Multiple sclerosis  is My Living Hell
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Week One of the Apocalypse My Body Strikes Back

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⚠️ Please read with care: This blog shares personal, sometimes painful experiences. My intention is to support and speak honestly not to harm. I’m not a professional, just someone who understands how hard it can get. If you're struggling, you're not alone please reach out for professional help.

Ah, Monday. Everything in my body decided to go berserk overnight. MS? Revving its engine like it’s auditioning for the grand tour. Neck bone growths pressing on nerves? Check. An X-ray from ten years ago says hi. Time to see the doctor, I suppose if I survive the existential dread of the waiting room.

Strangulation sensations, head blips, tongue spasms oh, and the sweet bonus of not being able to catch my breath. Honestly, my body’s doing the kind of mad shit that would make anyone else file a formal complaint. I pity the doctors and nurses who have to deal with me. Truly. But hey, life’s a circus.

White‑coat syndrome is my sidekick. I talk to medical staff like a squirrel on espresso: chaotic, twitchy, and unintentionally antagonistic. My solution: write everything down. Hand the chaos over in neat little bullets. Works great—until I forget, which is pretty much guaranteed, and then I’m a full-blown, stressed-out disaster. Doctors are busy, complicated cases suck, I get it.

I’ve tried it all. Meds? Side effects so bad my body staged a protest. Seven-day hospital admission? Almost happened, but I said “fuck it” and walked. Holistic methods, lifestyle overhaul, mind-body-soul cleanse—my own brand of chaos control. Fix? Plumbstick there isn’t one. Options? Sure. Natural? Works for me.

Present me? Ambivalent, tethered to this illness 24/7. Tinnitus now “harmonizes” with Blondie, which is absurdly funny if you squint. Yopi is decompressing, slowly realising this is a loving home and not just a mildly terrifying human experiment. Fingers tingle. Tips go numb. Neck frozen solid. Chair = coffin. No work today small mercy. Big Rusty, the van, needs welding later. Life continues its beautiful joke.

Sky’s stormy blue. Smell of dog treats inexplicably on me. Vitamins? Taken. Hydration? Achieved. Creativity? Maybe later images, poems, whatever chaos I can conjure.

No solutions. No neat endings. Just a mess of body, mind, and dark humour plopped straight onto the page. F00k it, this is today.

I write in ink and fury, in breath and broken bone.
Through storm and silence, I survive. That is the crime and the miracle.

𒀭𒊩𒆳 ᚹᚨᚱᛚᛟᚲ ᛞᚨᚱᚲ ✦ 𒀭𒊩𒆳 ᚹᚨᛏᚲᚺᛖᚱ ᚨᛗᛟᚾᚷ ᚹᚨᛏᚲᚺᛖᚱᛋ
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