Multiple sclerosis  is My Living Hell

WAV van

All posts tagged WAV van by Multiple sclerosis is My Living Hell
  • Posted on

    Saturday morning. Not hot, not cold just the kind of weather that feels like a cosmic shrug.

    I loaded up the Wav with my faithful wheelchair. Old beast. Secondhand treasure from another life. No shiny new posh van here, just an aging, creaky metal box on wheels that’s been a lifesaver more times than I care to count.

    Sure, it’s a money pit. Over two years, the sensors have staged a rebellion wheel sensor gone rogue, three injectors throwing tantrums, and enough warning lights to power a rave. Repairs? Pricier than a night out in Soho on a bad day. But essential? Absolutely.

    The nearest hospital is a 45-minute drive away, if you believe the speed cameras, traffic chaos, and a city where everyone’s eyes are glued to their phones rather than the road.

    Speaking of eyes, the outskirts greet you with Big Brother’s finest: CCTV cameras perched like vultures on poles, facial recognition tech hungry for your mugshot, and people strapped with body cams as if this was a dystopian reality show.

    I get stared at, sure. Mostly like I’m a circus act. I just laugh quietly and wave at the idiots who think asking stupid questions will get them answers. They keep their distance, probably fearing the curse of a sarcastic cripple.

    We hit a town ten miles away, hills sprawling like nature’s own opera, an orgasm for the eyes no need for music, just the endless parade of fields and road hum.

    The tinnitus racket in my head? Not quite the soundtrack I’d choose, but hey, life’s cruel like that.

    Tesco. The necessary evil. Not my favorite place, by a long shot. I try to avoid supermarkets supporting local is a creed, not a hobby.

    And then, the phone pings.

    Text from the chemist: prescriptions ready from the dreaded “machine of death.”

    As we rolled past the chemist, I clamped my mouth shut—no Saturday morning chaos, thank you very much. Albertine laughed at my silence.

    No one needs the madhouse of a Saturday morning queue, the sighs of the damned, the shuffle of the walking wounded.

    So that’s Saturday morning with the Wav and the wheelchair an adventure in mild dystopia, dark humor, and bleak survival.

    Here’s to the old vans, the broken sensors, the city watchers, and the pharmacy machines that never sleep.

    Auction Musings: The Retro Monkees Toy Car Bid Meanwhile, while waiting for the local auction house to decide my fate, I’ve put a bid in on a retro Monkees 1960s toy car. Because if I’m going to collect sleepers, why not start small and nostalgic?

    Every bid I place somehow turns into a battle for stupid money. It’s like I’m competing in the “Who Will Overpay For metal?” championship. Still, I swear I’ve got an eye for sleepers—even if it’s just the tiny metal kind.

    If I snag it, it’ll be the crown jewel of my shelf, a tiny tribute to simpler times and utterly ridiculous auction wars. If not, well… there’s always the next round of overpriced plastic madness.

    More interesting morning stuff to come…

    I feel the pressure lifting, all this ultraterrestrial stuff stirring my mind, like some cosmic prep for whatever the hell’s next. For now, I’m just here, riding through dystopia, laughing at the absurdity.

            “The views in this post are based on my personal    
            experience. I do not intend harm, only honesty.”   
    
           “By ink and breath and sacred rage, I write.
                    By storm and silence, I survive.”
    

    enter image description here

         @goblinbloggeruk -  sick@mylivinghell.co.uk
    
  • Posted on

    Myself and Albertine braved the outside world this morning. It’s been some time since I’ve actually wanted to go out—so naturally, the universe decided to make it weird.

    I dragged myself to the WAV. A WAV? Oh, just a terrifying machine of fraud and deception. It’s a van with a ramp. You know, so us wheelchair folk can daringly leave the house. But sure, call the cops. A disabled person going outside must be running a benefits racket.

    Albertine, ever observant, pointed out a sad little scene nearby: a VW Transporter clamped and stickered with a huge “NO TAX PAID” label slapped across it like the scarlet letter. I thought, poor bastard—he's not going to have a good day. Judy Tzuke came on the radio, and I promptly drifted off into a cloud of melancholy '80s nostalgia. Classic distraction technique.

    We were off early to dodge the traffic. That failed. We ended up 15 miles down the road to drop off a parcel at a UPS pickup point. We had all the paperwork—like law-abiding goblins—but of course, they wouldn't accept it. Apparently, logic has been abolished. Albertine was not amused. Neither was I.

    So off we went in search of a broom and some blood, fish and bone (don’t ask). Jim’s store was next—where they usually stock everything including the Ark of the Covenant and possibly a spare Dalek. Staff there? Absolute legends. Cheerful, helpful, and oddly rock-and-roll. I’m convinced the guy who served me was in The Cult.

    By this point, the heat was medieval, and my legs started their traditional performance of “Jelly in a Wind Tunnel.” We turned back for home—well, 15 miles back, as you do. I wasn't driving by then. I felt like death but with worse skin.

    We spent the journey dodging speed cameras and holiday invaders. Then came the ambulance incident: some driver got scared, panicked at a crossing with one of those traffic bollards, pulled over, and the ambulance ended up overtaking on our side. Straight at us. We’ve got it on dash cam. Lovely.

    And then... ah yes. The infamous chemist.

    I rolled up to the giant vending machine of doom, typed in my little code, and the robot began its business. Fun fact: My local chemist now has a drug-dispensing robot. It quietly hands out morphine with a beep and a spin. But god forbid I need pain relief—then it’s forms, suspicion, and a full background check. The machine is trusted. I am not.

    Anyway, the carousel spun, made strange noises, and then freaked out. Loud grinding, beeping, flashing lights—like R2-D2 on crack. The pharmacist shouted, “You’ve broken my machine!”

    I just looked at her. And laughed. Of course I did. The Goblin strikes again.

    To round off the day, I had to fork out £325 (no VAT, lucky me!) for a new wheelchair battery—yes, that’s to replace Albertine’s. Still no word from wheelchair services. I’m stuck. I’m pissed off. And this heat can do one.

    I’m totally drained—every spoon spent. Now to hydrate, spark a joint, and marvel at how Windows 11 didn’t crash today. Small victories.

    Rock star Jim’s guy, if you’re reading this—your secret’s safe.
    

    But seriously—what a bloody day.

         “The views in this post are based on my personal  
            experience. I do not intend harm, only honesty.”   
    
                “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”
    

    enter image description here

                              🧌✨ @goblinbloggeruk ✨🧌