Multiple sclerosis is My Living Hell

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All posts tagged about me by Multiple sclerosis is My Living Hell
  • Posted on

    🎗️ This Blog is a space for honest conversations about my personal experiences with MS, mental health, and the weird paranormal, liminal, and everything in between. I’m not a doctor, therapist, or expert in the unexplained; I’m just someone sharing my story and offering solidarity. If you’re struggling, please reach out to a trusted friend, support group, or professional. And if the weird stuff sparks your curiosity, remember: stay open-minded, but always prioritise your well-being.🎗️

    please remember I suffer with severe cognitive dysfunction, and use AI to proof read and help solve this issue so you can understand it

    Welcome to the first My Living Hell podcast episode 1.

    The first My Living Hell podcast is finally here! I ramble about Multiple Sclerosis, life, personal experiences and whatever else wanders into the conversation. Raw, honest, occasionally dark and definitely not polished into oblivion.

    ☠ Please take note of the trigger warning before listening. ☠

    Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)
    🎗️ This Is Not A Blog About MS This Is My Life With MS 🎗️

    Tumblr is @livingwithmsblog twitter@livingwithms email warlock@mylivinghell.co.uk
    𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
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  • Posted on

    This is a test podcast of approximately 10 minutes. It's not really anything, so if you have anything you want to ask me to see, email me at the above address on there. But this is just for test purposes, not really for watching. But if you want to comment, there's my email. Many thanks I aim to be getting one off at his podcast in the next week or so. This is just for test purposes only. So anybody who sees this, sending them peace healing, love and light and hope that they're okay after watching this.

  • Posted on

    So Monday morning rolls in like a drunk ghost with a hangover. The plan was simple: limp the van to the garage, smile through the quote, and pretend life wasn’t an endless endurance test. Instead? I woke up feeling like absolute hell.

    The tinnitus was howling in my right ear why the right? No bloody idea. Maybe it's trying to whisper cosmic truths from the land of the dying neurons. Or maybe my brain’s just bored and wants to recreate a factory floor soundtrack.

    Then came the message. One of my dad’s friends. My father—aged 90, tough old bastard that he is—has had another fall. A serious one. Condition? Not good. I felt it. No, not in some woo-woo psychic TikTok way. Just that grim knowing. He’s nearing the end of his road. And I hate it.

    Here’s the twist most folk don’t know: I’ve only known him since 1999. That’s when I tracked him down in New Zealand, after decades of being the state’s little secret. Turns out I had siblings. More ghosts in the family cupboard. We Skyped until Skype did what all modern tech does it stopped working and caused chaos. He struggled with computers (who doesn’t at 90?), so we switched to WhatsApp.

    We actually spoke last week he’d just had another heart attack and a previous fall. Still sharp. Still Dad. But I sensed the edge then. The slipping. And now it’s here.

    The Origin Story? Grim as Fuck. I was adopted at six weeks old, plucked from a “mother and baby unit” and handed to the new parents from hell. The sort of couple that make Dickens’ villains look like amateur dramatics. If you've read this blog, you’ve seen bits and pieces of that trauma circus already.

    And today? Today the past and present just smashed together. The man who gave me half my DNA is slipping away, and I’m sitting here sweating like a water tap on steroids, tinnitus screaming, hugging a pillow like a lost child, and Ozzy’s voice clawing its way through the noise. When it gets worse? It’s Motörhead time.

    I just want to ride hard again. To feel the wind rip through my hair. But instead, I’m stuck here in this twisted freakshow of cognition, fatigue, grief, and biological inheritance.

    Still, what can you do? Welcome to my world of weirdness. Population: me, and maybe a couple of dead kings.

    🚐 For Albertine She’s the one who drives when my body won’t, the one who holds the wheel when the road blurs, and the one who doesn’t flinch when the darkness hits. Without her, I wouldn’t get far not to the garage, not through the grief, not through the noise. Albertine: my co-pilot through this living hell. And the reason I’m still in the fight. Always.

                         “The views in this post are based on my personal     
                            experience. I do not intend harm, only honesty.”   
    
                                “By ink and breath and sacred rage, I write.
                                              By storm and silence, I survive.”
    

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                              @goblinbloggeruk   sick@mylivinghell.co.uk