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⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.
Three a.m. and my legs are iron bars. I’m awake not because of a dream, but because my own body has turned into a torture rack. Spasticity they call it. Clinical word, clean and tidy. In reality it’s a bloody vice clamped round your muscles until you want to scream.
What it actually is: spasticity means the muscle tone is cranked up to the point where any movement meets resistance . It isn’t “just stiff legs” or “tense muscles” it’s misfiring wiring. MS strips the insulation (myelin) off nerves, so the “relax” signal never makes it down the line. Muscles seize, jerk, lock, and sometimes kick out without warning.
Lived reality:
Waking with calves twisted like a corkscrew.
Trying to stand and finding your knees welded shut.
A jolt through your thigh like your body just sucker-punched you.
Nights lost to a body that refuses to sleep.
The so-called toolbox:
First line: baclofen, tizanidine, diazepam, dantrolene—sedating, imperfect, but sometimes the only rope you’ve got .
If those fail, the UK’s NICE guidelines say offer a 4-week trial of THC:CBD spray (Sativex) for moderate to severe spasticity . That’s the first cannabis-based medicine ever licensed here.
When it’s brutal, intrathecal baclofen pumps drip the drug straight into your spinal fluid. It works. It’s invasive. It’s not offered nearly enough .
Exercise and movement help stop muscles chaining up , but let’s be clear: stretching alone won’t magically fix spasticity .
Triggers that fan the flames: infections, fever, overheating, tight clothes, constipation, pain, stress, fatigue, even a full bladder . Everyday stuff that flips a switch and makes your body lock.
Why it matters: spasticity doesn’t just steal mobility—it steals sleep, dignity, spontaneity. It turns daily life into a constant negotiation with your own muscles. That’s not “just another symptom.” That’s a thief.
References (for readers who want the receipts)
NICE NG144 (2019): Cannabis-based medicines in MS
Cochrane review (2024): Cannabinoids and spasticity
AAN guideline: Oral anti-spasticity meds
UK MS Society: Exercise reduces spasticity
New evidence: stretching not a cure-all
Intrathecal baclofen: long-term safe and effective
I write in ink and fury, in breath and broken bone.
Through storm and silence, I survive. That is the crime and the miracle.
