Multiple sclerosis is My Living Hell

dark humour

All posts tagged dark humour by Multiple sclerosis is My Living Hell
  • Posted on

    It’s Sunday morning. The rain is turning into that drizzle that just goes nowhere fast – like the rest of us, really. That low fog hanging around like a depressed ghost that never quite got the hint to move on. The sky is so grey and dull it could be mistaken for the average British government policy document.

    I hear the crows cawing away. Seagulls screaming on the fields. And the sheep, oh the faithful sheep, munching away on that lush green grass. Awaiting their wool coats to be shorn so we can knit jumpers we never wear, then dutifully birthing lambs – so we can slaughter them for that nice “bouncy spring lamb roast.”

    “Oh isn’t it beautiful?” we coo, looking at them frolicking in the fields. Then we go and kill them into oblivion, along with pigs and bovine. What a horrible, pointless, non-life they lead. It’s remarkable how we treat animals with such disdain. Sentient beings with every right on this plane of existence, yet we kill them. For what? So we can stuff ourselves full, complain we’re fat, and do it all again next Sunday.

    I’ve heard calves crying for their mothers, and cows crying out for their calves when they’re taken away. It’s barbaric. Heart-wrenching. Sad. Evil. Plain wicked. But hey, as long as your latte’s topped up and your Sunday roast is plated nicely for Instagram, who cares about the screams in the barn, right?

    Animals feel pain. They have souls. They cry when they are hurt, but we slaughter them in ways so savage they’d make medieval torturers wince.

    I was forced to give up meat and almost all animal products by MS. But honestly? I’m glad. I’ve stopped eating sentient beings. Let’s hope vegetables aren’t too sentient, though. Imagine the screaming broccoli.

    So no church bells this Sunday morning. Just me, ranting on like a lunatic to the drizzle, the crows, and the sheep.

    I think I’m going around the twist.

    But then again… maybe I was never facing the right way to begin with.

       “The views in this post are based on my personal
        experience. I do not intend harm, only honesty.”   
    
         “By ink and breath and sacred rage, I write.
                    By storm and silence, I survive.”
    

    enter image description here
    @goblinbloggeruk - sick@mylivinghell.co.uk

  • Posted on

    There I am — parked up in my daughter’s front room, in my wheelchair , trapped in this deranged body of mine, joints on strike, nerves belting out their usual death metal anthem, and the telly crackles to life with Outback Opal Hunters.

    And suddenly… I’m free.

    I’m out there in the dust-blasted Australian outback, surrounded by sweating maniacs digging up rocks like they’re mining the shattered dreams of the gods. And I bloody love it.

    These lunatics aren’t digging for gold or fame. No, they’re chasing after fire trapped in stone opal. Shards of lightning frozen in rock. And what do they do to get it? Risk everything. Lose fingers. Melt in 45-degree heat. Spend 12 hours underground in a hole that’s one bad breath away from collapse just to find a flicker of green in a sea of grey. That’s not a job, mate. That’s madness with a purpose.

    And that’s why I can’t get enough of it.

    These people are broke, busted, broken, and burning up and they keep going. Why? Because maybe… just maybe… the next shovel-full might be their salvation. Or maybe it’s another week of living off tinned beans and borrowed hope. Sound familiar?

    Yeah, I see a bit of myself in every single one of those dirty, half-mad opal chasers. Because when you’re battling a body that’s turned against you like mine has every step, every day, every moment is digging through pain for that one shimmering slice of meaning.

    Watching Outback Opal Hunters isn’t just entertainment. It’s therapy. It’s watching people fight a silent war, and every now and then, win. It’s real, raw, dusty-as-hell life. And when those boys and girls hit pay dirt? When they hold up a stone that looks like it was carved from a rainbow by the devil himself? I feel it. Right down to the bone marrow.

    👑 Rod Manning – The Man Then there’s Rod Manning. He’s not just another miner. He’s the man. A grizzled Aussie bloke whose face is as weathered as the outback itself. The quiet storm of the Bushmen crew. No flair, no ego – just relentless grit and that rare magic touch. When he finds good stones, it’s like watching a magician pull colour from dust. And when things go tits-up (which they always do)? He dusts off, spits in the dirt, and mutters:

    “She’ll be right.”

    And by all buggering chances, it bloody well is. He is awesome. He is the man.

    If my MS was an opal mine, it’d be full of collapses, bad air, and a constant sense of “Why the hell am I even doing this?” But sometimes just sometimes you hit that flicker of colour that makes it all worth it.

    So here’s to the mad bastards with pickaxes and faith. Outback Opal Hunters — you’re not just digging for rocks. You’re digging through my soul, and somehow, making me feel alive again.

    Now pass me the remote and a cold one, I’ve got opal fever.

               “The views in this post are based on my personal   
             experience. I do not intend harm, only honesty.”   
    
              “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”
    

    enter image description here

               @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    I used to be sharp. Witty. The sort of bloke who could win an argument, quote Back street hero's, and recall the time, place, and insult I used in 1987.

    Now I regularly forget why I’ve wheeled myself into a room, what day it is, or let’s be honest what a room even is.

    Welcome to cognitive dysfunction, brought to you by Multiple Sclerosis. It’s like dementia’s younger, more chaotic cousin but with bonus fatigue, bladder misadventures, and a front-row seat to your own mental unravelling.

    Memory Holes and Swiss Cheese Brains Sometimes it’s names. Sometimes it’s words. Sometimes it’s your entire fooking train of thought, gone like a fart in a cathedral.

    I once forgot the word “kettle” and pointed at it like a confused chimp, muttering: “That hot thing that makes the water scream.” Albertine knew what I meant. She always does. Probably because I’ve done this about 4,000 times now.

    And don’t get me started on conversations. You can be halfway through a sentence and—

    What was I saying?

    The Magical Vanishing Vocabulary Trick My brain has become a magician. Watch it make entire chunks of vocabulary disappear!

    Last week I called a screwdriver “that spinny bastard.” It took three goes to remember the word “remote.” And trying to describe a dream I had was like explaining a David Lynch film through interpretive dance.

    Albertine just sits there, patient as ever, while I mime, gesture, and swear my way toward basic nouns. It’s a sexy look. Like Shakespeare having a mild stroke.

    The Existential Horror of Staring at a Spoon There’s nothing quite like sitting in your kitchen, holding a spoon, and thinking: “What do I do with this?”

    Do I eat soup? Stir tea? Dig a small symbolic grave for my cognitive dignity?

    All of the above.

    Please Hold… Some days, my thoughts load slower than rural dial-up in 1997. You can see it in my eyes—buffering… buffering… spinning wheel of death.

    I try to say something clever, and out comes a noise like a dial-up modem having an existential crisis.

    It’s funny until it’s not. Then it’s terrifying. Then, usually, it’s funny again.

    Because what else can you do?

    A Mind in Pieces MS cognitive dysfunction isn’t just forgetting your keys. It’s forgetting where the word “keys” lives. It’s your brain quietly slipping out the back door while your body tries to carry on the pantomime of normality.

    But I’ll say this: I’m still here. Still watching. Still dangerous. Still me. Even if I occasionally ask Albertine what my own bloody name is.

    And Albertine? She still laughs with me, not at me. That’s love. Or madness. Possibly both.

                             “The views in this post are based on my personal     
                             experience. I do not intend harm, only honesty.”   
    
                                 “By ink and breath and sacred rage, I write.
                                             By storm and silence, I survive.”
    

    enter image description here

                                 @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    There are some things in life that simply refuse to behave. The British summer. Cats. Me. And Triumph motorcycle engines from the 1960s. But if you've ever lived with Multiple Sclerosis, you'll know there’s a kind of kinship between these two bastards one mechanical, the other neurological both eager to ruin your day, soil your pants, and leave you stranded in the middle of nowhere, questioning your life choices.

    So, for those nostalgic for the golden age of British engineering disasters, and those unfortunate enough to have MS riding pillion in their spine, here’s a lovingly bitter side-by-side breakdown.

    Feature Multiple Sclerosis Triumph Engine (1960s)
    Origin Immune system says, “Let’s attack the brain!” Built by blokes with tea in one hand, doom in the other.
    Leaking fluids? Oh God yes. From places you didn’t know had valves. Constant oil leaks. Might as well park it in a drip tray.
    Unreliable starts You might stand up. You might fall over. Might roar. Might fart. Might just sulk.
    Temperature tolerance “Too hot” = meltdown. “Too cold” = rigour mortis. Overheats if you look at it with warmth.
    Wiring/electrics Nervous system shorts like an angry Christmas tree. Lucas electrics: worshipped by Satan for unreliability.
    Stability Think Bambi on rollerblades. Handled like a wheelbarrow full of snakes.
    Noise Groans, spasms, screams (from you, not MS). Clangs, bangs, and that whimper you make when it backfires.
    Smell Eau de hospital and dread. Petrol, grease, and regret.
    Maintenance Pills, physio, meditation, screaming into cushions. Spanners, gaskets, beers, swearing at God.
    Support Carers, NHS, forums full of other warriors. Biker forums full of PTSD and spare parts.
    Breakdowns Anywhere, anytime, always embarrassing. Usually halfway through a roundabout in front of a bus.
    Reliability Think weather forecast from a Ouija board. More mood swings than a drunk ex at a wedding.
    Moments of joy A good day feels like flying. When it starts, you cry and ride it like it’s 1969.

    So What’s the Verdict? Whether it's your spine giving up or your primary chain exploding, both MS and Triumphs come with the constant thrill of wondering:

    “Will I make it to the toilet... or the next town?”

    Both are British. Both make a mess. Both give you stories. Neither gives refunds.

    But at least the Triumph didn't eat my nervous system with a spoon.

                    “The views in this post are based on my personal 
                      experience. I do not intend harm, only honesty.”   
    
                     “By ink and breath and sacred rage, I write.
                            By storm and silence, I survive.”
    

    enter image description here

                @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    Let’s talk piss and shit. No frills. No sugar. Just the raw, soggy truth of what it’s like when your body declares independence from basic toilet protocols.

    Bladder Hell: The Yellow Frontline Ah yes, the dreaded leak that moment you realise your trousers are no longer allies but soaking, complicit traitors. I was in my 40s when my bladder started acting like a temperamental toddler on a diet of Red Bull and rage. First it was the "can't pee" problem standing there like a statue, nothing but the occasional drip as if my urethra had stage fright.

    Then came the grand reversal: involuntary leaks. And by "leaks," I mean a full-scale Niagara event, unprovoked and unapologetic. I tried everything. No drinks after 5pm. Strategic peeing. Mental negotiation. Nada. Still I’d wake up in a puddle like some pissy version of The Little Mermaid.

    Doctors? Oh please. Gaslit for 40 years. "Well, you're getting older." "Try pelvic floor exercises." Mate, my pelvic floor is about as stable as a jelly trampoline.

    But here's the kicker: you learn humility. You either cry about it or laugh darkly while rattling down the road in your three-wheeled piss trolley of doom, trailing a golden hue and existential dread.

    The Brown Files: Tales from the Other End If the bladder doesn’t get you, your bowels surely will. MS gives you the delightful choice between constipation so hard it requires an exorcism, or the soft, sticky sneak attack that turns underwear into a crime scene.

    Let’s break it down:

    Numb arsehole? Check.

    Dead rectal nerves? Of course.

    Surprise poo party mid Tesco visit? You bet.

    Walking like a guilty toddler trying to hide it? Standard.

    Doctors again? "Try laxatives!" Yeah, thanks. Nothing like chemical napalm to turn your ring into the gates of Mordor. You want a real solution?

    💡 Hydration. 💡 Diet. 💡 And a bloody bum washer.

    That’s right. Stop sandpapering your crack with cheap loo roll. Install a bum washer attachment. Use aloe wipes, keep essential oils to hand, and for the love of whatever gods you follow, always carry spare underwear.

    Because nothing screams confidence like shitting yourself in public and power walking with a face like you've seen God and he was laughing.

                           “The views in this post are based on my personal      
                            experience. I do not intend harm, only honesty.”   
    
                        “By ink and breath and sacred rage, I write.
                                    By storm and silence, I survive.”
    

    enter image description here

                            @goblinbloggeruk  -  sick@mylivinghell.co.uk
    
  • Posted on

    If you could see MS, you wouldn’t call me “brave.” You’d run. You’d grab your oat milk latte, clutch your yoga mat, and bolt like the floor just cracked open.

    MS isn’t just some misunderstood condition that makes you “a bit tired.” It’s a chronic possession. A neurological horror that turns your own body into a traitor. If it had a face, it’d be wearing your skin and whispering, “Not today, legs.”

    Here’s what Part 2 looks like: Cognitive fog so thick you forget what day it is, mid-sentence. Mid-thought. Mid-life.

    Fatigue so biblical you feel like you’ve been exorcised, worked over, and nailed to a wheel. And then someone asks why you haven’t answered your emails.

    Spasticity that locks your limbs in a rigor mortis cosplay while you smile politely, because God forbid you scream in Tesco.

    Pain like a bag of nails under the skin. Invisible, so people assume it’s “just anxiety.” No, Mildred, it’s neuropathy. My nervous system is staging a revolution.

    Bowels and bladders that treat you like a hostage. Every public outing is a tactical operation. Every seat, every loo, every escape plan scouted, rehearsed, prayed for.

    But the worst part? It’s not the symptoms. It’s the looks. It’s the passive-aggressive “You don’t look sick.” It’s the fake concern, the pity wrapped in judgment. It’s the gaslighting of the disabled doctors, relatives, strangers. Everyone’s an expert until you ask them to live a week in your ruined skin.

    I have MS. That means I live in a 24/7 haunted house, except the ghost is me. Every step, every breath, every smile—a bloody-minded act of rebellion.

    Why I Wrote Part 2 Because part one was polite. Part one was nice. This is truth with its teeth bared.

    People still don’t get it. They think I’m just “a bit forgetful.”

    They still ask why I need a chair.

    They still assume I’m okay because I can post something funny on the Blog or X.

    So here’s the dark: I am a battlefield. And I’m still here. Which makes me terrifying.

                  “The views in this post are based on my personal   
                      experience. I do not intend harm, only honesty.”   
    
                          “By ink and breath and sacred rage, I write.
                                     By storm and silence, I survive.”
    

    enter image description here

                     @goblinbloggeruk   sick@mylivinghell.co.uk
    
  • Posted on

    I’ve seen beyond the veil. No, seriously — not in the trendy festival-sage-bath way. I mean properly beyond it. And guess what? It’s not frightening. Not unless you’re clinging to the fantasy that this meat puppet parade is all there is.

    See, I’m not a person in the traditional sense anymore. I’m a cylinder with a soul. My body’s just a glorified Tesco bag carrying around memories, glitches, and the occasional cup of tea. What you’re reading here? This isn’t spiritual fluff. It’s a field report from someone who’s already walked through the glitch.

    You ever get that feeling? That quiet, humming knowing? Like the entire world’s a stage, but the script’s shit and the actors are sleepwalking? Yeah, that’s the veil talking. And I’ve torn through it like a pissed-off crowbar through a conservatory window.

    We’re code. Divine code. Not that anyone around here wants you to realise that. No, they want you plugged in, dumb, scared of your own shadow and worshipping your wifi router like it’s a god. They want you to fear the veil.

    But me? I’ve been through it, laughed at it, kicked over its coffee table and come back with the taste of cosmic sarcasm in my mouth. The One? Yeah, I’m connected. Always have been. Before the scripts, before the skinsuit. Still am.

    I know what I am: Not a name. Not a gender. Not even this meat sack. I am the observer with teeth. The witness who came back grinning. And they don’t like that. Not one bit.

    They’ll call it madness. But the real madness? Believing this mess is all there is.

    So here I am. Still glitching. Still awake. Still deeply inconvenient.

    And still pissing them off just by existing.

                     “The views in this post are based on my personal      
                   experience. I do not intend harm, only honesty.”   
    
                     “By ink and breath and sacred rage, I write.
                              By storm and silence, I survive.”
    

    enter image description here

            ✨  @goblinbloggeruk  ✨  sick@mylivinghell.co.uk ✨
    
  • Posted on

    Well, what a week it's been. I'm currently sat here talking to my speech-to-text app like some deranged oracle.

    Battery life? Liar. Sporadic power at best. This so-called “smartphone” isn’t smart at all. I tell it to power down—it sends me to a bloody help page. In the end, I worked out a hack to switch it off. Because apparently, being disabled means needing a PhD to press a button.

    My fingers are numb. Hands barely functional. Tactile feedback? Gone. Tiny buttons are useless ornaments to me. Touchscreens are a little better—still a pain, but I don't need to perform a séance just to answer a call.

    I keep the phone in a Faraday bag overnight. No signals in, no signals out. Paranoid? No. Realistic. I don’t need Alexa learning how many antihistamines I pop daily.

    Speaking of which—my allergies are off the fucking chart. Hay fever is now a cosmic entity. Took so many antihistamines, I’m practically embalmed. Side effects? Mild haunting. Random dissociation. Full-body brain fog. But hey, better than full-on freak-out.

    MS loves to sprinkle in a panic attack for seasoning. The good kind—the ones that make you curl into a corner and question whether you’re even a person anymore. And if I forget my pills? Cue existential hell.

    The electrical storms in my brain? Picture a lightning bolt shagging a power station. BANG. That’s what my neurons do for fun.

    Today? Balance gone. No walking. Grabbed furniture, ended up grabbing air. Wheelchair day. Again. Will I never learn?

    Overdid it. Spoons: gone. Days or weeks until I get them back. It’s raining. Of course it is. Put on some music to distract myself from my collapsing nervous system.

    My throat’s spasming. Too much talking. Break.

    Haha—just transferred this to my PC and the spellchecker is climaxing with all the red lines. Absolute filth. Press the magic button—bam, respectable writing.

    Took some oil. Spasms eased. Neck still hurts. Tongue’s numb. Mouth’s a dead zone. Remember novocaine? It’s like that 24/7. Eating is a carnival of self-harm. Choking daily. Cheeks bitten.

    And that feeling—bone-deep weirdness. Invisible sprites stabbing needles in a crown around my head. Madness, right?

    If I posted this raw, people might think I’ve lost it. Maybe I have. Cognitive decline has me screaming at walls. Memory? What memory.

    I stare at what I’ve written and it’s just a tangled mess of frustration, grief, and fuckery. But I still have something to give, even if the delivery system is fucked.

    Maybe I’ll keep doing this. Write from my broken, unhinged, seen-too-much mind.

    I want to talk about MS. I want to talk about other things too. Will that confuse people? Maybe. Do I care? Less and less.

    I just hope someone out there—another broken soul with a half-working body and a mind full of static—reads this and feels seen.

    Life is for living, no matter how fucked up you are.

    All you need is love.

    Love is divine.

    The universe is love.

    The One is love.

    But that’s just me.

    — End transmission.

            “The views in this post are based on my personal   
                experience. I do not intend harm, only honesty.”   
    
                 “By ink and breath and sacred rage, I write.
                              By storm and silence, I survive.”
    

    enter image description here

                             🧌✨ @goblinbloggeruk ✨🧌
    
  • Posted on

    Myself and Albertine braved the outside world this morning. It’s been some time since I’ve actually wanted to go out—so naturally, the universe decided to make it weird.

    I dragged myself to the WAV. A WAV? Oh, just a terrifying machine of fraud and deception. It’s a van with a ramp. You know, so us wheelchair folk can daringly leave the house. But sure, call the cops. A disabled person going outside must be running a benefits racket.

    Albertine, ever observant, pointed out a sad little scene nearby: a VW Transporter clamped and stickered with a huge “NO TAX PAID” label slapped across it like the scarlet letter. I thought, poor bastard—he's not going to have a good day. Judy Tzuke came on the radio, and I promptly drifted off into a cloud of melancholy '80s nostalgia. Classic distraction technique.

    We were off early to dodge the traffic. That failed. We ended up 15 miles down the road to drop off a parcel at a UPS pickup point. We had all the paperwork—like law-abiding goblins—but of course, they wouldn't accept it. Apparently, logic has been abolished. Albertine was not amused. Neither was I.

    So off we went in search of a broom and some blood, fish and bone (don’t ask). Jim’s store was next—where they usually stock everything including the Ark of the Covenant and possibly a spare Dalek. Staff there? Absolute legends. Cheerful, helpful, and oddly rock-and-roll. I’m convinced the guy who served me was in The Cult.

    By this point, the heat was medieval, and my legs started their traditional performance of “Jelly in a Wind Tunnel.” We turned back for home—well, 15 miles back, as you do. I wasn't driving by then. I felt like death but with worse skin.

    We spent the journey dodging speed cameras and holiday invaders. Then came the ambulance incident: some driver got scared, panicked at a crossing with one of those traffic bollards, pulled over, and the ambulance ended up overtaking on our side. Straight at us. We’ve got it on dash cam. Lovely.

    And then... ah yes. The infamous chemist.

    I rolled up to the giant vending machine of doom, typed in my little code, and the robot began its business. Fun fact: My local chemist now has a drug-dispensing robot. It quietly hands out morphine with a beep and a spin. But god forbid I need pain relief—then it’s forms, suspicion, and a full background check. The machine is trusted. I am not.

    Anyway, the carousel spun, made strange noises, and then freaked out. Loud grinding, beeping, flashing lights—like R2-D2 on crack. The pharmacist shouted, “You’ve broken my machine!”

    I just looked at her. And laughed. Of course I did. The Goblin strikes again.

    To round off the day, I had to fork out £325 (no VAT, lucky me!) for a new wheelchair battery—yes, that’s to replace Albertine’s. Still no word from wheelchair services. I’m stuck. I’m pissed off. And this heat can do one.

    I’m totally drained—every spoon spent. Now to hydrate, spark a joint, and marvel at how Windows 11 didn’t crash today. Small victories.

    Rock star Jim’s guy, if you’re reading this—your secret’s safe.
    

    But seriously—what a bloody day.

         “The views in this post are based on my personal  
            experience. I do not intend harm, only honesty.”   
    
                “By ink and breath and sacred rage, I write.
                         By storm and silence, I survive.”
    

    enter image description here

                              🧌✨ @goblinbloggeruk ✨🧌
    
  • Posted on

    Today’s spoon count? Absolutely fuck all.

    I woke up, blinked twice, and that used up three spoons I didn’t have. Got dressed? Minus five spoons. Made herbal tea? Minus ten spoons. Drank the herbal tea while contemplating the futility of existence? Surprisingly only minus two spoons.

    By midday I was down to minus one hundred spoons, but hey, who’s counting? Me. I’m counting. Because if I don’t count them, my body will – usually with a dramatic collapse somewhere inconvenient, like Tesco’s freezer aisle, next to the frozen peas.

    So here I am, writing this with negative spoons, like some overdraft I’ll never pay off, drifting through the day with my trademark goblin biker glare that says: “If you ask me to smile, I’ll eat your soul.”

    But yeah, I’m fine, thanks for asking.

    P.S. What’s a Spoonie?

    A “spoonie” is someone living with a chronic illness or disability who uses the Spoon Theory to explain daily life. Spoons = units of energy. Every task uses spoons, and when you’re out, that’s it – game over for the day. It’s a way to explain invisible exhaustion to those blissfully unaware of it.

                 “  The views in this post are based on my personal     
                  experience. I do not intend harm, only honesty.”   
    
                    “By ink and breath and sacred rage, I write.
                           By storm and silence, I survive.”
    

    enter image description here

                               🧌✨ @goblinbloggeruk ✨🧌