multiplescelrosis

🧠 Symptoms of MS: The Obvious Greatest Hits

Tired for No Reason You slept 12 hours, drank 3 coffees, and you're still knackered. Congratulations, it’s not laziness — it’s fatigue. Chronic, soul-sucking, "please let me nap in the cereal aisle" fatigue.

Wobbly Walking Walking like you’ve had 8 pints… at 9am… while stone-cold sober. Balance issues, because apparently your legs didn’t get the memo from your brain.

Blurry or Double Vision Your eyes play ‘spot the difference’ with reality. One of them’s lying, and neither has a clue what they’re doing.

Numbness or Tingling That fun pins-and-needles feeling. Except it’s not from sitting funny — it’s from your brain throwing a tantrum.

Weakness Arms, legs, or both suddenly feeling like cooked spaghetti. Good luck opening jars. Or standing. Or functioning.

Slurred Speech You sound like you’re drunk, even if you’re painfully sober and just trying to ask for a biscuit. Bathroom Betrayal Bladder and bowels doing their own thing. Urgency, accidents, or the joy of constipation that could turn coal into diamonds.

Mood Swings Crying because the teabag split. Laughing maniacally at absolutely nothing. Just another Tuesday with your brain on shuffle.

🎩 The Lesser-Known (But Equally Rubbish) MS Delights

Electric Shock Sensation (Lhermitte’s Sign) You tilt your head and BAM — your spine thinks it’s been struck by lightning. For no reason. Because why not?

Itching Like You're Infested with Ghost Fleas No rash, no bites, just you, scratching like a Victorian chimney sweep with scabies.

Heat Sensitivity Summer? Oh no, darling. A hot shower might as well be lava. Prepare to wilt like a sad Victorian poet.

Cognitive Fuzz (Brain Fog) You walk into a room and forget why. You forget words. You put your phone in the fridge. Basically, your brain’s on “buffering…”

Spasticity Muscles tightening up like you're trying to hold in a fart during a funeral. Only it’s involuntary. And constant.

Sexual Dysfunction The romantic thrill of numb genitals and nerves that ghost you mid-pleasure. How sexy.

Speech and Swallowing Problems Chewing and talking becomes a weirdly choreographed ballet of not choking. Miss a beat, and it’s dinner-on-the-ceiling time.

Hearing Loss (Rare, but possible) What? Sorry? Come again? — not selective hearing, just your ears being as unreliable as the rest of your nervous system.

Final Thoughts: MS — it's like your brain has installed Windows 95 and keeps trying to run modern life. Expect random errors, lagging limbs, and the occasional blue screen of emotional doom. You didn’t ask for this mess, but here we are. Stay strong. Laugh darkly. Nap often.

looking to buy a second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky. sick@mylivinghell.co.uk

      “The views in this post are based on my personal  
          experience. I do not intend harm, only honesty.”

Here I am again—nobly fused to my chair like some relic of British stubbornness—gazing out of the window at the national weather forecast: wet, with a 100% chance of more wet. If grey skies were a national currency, we’d be laughing all the way to the food bank. Outside, the world carries on with its usual grim determination. Cars hum by on the main road, all in a hurry to get absolutely nowhere worth going. The local train wheezes around the loop like it’s got a purpose—bless it. And then the HSTs roar over the viaduct like they’re auditioning for a midlife crisis on wheels. What are they even rushing for? Everything’s still going to be crap when they get there. And the sheep—oh, the sheep. Standing around in the rain, bleating into the void like drunk students at a philosophy open mic. Not a brain cell between them, just damp wool and existential confusion. Honestly, if reincarnation's real, I must've pissed off someone important. Over all this melodrama, my music plays softly. Well, not so much softly as "pointlessly," because I've already got my own built-in horror soundtrack—tinnitus. That sweet, sweet screech that says “good morning” before I even open my eyes. Sometimes it hums, sometimes it screams, sometimes it sounds like someone’s microwaving a wasp inside my skull. Delightful. I remember when it first began—driving along the A39, minding my own business, when bam, reality decided to turn into a low-budget horror film. Been over ten years now. Ten years of having my own private noise machine jammed into my head. Wouldn't recommend it. As if that wasn’t already enough to make life feel like a practical joke, I’ve got MS too. The balance is shot. The fingers don’t work. The keyboard’s just a decorative item now. I dictate everything into my phone like I’m issuing commands to a particularly thick servant. Flashback time—around 25 years ago, I’m doing the washing up, pretending to be normal. Suddenly I notice the dishwater’s gone red. Thought the tomatoes had gotten out of hand—turns out, I’d stabbed myself in the hand. Didn’t feel a thing. Just stood there wondering if I’d invented blood-flavoured Fairy Liquid. That was just the start. Since then, I’ve had more accidents than a drunk toddler on roller skates. Broke both shoulders falling over. Multiple scars, most of them self-inflicted through sheer bloody-mindedness. Fell off a ladder, got back on it, fell off again. You’d think at some point I’d learn. But no—this is Britain. We don’t quit, we just keep making the same mistakes with added sarcasm. So now, I’ve accepted that my life is part soap opera, part public safety announcement. My body's turned into a rogue machine, and my brain’s mostly fog and loud noises. I don’t fear death—it’s not exactly hiding. Shows up every morning, waving from the corner like an overly familiar neighbour. And still, I sit here. Watching the rain, listening to the sheep, absorbing the relentless mediocrity of everything. It’s not tragic, it’s not heroic—it’s just... Tuesday. Sucks to be me? Oh, absolutely. But hey—if you can’t laugh at your own spectacular misfortune, what’s the point?

looking to buy a second hand q100 wheelcair or similar in the devon cornwall area sick@mylivinghell.co.uk

      “The views in this post are based on my personal  
          experience. I do not intend harm, only honesty.”

Ah, medical marijuana—the green leafed miracle that’s somehow both a blessing and a punchline. Let’s dive into this delightful plant that’s been making waves since it was legalized in the UK in 2018. Because, you know, nothing says “we care about your health” quite like a prescription for a plant that’s been around since the dawn of time. The Pharmaceutical Rollercoaster

First off, let’s talk about the pharmaceutical drugs I’ve tried. You know, those little pills that promise to fix everything but instead turn you into a walking side effect machine? I’ve had more adverse reactions than a cat at a dog show. Horrific side effects? Check. Worsening conditions? Double check. It’s like a twisted game of “how much worse can it get?” Spoiler alert: it can get pretty bad. So, after a series of unfortunate events that would make even Lemony Snicket cringe, I decided to ditch the pills that were clearly plotting against me. Enter Medical Marijuana

Now, let’s get to the good stuff—medical marijuana. This isn’t just any old weed; this is the fancy THC oil that’s supposed to be the answer to my prayers. And guess what? It actually helps! Who would’ve thought that a plant could do what a pharmacy full of pills couldn’t? It’s like finding out that the secret to happiness was hiding in your garden all along. The Benefits of THC

So, what’s the deal with THC? Well, it’s the part of the cannabis plant that gets you a bit high, but don’t worry—I’m not permanently floating in a cloud of bliss. Instead, I’m just a bit more relaxed, which is a nice change from the usual tension that comes with living in a body that seems to have declared war on itself. The spasms? Fewer. The pain? More manageable. It’s like having a personal bodyguard that doesn’t mind if you’re still stuck in your wheelchair.

And let’s not forget the added bonus of not having to deal with the nasty side effects that come with traditional medications. No more feeling like a zombie or dealing with the delightful surprise of new health issues popping up like unwanted guests at a party. Just me, my THC oil, and a slightly less miserable existence. A Bit of British Humor

Now, I know what you’re thinking: “Isn’t it a bit cheeky to rely on a plant for relief?” Well, in a world where pharmaceuticals can turn you into a human guinea pig, I’d say it’s a bloody genius move. It’s like choosing to sip a nice cup of tea instead of downing a pint of something that tastes like regret.

So, here’s to medical marijuana—the green leafed plant that’s not just a punchline but a genuine source of relief. It’s not a miracle cure, but it’s certainly a step in the right direction. And if it means I can manage my pain without feeling like I’ve been hit by a bus, then I’ll take it. Cheers to that! looking out for a cheap 2hand q100 wheelchair sick@mylivinghell.co.uk

          “The views in this post are based on my personal  
          experience. I do not intend harm, only honesty.”

Oh, another night in my personal version of Dante’s Inferno—just as delightful as the last. It’s funny how the nights just roll into one giant, sleepless horror show, starring yours truly: the eternally exhausted insomniac. Sleep? Ha! That’s just a luxury for people who aren’t forced to dance to the bladder’s hourly encore performance. And of course, this whole tragicomedy began because I had the sheer audacity to indulge in some sugar-laden jam. Sugar—apparently the mortal enemy of my wretched existence. Add to that the fact that my body decided to go full diva and refuse any animal fats, so now I’m stuck with a vegan diet. Except even the plant oils have formed a personal vendetta against me, turning mealtimes into a game of “Will This Kill Me or Merely Torture Me?” But wait, there’s more! Let’s not forget my lovely companion: multiple sclerosis. Yes, that dear old friend makes sure that pain and spasms are constant guests at this midnight carnival. A twitch here, a stabbing ache there—such delightful party tricks. And of course, the nerves love to join in, turning everything into an electrifying circus of agony. It’s like my entire body is in open revolt—because why the hell not? Dairy? Oh, dairy’s the showstopper. One whiff of it and I’m stuck in an endless cycle of gut-wrenching bathroom performances that would make even the most jaded horror director cringe. There’s nothing quite like losing your insides while your nerves are throwing their own spasm-fueled mosh pit. Sometimes, when the pain’s at its peak and sleep is a distant dream, my mind wanders to that dark, seductive thought: death. Not that I’d actually go there—I cling to life out of sheer stubbornness or maybe spite. But in those raw, bleak moments, it’s hard not to wonder why this is all happening to me. But then again—why the hell not? Life’s a twisted carnival, after all, and every night’s just another ride on this endless, blood-curdling loop. And so I ramble on, because what else is there to do?

“The views in this post are based on my personal
experience. I do not intend harm, only honesty.”

It's 2 in the morning, and I've managed a whopping 20 minutes of sleep. What a treat! Looks like it's going to be another long night of tossing and turning. Sleep? What’s that? The pain in my stomach and lower intestines is off the charts, and breathing feels like a luxury I can’t afford. I’m just lying here, wondering if I’m going to survive the night. It’s a real joy, let me tell you—staring into the dark, clutching my pillow like it’s a life raft in a storm. Eventually, I might squeeze in a catnap until 6, if I’m lucky. Oh, and let’s not forget the delightful MS nerve pain that’s decided to throw a party in my body. The side of my throat is in spasm, and my left side is completely numb—because who doesn’t love a little extra excitement in the middle of the night? So, yeah, not exactly a good night.

        “The views in this post are based on my personal  
          experience. I do not intend harm, only honesty.”

Hello World, Right now, I’m in the middle of a pretty severe MS flare-up, and I have to say, it’s been a tough one. My whole left side is numb, like I’ve had a stroke—or at least, that’s what it feels like. My balance is completely off, and the cognitive stuff is intense. It’s taking me forever to type this, and my head feels like a bowl of pea soup—just foggy and heavy. Lately, the front of my chest on the left side has started to feel... weird. I don’t even know how to describe it, but it’s like electrical shocks, and the nerves are on overdrive. It’s a feeling of total “headfrack” that I’m having trouble explaining, but I wanted to put it out there. Also, as if things weren't challenging enough, my wheelchair broke down, so now I’m stuck waiting on a call from the wheelchair services. Could be a long wait. In the meantime, I’m on the hunt for a cheap secondhand Q100 wheelchair. If anyone has tips or knows where to look, let me know! sick@mylivinghell.co.uk

         “The views in this post are based on my personal  
          experience. I do not intend harm, only honesty.”

Welcome to the Dark, Brilliant, Weird Little Empire of Chronic Truth — ruled by none other than Warlock Dark. This is no ordinary blog. This is a bastion for the broken, a fortress of the funny-boned, a castle built from sarcasm, tea, and nerve damage. Here, the pain is real, the humour is darker than a GP's coffee, and the bladder never sleeps.

📅 THE REAL STUFF (No Bull, No Fluff)

MS isn’t just a condition. It’s a full-body existential prank. But for anyone newly diagnosed or wondering what the hell is happening to their nervous system, here’s a raw, real, non-terrifying breakdown:

Numbness & Tingling — Fingers, toes, tongue, lips, everywhere. Like being slowly frosted by invisible fairies with bad intentions.

Vision Problems — Blurry, ghosted, monocular mischief. Suddenly you're part-cyclops.

Muscle Weakness & Spasms — Legs fold, arms tremble, and occasionally you Riverdance in your sleep.

Fatigue — Not "tired." Obliterated. Drained like an iPhone from 2009.

Cognitive Wipeouts — Losing track of the day, words, names, or why you're in the fridge again.

Bladder Madness — Two-hour toilet timer. Never off-duty. Never apologetic.

Pain — Burning, stabbing, aching. No metaphors required. It just hurts.

🌿 THE NOT-INSANE NATURAL STUFF

Move It — Yoga, stretching, tai chi, or just rolling your neck while cursing the heavens.

Eat Real — Anti-inflammatory stuff helps. Leafy things. Omega-3s. Less deep-fried beige.

Sleep Like You Mean It — Proper rest. Screens off. Mind down. Rage optional.

Mind Rituals — Journaling, meditating, ranting to the void.

Talk — To people. To animals. To plants. To invisible gods. Whatever keeps you tethered.

🇬🇧 THE BRITISHLY BLEAK HUMOUR SECTION

You know how it is:

You wake up feeling like a boiled skeleton. You try to stand and your leg says, "LOL no." You make it to the loo just in time to almost make it. Your doctor smiles, hands you a leaflet written in 1986, and tells you to "try breathing exercises."

And yet... you persevere. With a teacup in one hand, and the raw, burning rage of 10,000 misfiring neurons in the other.

🕯️ QUOTES FROM WARLOCK DARK (Volume I)

"My nerves are not broken — they are wild serpents, and I am learning to speak their tongue."

"This is not weakness. This is weather. Storms live inside me."

"I have seen the gods. They were waiting for their prescription refills too."

"Fatigue is a form of time travel. You blink, and the day is gone."

"This chair is not my end. It’s my war beast. Roll me to the gates, I dare you."

"Magic lives in broken places. I’m practically radioactive."

✍️ OUTRO FROM THE CHRONIC THRONE

So yes — the tongue is numb, the bladder’s a traitor, and the storm never really stops. But the mind? Still alive. Still wired weird. Still writing.

Stay tuned for Volume II: "Fatigue & Other Black Magics"

And remember: this is not recovery. This is reclamation.

Long live the Warlock. Long live the Chronic Empire.

🔮 Warlock Dark’s Quotes from the Edge (A.K.A. Mind Melt Time) Now, let’s go full myth. Let’s make MS epic. Let’s reforge this thing into weird, beautiful, apocalyptic poetry — courtesy of Warlock Dark, the ancient spirit of pain, mischief, and inconvenient wisdom:

🕯️ “My nerves are not broken — they are wild serpents, and I am learning to speak their tongue.” — Warlock Dark

🕯️ “This body is a cathedral struck by lightning. I don’t need healing. I need worship.”

🕯️ “Doctors gave me a folder. I gave them a prophecy.”

🕯️ “I have seen the inside of time. It crackles, it burns, it forgets its own name. That is what fatigue tastes like.”

🕯️ “They call it multiple sclerosis. I call it the slow alchemy of becoming something unkillable.”

🕯️ “Yes, I forget what day it is. Time has no meaning in the Warlock’s garden — only the storms remain.”

🕯️ “My wheelchair is not a prison. It is a throne on wheels, gliding through the ruins of the ordinary.”

🕯️ “The gods don’t answer my prayers. They take notes.”

🕯️ Warlock Dark’s Arcane Quotes for the Chronically Bewitched (Collectible. Utterly unusable. Spiritually necessary.)

“My nerves are not broken — they are wild serpents, and I am learning to speak their tongue.” – Warlock Dark, Volume I: ‘The Tingle Codex’

“This is not weakness. This is weather. Storms live inside me.” – Warlock Dark, Volume II: ‘The Internal Forecast’

“I have seen the gods. They were waiting for their prescription refills too.” – Warlock Dark, Volume IV: ‘Waiting Room Rituals’

“Fatigue is a form of time travel. You blink, and the day is gone.” – Warlock Dark, Volume V: ‘Chronicles of the Missing Afternoon’

“This chair is not my end. It’s my war beast. Roll me to the gates, I dare you.” – Warlock Dark, Volume IX: ‘Battle Hymns for the Seated’

“Magic lives in broken places. I’m practically radioactive.” – Warlock Dark, Untitled Fragment, scrawled on a napkin and burned. The gods are deaf. The stars are mute. The dark is deep, and the dark is acute. But still—he speaks, in verse and venom, His tongue numb, but truth within 'em.

For even in ruin, the Warlock remains, Wreathed in electric storms and phantom chains. He writes his spells in blood and pain, And dares the void to speak his name.

looking to buy a cheap second hand q100 wheelcair or similar in the devon cornwall area as mine has gone completely to the breakers yard in the sky ... many thanks sick@mylivinghell.co.uk

       “The views in this post are based on my personal  
          experience. I do not intend harm, only honesty.”