Multiple sclerosis  is My Living Hell

DisabledAndFurious

All posts tagged DisabledAndFurious by Multiple sclerosis is My Living Hell
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    "The vagus nerve is supposed to keep you alive. Mine seems to have a death wish. Living with MS means living with this burning wire misfiring 24/7.You can't see it. But it's killing me, slowly."

    Let me introduce you to the nerve that’s been puppeteering my misery for 40 years:

    🧠 The vagus nerve.

    Longest cranial nerve in the body. Part of the autonomic nervous system. Runs from the brainstem all the way down into your guts, like a bastard serpent lodged in flesh.

    It’s meant to regulate “involuntary” things. Heart rate. Breathing. Digestion. Mood. Inflammation.

    Mine regulates suffering.

    With MS in the mix, my vagus nerve is like a drunk electrician with a machete and a grudge.

    — My heart rate drops so low I black out. — Then shoots so high I think I’m dying. — My diaphragm spasms and I stop breathing mid-sentence. — My throat closes. — My stomach decides to reverse course — vomiting, choking, retching. — Food sits there, like a funeral buffet no one touches.

    And the gaslighting begins. “Anxiety.” “Stress.” “Try mindfulness.”

    Fuck off. I’m not hyperventilating. I’m being strangled from the inside by a goddamn nerve that's been glitching out since I was a teenager.

    I’ve lived four decades like this. Forty years of waking up choking. Forty years of feeling my own body betray me. Forty years of doctors shrugging, guessing, dismissing, or overdosing me on meds for symptoms they don’t understand.

    It’s not just discomfort. It’s unrelenting bodily horror.

    Imagine being electrocuted through your spine while trying to eat a sandwich. Imagine trying to breathe but your diaphragm spasms like a car crash in your ribs. Imagine shitting yourself with a heart rate of 40 and then vomiting while you go unconscious.

    You ever had diaphragmatic myoclonus? That charming thing where your gut convulses so violently you can’t breathe or speak? That’s the vagus nerve on a rampage.

    People talk about Vagus Nerve Stimulation like it’s hope in a box. Sure. Stick electrodes in my neck. I’ll try anything once — hell, at this point, if you told me licking a toad would help, I’d be Frenching Kermit by tea time.

    I’ve been laughed at. Medicated into a coma. Ignored.

    This isn’t just MS. This is autonomic hell.

    So yeah — fuck the diagrams and polite educational pamphlets.

    My vagus nerve isn’t a calming force. It’s a loaded gun wired to my internal organs.

    And some days, I honestly think it’s trying to finish the job.

    And yet — here I am. Still alive. Still typing. Still wheezing and swallowing around the broken circuitry that is my body.

    You want honesty? This is it.

    Welcome to my living hell.

        “The views in this post are based on my personal    
          experience. I do not intend harm, only honesty.”   
    
               “By ink and breath and sacred rage, I write.
                          By storm and silence, I survive.”
    

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