Multiple sclerosis is My Living Hell
Posted on
• Uncategorized

Autumn, MS, Brain Fog & the My Living Hell Podcast | My Living Hell and a equinox poem

Author

🎗️ This Blog is a space for honest conversations about my personal experiences with MS, mental health, and the weird paranormal, liminal, and everything in between. I’m not a doctor, therapist, or expert in the unexplained; I’m just someone sharing my story and offering solidarity. If you’re struggling, please reach out to a trusted friend, support group, or professional. And if the weird stuff sparks your curiosity, remember: stay open-minded, but always prioritise your well-being.🎗️

please remember I suffer with severe cognitive dysfunction, and use AI to proof read and help solve this issue so you can understand it

Well it's Tuesday morning and we are heading towards autumn that time of the year of cold rain, fog, cold rain, fog and horrible weather. And I'm wishing all readers of this blog a very happy good morning afternoon evening no matter wherever you may be in the world or universe.

My Living Hell podcast lives

Well, the My Living Hell podcast lives. I've done all the tests, everything looks good, so we will be doing podcasts shortly. So that's excellent news, and I will be covering a wide range of subjects, not just multiple sclerosis and mental health, but also things to do with the paranormal and things people don't tell you about when you have MS, which is rather interesting.

Myelin Maniacs

Myelin Maniacs, well today, Tuesday, it will be the first recording. Yes, I have it on Great Authority from Stigsy that tonight we go and do some recordings for the podcast to be released when Stigsy has Done what he has to do to it. So in the next few weeks be looking on the Myelin Maniacs website and you might see the first podcasts. Yes, they will be coming soon and I shall let you know on the My Living Hell when these podcasts will be. It is going to be quite exciting and I'm looking forward to it and I'm going to be a co-host and I really am looking forward to putting my point of view, my personal point of view over and listening to other points of view and gaining understanding from other people about this strange illness that we seem to have that nobody really knows how we got it, nobody really knows how you cure it but it's there and we have to make the best of things.

So, here is a poem for Autumn or the Vernal Equinox.

Equinox, MS & the Fog

Tomorrow the seasons change. Autumn arrives with its usual dramatic entrance cold mornings, darker evenings, leaves falling everywhere as though the trees have finally had enough of life too. And then there's me. Still here. Still dealing with MS. Still trying to remember why the hell I walked into the kitchen. Brain fog. That wonderful little gift from MS where your brain apparently decides to close the office early without telling management. You know that feeling… You know you've got something to say, you know you knew what it was, you can almost reach it… And then nothing. Gone. Probably somewhere with my missing socks. The equinox is supposed to be about balance. Day and night standing equal. Funny thing is, MS doesn't seem particularly interested in balance. One day you're functioning, the next your body appears to have filed a formal complaint against you. Fatigue. Pain. Brain fog. The ridiculous uncertainty of not knowing what tomorrow is going to throw at you. And yet… the seasons keep changing. Summer quietly disappears. Autumn takes over. Winter waits around the corner like some bastard who knows you're coming. But perhaps there's something worth remembering in all this. The trees don't apologise for losing their leaves. They don't call themselves failures. They don't stare at the branches and wonder why they're not still green. They simply let go. And perhaps that's something those of us living with MS need to remember. Some days we'll have more to give. Some days we won't. Some days the brain fog will roll in so thick you couldn't find your arse with both hands and a map. And that's okay. Tomorrow night, the darkness will be a little longer. But darkness isn't the end of the story. It's just another part of it. So here's to the equinox. To autumn. To surviving another season with MS breathing down our necks. To the days when the brain works… and the days when it clearly has gone down the pub without telling us. And most importantly here's to still being here. Still fighting. Still laughing when we can. Still swearing when necessary. Still telling MS: “You're not getting the last word.” Not today. Not tomorrow. And certainly not while I've still got enough brain fog to write the bloody story.

Still, sending everybody peace, healing, love and light. and wishing everybody a happy autumn equinox when it arrives tomorrow. And let's hope that the weather will be fair and not foul. Oh, and a sudden thought, I'm going to be uploading a lot of music and it's all about MS and the effects, but it's done in sort of psychedelic weird lyrics and stuff. It's, well, come out of my head and gone into a music programme. So I will be posting some more up and that might be quite interesting.

Warlock Dark Chronic illness survivor, truth-teller, occasional bastard. From My Living Hell (For those who came here by accident: yes, my living hell is real. And yes, we still fight. Every shitty day. With defiance.)
This Is Not A Blog About MS 🎗️ This Is My Life With MS 🎗️

Tumblr is @livingwithmsblog twitter@livingwithms email warlock@mylivinghell.co.uk
𒀭𒊩𒆳 ᛞᚱᚨᚷᛟᚾ ᛏᚱᚨᚾᛋᚲᚺᚱᛁᛖᛞ ✦ ᚹᚨᛏᚲᚺᛖᚱ 𒀸𒀭 ᚢᚾᛒᛟᚢᚾᛞ
enter image description here