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â ď¸ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestlyânot to harm. Iâm not a professional, just someone who understands how hard it can get. If you're struggling, you're not aloneâplease reach out for help.
A Rude Little Guide for the Chronically Ill Whoâve Run Out of F00ks
Youâve tried patience. Youâve tried gratitude. Now try blasphemyâin biro and blood tests.
- Know More Than You Should Turn up with knowledge you shouldnât have. Whisper about cytokines. Drop the word âiatrogenicâ like itâs confetti. Watch their eyes dart.
âOh, you didnât read the 2023 update from NICE? Thatâs okay, I brought it for you⌠highlighted.â
Nothing scares a consultant more than a patient with a brain and a printer.
- Give Your Symptoms a Personality Donât say fatigue. Say:
âItâs like my soul's buffering and the Wi-Fi's down.â
Donât say pain. Say:
âImagine being haunted by your own skeleton.â
You are not a walking checklist. You are a live performance of medical absurdism.
- Interrupt Their Monologue with Existential Questions Theyâll be halfway through a condescending speech when you hit them with:
âDo you ever worry the NHS is a cursed machine fuelled by broken people?â âAre you happy? Like, truly happy?â
Youâve now become a threat and a philosophical detour. Excellent.
- Talk About Ghosts Mention you feel like thereâs a Victorian child watching you when your medication wears off. Say things like:
âEver since the lumbar puncture, Iâve seen colours I donât think exist yet.â
Theyâll stare. You stare back. Youâve established dominance.
- Be Cheerful at the Wrong Moments Theyâll list terrifying potential diagnoses. You smile and go:
âOoh, collect-the-whole-set vibes.â âIâm gonna need a loyalty card soon.â
No tears. Just gallows giggles. They hate that.
- Cry, But Like an Artist Donât weep. Wail like a dying swan in a medical drama written by David Lynch. Tell them you cried into your cereal because the spoon reminded you of your body: bent, twisted, and slightly useless. Let them feel the poetry of your decline.
Theyâll pretend to type. Theyâre actually Googling early retirement.
- Bring Props Bring a mood board. A poem. A sock puppet that represents your nervous system.
âThis is Mr. Misfire. He twitches when I lie.â
Why? Because if youâre going to be treated like a freak, you might as well do it with props and panache.
- Question Their God Complex Ask questions like:
âIs it exhausting being right all the time?â âDo you ever think patients might know things you donât?â âDo you believe in second opinions, or are you allergic to humility?â
You might be labelled ânon-compliant.â Translation: self-aware.
- Say Youâre Tired in Ways They Canât Ignore Donât just say âIâm tired.â Say:
âI feel like my blood was replaced with wet cement and bureaucracy.â âMy body is on Windows 95 and every morning it fails to boot.â
Theyâll try to convert this into ICD-10 code. Theyâll fail. Thatâs the point.
- Tell Them You Donât Want to Be Fixed They want a treatment plan. A fix. A conclusion. Instead, say:
âIâm not here to be solved. Iâm here to be witnessed.â âYou donât have to cure me. Just see me.â
Itâll rattle the cage. Itâs not in their manual. You just glitched the matrix.
â ď¸ Final Diagnosis: Terminal Authenticity Youâre not a case. Youâre not a referral. Youâre the ghost in their machine, the poetry in their progress notes, the spoonie chaos that wonât be silenced.
So go in like a storm. Wear your pain like warpaint. And let them choke on the realisation that the most dangerous thing in their office⌠is a patient who knows who they are.
I write in ink and fury, in breath and broken bone.
Through storm and silence, I survive. That is the crime and the miracle.