based on my personal    
                experience. I do not intend harm, only honesty.”   
    
                  “By ink and breath and sacred rage, I write.
                               By storm and silence, I survive.”
    

    enter image description here

                            🧌✨ @goblinbloggeruk ✨🧌